Sign in

Shubha Bala

@shubhab.bsky.social
170 followers 672 following 73 posts

Rad Ops movement person at MediaJustice. Board member at 18mr. Parent to non-speaking disabled kiddo and member of multi racial family. On a lifetime journey to embody Disability Justice, in public, so we can spiral up and learn and grow together.

PostsRepliesMedia
Reposted by Shubha Bala
Thinking Person's Guide to Autism @thinkingautism.com · 08/08/2026
Why not #ProfoundAutism? "I fear a label specific to him—for the purpose of ensuring the world understands how big his challenges are—will make him reconsider his entire perception of himself. A perception accurately grounded in self love and awesomeness." thinkingautismguide.com/2026/08/prof...
thinkingautismguide.com
“Profound Autism” Isn’t Going to Help the World Love A- the Way He Loves Himself — THINKING PERSON'S GUIDE TO AUTISM
What I want more than anything is a word or a term that will make other people love A- as much as we do, and as much as he does himself.
12811
Reposted by Shubha Bala
none of your twee spooky names impress me @24shaz.bsky.social · 27/08/2025
see in SCERTS you determine through observation [analyse] then action [apply] that knowledge to modify behaviour it is totally different to applied behaviour analysis because… someone found the thesaurus tool in word. other than that it’s the same.
SCERTS in action plan 

1. Determine communication stage 
2. Observation and planning 
3. SCERTS in action assessment forms
4. SCERTS in action outcomes and supports 
5. Design a SCERTS education plan
6. Collect data and modify plan
111
Shubha Bala @shubhab.bsky.social · 28/06/2025
#disability #autism #inclusion
I wish that everytime we talked about inclusion, we talked about exclusion. 

Because for some reason people think including all disabled children in school is controversial. 

But when you talk about exclusion, suddenly everyone is against it.
030
Shubha Bala @shubhab.bsky.social · 02/05/2025
And so we learned that everything we thought we knew was wrong. And sometimes that was about A-, or about parenting, or about autism, or about disabilities. But it quickly became about everything. About us - our relationship”. northstarandcompass.substack.com/p/the-story-... #autism #autistic
“And so we learned that everything we thought we knew was wrong. And sometimes that was about A-, or about parenting, or about autism, or about disabilities. But it quickly became about everything. About us - our relationship”.
010
Shubha Bala @shubhab.bsky.social · 24/04/2025
📣 Call for Submissions: “Loving Them Freely” Be part of the movement. Share with other caregivers through examples that we can love, and support #autistic kids with high-support needs exactly as they are. Deadline: June 30, 2025 Learn more at www.raisingfreeautisticpeople.org #disability
Call for Submissions - Loving them freely.
Be part of the movement.
Share with other caregivers through examples, that we can love, and support autistic kids with high-support needs exactly as they are.
For caregivers, teachers, support workers, etc, of autistic kids with high-support needs.
Deadline: June 30, 2025
Learn more at raisingfreeautisticpeople.org
020
Shubha Bala @shubhab.bsky.social · 11/04/2025
open.substack.com/pub/northsta... My latest substack! No good pull quotes. Just a journey of understanding and unpacking my #ableism in community every day. #nonspeaking #disability
open.substack.com
On Devon Price - take their work with a large grain of salt
Also request for Brooklyn connections, permissive parenting, personal troubadour, GPS tracker alt, maturity and growth, IEP meeting, eggs.
010
Reposted by Shubha Bala
Pete Buttigieg @petebuttigieg.bsky.social · 24/03/2025
From an operational security perspective, this is the highest level of fuckup imaginable. These people cannot keep America safe.
theatlantic.com
The Trump Administration Accidentally Texted Me Its War Plans
U.S. national-security leaders included me in a group chat about upcoming military strikes in Yemen. I didn’t think it could be real. Then the bombs started falling.
