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Severe ME Difrifol Cymru @severemecymru.bsky.social · 28/09/2026

Ydych chi’n byw yng Nghymru? Hoffech chi ddarganfod beth mae'r gwasanaethau ME a Covid Hir newydd a ariennir gan Lywodraeth Cymru yn cynnig i gleifion yn lleol? Dewch ac ymunwch â'r webinar nesaf gan Lleisiau ME Cymru - Dydd Gwener, Hydref 2il 12.30-1.30yp. tinyurl.com/bdndpr 1/3

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Severe ME Difrifol Cymru @severemecymru.bsky.social · 28/09/2026

Do you live in Wales? Want to find out what the new Welsh Gov funded #ME and #LongCovid services are offering for patients at local level? Come and join the next ME Voices Wales webinar on Friday October 2nd 12.30-1.30pm. tinyurl.com/bdndprdr 1/3

tinyurl.com

Microsoft Virtual Events Powered by Teams

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Severe ME Difrifol Cymru @severemecymru.bsky.social · 01/09/2026

There’s still time to sign up for tomorrow’s webinar with Cardiff & Vale’s #ME / #LongCovid Service! tinyurl.com/4898cbfk Mae yna dal amser i gofrestru ar gyfer gweminar yfory gyda Gwasanaeth ME / COVID Hir Caerdydd a'r Fro! Registration closes at 9am 2nd September. #pwme

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Severe ME Difrifol Cymru @severemecymru.bsky.social · 31/07/2026

On 28 July, 4 groups @severemecymru.bsky.social , @longcovidsupport.bsky.social , @wamesmecfs.bsky.social and @actionforme.bsky.social met with @mabonapgwynfor.bsky.social the new Welsh Minister for Health & Care. He’s previously spoken up for #pwME , including in last December’s Senedd debate. 1/3

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wamesmecfs.bsky.social @wamesmecfs.bsky.social · 23/06/2026

Don't miss next week's ME Voices Wales webinar when Hywel Dda UHB will share how their LC & ME/CFS Service can support people living with ME/CFS in Ceredigion, Carmarthenshire & Pembrokeshire. Mon 29 June, 1230-1330. Register in advance: tinyurl.com/5y8btxpj mevoiceswales@gmail.com

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wamesmecfs.bsky.social @wamesmecfs.bsky.social · 23/06/2026

Peidiwch â cholli gweminar ME Voices Wales yr wythnos nesaf pan fydd BIP Hywel Dda yn rhannu sut y gall eu Gwasanaeth LC a ME/CFS gefnogi pobl sy’n byw gyda ME/CFS yng Ngheredigion, Sir Gaerfyrddin a Sir Benfro. Dydd Llun 29 Mehefin, 12:30-13:30. tinyurl.com/5y8btxpj mevoiceswales@gmail.com

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Severe ME Difrifol Cymru @severemecymru.bsky.social · 19/06/2026

Ydych chi’n byw yng Nghymru ac eisiau darganfod beth mae'r gwasanaethau #ME a #CovidHir newydd a ariennir gan Lywodraeth Cymru yn cynnig i gleifion yn lleol? Ymunwch â'r webinar nesaf gan Lleisiau ME Cymru - 29/06/2026 12.30-1.30yp. Cofrestrwch yma: tinyurl.com/sx3wu23j 1/3

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Severe ME Difrifol Cymru @severemecymru.bsky.social · 19/06/2026

Do you live in Wales? Want to find out what the new Welsh Gov funded #ME and #LongCovid services are offering for patients at local level? Come and join the next ME Voices Wales webinar on Monday 29th June 12.30-1.30pm. Register here: events.teams.microsoft.com/event/b919a5... 1/3

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wamesmecfs.bsky.social @wamesmecfs.bsky.social · 17/04/2026

The first ME Voices Wales self-management webinar: Wed 22 April 12.30-1.30pm ABUHB's Symptom Management service will explain what support they can give people with ME/CFS. Please share. Register here: tinyurl.com/mwkvbnp9

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Long Covid Kids @longcovidkids.bsky.social · 15/03/2026

More than 1,000 people across the UK have written to MPs calling for greater recognition of the condition in children and young people, as part of a national campaign. www.dorsetecho.co.uk/news/2593333... #LongCovidAwareness #Dorset #LongCovidKids #LongCovid

dorsetecho.co.uk

Teenager calls for better support for young people suffering with Long Covid

A TEENAGER from Weymouth is calling on MPs to take more action over supporting children and young people with Long Covid as a new campaign gathers…

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Long Covid UK @longcoviduk.bsky.social · 15/03/2026

If you or a loved one are able to donate to our fundraiser today, we are asking for £6 for 6 years — £1 for each year since the pandemic began. You can donate quickly and securely via the JustGiving link: www.justgiving.com/campaign/lon... #LongCovidAwarenessDay #EveryHeartbeatCounts 3/3

justgiving.com

Long Covid Awareness Day 2026

Make a one-off donation of £6 to symbolise every year of the pandemic that has passed. Or, if you're able, become a regular donor. Together we can make a difference to the lives of those living with…

