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Shared Umbrellas

@sharedumbrellas.bsky.social
230 followers 568 following 38 posts

Supporting those proving extra care for themselves or a loved one. It can be isolating and often extremely challenging, now more than ever in these times of uncertain funding. You are not alone. Let’s help each other. #Disability #ChronicIllness #CareGiver

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Shared Umbrellas @sharedumbrellas.bsky.social · 03/10/2026
“A Massive Power Grab”: White House Proposal Threatens Funding That Helps Disabled Americans Vote www.propublica.org/article/disa... #disability
propublica.org
This White House Plan Threatens Funding That Helps Disabled Americans Vote
A new rule from the Office of Management and Budget would prohibit anyone from using federal grant money for voter registration drives. It’s part of the Trump administration’s broader efforts to restr...
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Alzheimer's Association @alzassociation.bsky.social · 09/07/2026
Extreme heat can have an impact on everyone’s safety, but these conditions can be especially stressful for people living with Alzheimer’s and other dementias. With temps rising this summer, we have a few tips to help: alz.org/emergency. #ENDALZ
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Shared Umbrellas @sharedumbrellas.bsky.social · 04/07/2026
apnews.com/article/trum... #disability
apnews.com
Trump's actions signal a move toward institutionalizing people with disabilities, advocates warn
For decades, disabled people have fought for their rights to go to school and live alongside peers without disabilities.
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Shared Umbrellas @sharedumbrellas.bsky.social · 04/07/2026
suncommunitynews.com/news/126415/... #caregiver #disability
suncommunitynews.com
Gillibrand introduces legislation to support direct care workforce
WASHINGTON, D.C. | Sen. Kirsten Gillibrand (D-NY) introduced legislation to support direct care workers and family caregivers.
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Stand Up for Science! @standupforscience.net · 27/06/2026
Our analysis found that the White House's proposed OMB regulations would threaten nearly 5,000 clinical trials. This includes more than 1,000 cancer treatment studies. Join the fight by taking action against the OMB grant funding proposal at the link in our bio! #standupforscience #vought #omb
Graphic highlighting a Scientific American article about a Stand Up for Science analysis finding that proposed White House regulations could threaten nearly 5,000 clinical trials, including more than 1,000 cancer treatment studies. The image shows Russell Vought and urges viewers to “Stop Vought. Save Science.” Calls to action encourage contacting Congress, submitting a public comment, and supporting the fight for science.
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Shared Umbrellas @sharedumbrellas.bsky.social · 28/06/2026
5calls.org/issue/disabi... #disability #disabilityjustice #disabilitylaw #disabilityrights #caregiver #longtermcare
5calls.org
Defend Disability Rights Against DOJ's Attack ⭑ 5 Calls
For nearly 27 years, the Supreme Court’s landmark 1999 decision in Olmstead v. L.C. has protected Americans with disabilities from being forced …
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Shared Umbrellas @sharedumbrellas.bsky.social · 03/06/2026
Congratulations to Josh Turek! #disability #paralympics
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Shared Umbrellas @sharedumbrellas.bsky.social · 02/06/2026
homehealthcarenews.com/2026/06/cms-...
homehealthcarenews.com
CMS Announces 80-Hour Medicaid Work Requirement Amid Home Care Concerns
On Monday, the Centers for Medicare & Medicaid Services (CMS) announced an interim final rule that requires certain adult Medicaid beneficiaries to
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Shared Umbrellas @sharedumbrellas.bsky.social · 02/06/2026
www.protectourcare.org/one-year-lat...
protectourcare.org
One Year Later: Caregivers Getting Crushed Under GOP Cuts — Protect Our Care
Nearly one year ago, Donald Trump and Republicans made the largest cuts to health care in history, slashing over $1 trillion from Medicaid and the Affordable Care Act to fund...
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Shared Umbrellas @sharedumbrellas.bsky.social · 02/06/2026
www.eurekalert.org/news-release...
eurekalert.org
A smarter home could ease the strain of dementia care
Texas A&M University researchers are developing a smart home system to help people living with dementia stay safer at home and alert caregivers to problems such as falls, wandering and kitchen haz...
