iiinova — where your digital self keeps evolving

Dr.rer.pol. Sabine Schwab @sabine-nj.bsky.social · 08/12/2025

It's been an honor and a pleasure having been able to serve the #BTSM community here, on Twitter, and on X as organizer/moderator for so many years. Even though the chats are over, the conversation can continue. Please let's keep in touch via the #BTSM hashtag. 🩶

Dr.rer.pol. Sabine Schwab @sabine-nj.bsky.social · 13/09/2025

Honored to have had the opportunity to kick off the @the_abta.bsky.social National Conference this year. It was a huge success and great intro to the conference weekend. 💻 can’t make it to Chicago? Online participation is free! #btsm #abta2025nationalconference #braintumor

Dr.rer.pol. Sabine Schwab @sabine-nj.bsky.social · 09/09/2025

Will I see you there? #btsm Let’s connect here or through the conference app and let’s make sure we’ll find some time to meet up. Also, join the Campfire Connections networking session at 4pm on Friday. Hosted by yours truly. 🩶

Dr.rer.pol. Sabine Schwab @sabine-nj.bsky.social · 16/07/2025

Today is #GlioblastomaAwarenessDay.In 2021, the WHO updated CNS tumor classifications which led to me being a #glioblastoma patient.I am doing fairly well but many of my friends are not.Please consider making a donation to fuel research, it is much needed. give.abta.org/give/474321/... #btsm

give.abta.org

Meet Hope Head On - Microsite/Landing

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Reposted by Dr.rer.pol. Sabine Schwab

Sid Sadler @sadlersnaps.bsky.social · 06/07/2025

PSA: There is a no cancer that is the “good” kind. Mind you there are levels to cancer. Some less aggressive, etc. There is however, no “good” kind. #Cansky

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Dr.rer.pol. Sabine Schwab @sabine-nj.bsky.social · 02/07/2025

Surround yourself with people who speak up for you, lift you up, share their knowledge, and help you grow. #sabine365

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Dr.rer.pol. Sabine Schwab @sabine-nj.bsky.social · 23/06/2025

This! Great article on #patientadvocacy by Christine van Raesfeld « Our expertise isn’t theoretical—it’s personal, hard-earned, and often traumatic. We’ve survived what others research. » open.substack.com/pub/christin... #btsm

open.substack.com

Expertise Without a Paycheck

When Appreciation Doesn’t Pay the Bills

Dr.rer.pol. Sabine Schwab @sabine-nj.bsky.social · 21/06/2025

Chronic allergic sinusitis / rhinitis anyone? How do you manage your symptoms?

Dr.rer.pol. Sabine Schwab @sabine-nj.bsky.social · 07/06/2025

The things we do on a Thursday night. Being a panelist for @Ourbrainbankforgbm.bsky.social (OBB), sharing my thoughts on patient power, hope, science, and politics . This event honored the late GBM superstar Jessica Morris, founder of OBB and author of “All in my head.” (a.co/d/8QnYrZg) #btsm

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Dr.rer.pol. Sabine Schwab @sabine-nj.bsky.social · 04/06/2025

I have been informed by @mskcancercenter.bsky.social that they likely won’t be covered by my health insurance past July 1st, 2025. This is extremely saddening to hear because looking for and then trusting in a new health care team is not as easy as it sounds. #btsm

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Reposted by Dr.rer.pol. Sabine Schwab

Brain Tumor Social Media Chat @btsmchat.bsky.social · 02/06/2025

We're so excited for our June 8, 2025 #BTSM #skychat on #braintumor Advocacy that we've moved our start time ONE HOUR EARLIER to better accommodate schedules. We'll start at 4 PM Pacific / 7 PM Eastern instead of 5pm/8pm. We hope you can join us! #oncosky #oncsky #medsky #AYACSM #cansky

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Dr.rer.pol. Sabine Schwab @sabine-nj.bsky.social · 01/06/2025

On this #NationalCancerSurvivorDay I’m doing the things I love to do: spreading awareness, networking, and connecting with others affected by (brain) cancer. If you/your loved one is facing a #Glioblastoma diagnosis, check out: @ourbrainbankforgbm.bsky.social #btsm

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Dr.rer.pol. Sabine Schwab @sabine-nj.bsky.social · 01/06/2025

Day 3 started out with a panel titled “Empowering Voices: Becoming a Research Patient Advocate” Bri, my #braintumor buddy with whom I’m featured on @theabta.bsky.social media kits, was one of the panelists and rocked it! #btsm

OurBrainBankForGlioblastoma @ourbrainbankforgbm.bsky.social · 23/05/2025

Reposted by Dr.rer.pol. Sabine Schwab

Join us in Brooklyn on June 5 #glioblastoma #GBM #AllInMyHead #BTAM #STSM secure.givelively.org/event/ourbra...