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Long Covid UK @longcoviduk.bsky.social · 15/03/2026

People directly affected by Long Covid are at the heart of everything we do, and we are deeply grateful to everyone who helps make this work possible. Today, we stand in solidarity with our community and raise our voices together. And tomorrow, we keep going. 2/3

justgiving.com

Long Covid Awareness Day 2026

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Long Covid UK @longcoviduk.bsky.social · 15/03/2026

❤️‍🩹 A THANK YOU TO OUR COMMUNITY ❤️‍🩹 Today is Long Covid Awareness Day. Around the world, people will be talking about Long Covid, learning more about what it is, and hearing about its impact. 1/3

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John Peters @johnthejack.bsky.social · 11/12/2025

Thanks Adam Price & Osian for their work with @severemecymru.bsky.social Excellent debate yesterday. youtu.be/akICL-DXfp8?... Adam with SMEDC team after the debate. Present in spirit & pictures by @jeremy-jeffs.bsky.social Cerith, Tomos, Eleri and someone else. Pic by Jacob. #MEcfs #LongCovid

Some of the SMEDC team with Adam Price. Pictures held up of patients unable to attend

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Adam @abrokenbattery.bsky.social · 10/12/2025

The Welsh Parliament debate on ME/CFS is now on YouTube. Adam Price MS led the debate, calling for better care, recognition, and support across Wales youtu.be/akICL-DXfp8?... Link the motion record.senedd.wales/Motion/8884

youtu.be

Welsh Parliament Debate on ME/CFS December 2025

YouTube video by Broken Battery

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Adam @abrokenbattery.bsky.social · 11/12/2025

Highlights - Mark Isherwood MS shares the story of a constituent whose life was transformed by a virus, becoming severely affected and housebound with #MECFS. It has “stripped away their independence and hope”, yet support, research and funding in Wales remain minimal.

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Adam @abrokenbattery.bsky.social · 13/12/2025

Sioned Williams in Welsh Parliament talking about severe and very severe ME/CFS. It can be “as disabling as late-stage MS or advanced cancer but doesn't get a fraction of the acknowledgement, understanding or funding”.

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Severe ME Difrifol Cymru @severemecymru.bsky.social · 12/12/2025

Members of Severe ME Difrifol Cymru have been working with Adam Price, MS, for the past year to prepare for Wednesday’s debate. You can see it here: tinyurl.com/mux4pkcr or read the transcript: tinyurl.com/4aumbvja 1/5

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Severe ME Difrifol Cymru @severemecymru.bsky.social · 07/12/2025

It’s finally here! @adamprice.bsky.social , MS, will be presenting the debate on Severe / Very Severe ME record.senedd.wales/Motion/8884 Contributions from other Senedd Members make up over half of the hour-long debate. So - Get your voice heard! 1/3

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Severe ME Difrifol Cymru @severemecymru.bsky.social · 15/11/2025

*Welsh Senedd Debate on Severe and Very Severe ME* DEBATE POSTPONED AGAIN - TO 10TH DECEMBER! We’re sorry to report that there’s been a further postponement of the Welsh Senedd Debate on Motion 8884 – Severe and Very Severe ME - to be led by Adam Price, MS . 1/5 #pwme #severeme

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Severe ME Difrifol Cymru @severemecymru.bsky.social · 14/10/2025

Welsh Senedd Debate on Severe and Very Severe ME – 15th October - POSTPONED to 26th Nov. Adam Price, MS, was due to lead the Members Debate on Severe and Very Severe ME tomorrow in the Welsh Senedd (Parliament), but on Sunday he suffered a close family bereavement. 1/4

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Severe ME Difrifol Cymru @severemecymru.bsky.social · 09/10/2025

Great News! OCTOBER 15TH WELSH SENEDD DEBATE ON SEVERE/VERY SEVERE ME The Welsh Senedd Business Committee has timetabled Senedd Member Adam Price’s Motion 8884 on Severe/Very Severe ME for a debate in the Chamber next Wednesday, 15th October - record.senedd.wales/Motion/8884 1/2

record.senedd.wales

Motion - NDM8884 - Welsh Parliament

The Welsh Parliament is the democratically elected body that represents the interests of Wales and its people.

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Severe ME Difrifol Cymru @severemecymru.bsky.social · 03/10/2025

Next Tue 7th, the Welsh Senedd Business Committee will be considering allocating 15th Oct for a debate on Severe/Very Severe ME. #pwME in Wales – please email your Senedd Members – ask them to get behind MS Adam Price’s Motion record.senedd.wales/Motion/8884 1/2 #MECFS #MEawareness

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Severe ME Difrifol Cymru @severemecymru.bsky.social · 31/08/2025

We were really encouraged by the support we had from the many Senedd Members (MSs) who visited the Severe ME Difrifol Cymru stall at Y Farchnad (The Marketplace) in @senedd.cymru on 15th July… 1/4

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