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A tired human

@saffronandsky.bsky.social
97 followers 271 following 26 posts

disability justice💜 Mod chronic illness 4 decades. long covid in '22 = very severe MCAS, ME&POTs= bedbound. Parent, mixed race, writer, gardener ♿ 🏳️‍🌈☸️

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A tired human @saffronandsky.bsky.social · 21/05/2026
Please contact me and I'll put you in touch with her. She is in Tennessee, USA. Please forward to anyone who might be able to help. Thank you so much!
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A tired human @saffronandsky.bsky.social · 21/05/2026
After suffering severely for so long and having 2 hospitals refuse to take her issues seriously, she's considering end of life care. Tragically, her family is abusive as well. I'm too severe to do much but can't sit by while she dies of neglect. If you have any ideas of someone who could help, 4/
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A tired human @saffronandsky.bsky.social · 21/05/2026
s. Instead of exploring alternatives such as tpn or hypoallergenic formulas, the hospital treated these as psychiatric issues and sent her home. She's also losing vision, having intermittent body numbness + heaviness/weakness, brain fog, seizures, dizziness, painful eye bulging & more.. 3/
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A tired human @saffronandsky.bsky.social · 21/05/2026
She is dangerously malnourished due to inability to swallow & keep down food +severe reactions to all food. She got a peg-j tube, but severe MCAS rxns (difficulty breathing& keeping formula down, severe itching/burning, rashes, severe GI pain) man she can't get enough calories 2/
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A tired human @saffronandsky.bsky.social · 21/05/2026
Hey folks, I'm reaching out to see if we might find someone to help a young woman I've been in contact with whose life if in danger due to a dire medical situation and not receiving proper care. She has very severe MCAS, MECFS, Lyme disease, CCI, IIH and possibly other issues.... 1/
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A tired human @saffronandsky.bsky.social · 28/01/2026
Is there an update on this? I saw this last week and I've been wondering if there are any developments.
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A tired human @saffronandsky.bsky.social · 28/01/2026
strongly agree with this. Ice is coming to your community soon. There are lots of people where you live that also need support. Also donate to Immigrant free legal services networks, remember immigrants are the most targeted right now.
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A tired human @saffronandsky.bsky.social · 28/01/2026
And if we wanted to pretend this was about saving lives, air pollution is estimated to kill over 100,000 people a year... You'd get much more bang for your buck enforcing that than detaining & deporting immigrants who are less likely to commit crimes than citizens.)
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A tired human @saffronandsky.bsky.social · 28/01/2026
But with guns drawn, & arresting you, often violently. Now imagine supporters shrugging and saying, stop overreacting. If you didn't want to be arrested you shouldn't have underreported your cash income, etc. They’re just enforcing the law. And if you're not guilty they'll release you, eventually.
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A tired human @saffronandsky.bsky.social · 28/01/2026
Imagine if the full force of the federal government was applied to laws that are routinely violated: copyright infringement, tax fraud, labor & wage violations, environmental rules, etc. Imagine federal agents snatching you at the grocery store or breaking down your door (no warrant)...
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A tired human @saffronandsky.bsky.social · 26/01/2026
Yeah I find it a bit subtle. But cognitively it also helps me a little.
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A tired human @saffronandsky.bsky.social · 26/01/2026
In MN but also across the US bcs while concentrated in MN, these operations are happening everywhere. Check your local state resources, some national ones that help people in ICE detention: Immigration Justice Campaign: immigrationjustice.us National Immigrant Justice Center: immigrantjustice.org
immigrationjustice.us
Home - Immigration Justice Campaign
We believe in a society that sees migration as a tool for liberation and prizes the dignity and humanity of all people.
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A tired human @saffronandsky.bsky.social · 26/01/2026
It's sweet to see ppl wanting to send hand warmers etc. to protesters in MN, but I wonder how big of a need that actually is? I'd like to see more focus on donating to the most impacted: immigrant communities. Support free immigrant legal defense, food banks delivering to immigrant families...
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A tired human @saffronandsky.bsky.social · 26/01/2026
Yes indeed, and that those highlighting their deaths also use it as an opportunity to remind folks of the many many other people, primarily immigrants and people of color, also killed by ice!
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Reposted by A tired human
Dave Ghoul @daveghoul.com · 26/01/2026
Listen, I've got some pretty harsh tinnitus that's sensitive af to high pitched noise. I'm on team Whistles. My discomfort will be temporary. Someone being murdered by ICE on the other hand is forever.
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Seth Cotlar @sethcotlar.bsky.social · 26/01/2026