18894243511829
Shubha Bala @shubhab.bsky.social · 25/03/2025
We've launched raisingfreeautisticpeople.com! Autistic advocates, non-speakers, caregivers, as a starting point for those supporting autistic folks left out of most convos. Starting with a section on gestalt language processing that isn't speech-centric. #disability #neurodivergence #autism
raisingfreeautisticpeople.com
Raising Free Autistic People
Gestalt Language Processing is how some people, including many autistic folks, process language. We offer a non-oralist definition and resources - including echolalia outside of GLP. This was...
111
Shubha Bala @shubhab.bsky.social · 25/03/2025
We've launched raisingfreeautisticpeople.com ! We = autistic advocates, non-speakers, caregivers, as a starting point for those supporting autistic folks left out of most convos (non-speakers, etc). Starting with a section on gestalt language processing that isn't speech-centric.
raisingfreeautisticpeople.com
Raising Free Autistic People
Gestalt Language Processing is how some people, including many autistic folks, process language. We offer a non-oralist definition and resources - including echolalia outside of GLP. This was...
020
Reposted by Shubha Bala
Kelly @broadwaybabyto.bsky.social · 23/03/2025
this isn’t getting the media attention it needs & deserves. An anti vaxx NGO which was previously run by the current head of HHS has created a CDC clone website filled with deadly misinformation. Where is the coverage? Is this being investigated? People will fall for this & kids will be harmed
19145
Shubha Bala @shubhab.bsky.social · 21/03/2025
Because A- forced to us to realize that parenting is about seeing him for who he is, not for who another person is, which allowed us to let go of all the “shoulds”. And letting go of the “shoulds” makes parenting soooo much easier. #disability #parenting open.substack.com/pub/northsta...
Because A- forced to us to realize that parenting is about seeing him for who he is, not for who another person is, which allowed us to let go of all the “shoulds”. And letting go of the “shoulds” makes parenting soooo much easier. It’s how parenting should be for every child, and we’re lucky we had no choice.
010
Shubha Bala @shubhab.bsky.social · 07/03/2025
Spotify as communication #nonspeaking #autism #disability #aac from open.substack.com/pub/northsta...
So I give him my phone and I play “Good Day Sunshine” to cheer him up. He flips through the playlist, finds “Ain’t no Sunshine when she’s gone” and scrolls down to the line “anytime she goes away” and plays it a few times so I really get it.
030
Shubha Bala @shubhab.bsky.social · 07/03/2025
“I want disabled kids to be included in a meaningful way that includes belonging. So do parents of trans students. So do some parents of BIPOC kids, and parents of white kids who don't want racial segregation in our schools.” On cross movement solidarity for parents open.substack.com/pub/northsta...
I want disabled kids to be included in a meaningful way that includes belonging. So do parents of trans students. So do some parents of BIPOC kids, and parents of white kids who don't want racial segregation in our schools.
010
Shubha Bala @shubhab.bsky.social · 07/03/2025
“When A's older, if he wants to look back at his academic records, I want him to see what we felt about him, his strengths, and his abilities. I want him to see that we, on the record, believed in his inclusion and belonging.” Sharing our parent letter and IEP goals open.substack.com/pub/northsta...
When A's older, if he wants to look back at his academic records, I want him to see what we felt about him, his strengths, and his abilities. I want him to see that we, on the record, believed in his inclusion and belonging.
010
Shubha Bala @shubhab.bsky.social · 06/03/2025
“Ergo, if you're saying A-, or anyone like him, should be segregated then what you're actually saying is A- and people like him should always be segregated, even as an adult, out of society.” open.substack.com/pub/northsta... #ableism #inclusion #disabilityjustice
the only reason you could think segregating some students makes sense, is if you think some people shouldn’t in society at all. Ergo, if you're saying A-, or anyone like him, should be segregated then what you're actually saying is A- and people like him should always be segregated, even as an adult, out of society.
