iiinova — where your digital self keeps evolving

SEDSConnective @sedsconnective.org · 05/10/2026

Body and brain are not separate. Our language should not separate them either. That is what neuro-affirmative means to us #SEDSConnective

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SEDSConnective @sedsconnective.org · 02/10/2026

New research in equine based learning. For - Children and young people under 25 in the UK. Have you taken part in equine-based learning programme in the last 12 months? What's involved? A 15-min anonymous online survey. Take part here: bit.ly/3VraQob

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SEDSConnective @sedsconnective.org · 01/10/2026

October is about more than one condition or diagnosis At SEDSConnective, we’ve always been connecting them Because people don't experience their health in neat little boxes. #hypermobility #neurodivergence

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SEDSConnective @sedsconnective.org · 30/09/2026

Are you passionate about making a difference for neurodivergent & hypermobile people and the parents and carers who support them? - Make a meaningful difference - Bring your skills, time & enthusiasm Email Recruitment@sedsconnective.org to find out more & apply.

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SEDSConnective @sedsconnective.org · 28/09/2026

Survey on how heatwaves affect disabled people . Links in the comments #SEDSConnective #Hypermobility #Neurodivergence

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SEDSConnective @sedsconnective.org · 27/09/2026

Stability Over Flexibility 🧱 But hypermobile people can also become very stiff and rigid It’s about a safety, stability, strength, control and maintaining useful mobility 🧷 #SEDSConnective #Hypermobility #Neurodivergence

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SEDSConnective @sedsconnective.org · 24/09/2026

Language matters and evolves. Our terminology card sets out short plain definitions of the terms we use, from neurodivergence and neurodivergent through to neuro-affirmative. We connect and neuro-affirmative language recognises hypermobility and neurodivergence as interconnected aspects

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SEDSConnective @sedsconnective.org · 22/09/2026

❓Are you a parent of autistic children or adults with co-occurring intellectual disabilities or learning disabilities. The BEOND survey - is open f Online or via post. EVERY family receives a personalised feedback report after survey. 👉 more here : www.cerebranetwork.com/beond

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SEDSConnective @sedsconnective.org · 21/09/2026

Understanding rejection sensitivity as part of a broader neurodivergent experience can help individuals feel less alone and more supported. Read more here - sedsconnective.org/what-is-rsd-reje…

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SEDSConnective @sedsconnective.org · 19/09/2026

Did you know there is more under the skin to eczema? Inflammation, anxiety, pain, brain fog and fatigue can all be part of the picture. We are SEDSConnective, the hypermobility neurodivergence charity. #EczemaAwarenessWeek #Hypermobility #Neurodivergence

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SEDSConnective @sedsconnective.org · 17/09/2026

We exist! Hypermobility and Neurodivergence does not disappear by saying it does not exist www.sedsconnective.org the community charity formed from unmet needs changing systems and laying the path for others to follow #hypermobility #neurodivergence

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SEDSConnective @sedsconnective.org · 16/09/2026

🪣 Some days you wake up and the bucket is already filling. Heart pounding. Dizzy. Exhausted. Anxious. Then the day begins and the little things start adding up. Dysautonomia. Hypermobility. Neurodivergence. You don't always get to start the day with an empty bucket.

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SEDSConnective @sedsconnective.org · 10/09/2026

SEDSConnective has joined 50+ organisations calling on the Prime Minister to act on disabled children’s social care. The recommendations are here. We’ve signed the open letter. Will you back the call to sign? ⬇️

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SEDSConnective @sedsconnective.org · 09/09/2026

Interactive charities ebook to find grants for children and young people with disabilities and long term health conditions. Link: ltv.services/charity-ebook #health

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SEDSConnective @sedsconnective.org · 09/09/2026

New report by public health Wales Why gender matters children health inequalities 🏴󠁧󠁢󠁷󠁬󠁳󠁿https://phwwhocc.co.uk/resources/why-gender-matters-child-poverty-and-health-inequalities/

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SEDSConnective @sedsconnective.org · 08/09/2026

Body and head are connected. Let’s stop the silos even if you are affected or perhaps realise this. We’re the 1st charity for hypermobility neurodivergence (2018)

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SEDSConnective @sedsconnective.org · 07/09/2026

