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Jane Green MBE FCCT

@jgjanegreenmbe.bsky.social
957 followers 167 following 451 posts

Founder @SEDSConnective Body Brain / Fellow exAHT MA Ed AHT neurodivergence Hypermobility Disabled/ Parent / Carer MBE for services to neurodivergent hypermobility folk 2023

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Jane Green MBE FCCT @jgjanegreenmbe.bsky.social · 04/10/2026
From a drop out in school, new wave punk rocker to this how crazy would I have thought you were had you told me this would be me now. But since my investiture 2023, I haven't stopped and recently a young member called me the OG.. I had to ask what it was
MBE anniversary 4. 10. 2023 for Neurodivergent people and those with related joint hypermobility conditions including Ehlers-Danlos syndromes blue gold and photos of Jane Green
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Jane Green MBE FCCT @jgjanegreenmbe.bsky.social · 23/09/2026
Looking for advocates are can be constructive and help advocate public policy focus here. Secondly those who can sit on online health disability work streams and feedback. Experience preferred in some way - voluntary- but very interesting opportunities possible
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Jane Green MBE FCCT @jgjanegreenmbe.bsky.social · 15/09/2026
Looking forward to connecting and speaking with others on SEND. Free tickets with code JG-SEND Email igpp.org.uk #hypermobility #neurodivergence @sedsconnective.org
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Jane Green MBE FCCT @jgjanegreenmbe.bsky.social · 10/09/2026
Ice packs galore but no cat, i miss our cat when I’m in flare or injured he’d be there
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Jane Green MBE FCCT @jgjanegreenmbe.bsky.social · 09/09/2026
Pain. Who else has sensory issues or historically has learnt to mask or dismiss pain ? Very apt as September is pain month. #Hypermobility is not just about joints but the whole body brain connections and is multisystemic.
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Jane Green MBE FCCT @jgjanegreenmbe.bsky.social · 08/09/2026
This is not proof or cause yet but supports the many years of growing evidence and something some of have advocated on for some years. Not been an easy journey but history will be on our side.
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SEDSConnective @sedsconnective.org · 08/09/2026
Body and head are connected. Let’s stop the silos even if you are affected or perhaps realise this. We’re the 1st charity for hypermobility neurodivergence (2018)
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SEDSConnective @sedsconnective.org · 07/09/2026
Can you support our call for an All-Party Parliamentary Group (APPG) for Hypermobility & Neurodivergence ? BodyBrain 🙏2 minute form Please scan the QR code or use the LINK: forms.cloud.microsoft/e/8p0krHQJD8 #Hypermobility #Neurodivergence
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SEDSConnective @sedsconnective.org · 01/09/2026
Here is a cost nobody counts. A person with #hypermobility #neurodivergence moves between services for years. Getting the whole person right costs less than getting the parts wrong for a decade. #ActOnNCDs #LeadOnNCDs #sedsconnective CC BY-SA 4.0
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SEDSConnective @sedsconnective.org · 30/08/2026
#Throwback 2018 Us & BBC start of SEDSConnective & the #BBC. hypermobility (common types) are not rare, just rarely diagnosed, neurodivergence (ADHD Autism Dyspraxia Dyslexia TS ) common to #SEDSConnective #hypermobility #neurodivergence #EDS
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SEDSConnective @sedsconnective.org · 28/07/2026
We are proud to announce that our Charity SEDSConnective, working at the intersection of symptomatic hypermobility and neurodivergence, has become a member of the WHO Disability Health Equity Network hosted by the World Health Organization! #hypermobility #neurodivergence #SEDSConnective
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Jane Green MBE FCCT @jgjanegreenmbe.bsky.social · 13/08/2026
@chrisgpackham.bsky.social Please look at planning application CR/2026/0399/FUL for 9 homes Worth Village, Crawley. The site affects the Worth Village Conservation Area, with important trees, hedgerows, species-rich grassland and wildlife habitat and
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Jane Green MBE FCCT @jgjanegreenmbe.bsky.social · 03/08/2026
This : historical inequalities are now at the forefront of everyone’s agenda (well some) but looking forward to the next chapter of @sedsconnective.org and super proud of our 8 year old pioneering charity
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SEDSConnective @sedsconnective.org · 23/07/2026
Are you hypermobile , flexible or have chronic pain? NO formal diagnosis needed Email researcher Shy (Shyamalie Satkunanandan), ss06276@surrey.ac.uk, for info or to take part
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Jane Green MBE FCCT @jgjanegreenmbe.bsky.social · 28/07/2026
I have something to say …
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John Roberts @johngroberts.bsky.social · 27/07/2026
New technical education routes in schools will be available to 14-year-olds, prime minister Andy Burnham has announced tonight. Year 10 pupils will be able to combine core academic subjects with more technical education options linked to jobs available in their area. www.tes.com/magazine/new...
