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All You Need is Lungs

@allyouneedislungs.bsky.social
618 followers 884 following 121 posts

A collaboration by 3 registered UK lung cancer charities | ALK+ UK, EGFR+ UK and Ruth Strauss Foundation | On a mission to raise awareness that anyone can get lung cancer | Read 26 real-life lung cancer stories → www.allyouneedislungs.org.uk

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Reposted by All You Need is Lungs
Lung Cancer Europe @lungcancereurope.bsky.social · 17/03/2026
To help us better understand unmet needs in small cell #lungcancer we’ve launched a 7-minute anonymous survey on experiences of diagnosis, treatment & support across Europe. Closes 31 March. Take part or share: lungcancereurope.typeform.com/SCLCLuCESurvey Please share! #LCSM #SCLC
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ALK Positive Lung Cancer UK @alkpositiveuk.bsky.social · 08/03/2026
Lung cancer is rising in young, non-smoking women yet many face misdiagnosis & delays, because it isn’t expected in people their age. This #InternationalWomensDay, let’s make #lungcancer in young, non-smoking women part of the conversation. 🙏 to our ALK+ UK commmunity for sharing their stories.
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ALK Positive Lung Cancer UK @alkpositiveuk.bsky.social · 04/03/2026
At @btog.bsky.social 2026 we’re sharing an evaluation of the See Through the Symptoms #lungcancer awareness campaign. It was developed by jointly by ALK+ UK, EGFR+ UK & the Ruth Strauss Foundation to encourage HCPs to consider lung cancer in people with persistent or unexplained symptoms. #LCSM
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All You Need is Lungs @allyouneedislungs.bsky.social · 11/02/2026
There’s growing agreement in the research that non-smoking #lungcancer is increasing and that our approaches to understanding and early detection haven’t kept pace. This Trends in Cancer piece brings a lot of that thinking together in one place. #LCSM 🔗 www.cell.com/trends/cance...
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ALK Positive Lung Cancer UK @alkpositiveuk.bsky.social · 12/01/2026
What if lung cancer wasn’t one of the less survivable cancers? This week is Less Survivable Cancers Awareness Week (12–16 Jan). #Lungcancer is one of these cancers, with outcomes still driven by late diagnosis, missed symptoms, & gaps in research & access. Earlier diagnosis can change survival.
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All You Need is Lungs @allyouneedislungs.bsky.social · 01/12/2025
As Lung Cancer Awareness Month ends, we’re reminded how badly #lungcancer awareness is needed all year. Huge thanks to our 2025 voices & to everyone who read, shared & supported 💟 Please take 1 minute to share your feedback: docs.google.com/forms/d/e/1F... #LCSM
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All You Need is Lungs @allyouneedislungs.bsky.social · 30/11/2025
This #LungCancer Awareness Month we wanted to focus on self-care - everyday things that help us get through the tough days. We didn’t expect how many of our volunteers would talk about their pets! So, we’re taking a moment for the furry supporters who make the hard days a bit lighter. #LCSM
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All You Need is Lungs @allyouneedislungs.bsky.social · 28/11/2025
Lovely to see Shaun & Julia in South East London Cancer Alliance’s new #lungcancer awareness campaign. Both of them are part of our 2025 All You Need Is Lungs 💟 campaign - it means a lot to see their voices reaching more people. SELCA have done a really thoughtful job with this campaign. #LCSM
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All You Need is Lungs @allyouneedislungs.bsky.social · 28/11/2025
On 1st August my diagnosis changed from NSCLC to #SCLC, ending my time on Osimertinib and starting chemo & immunotherapy. My first diagnosis in 2021 came after months of pain and being told it was tennis elbow or sciatica, until further tests confirmed EGFR+ Stage 4 #lungcancer. #LCSM
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All You Need is Lungs @allyouneedislungs.bsky.social · 25/11/2025
I went to my GP feeling breathless. A few weeks after diff tests, I was told it was stage 4 ALK+ #lungcancer. The diagnosis hit me & my family hard. It’s still a lot & hard not to think about it every day. But I’m doing the things I love again & trying not to let cancer take over my life. #LCSM
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All You Need is Lungs @allyouneedislungs.bsky.social · 23/11/2025
#Lungcancer wasn’t on my radar. I had no symptoms & my RET-fusion lung cancer was found by accident while I was in treatment for breast cancer. I also have bowel cancer - 3 primaries - which still feels surreal to say. Read Allison’s story ➡️ www.allyouneedislungs.org.uk/2025voices/a... #LCSM
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All You Need is Lungs @allyouneedislungs.bsky.social · 22/11/2025
Week 3 & we’ve passed 1 million views! 💟 Grateful to everyone who’s shared their #lungcancer story & everyone taking the time to read, like & share to raise awareness that anyone can get lung cancer. Read all 56 stories here ➡️ www.allyouneedislungs.org.uk/2025voices #LCSM
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All You Need is Lungs @allyouneedislungs.bsky.social · 21/11/2025
New in JAMA: large study shows many diagnosed with #lungcancer would never have been offered screening - often because they were younger or didn’t match the “expected” profile. Not just a US issue. Screening rules around the world still miss too many. Lung cancer can affect anyone with lungs. #LCSM
