iiinova — where your digital self keeps evolving

Sick Ness @sickness.bsky.social · 10/10/2026

Glad you could turn it into a small joy 💙🫂

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Sick Ness @sickness.bsky.social · 29/09/2026

Your morning view makes my day, thank you for sharing!

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Sick Ness @sickness.bsky.social · 28/09/2026

Crying is also a massive physical exertion (as well as an emotional exertion obvs), and can cause PEM...

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Sick Ness @sickness.bsky.social · 27/09/2026

The emotional exertion of all this will hit #pwME this week if it hasn't already. So rest up 💙🫂

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Sick Ness @sickness.bsky.social · 27/09/2026

Thank you to @natashadevon.bsky.social and @georgemonbiot.bsky.social (and @abrokenbattery.bsky.social !) Just cried my eyes out for the whole 9 minutes 😭 (will pay for that later) George's knowledge and Natasha's understanding of how invisible we are, as the perfect combo. Can't thank you enough.

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Sick Ness @sickness.bsky.social · 26/09/2026

And some of us were made permanently worse 🤷‍♀️🤷‍♀️

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George Monbiot @georgemonbiot.bsky.social · 24/09/2026

Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2 www.theguardian.com/commentisfre...

theguardian.com

Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot

Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot

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Sick Ness @sickness.bsky.social · 22/09/2026

Don't underestimate the hope that your original post has offered to pwME. Just to have someone who is interested in our experiences means the world. Thank you.

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Sick Ness @sickness.bsky.social · 21/09/2026

Thank you George, you really are a shining light and a great ally to pwME. I was dx in 2019 and offered a choice of cbt or GET. Zero support since.

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George Monbiot @georgemonbiot.bsky.social · 21/09/2026

Intending to write another column about the treatment of #ME/CFS patients this week, pegged to new research findings on the biological basis. My question for sufferers: Are any of you still being offered inappropriate (psych/GET etc) "treatments"? Please email george at monbiot dot info. Thanks.

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Sick Ness @sickness.bsky.social · 15/09/2026

I got PEM from eating a mochi once

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Sick Ness @sickness.bsky.social · 15/09/2026

Now is not the time for that sort of thing 😬

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Sick Ness @sickness.bsky.social · 10/09/2026

PEM, for me, is my body not responding to what my brain tells it to do, limbs heavy, insomnia, feeling unwell but not able to describe better than that, allodynia. Followed by worse stiffness and pain from fibro when the worst of the PEM is over. But pain is an exertion so fibro flares can cause PEM

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Sick Ness @sickness.bsky.social · 05/09/2026

I think that "inability to recover" is good for mild and moderate.

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Sick Ness @sickness.bsky.social · 04/09/2026

I find more salt / electrolytes stops me feeling nauseous and more able to drink water, especially in PEM

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Sick Ness @sickness.bsky.social · 03/09/2026

I spend all day,every day, stopping myself from doing things I want / need to do. #MEcfs

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wamesmecfs.bsky.social @wamesmecfs.bsky.social · 02/09/2026

MERUK invites ppl to take part in a survey abt cognitive dysfunction. They "are collecting anonymous quotes from individuals with confirmed or suspected ME/CFS on various core symptoms to be used at our discretion online, in print, and for internal organisational education." tinyurl.com/psa7npbe

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Sick Ness @sickness.bsky.social · 01/09/2026

The huge amount of privilege required to pace adequately is not recognised by medical professionals

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Sick Ness @sickness.bsky.social · 26/08/2026

I guess I prefer to think of it as my responsibility but not my fault?! 🤷‍♀️

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Sick Ness @sickness.bsky.social · 23/08/2026

It's not your fault. It's the illnesses fault.

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Hazie @hazie.bsky.social · 22/07/2026

The way ‘pacing’ is being framed is dangerously close to ‘self care’ Sometimes symptoms can be managed, sometimes they can’t. No amount of pacing will help if digesting food requires more energy than your body can produce. This is an illness, not a mindset. #MECFS #LongCovid

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Sick Ness @sickness.bsky.social · 11/07/2026

So sorry, its awful 💙🫂

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Sick Ness @sickness.bsky.social · 02/07/2026

PEM is an assault on the body that needs to be recovered from #MEcfs

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Sick Ness @sickness.bsky.social · 30/06/2026

My quads are sore because I tried to do a sudoko...

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Sick Ness @sickness.bsky.social · 27/06/2026

Not just acceptable - aspirational!

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Sick Ness @sickness.bsky.social · 26/06/2026

Glad I'm not alone with "fizzy body"!

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Sick Ness @sickness.bsky.social · 26/06/2026

Exactly, when I was dx fibro I thought it was bad but I could push through, that's what made my M.E bad enough to be dx

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Sick Ness @sickness.bsky.social · 25/06/2026

Life is not life when every day / hour is just another thing to get through. When even pleasurable things are to be paid for after. When every exertion is punishable. #MEcfs

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Sick Ness @sickness.bsky.social · 31/05/2026

If you can't do it twice, don't do it at all.

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William Stone @itswilliamstone.bsky.social · 18/05/2026

Tell me you studied mime without telling me you studied mime

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Sick Ness @sickness.bsky.social · 18/05/2026

@mrjamesob.bsky.social big landlords can afford to do repairs, but don't. They have the legal means to avoid it or put it off for as long as possible whilst still collecting rent. See the ongoing cladding scandal. Sorry to break it to you, but housing associations are some of the worst landlords.

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Sick Ness @sickness.bsky.social · 06/05/2026

That's lucky, because I am bitter and angry and sad.

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Sick Ness @sickness.bsky.social · 20/04/2026

This old man vomited A LOT and then didn't eat or drink anything for 4 days last week. Even the stress of having a sick pet was enough to wipe me out #MEcfs 💙😿

Black and white cat behind the bars of a pet carrier box, looking sorry for himself

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Katy B @katybrc.bsky.social · 19/04/2026

For the #ME orgs especially, most recently @meassociation.org.uk #pwME #MEAwareness #MEcfs

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