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Shared Umbrellas @sharedumbrellas.bsky.social · 21/05/2026
dredf.org/disability-o...
dredf.org
Disability Organizations Call on Congress to Prioritize Care, Access, Representation and Basic Dignity, not Violence and Detention - DREDF
Disability Rights Education & Defense Fund
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Shared Umbrellas @sharedumbrellas.bsky.social · 20/05/2026
thehill.com/opinion/heal...
thehill.com
The caregivers you’ve never heard of are in crisis
This workforce and the home and community-based care system that supports them is in crisis.
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Shared Umbrellas @sharedumbrellas.bsky.social · 19/05/2026
minneapolimedia.town.news/g/coon-rapid...
minneapolimedia.town.news
The Power of Her: Natalie Beazer is building an oasis for neurodivergent adults in the landscape of Minnesota’s fragmented disability care. | MinneapoliMedia
Natalie Beazer’s NeuroNest initiative is reimagining disability care through community-centered housing, neurodiversity advocacy, and multi-generational support.
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Shared Umbrellas @sharedumbrellas.bsky.social · 19/05/2026
www.aapd.com/leading-disa...
aapd.com
Leading Disability Organizations: Delaying Section 504 Compliance is Unacceptable - AAPD
For Immediate Release: May 18, 2026 Contact: Naomi Hess, communications@aapd.com; 202-873-4011 WASHINGTON, DC — AAPD and the undersigned disability and civil rights organizations are profoundly disapp...
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Shared Umbrellas @sharedumbrellas.bsky.social · 19/05/2026
www.goodnewsnetwork.org/celebrating-...
goodnewsnetwork.org
Celebrating 15 Years of Matching Disabled Youth with College Athletes–Over 4,500 Kids Discover the Power of Belonging - Good News Network
Since 2011, a Boston-based nonprofit Team IMPACT has matched more than 4,500 children facing serious illness and disability with college teams across the U.S.—transforming lives through the power of b...
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Shared Umbrellas @sharedumbrellas.bsky.social · 28/04/2026
www.propublica.org/article/trum...
propublica.org
The Trump Administration Aims to Penalize Disabled Adults Who Live With Their Families
A rule change pushed by White House officials would slash benefits or end support for as many as 400,000 Supplemental Security Income recipients with Down syndrome, dementia and other disabilities who...
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Shared Umbrellas @sharedumbrellas.bsky.social · 15/03/2026
thesicktimes.org/2026/03/12/a...
thesicktimes.org
A new aid in the doctor’s office: Introducing the Long COVID Treatment Guide - The Sick Times
Too often, people with Long COVID hear that since clinical research is still underway, not much can be done for them at this point. We at the Patient-Led Research Collaborative and RTHM Clinic reject ...
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COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 15/03/2026
Today is International #LongCOVIDAwarenessDay — a global moment to come together in coordinated #LongCOVIDAwareness and action. Learn more about the #LongCOVIDAwarenessDay and how the COVID-19 Longhauler Advocacy Project serves the Long COVID community here: youtu.be/beWDeldUlOY?... ⬇️
youtu.be
March 15th is International #LongCOVIDAwarenessDay!
YouTube video by COVID-19 Longhauler Advocacy Project
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Shared Umbrellas @sharedumbrellas.bsky.social · 12/02/2026
www.elpasoinc.com/news/local_n...
elpasoinc.com
El Paso high schoolers develop app to aid caregivers
Watching family members struggle with long-term illnesses left two El Paso teens searching for a way to help, and their shared passion for coding became their answer.