Following the Kent State massacre in May 1970, a Gallup poll showed that 58% of Americans thought the shootings were justified. The night *before* the killings, Ohio's GOP governor described the student protesters this way: "They're the worst type of people that we harbor in America."
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A tired human @saffronandsky.bsky.social · 26/01/2026
I mean, often anybody who talks about Injustices that other people want to ignore is perceived as annoying. It "ruins their vibe" of being happily oblivious to the suffering of others... Cuz being made aware usually means confronting your complicity at doing nothing.
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Dr Noor Bari @njbbari3.bsky.social · 26/01/2026
So, in the case of C19, the hybrid immunity or concomitant immunity is giving only partial protection to similar past strains… at a price that is very high in terms of damage to the individual and society.
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A tired human @saffronandsky.bsky.social · 25/01/2026
I do love the sentiment but sometimes focusing solely on these two people, white allies, versus all of the immigrants who have also been murdered by ice, is hard to see.
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Donna Schwartz Mills @socalmom.bsky.social · 25/01/2026
Billions of dollars for ICE, but next to nothing for fire departments. Gift link. www.sfchronicle.com/california-w...
sfchronicle.com
FEMA cuts payouts to local fire departments responding to wildfires
The Federal Emergency Management Agency is reducing the reimbursement city and rural fire departments get for responding to wildfires. Fire officials fear it will hamper fire response across the...
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A tired human @saffronandsky.bsky.social · 25/01/2026
True colors.
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RogueNOAA @roguenoaa.altgov.info · 25/01/2026
“…White House has reportedly ordered federal agencies to conduct a sweeping review of funding to more than a dozen states carried by former Vice President Kamala Harris in the 2024 election, a move … condemned as unlawful political retaliation.” www.rawstory.com/r-2675008970/
rawstory.com
Trump admin orders funding probe of states that didn't vote for him: 'Blatantly illegal'
The Trump White House has reportedly ordered federal agencies to conduct a sweeping review of funding to more than a dozen states carried by former Vice President Kamala Harris in the 2024 election, a...
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A tired human @saffronandsky.bsky.social · 25/01/2026
Me too. Especially during hard times.
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emily fraser 🌿🐌✨ @emilyesfraser.bsky.social · 24/01/2026
Know Your Rights Webinar for Immigrants with Disabilities - January 29th us06web.zoom.us/webinar/regi...
us06web.zoom.us
Welcome! You are invited to join a webinar: Your Right to Access: What You Need to Know as an Immigrant with a Disability - Revised, Expanded and Ready!. After registering, you will receive a confirma...
Since its inception, the award-winning film UNSEEN was created to put at the service of movement work and uplift disabled and undocumented immigrant audiences – communities systemically pushed to the ...
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A tired human @saffronandsky.bsky.social · 16/01/2026
Definitely not my first choice but if it comes down to it remember this friends: We vote to choose our opponents.
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A tired human @saffronandsky.bsky.social · 30/05/2025
Both my kids graduate this year, one from preschool and one from 5th grade and I won't be able to be there. Sending you so much love, such a cruel disease.
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A tired human @saffronandsky.bsky.social · 30/05/2025
Some people find magnesium citrate effective for inducing diarrhea, or certain other forms of magnesium.
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A tired human @saffronandsky.bsky.social · 18/02/2025
Even if I could have only one of these 3 things, my quality of life would be so much better. Of course, most of all I just want to be with my children again. Then food. Then everything else. Even if I could just have 1 day a week where I could have a break. but there are no breaks in this illness.
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A tired human @saffronandsky.bsky.social · 18/02/2025
2) not being able to eat food and relying on tpn, being hungry most of the time and malnourished. I used to be a foodie, now I eat nothing. 3) the empty days:i can't read,watch shows, listen to audio or use my phone more than a few mins every few days w/out suffering.
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A tired human @saffronandsky.bsky.social · 18/02/2025
For me, the hardest things abt being very severe are: 1) the isolation, only being able to have minimal interaxn w/ caregivers. Most of all missing my children(they were 2 and 8 when i got sick, they are 5 and 11 now). I've spent as much time with them in the last 2 yrs as I used to in a single day.
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A tired human @saffronandsky.bsky.social · 14/01/2025
I have thus far not figured out how to balance physical and mental health while very severe. Any small thing I do for my mental health destroys my physical health which in turn destroys my mental health. It feels like a trap. I need help, but it seems nothing and no one can help.
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A tired human @saffronandsky.bsky.social · 28/12/2024
I haven't been well because of severe #mecfs from #longcovid, Lyme disease and mold. That means I can't be online more than every week or two, or sometimes every month. But I hear this is where all the cool kids are hanging out, away from evil Elon.
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