030
Shubha Bala @shubhab.bsky.social · 16/02/2025
@mashagessen.bsky.social ‘s piece made me realize I was well intentionedly taken in by the idea of making the “less evil” choice to save some. So I made this meme about how the less evil choice won’t save anyone, and will power authoritarians.
A train track with two forks. 1 person lying on the track on 1 side. 3 people lying on the track on the other side. You are standing at the fork in front of a lever deciding which way to make the train go. A train track with 2 forks and 1 person on 1 side of the fork and 3 on the often. but this time it’s a circle. Either way the train comes back. You are lying on the track too with a lever. The train will hit you and everyone. Stick figure money bags is smiling to the side.
010
Shubha Bala @shubhab.bsky.social · 14/02/2025
open.substack.com/pub/northsta... It’s another substack! About some things including how the NYC DOE has some infuriating “inclusion” performative allyship program with no inclusion, but stickers. #autism #disabilityjustice
open.substack.com
On the long, slow, evolution of "shine"
and BUILDing while we block, performative inclusion in NYC, Plain Language as politics, FUN, and empathy for parents drawn to 'profound autism' (even though it's harmful)
000
Shubha Bala @shubhab.bsky.social · 13/02/2025
There still aren’t any hilarious reviews for the Gulf of America on Google maps!! Come on internet people! You’re better than that!
020
Shubha Bala @shubhab.bsky.social · 01/02/2025
The Poor People's Campaign has Step 1 of their Medicaid fight this Monday! Join us to call Congress on Monday Feb 3! Sign up here for a call script and info about tracking your call. actionnetwork.org/forms/organi...
actionnetwork.org
Organize to Protect and Expand Medicaid: National Call-In Days to Congress
The Nonviolent Medicaid Army is conducting two national call-in days to Congress on Monday January 27 and Monday February 3. 25 million people were purged from Medicaid in the last two years of the...
010
Shubha Bala @shubhab.bsky.social · 31/01/2025
It's another Substack! Your one stop for bystander intervention in the face of harassment, and specific training for blocking ICE. And non-functional language; DOE fuckery; beautiful; care for everyone; I Am Every Good Thing; stuff to listen to. open.substack.com/pub/northsta...
Your one stop for bystander intervention in the face of harassment, and specific training for blocking ICE. And non-functional language; DOE fuckery; beautiful; care for...
010
Shubha Bala @shubhab.bsky.social · 23/01/2025
What are the best one stop shop round up of US disability news? It needs to be an email format (not a podcast or YouTube).
100
Shubha Bala @shubhab.bsky.social · 23/01/2025
#inclusion for us is about survival. “They've never even questioned that Black disabled people belong.” open.substack.com/pub/northsta... #disability #autism
open.substack.com
Inclusion, for us, is about survival
Inclusion, for us, is about survival.
020
Shubha Bala @shubhab.bsky.social · 20/01/2025
My substack has ALL the posts now, searchable by topics like AAC, Pictello, Disability Justice, Inclusion. Today's post on going slow and patiently, keeping liberation in mind, for our kid. But also for all of us. And some other musings from the week.
Screenshot that says On going slow and trusting the process.  "I can’t separate out the disability justice from the embodiment of it in our day to day lives." And on "more", systemic ableism, neurodiversity includes Mad, self-directed learning, etc."
010
Reposted by Shubha Bala
Tilde Swiñton @frandroid.tabnet.ca · 18/01/2025
Balls of steel.
001
Shubha Bala @shubhab.bsky.social · 17/01/2025
I moved my FB blog to Substack! Here’s one of my favs. Forms, adoption, immigration, belonging, meditation, Buddhism, autism. open.substack.com/pub/northsta...
open.substack.com
A story. Forms, adoption, immigration, belonging, meditation, Buddhism, autism.
I often wonder what it is about me and Daniel that we never had that moment of grief, or anger, or loss, around A- being autistic.
010
Shubha Bala @shubhab.bsky.social · 17/01/2025
Severance starts again finally!!!