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All You Need is Lungs @allyouneedislungs.bsky.social · 20/11/2025
“Too many people like me are told they’re too young, too healthy, or too unlikely to have #lungcancer and that’s how cases get missed.” Debra, ALK+ UK Chair, shares why See Through the Symptoms is about being taken seriously, seen sooner, and diagnosed earlier. 🔗 seethroughthesymptoms.uk #LCSM
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All You Need is Lungs @allyouneedislungs.bsky.social · 19/11/2025
Since the early 1990s, #lungcancer rates in women in the UK have risen by around a third (34%). Lung cancer can affect anyone even younger people. Be alert to symptoms that don’t go away, like a cough that lingers, breathlessness, fatigue or chest/shoulder pain. Source: Cancer Research UK #LCSM
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All You Need is Lungs @allyouneedislungs.bsky.social · 17/11/2025
Catherine was diagnosed with stage 1 #lungcancer in 2019. She’d always been careful about her health, and it came as a big shock. In 2023 she was told it was stage 4 ROS1+ which meant her cancer could be treated with a daily targeted therapy. Thank you Catherine for sharing your story. #LCSM
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All You Need is Lungs @allyouneedislungs.bsky.social · 16/11/2025
Every day, 130 people in the UK are diagnosed with #lungcancer. That’s one person every 11 minutes. Lung cancer can affect anyone & spotting it early can make a real difference. Be alert to symptoms that don’t go away, like: a cough, breathlessness, fatigue, pain in chest/shoulder/back. #LCSM
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All You Need is Lungs @allyouneedislungs.bsky.social · 15/11/2025
In loving memory of Sophie ♡ Diagnosed with stage 4 EGFR+ #lungcancer at 24. She died this September aged 28. Shared with her family’s blessing. Her only early sign was a crackle in her chest at night. She felt well. Months of tests followed before she heard the word “cancer.” #LCSM
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ALK Positive Lung Cancer UK @alkpositiveuk.bsky.social · 13/11/2025
Our Chair Debra joins Rad Chat to talk about the run-up to her #lungcancer diagnosis, the early signs she didn’t recognise & why she went on to found ALK+ UK. She shares what the first mnths were like, the gap she saw in support, & how much has changed in 9 yrs. share.transistor.fm/s/8c25a0b0 #LCSM
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All You Need is Lungs @allyouneedislungs.bsky.social · 13/11/2025
Really helpful piece from @gatewayc.bsky.social on #lungcancer in never-smokers. Women in this group face a higher risk than men, yet symptoms are still overlooked or put down to something else. 🙏 Thanks for pointing to All You Need Is Lungs as a resource. #LCSM 🔗 www.linkedin.com/posts/gatewa...
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All You Need is Lungs @allyouneedislungs.bsky.social · 12/11/2025
By the time Jade was diagnosed with ALK+ #lungcancer, she’d been visiting her GP for four years with symptoms no one linked to lung cancer. If you’ve had a persistent cough, hoarseness or tiredness that won’t go away - don’t ignore it. Anyone can get lung cancer. 💟 #AllYouNeedIsLungs #LCAM
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All You Need is Lungs @allyouneedislungs.bsky.social · 11/11/2025
#Lungcancer is often found late. Spotting it early can make a big difference. Be alert to symptoms that don’t go away: cough, breathlessness, fatigue, chest/shoulder/back pain, hoarseness, unexplained weight loss. Staging shows how far the cancer has spread & helps doctors plan treatment. #LCSM
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All You Need is Lungs @allyouneedislungs.bsky.social · 10/11/2025
Cameron was diagnosed with stage 4 #lungcancer at 52. His symptoms were a persistent cough & fatigue. See Through the Symptoms is an award-winning awareness campaign - helping HCPs spot lung cancer early, even in people who don’t fit the usual profile. #LCSM www.seethroughthesymptoms.uk
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All You Need is Lungs @allyouneedislungs.bsky.social · 10/11/2025
Sarah thought her #lungcancer symptoms were the menopause. She was exhausted, dizzy and struggling with constant headaches. Even her neurologist thought it was menopause-related. A CT head scan “just to rule anything out” found 6 brain mets. And in 2024, she was diagnosed with stage 4 EGFR+. #LCSM
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All You Need is Lungs @allyouneedislungs.bsky.social · 09/11/2025
Gini, part of our All You Need Is Lungs team, shared her story in today’s Mail on Sunday. Her shoulder pain was put down to breastfeeding discomfort - but it turned out to be stage 4 EGFR+ #lungcancer. By speaking so openly, Gini is helping raise awareness that lung cancer can affect anyone. #LCSM
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All You Need is Lungs @allyouneedislungs.bsky.social · 08/11/2025
Too many families are affected by #lungcancer when it’s the last thing they expected. People doing all the right things & still missed. Deepa, from the Ruth Strauss Foundation, shares why See Through the Symptoms is about pausing, rethinking, and acting sooner. 👉 seethroughthesymptoms.uk #LCSM