Can you support our call for an All-Party Parliamentary Group (APPG) for Hypermobility & Neurodivergence ? BodyBrain 🙏2 minute form Please scan the QR code or use the LINK: forms.cloud.microsoft/e/8p0krHQJD8 #Hypermobility #Neurodivergence

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SEDSConnective @sedsconnective.org · 04/09/2026

Are you over 65 ? older age study on community, connection and loneliness email l.m.lane@herts.ac.uk or laura.lane@ext.uni.l It consists of an interview face to face, online in the UK and Luxembourg . Ethics approved. @uni.lu @UniofHarts

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SEDSConnective @sedsconnective.org · 02/09/2026

Who is not being counted ? Body and brain hidden in plain sight ©️ Years of appointments. A diagnosis denied, missed or misattributed. People centred means the whole person. Are we being counted? Time for action actonncds.org #ActOnNCDs #LeadOnNCDs #Hypermobility

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SEDSConnective @sedsconnective.org · 01/09/2026

Here is a cost nobody counts. A person with #hypermobility #neurodivergence moves between services for years. Getting the whole person right costs less than getting the parts wrong for a decade. #ActOnNCDs #LeadOnNCDs #sedsconnective CC BY-SA 4.0

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SEDSConnective @sedsconnective.org · 31/08/2026

Global Week for Action on NCDs. Leadership is the theme #Hypermobility and #neurodivergence are interconnected whole person conditions Breaking down siloes is not an abstraction. CC BY-SA 4.0 #LeadOnNCDs #ActonNCDs

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SEDSConnective @sedsconnective.org · 31/08/2026

Next support meeting for chit chat natter is Where: The Charis Centre, West Green, Drive, Crawley, RH11 7EL Friday 4th September 12.30- 2.30 #SEDSConnective RH11 7EL

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SEDSConnective @sedsconnective.org · 30/08/2026

#Throwback 2018 Us & BBC start of SEDSConnective & the #BBC. hypermobility (common types) are not rare, just rarely diagnosed, neurodivergence (ADHD Autism Dyspraxia Dyslexia TS ) common to #SEDSConnective #hypermobility #neurodivergence #EDS

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SEDSConnective @sedsconnective.org · 27/08/2026

DCD or Dyspraxia ? Participants children (7–16 years) with DCD/Dyspraxia! The study involves: read more below

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SEDSConnective @sedsconnective.org · 25/08/2026

Clinicians: In UK who can assess people for (EDS or HSD ). Confidential online interviews exploring diagnostic process. It involves a semi-structured interview Experience in autism welcomed. see flyer for more details

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SEDSConnective @sedsconnective.org · 22/08/2026

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SEDSConnective @sedsconnective.org · 20/08/2026

DCD or Dyspraxia ? Participants children (7–16 years) with DCD/Dyspraxia! The study involves: read more below

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SEDSConnective @sedsconnective.org · 18/08/2026

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SEDSConnective @sedsconnective.org · 16/08/2026

SEDSCONNECTIVE next meeting on 27th August 2026 7pm to 8.30 We’re the first charity for hypermobility and neurodivergence and you don’t need a diagnosis. Parents carers welcome Join us at www.sedsconnective.org #Neurodivergence #Hypermobility

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SEDSConnective @sedsconnective.org · 15/08/2026

📢🔬 PsychMSc research study at Uni of Surrey! 1. Those with hypermobility (and EDS) who are experiencing chronic pain 2. Those who experience chronic pain but do not have hypermobility 3. Those with hypermobility who do not experience chronic pain see more in comments or flyer

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SEDSConnective @sedsconnective.org · 15/08/2026

We are greatly saddened to hear of the passing of Professor Jason Arday. Our thoughts and condolences are with his family, friends, colleagues and loved ones at this difficult time. May he rest in peace.