000
Shubha Bala @shubhab.bsky.social · 15/01/2025
Don’t boil your plastic water bottles to get rid of the mold. (Is this how to use Bluesky?? Do people like this post??)
000
Reposted by Shubha Bala
Chronic Illness Humor @chronicillness.bsky.social · 14/01/2025
Source: @speedbumpcomic on Insta regarding American Healthcare System #americanhealthcare #ushealthcare #healthinsurance
Doctor taking to patient (who is in a gown and on doctor's table) "Don't worry - I'm happy to work with you to find an illness you CAN afford."
555456851
Shubha Bala @shubhab.bsky.social · 14/01/2025
Magically we only need $300 for this young immigrant to be able to sign up for her Georgia Tech cybersecurity courses! If we can do this asap she won’t miss a class! She came here on her own as a teen and has navigated her way through engineering. Got $20 please? www.gofundme.com/f/help-rokha...
gofundme.com
Donate to Help Rokhaya Finish Georgia Tech, organized by Shubha Bala
Help a young SIJS recipient pay the rest of her Georgia Tech tuition so she can get her C… Shubha Bala needs your support for Help Rokhaya Finish Georgia Tech
000
Shubha Bala @shubhab.bsky.social · 14/01/2025
Was I the last to know there’s a whole genre of mystery books where women newly own bookstores and get unwittingly wrapped up in murders they then have to solve??
000
Shubha Bala @shubhab.bsky.social · 13/01/2025
The most important thing I wrote. #Inclusion for my #disabled kid isn’t a feel good thing, it’s about survival. And people fighting against inclusion for their less marginalized white disabled kids are actively causing harm. www.facebook.com/share/18Z5B4...
facebook.com
Redirecting...
001
Shubha Bala @shubhab.bsky.social · 13/01/2025
Let’s celebrate and center how non speaking kids ARE communicating before jumping to how they need to (whether that’s SG AAC or other). Thafs part of doing away with a deficit model #autism #nonspeaking #criplanguage www.facebook.com/share/1GcTim...
facebook.com
Redirecting...
000
Reposted by Shubha Bala
Joyner Emerick @mx-joyner.bsky.social · 13/01/2025
Calling back this podcast episode of Integrated Schools where @shubhab.bsky.social and I talked about Disability Justice and Special Ed. integratedschools.org/podcast/s9e1...
integratedschools.org
S9E14 - The Intersections of Disability, Race, and Segregation - Integrated Schools
We often talk about school segregation from a racial and /or class perspective, but an equally concerning issue is the segregation of kids based on dis/ability.  And while many disabled students are m...
041
Shubha Bala @shubhab.bsky.social · 12/01/2025
Somehow randos on Reddit actually solved my plantar fasciitis in a way that months of PT and a podiatrist didn’t!
010
Reposted by Shubha Bala
CommunicationFIRST @communicationfirst.bsky.social · 11/01/2025
Help us fight for #DisabilityRights and #CommunicationAccess! CommunicationFIRST is hiring for two full-time roles: Community Engagement Associate and Policy Director/Associate. Please share! lnk.to/cjob
View from above of four pairs of hands, each holding a different kind of electronic device (tablet, cell phone, or laptop) with forearms resting on a wooden table.
164
Shubha Bala @shubhab.bsky.social · 11/01/2025
A young person I worked with to help get immigration needs help! She just needs another $2,111 to be able to sign up for this semester at Georgia Tech! I know her personally, and have worked with her directly. We can do this! www.gofundme.com/f/help-rokha...
gofundme.com
Donate to Help Rokhaya Finish Georgia Tech, organized by Shubha Bala
Help a young SIJS recipient pay the rest of her Georgia Tech tuition so she can get her C… Shubha Bala needs your support for Help Rokhaya Finish Georgia Tech
010
Shubha Bala @shubhab.bsky.social · 11/01/2025
Focusing on a “better than ABA” framework, like SCERTS, to “teach #autistic kids” is a way to keep autistic kids warehoused. A framework, no matter how nice it is, is dehumanizing. It says all allistic kids can learn together, but the autistic ones are “special” so they have to learn over here.