tes.com
New technical pathways in secondary schools by 2028, PM announces
Schools will be inspected by Ofsted on vocational offering, but sector leaders want more details on multiple aspects of the plans
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SEDSConnective @sedsconnective.org · 26/07/2026
Something out of the ordinary... We know something We can't explain, not yet.... Tuesday.... #SEDSConnective #Hypermobility #Neurodivergence
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SEDSConnective @sedsconnective.org · 11/07/2026
Great to hear both Her and Dr Eccles present the research again #covid #hypermobility #neurodivergence #mcas
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SEDSConnective @sedsconnective.org · 20/07/2026
We are delighted that SEDSConnective has joined as a member of the NCD Alliance Network @ncdalliance #sedsconnective #health
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Jane Green MBE FCCT @jgjanegreenmbe.bsky.social · 22/07/2026
8 years of SEDSConnective, building on many more years of refusing to separate body and brain. Turns out, we were onto something.......... I’m incredibly proud of what we have built together as a community charity and, we’re not done yet! #hypermobility #neurodivergence #SEDSConnective
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SEDSConnective @sedsconnective.org · 10/07/2026
For many years, the connection between #hypermobility and #neurodivergence was misunderstood or dismissed. Today, we are working to change that - helping individuals, families, professionals, and services better understand the strong links between physical and mental wellbeing! #SEDSConnective
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Jane Green MBE FCCT @jgjanegreenmbe.bsky.social · 17/07/2026
Amazing conference and took many months of my help in setting it up so I was very proud of this conference despite enormous barriers
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SEDSConnective @sedsconnective.org · 14/07/2026
Participants 7–16 years with DCD / Dyspraxia for (VR) balance training Fun VR games/activities at home, either 2 - 3 lab visits across 6 - 11 weeks Up to £125 in shopping vouchers email (Samantha.Chye@brunel.ac.uk) or forms.cloud.microsoft/e/cMwK66WNhf
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Jane Green MBE FCCT @jgjanegreenmbe.bsky.social · 13/07/2026
I am looking forward to speaking at the upcoming IGPP SEND Conference 6th October 2026 You can secure a complimentary pass using my exclusive code JG-SEND via the link below #SEN #SEND #Education igpp.org.uk/event/The_Na...
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Ben Potts @ben-potts.bsky.social · 30/06/2026
👇👇👇
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Jane Green MBE FCCT @jgjanegreenmbe.bsky.social · 01/07/2026
Delighted to have another meaningful ‘hat’ 🤠and not just one type of hat either I’ve have been appointed as a SHCRP Public & Community Adviser to help ensure public and community voices are at the heart of health and care research. www.bsms.ac.uk/research/sup...
bsms.ac.uk
SHCRP PCIE - BSMS
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SEDSConnective @sedsconnective.org · 26/06/2026
✳️Do you have a formal dx of Autism/ADHD ? ✳️A formal dx of hEDS, HSD (GJH) OR ✳️Told it is likely you have hypermobility by a professional health medical practitioner? ✳️In mainstream education secondary school for at least 1 year? ✳️No learning disability ✳️18-25 of age now ⬇️links in comments
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Jane Green MBE FCCT @jgjanegreenmbe.bsky.social · 16/06/2026
House of Commons disability
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Jane Green MBE FCCT @jgjanegreenmbe.bsky.social · 15/06/2026
Will the tech. work?
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Jane Green MBE FCCT @jgjanegreenmbe.bsky.social · 14/06/2026
Men you’re in this too ! Sleep rest gastro allergies
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SEDSConnective @sedsconnective.org · 10/06/2026
The Connection Between Hypermobility & ADHD with Jane Green MBE When: Sunday 14th June 2026 Time: 5pm GMT+1 Online #EDS #Dysautonomia #mcas #neurodivergence Click here for tickets: bit.ly/4dICEuY
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SEDSConnective @sedsconnective.org · 03/06/2026
Lipoedema Starts usually in puberty - but NOT ALWAYS !!! Fat cannot be lost through diet & often leads to stigma Spectrum of hEDS, loose connective tissue disorder 🦓 Often people with lipoedema may have anxiety/depression and ADHD or other neurodivergence ♾️ #LipoedemaAwareness month
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Jane Green MBE FCCT @jgjanegreenmbe.bsky.social · 30/05/2026
14th June online for #ADHD and #hypermobility SEEDtalks for tickets #neurodivergence
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Jane Green MBE FCCT @jgjanegreenmbe.bsky.social · 28/05/2026
I’ve had so many issues not being able to stay still in scans due to temperature dysregulation or ensuring I could communicate to tell them I I was in pain and needed a scan. So have others - physical sensory health communication language challenges and hypermobility. Delighted to be a coauthor
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SEDSConnective @sedsconnective.org · 20/05/2026
New research study- Emergency Care Living in the UK? 1. 18 and over 2. Needed emergency healthcare (whether you attended an emergency department or not) This is open to everyone: neurotypical or neurodivergent (these are adjectives) edsurvey.link
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SEDSConnective @sedsconnective.org · 25/05/2026
Claiming PIP with Ben Furner. Ben focuses on health care and disability FREE PIP webinar - Join as member here www.sedsconnective.org 🗓️ 3 JUNE 🕗 7 -8.30pm ✉️ Events@sedsconnective.org Donate here www.sedsconnective.org/donation
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SEDSConnective @sedsconnective.org · 13/05/2026
SEDSConnective has been asked to help share these two maternity research studies Take part here: www.sedsconnective.org/new-studies-…
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SEDSConnective @sedsconnective.org · 18/05/2026
This school toolkit for hypermobility was the idea of our chair Jane Green MBE but due to delays it was not published until May 2021. School toolkit for EDS JHS. Read more how it came about here : rpst.cc/9rrzPs
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SEDSConnective @sedsconnective.org · 11/05/2026
Do you get dizzy? We do😆 Live talk launch with @bendybrain.bsky.social & @jgjanegreenmbe.bsky.social on 5th May #hypermobilityneurodivergenceday Watch the full clip here- youtu.be/IvKd9E8FPv0?...