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All You Need is Lungs @allyouneedislungs.bsky.social · 07/11/2025
Sylvie had back pain, shortness of breath & weight loss. She was told it was sciatica & sent home. A scan finally showed a mass in her lung - it was stage 4 ALK+ #lungcancer that had spread to her bones, liver, spine & lymph nodes. 💬 “I’d always assumed lung cancer & smoking went together.” #LCSM
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ALK Positive Lung Cancer UK @alkpositiveuk.bsky.social · 07/11/2025
Harriet was diagnosed with stage 4 ALK+ #lungcancer at 33 after fatigue & migraines. Now she finds balance through sound healing, meditation, & the support of those closest to her. As members of @lungcancereurope.bsky.social we’re sharing real stories from www.getchecked.eu #LCSM
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All You Need is Lungs @allyouneedislungs.bsky.social · 06/11/2025
#Lungcancer is still the UK’s leading cause of cancer death - yet awareness of the symptoms remains too low. The signs aren’t always what you’d expect or even respiratory. Listen to your body. Take changes seriously. If something feels off don’t assume it’s nothing - get it checked. #LCSM
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All You Need is Lungs @allyouneedislungs.bsky.social · 06/11/2025
Just 1 week until @btog.bsky.social’s non-smoking #lungcancer essential update with @ruthstraussfdn.bsky.social. 13th November - London. Register here www.btog.org/members/libr... #LCSM
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All You Need is Lungs @allyouneedislungs.bsky.social · 06/11/2025
Jaber was diagnosed with stage 4 #lungcancer at 37. His symptoms were breathlessness & a persistent cough. See Through the Symptoms is an award-winning lung cancer awareness campaign - helping healthcare professionals spot lung cancer early, even in people who don’t fit the usual profile. #LCSM
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All You Need is Lungs @allyouneedislungs.bsky.social · 05/11/2025
Julia has been living with stage 4 ROS1+ #lungcancer for almost 10 yrs. It started with what she thought was a chest infection, then pneumonia put her in ICU for 8 days. She’d also had shoulder pain for months, which she put down to sleeping awkwardly. She didn’t know it could be a symptom. #LCSM
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All You Need is Lungs @allyouneedislungs.bsky.social · 04/11/2025
Delighted to have our All You Need Is Lungs campaign recognised in the @uklungcancer.bsky.social #LungCancer supplement with the New Statesman, in a piece by Cathy Brokenshire & our team member Professor Gini Harrison. Read it here 👇 www.newstatesman.com/sponsored/20... #LCSM
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All You Need is Lungs @allyouneedislungs.bsky.social · 04/11/2025
A year of coughing led to Eve’s lung cancer diagnosis. Her cough was dismissed more than once - until further tests revealed stage 4 EGFR+ #lungcancer. Eve lives in the NE with her husband & 2 daughters. She loves yoga, Zumba, & travelling - ‘laughter with family & friends keeps me going’ #LCSM
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All You Need is Lungs @allyouneedislungs.bsky.social · 03/11/2025
#Lungcancer can affect anyone - even if it’s the last thing you’d expect. It doesn’t care about age, history or lifestyle. Symptoms aren’t always obvious they can be subtle & not always respiratory related. Don’t ignore signs that persist. Finding it early increases your options. #LCSM
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All You Need is Lungs @allyouneedislungs.bsky.social · 02/11/2025
Emma’s first sign of #lungcancer was numbness in her fingers. She was pregnant with her second son when the symptoms got worse & she was admitted to hospital. Tests eventually found stage 4 ALK-positive lung cancer that had spread to her brain. www.allyouneedislungs.org.uk/2025voices/e... #LCSM
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All You Need is Lungs @allyouneedislungs.bsky.social · 01/11/2025
It’s 1 November - the start of Lung Cancer Awareness Month and the launch of the third year of #AllYouNeedIsLungs! 💟 We’re sharing over 30 real voices this year - all ages & backgrounds who want others to recognise the signs sooner. Because lung cancer doesn’t have one face. #LCSM
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ALK Positive Lung Cancer UK @alkpositiveuk.bsky.social · 29/10/2025
🆕 UK study (MEDLEY) could change how #lungcancer is diagnosed. Researchers at the Uni of Leeds, funded by NIHR are testing whether people with lung symptoms should get a CT scan instead of a chest X-ray. Chest X-rays can give false negatives - showing everything looks fine when it isn’t. #LCSM
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All You Need is Lungs @allyouneedislungs.bsky.social · 28/10/2025
Do you have #lungcancer & no smoking history? Uni of Southampton are running an interview study (funded by Ruth Strauss Foundation) to understand the experiences & needs of people diagnosed with LC who have smoked <100 cigarettes in their life. southampton.qualtrics.com/jfe/form/SV_... #LCSM
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All You Need is Lungs @allyouneedislungs.bsky.social · 28/10/2025
Shaun, 54, was diagnosed with stage 4 ALK+ #lungcancer in 2022. “There was a 3 month period in which I ping-ponged between my GP and the local hospital, as they tried to identify the cause of my deteriorating condition.” #LCSM Read Shaun’s story 🔗 www.allyouneedislungs.org.uk/2025voices/p...