051
Reposted by Shubha Bala
Aura Bogado @aurabogado.bsky.social · 20/12/2024
I was unexpectedly laid off from @motherjones.com on Friday the 13th. I’ve been deprived of direct access to my Google Drive, which contains seven years worth of work. I am also ineligible for unemployment. This is a terrible Christmas for me and my family. If you have leads for work, pls lmk.
15223491007
Shubha Bala @shubhab.bsky.social · 21/11/2024
@chalkbeat.org Im so upset! Recent article on special Ed features an “expert” from the Heritage Foundation on how we need to fix special Ed! AND another org with ties to Moms for Liberty! As if this is just normal perspective now! Mistake? Or is this our world now? www.chalkbeat.org/2024/11/20/s...
chalkbeat.org
With Trump heading to White House, some push private school choice to fix special ed shortages
Some say the federal government should give schools more to cover the cost of educating kids with disabilities. Others say parents should be able to decide how to spend existing public funds.
200
Reposted by Shubha Bala
Read the book Read Raising Expectations (and Raising Hell) @jphillll.bsky.social · 18/11/2024
Spotted on the subway:
Sign reading: skip the fare? expect the death penalty. On septmeber 15th the NYPD shot two people over the $2.90 fare
13468461219
Shubha Bala @shubhab.bsky.social · 16/11/2024
Boycott Shopify!
000
Shubha Bala @shubhab.bsky.social · 16/11/2024
I’m someone who’s never used X or Twitter leaving me amusingly confused by all these new traditions! I feel like a person who just saw a huge mass of folks running from one building to another, and I joined them to figure out what’s going on, and now I’m like “Wait…. who are you? Where am I?”
030
Shubha Bala @shubhab.bsky.social · 16/11/2024
“The radical and the liberal. when each thinks they do not need the other, the work usually falls apart and the conservative usually wins. The conservative only needs the liberal as a kind of patsy, branding them a radical as soon as they are not needed.”
000
Shubha Bala @shubhab.bsky.social · 16/11/2024
I don’t know why this story isn’t getting more air time! “The movements of the supposed bear were not convincing, said Tim Daly, a spokesman for the department, who also said the suit appeared to be “ill fitting.” www.nytimes.com/2024/11/14/u...
nytimes.com
Human in Bear Suit Was Used to Defraud Insurance Companies, Officials Say
Footage of a bear rifling through luxury cars was submitted to insurance companies, which paid out $140,000. But something seemed off.
100
Reposted by Shubha Bala
David M. Perry @lollardfish.bsky.social · 16/11/2024
“The Aristocrats”
2606
Reposted by Shubha Bala
Alexandria Ocasio-Cortez @aoc.bsky.social · 11/11/2024
Thank you for the tip! Just turned it on 👍🏽
1299508580
Shubha Bala @shubhab.bsky.social · 15/11/2024
When I googled “bake tea towel” I did not mean a tea towel for baking I meant what the hell do I do when I accidentally baked a tea towel. (My answer was to throw it away).
000
Shubha Bala @shubhab.bsky.social · 15/11/2024
For those worried about the “future of education” for their disabled kids, know that it was only working for your kid. People have been doing the work to support “unteachables” for centuries. Now your kid may become one too. open.spotify.com/track/6Wd4Zl...
open.spotify.com
Better Git Yer Learnin'
Our Native Daughters, Rhiannon Giddens · Songs of Our Native Daughters · Song · 2019
120
Shubha Bala @shubhab.bsky.social · 15/11/2024
NYC pays 5 disabled artists to make public art. Which is nice. But this city keeps disabled students away from everyone else - so much that we’re the only city that even has a seperate district just for them - and then when disabled people are adults with a lifetime of segregation we say “nice art!”
020