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Island Ron @island-ron.bsky.social · 12/02/2026
Thank you to caregivers whose steadfast commitment provides comfort and dignity each day. Your service strengthens families and communities. Remember to rest, seek support, and protect your well-being—sustained care is rooted in sustained strength. #Caregivers #Caregiving
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Eve Castle @evecastle.bsky.social · 12/02/2026
People must have zero financial resources to qualify for Medicaid. Yet changes requiring them to work/volunteer for 80 hours/monthly is coming. Many of them are caregivers for spouses/children that are 100% disabled. Our country is in decline. apple.news/AAQBz6KcBSa-...
apple.news
New Medicaid Work Rules Likely To Hit Middle-Aged Adults Hard — KFF Health News
Republicans have said new rules requiring many Medicaid participants to work 80 hours a month will pinpoint unemployed young people who should have jobs. Policy researchers say the rules are more like...
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Shared Umbrellas @sharedumbrellas.bsky.social · 26/01/2026
www.statnews.com/2026/01/23/k...
statnews.com
Key autism committee is being reshaped to support Kennedy's vaccine agenda, researchers and advocates fear
Researchers and advocates fear a key autism committee is being reshaped to support Kennedy's vaccine agenda.
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Miles W. Griffis @mileswgriffis.bsky.social · 16/11/2025
Rest in peace, Alice Wong 🕊️ thesicktimes.org/2025/11/15/a...
thesicktimes.org
Alice Wong, disability activist and luminary, dies at 51 - The Sick Times
Alice Wong platformed and uplifted people with Long COVID in her final chapter as a lifelong disability advocate and storyteller.
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Forbes @forbes.com · 14/08/2025
Knight is one of America’s most generous philanthropists, according to Forbes data, donating billions of dollars to educational institutions throughout his life.
forbes.com
Nike Co-Founder Phil Knight Gifts $2 Billion To Oregon Cancer Institute—The Largest University Donation Ever
Knight is one of America’s most generous philanthropists, according to Forbes data, donating billions of dollars to educational institutions throughout his life.
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Shared Umbrellas @sharedumbrellas.bsky.social · 08/08/2025
Absolutely devastating for so many families.
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Reuters @reuters.com · 25/07/2025
Health Secretary Kennedy to oust advisory panel on cancer screenings, HIV prevention drugs, WSJ reports reut.rs/452or6u
reut.rs
Health Secretary Kennedy to oust advisory panel on cancer screenings, HIV prevention drugs, WSJ reports
Health Secretary Robert F. Kennedy Jr. is planning to remove all the members of an advisory panel that determines what cancer screenings and other preventive health measures insurers must cover, the Wall Street Journal reported on Friday, citing people familiar with the matter.
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Mother Jones @motherjones.com · 17/07/2025
The White House's war on disabled Americans continues, going above and beyond Project 2025—now with attacks on a popular hiring program no one even lobbied against.
motherjones.com
Labor Department moves to end disability hiring goal for federal contractors
Secretary Lori Chavez-DeRemer plans to axe a longstanding, successful incentive program for disabled workers.
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WebGyver 🦋 @webgyver.bsky.social · 13/06/2025
kffhealthnews.org/morning-brea...
kffhealthnews.org
Teen Wins Supreme Court Case Over Disability Accommodations At School - KFF Health News
In Thursday's ruling, justices unanimously agreed that the burden placed on students to prove their school is not meeting their disability accommodations is too high. In other news: "Wheelchair rules"...
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Citizen Portal News Pennsylvania @citizenptnewspa.bsky.social · 13/06/2025
Pennsylvania is leading the charge for inclusivity by mandating wheelchair-accessible spaces at public electric vehicle charging stations! Click to read more! #PA #CitizenPortal #PublicSafety #ElectricVehicles #DisabilityRights #PennsylvaniaAccessibility
citizenportal.ai
Pennsylvania General Assembly mandates handicapped parking at electric vehicle charging stations
New bill requires wheelchair-accessible spaces at public electric vehicle charging stations in Pennsylvania
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Shared Umbrellas @sharedumbrellas.bsky.social · 11/06/2025
Good news!
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Kate Violette @kateviolette.com · 09/06/2025
There needs to be five-alarm level public health messaging about this. This was published in JAMA -- the Journal of the American Medical Association -- last month. jamanetwork.com/journals/jam...