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SEDSConnective @sedsconnective.org · 28/07/2026

We are proud to announce that our Charity SEDSConnective, working at the intersection of symptomatic hypermobility and neurodivergence, has become a member of the WHO Disability Health Equity Network hosted by the World Health Organization! #hypermobility #neurodivergence #SEDSConnective

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SEDSConnective @sedsconnective.org · 26/07/2026

Something out of the ordinary... We know something We can't explain, not yet.... Tuesday.... #SEDSConnective #Hypermobility #Neurodivergence

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SEDSConnective @sedsconnective.org · 23/07/2026

Are you hypermobile , flexible or have chronic pain? NO formal diagnosis needed Email researcher Shy (Shyamalie Satkunanandan), ss06276@surrey.ac.uk, for info or to take part

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SEDSConnective @sedsconnective.org · 22/07/2026

🎉 8 years of SEDSConnective! Thank you to everyone who has been part of the journey. Our Trustees, volunteers, members, supporters and patrons, you are the heart of it all. Here is to 8 more. You are not alone! #Hypermobility #Neurodivergence #SEDSConnective

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SEDSConnective @sedsconnective.org · 20/07/2026

We are delighted that SEDSConnective has joined as a member of the NCD Alliance Network @ncdalliance #sedsconnective #health

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SEDSConnective @sedsconnective.org · 20/07/2026

Today, we’re celebrating 8 incredible years of SEDSconnective!🎂 8 years ago SEDSConnective started with one simple goal: to get people with symptomatic hypermobility and neurodivergence seen and heard. #hypermobility #neurodivergence #sedsconnective #chronicpain #eds

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SEDSConnective @sedsconnective.org · 14/07/2026

Participants 7–16 years with DCD / Dyspraxia for (VR) balance training Fun VR games/activities at home, either 2 - 3 lab visits across 6 - 11 weeks Up to £125 in shopping vouchers email (Samantha.Chye@brunel.ac.uk) or forms.cloud.microsoft/e/cMwK66WNhf

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SEDSConnective @sedsconnective.org · 14/07/2026

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SEDSConnective @sedsconnective.org · 11/07/2026

July 11th 2025 Anniversary of the rsom invisible impact of covid19 symptoms on hypermobility and neurodivergence Thanks to our chair Jane Green MBE planning organising and giving our volunteers the chance to shine at the event and

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SEDSConnective @sedsconnective.org · 10/07/2026

For many years, the connection between #hypermobility and #neurodivergence was misunderstood or dismissed. Today, we are working to change that - helping individuals, families, professionals, and services better understand the strong links between physical and mental wellbeing! #SEDSConnective

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SEDSConnective @sedsconnective.org · 08/07/2026

Some of the amazing SEDSConnective stands we've hosted, covering topics such as Autism, ADHD, Musculoskeletal events, therapies and interventions in physical health, sleep, diet, education and peer to peer support. Thank you to our amazing volunteers! www.sedsconnective.org

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SEDSConnective @sedsconnective.org · 08/07/2026

The ‘BEOND’ survey is now open! The survey will run for the next 20 years. Families are welcome to take part every couple of years to see how their answers have changed with time. 👉 www.cerebranetwork.com/beond

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SEDSConnective @sedsconnective.org · 30/06/2026

Volunteer Facilitators Wanted – Join Our Team! We'd love to hear from you! We are looking for Volunteer Facilitators who can support our charity by helping to host online webinar sessions at regular times throughout the month. Please email recruitment@sedsconnective.org if you're interested 🙏

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SEDSConnective @sedsconnective.org · 29/06/2026

Please take a moment to watch Episode 3: Jane Green MBE – Founder of SEDSConnective on her Remarkable Journey. Our charity is mentioned in the episode and it’s a really inspiring conversation about Jane’s work and the growth of SEDSConnective. 👉 youtu.be/Pr2ZFJOYPYw?si=vrclZrZAcbi…

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SEDSConnective @sedsconnective.org · 26/06/2026

✳️Do you have a formal dx of Autism/ADHD ? ✳️A formal dx of hEDS, HSD (GJH) OR ✳️Told it is likely you have hypermobility by a professional health medical practitioner? ✳️In mainstream education secondary school for at least 1 year? ✳️No learning disability ✳️18-25 of age now ⬇️links in comments

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SEDSConnective @sedsconnective.org · 25/06/2026

📢PhD research. We are delighted to say 😃 the parent/carer part is completed. Now only looking for a few more young adults aged 18-25 Can you help? Are you Autistic or ADHD and formally diagnosed? Scan QR code Email l.r.tostevin@surrey.ac.uk

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