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Graham Mead @twillierod.bsky.social · 12/04/2026
collaborative approach. One of the largest bodies of evidence and experience in hypermobility has been accrued over many years by @jgjanegreenmbe.bsky.social from a brain/body, physiological perspective. It would be fruitful to see where these perspectives /
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Jane Green MBE FCCT @jgjanegreenmbe.bsky.social · 31/03/2026
‘The Elephant in the Room’ Earlier mortality worsening mental health, poorer treatment outcomes, missed physical health risks. Increases stigma, suicide, trauma, exclusion and long-term costs to services and society. If we keep missing #neurodivergence 🐘we keep missing people #Autism #ADHD #TS
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SEDSConnective @sedsconnective.org · 18/03/2026
• 🎯 Aged 18–25 • 🏫 Attended secondary school at least a year • 🧠 Diagnosed Autistic and/or ADHD • 🩺 Told by health professional you are likely to have hEDS/GJH or have a formal diagnosis #neurodivergence 📩 Email or QR flyer l.r.tostevin@surrey.ac.uk or go to our website SEDSConnective.org
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Jane Green MBE FCCT @jgjanegreenmbe.bsky.social · 17/03/2026
Up north to @nicecomms.bsky.social 2026 conf. Clarification of guidances, technologies and new ways of partnering coming. Highlight buzzing lanyards and making connections #Manchester
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Jane Green MBE FCCT @jgjanegreenmbe.bsky.social · 05/03/2026
I’m very proud that @SEDSConnective will soon publish a new survey of a project I’ve been associated in for the past 15 months. Because neurodivergent people are embodied individuals. And policy needs to start recognising that. #Hypermobility #EDS #neurodivergence
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SEDSConnective @sedsconnective.org · 25/02/2026
This is an important issue about disability right and autonomy. One of our members Lucinda in the @BBC news today. 👉 Read here: www.bbc.com/news/article...
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SEDSConnective @sedsconnective.org · 25/02/2026
New East Grinstead support Meeting! This Fri 27th Feb | 1:30pm - 3pm | The Old Dunning's Mill, E Grinstead, RH19 4AT See details here: www.sedsconnective.org/event-detail…
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SEDSConnective @sedsconnective.org · 23/02/2026
Delighted our Chair @jgjanegreenmbe.bsky.social is quoted in this article which was published ahead of the white paper Every child Achieving and Thriving 🙏 #SEND #Education www.learningdisabilitytoday.co.uk/news/send-sc...
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Jane Green MBE FCCT @jgjanegreenmbe.bsky.social · 11/02/2026
#AIW might be interesting? pubmed.ncbi.nlm.nih.gov/41448101/
pubmed.ncbi.nlm.nih.gov
Alice in wonderland syndrome: Down the rabbit hole of VigiBase® - PubMed
Alice in Wonderland Syndrome (AIWS) is a neurological disorder involving visual and perceptual distortions, such as altered size perception, sensations of levitation, and time distortion. Initially linked to migraines and epileptic seizures, AIWS has been associated later with tumors, infections, an …
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Jane Green MBE FCCT @jgjanegreenmbe.bsky.social · 02/02/2026
If you have bipolar disorder, have you ever been assessed for autism or ADHD? www.sedsconnective.org/post/bipolar...
sedsconnective.org
Bipolar Disorder, Hypermobility and Neurodivergence: The Missing Connection
New research reveals surprising links between bipolar disorder, joint hypermobility, autism and ADHD. Learn why integrated healthcare matters.
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SEDSConnective @sedsconnective.org · 31/01/2026
#ADHD SEDSConnective event London. Charity partner seed talks and a wonderful, very busy day! Thanks to volunteers @jgjanegreenmbe.bsky.social Bonnie Southgate, Kelly and Lucy
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