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Rachael Zubal-Ruggieri @razubal.bsky.social · 09/06/2025
"White House rhetoric dehumanizes disabled communities, but activists continue to organize for access, care and justice." Great excerpt from new book, "How to Be Disabled in a Pandemic." Link to Open Access version of the book in comments.
truthout.org
Disability Activists Bring Wisdom From the Pandemic to New Struggles Under Trump
White House rhetoric dehumanizes disabled communities, but activists continue to organize for access, care and justice.
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Shared Umbrellas @sharedumbrellas.bsky.social · 12/05/2025
www.rawstory.com/rick-scott-m... Some members of Congress either don’t understand who Medicaid serves or don’t care. Tell them your story. It provides essential support for disabled and elderly Americans. 5calls.org is a good way to take action. #handsoffmedicaid #momsky #savemedicaid #disabilitysky
rawstory.com
'Sit on their butt at home': Republican smears Medicaid recipients in call for cuts
Sen. Rick Scott (R-FL) demanded cuts to Medicaid spending because he claimed recipients "sit on their butt at home."While speaking to right-wing influencer Charlie Kirk on Monday, Scott rejected calls...
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NPR @npr.org · 08/05/2025
The National Institutes of Health will partner with the Centers for Medicare and Medicaid to create a database of Americans with autism, using insurance claims, medical records and smartwatch data.
npr.org
RFK Jr. says autism database will use Medicare and Medicaid info
The National Institutes of Health will partner with the Centers for Medicare and Medicaid to create a database of Americans with autism, using insurance claims, medical records and smartwatch data.
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Shared Umbrellas @sharedumbrellas.bsky.social · 08/05/2025
www.motherjones.com/politics/202...
motherjones.com
The case that could gut disabled people's right to equal health care
The notoriously conservative Fifth Circuit will rule on whether it's a civil rights violation to deny a quadriplegic man a ventilator.
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Shared Umbrellas @sharedumbrellas.bsky.social · 08/05/2025
chicago.suntimes.com/politics/202...
chicago.suntimes.com
In response to RFK Jr., Pritzker signs first in nation executive order protecting autism data
The governor's office said the executive order is in response to rising concerns about efforts to create federal autism registries or databases without legal safeguards or accountability.
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Thinking Person's Guide to Autism @thinkingautism.com · 08/05/2025
"The Republican-controlled Congress, backed by the president, is planning radical cuts to Medicaid, & there’s nothing more important for autistic ppl, their families & everyone with any disability or a loved one with a significant disability." @lollardfish.bsky.social: www.msnbc.com/opinion/msnb...
msnbc.com
Opinion | RFK Jr.‘s ignorance about autism is bad enough. Republicans’ Medicaid cuts are worse.
Proposed reductions will have terrible consequences for autistic people and their families.
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Christopher Webb @cwebbonline.com · 08/05/2025
Killing Medicaid kills healthcare in rural communities. No Medicaid = no hospitals. No doctors. No care. #ProtectMedicaid
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Disability Related Resources @disrelres.bsky.social · 01/05/2025
Global Accessibility Awareness Day-let’s celebrate. Thursday, May 15! The purpose of GAAD is to get everyone talking, thinking and learning about digital access and inclusion, and the more than One Billion people with disabilities/impairments. Spread the word. #Disability accessibility.day
accessibility.day
GAAD
Thursday, May 15, 2025, help us celebrate the 14th Global Accessibility Awareness Day (GAAD)! The purpose of GAAD is to get everyone talking, thinking and learning about digital access and inclusion, ...
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Disability Related Resources @disrelres.bsky.social · 02/05/2025
The Americans with Disabilities Act (ADA) is divided into five sections. These describe the rights of people with disabilities and the responsibilities of governments, businesses, and organizations covered by the law. Please review them here: adata.org/enforcing-th... #Disability
adata.org
Enforcing the Americans With Disabilities Act
(Printer-friendly PDF version | 369 KB) (Large Print PDF version | 352 KB) (Spanish version) The Americans with Disabilities Act (ADA) is divided into five sections, which are known as titles. These
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Cleveland Clinic @clevelandclinic.bsky.social · 02/05/2025
Grief is a natural response to any kind of loss. People experience it in different ways, but typically, it includes a variety of intense emotions, like sadness, anger, irritability and guilt. Learn more about each stage + ways to cope: cle.clinic/42GOa4D
cle.clinic
What Are the Stages of Grief?