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All You Need is Lungs @allyouneedislungs.bsky.social · 26/10/2025
Ruth Strauss Foundation have grants up to £50,000 available for research into Non-Smoking #LungCancer; to improve understanding, diagnosis & quality of life 🫁 🗓️ Apply by 10 Jan 2026 #LCSM ruthstraussfoundation.com/grants-progr...
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All You Need is Lungs @allyouneedislungs.bsky.social · 25/10/2025
Too many people with #lungcancer are diagnosed late - not because they didn’t ask for help, but because no one thought it could be lung cancer. Angela, EGFR+ UK Non-Executive Chair, shares why we need professionals to look beyond the usual risk factors. 👉 seethroughthesymptoms.uk #LCSM
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All You Need is Lungs @allyouneedislungs.bsky.social · 25/10/2025
Huge moment for #AllYouNeedIsLungs 💟 A 🆕 JAMA review on #lungcancer in people with no smoking history highlights this campaign & our See Through the Symptoms, for helping to challenge stigma & encourage earlier diagnosis. #LCSM 📘 read the anstract jamanetwork.com/journals/jama/fullarticle/2840343
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All You Need is Lungs @allyouneedislungs.bsky.social · 24/10/2025
‘I’d had a persistent cough & shortness of breath - symptoms that just wouldn't go away. Finding out it was stage 4 #lungcancer was overwhelming, but I've always believed it's not over till it's over! That philosophy has carried me through the toughest moments & continues to.’ Kirsteen #LCSM
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ALK Positive Lung Cancer UK @alkpositiveuk.bsky.social · 24/10/2025
A major new JAMA review by Dr Catherine Murphy, Prof Ben Solomon & Prof Charles Swanton brings together global data on #lungcancer in people with no smoking history. Around 1 in 5 cases are ALK or EGFR-driven - highlighting the need for testing at diagnosis. #LCSM
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All You Need is Lungs @allyouneedislungs.bsky.social · 22/10/2025
GPs: did you know #lungcancer in people who have never smoked is now the UK’s 8th most common cause of cancer-related death? Our award-winning campaign See Through the Symptoms is back for 2025 - help spot the signs early. 👉 www.seethroughthesymptoms.uk #PrimaryCare #LCSM
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All You Need is Lungs @allyouneedislungs.bsky.social · 21/10/2025
New JAMA study shows #lungcancer in never-smokers is rising - esp among women - & often linked to EGFR & ALK mutations. Great visual by Dr Rishabh Jain 🙏 - featuring our campaigns All You Need Is Lungs & See Through the Symptoms. #LCSM allyouneedislungs.co.uk seethroughthesymptoms.uk
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All You Need is Lungs @allyouneedislungs.bsky.social · 20/10/2025
“I’m Emma, 51, a celebrant, radio presenter & event host. I was told I had no risk factors for #lungcancer. Then in April, a liquid biopsy confirmed stage 4 ALK+ lung cancer. I’m still finding my way & realising how much love & support mean.” www.allyouneedislungs.org.uk/2025voices/e... #LCSM
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ALK Positive Lung Cancer UK @alkpositiveuk.bsky.social · 20/10/2025
Even in children, ALK fusions drive #lungcancer - often with TP53 mutations. Rare, but it fits the pattern: ALK+ lung cancer skews young & isn’t linked to smoking. Everyone diagnosed deserves comprehensive molecular testing - age, history or assumptions shouldn’t decide who’s tested. #LCSM
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All You Need is Lungs @allyouneedislungs.bsky.social · 19/10/2025
GPs: did you know #lungcancer in never-smokers is now the UK’s 8th most common cause of cancer-related death? Our award-winning campaign See Through the Symptoms is back for 2025 - help spot the signs early. 👉 www.seethroughthesymptoms.uk #PrimaryCare #LCSM
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