There’s no way around it: Grief is never easy. A clinical psychologist explains the five stages of grief, including what they are, how they manifest and when to seek support from a therapist who can help you cope.
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Andrea Ducas @andreaducas.bsky.social · 30/04/2025
Medicaid expansion and the tax credits people get to buy marketplace insurance on their own are BOTH in GOP crosshairs. We could see a double-whammy of millions losing coverage and millions more seeing their premiums spike by thousands. CAP's latest here: www.americanprogress.org/article/cong...
americanprogress.org
Congressional Republicans’ Health Care Plans Will Rip Away Coverage and Increase Costs
Republican plans to slash Medicaid funding and let the enhanced Affordable Care Act premium tax credits expire will increase insurance costs for millions of Americans.
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Natasha Murphy @nzmurphy.bsky.social · 29/04/2025
Many rural hospitals are already at financial risk. Medicaid cuts could push 190 rural hospitals in 34 expansion states over the edge, forcing closures and harming communities. Read the latest with @kierrajones.bsky.social and @andreaducas.bsky.social www.americanprogress.org/article/medi...
americanprogress.org
Medicaid Cuts Would Threaten Rural Hospitals
190 rural hospitals in 34 Medicaid expansion states are at immediate risk of closure. Slashing Medicaid could push them over the edge.
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Caring Across Generations @caringacross.org · 29/04/2025
Our @nicolejorwic.bsky.social is right—we must #ProtectMedicaid and other essential programs so that older adults can lead safe, independent, and healthy lives in their own homes and communities. www.theguardian.com/environment/...
An informational image featuring a quote about the implications of proposed budget cuts on Meals on Wheels programs, attributed to senior advocacy campaigns. The text cites several news sources including The Guardian and mentions concerns about the impact on senior citizens in the United States.
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Alzheimer's Association @alzassociation.bsky.social · 29/04/2025
Caring for someone with Alzheimer’s is exceptionally demanding. Repost in support of the nearly 12 million family and friends who provide care to someone with dementia. #AlzheimersInAmerica #ENDALZ
Nearly 12 million Americans provide unpaid care for people with Alzheimer’s or other dementias.
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Shared Umbrellas @sharedumbrellas.bsky.social · 29/04/2025
See what is possible when kids who need some extra support get it. Don’t cut IDEA funding in schools!
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National Council on Independent Living @ncil.bsky.social · 28/04/2025
A new report warns that potential budget cuts to Medicaid and SNAP could trigger severe economic consequences. If implemented, these cuts could lead to 1 million jobs lost, a $113 billion decline in states’ GDP, and $8.8 billion in lost state and local tax revenue in 2026. More: bit.ly/44wIz2b
bit.ly
NEW REPORT: Federal Medicaid and SNAP Cuts Could Result in One Million Jobs Lost and State GDPs Falling by More than $110 Billion in 2026 | Milken Institute School of Public Health | The George Washin...
New report warns that potential budget cuts to Medicaid and SNAP could trigger severe economic consequences across all 50 states and the District of Columbia.
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Shared Umbrellas @sharedumbrellas.bsky.social · 28/04/2025
www.eurekalert.org/news-release...
eurekalert.org
Coalition of Autism Scientists critiques US Department of Health and Human Services Autism Research Initiative
The newly formed Coalition of Autism Scientists (160 members and counting) today issued a statement in response to remarks and actions taken by Robert F. Kennedy, Jr., Secretary of the U.S. Department...
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Shared Umbrellas @sharedumbrellas.bsky.social · 28/04/2025
www.cbsnews.com/news/nih-lay...
cbsnews.com
How cuts at the National Institutes of Health could impact Americans' health
Cuts and layoffs to the National Institutes of Health threaten medical research around the U.S., agency insiders warn.
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