Join us in Brooklyn on June 5 for an evening of readings and conversional with:
• Sabine Schwab, PhD, 11-year GBM survivor, advocate
• Dr. Fabio Iwamoto, Neuro-oncologist, Columbia
• Ed Pilkington, GBM Caregiver & Jessica's husband
#glioblastoma #GBM #AllInMyHead #BTAM #BTSM
https://secure.givelively.org/event/ourbrainbank-inc/a-celebration-of-all-in-my-head-by-jessica-morris

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Reposted by Dr.rer.pol. Sabine Schwab

OurBrainBankForGlioblastoma @ourbrainbankforgbm.bsky.social · 31/05/2025

At ASCO? Stop by our booth (#13000) or view our poster “Disparities in Glioblastoma Care: Insights from a Nationwide Survey” (May 31, Hall A, #451, 1:30-4:30pm). #ASCO2025 #ASCO #GBM #Glioblastoma #BTSM #BTAM

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Dr.rer.pol. Sabine Schwab @sabine-nj.bsky.social · 01/06/2025

Meeting up with fellow #braintumor patient advocate and former #BTSM chat organizer/moderator, Jeremi Pivor, at #ASCO25 today was great. But being in the room when he got standing ovations for his #Medscape talk was the cherry on top of another successful day.

Dr.rer.pol. Sabine Schwab @sabine-nj.bsky.social · 31/05/2025

It’s been a busy second day at #ASCO25. Off to my final presentation of the day Clinical Intwgration of Therapeutic Innovation in Glioma. #btsm

Dr.rer.pol. Sabine Schwab @sabine-nj.bsky.social · 31/05/2025

Super interesting session on Precision Medicine in Glioma Treatment — Integration of Molecular Profiling to Inform Targeted Therapies. Voilà the 3 summary slides from all 3 panelists. #btsm

Brain Tumor Social Media Chat @btsmchat.bsky.social · 30/05/2025

Reposted by Dr.rer.pol. Sabine Schwab

It's a big weekend with #ASCO25 taking place, but we're still getting ready for our June 8, 2025 #BTSM #skychat, and reflecting on 12 years of chats our theme will be #braintumor Advocacy. We hope you can join us! #oncosky #oncsky #medsky #AYACSM #cansky

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Dr.rer.pol. Sabine Schwab @sabine-nj.bsky.social · 30/05/2025

Hello from #ASCO25! This should be an interesting session. #btsm

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Dr.rer.pol. Sabine Schwab @sabine-nj.bsky.social · 30/05/2025

Anyone in my network attending #ASCO25? Would love to meet up ESPECIALLY if we haven’t met yet IRL. #btsm #cansky #oncsky

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Reposted by Dr.rer.pol. Sabine Schwab

Gitte 🧿✨ @gitteilc.bsky.social · 24/05/2025

👕 Headed to ASCO? Come find me if you want a #MakeCancerLessShitty t-shirt! They’re soft, expressive, and mildly therapeutic. Like a hug… but with attitude. Limited supply—like everyone’s emotional bandwidth 💩 #ASCO2025 #SuppOnc #SurvOnc #CancerHumor #OncoSwag @cancersuckless.bsky.social

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Brain Tumor Social Media Chat @btsmchat.bsky.social · 24/05/2025

Hey #braintumor community! Save the date for our next chat - taking place the weekend after #ASCO25, on June 8, 2025, at 5 pm PT, 6 pm MT, 7 pm CT, 8 pm ET. We would love to see some researcher/ scientists participate! #BTSM

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Dr.rer.pol. Sabine Schwab @sabine-nj.bsky.social · 19/05/2025

Honored to be a part of this community. Thanks, @thelizarmy.bsky.social for introducing me to #BTSM in 2014, onboarding me in 2018, and passing on the baton in 2023. @mcintose.bsky.social, @shawncarey42.bsky.social, @stuartselby.bsky.social and I will do our best to keep this movement going.

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Dr.rer.pol. Sabine Schwab @sabine-nj.bsky.social · 14/05/2025

What do cancer and a mountain lion have in common? Here's a piece by Caitlin Feeley (whom I met in 2015 through @firstdescents.bsky.social) on how it's like to go through cancer treatment: dreadpiratekhan.tumblr.com/post/1177584... #ayacsm #btsm #bcsm #lcsm #cansky

dreadpiratekhan.tumblr.com

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Dr.rer.pol. Sabine Schwab @sabine-nj.bsky.social · 13/05/2025

I've been too busy advocating that I completely forgot to tell the world that I celebrated 11 years post diagnosis last Monday! Proud GBM (because AA3 wildtype) survivor over here! #BTSM

Brain Tumor Social Media Chat @btsmchat.bsky.social · 05/05/2025

Reposted by Dr.rer.pol. Sabine Schwab

Half of the @btsmchat.bsky.social organizer team (@sabine-nj.bsky.social and @shawncarey42.bsky.social) participate at @braintumor.org’s 2025 #Head2Hill advocacy event in DC this week. Find any one of us if you’d like to learn more about #BTSM.

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Dr.rer.pol. Sabine Schwab @sabine-nj.bsky.social · 29/04/2025

I love a month with five weeks. In a life with many recurring monthly meeting, this is the week my schedule is fairly open. What are you up to this week? #Sabine365

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Dr.rer.pol. Sabine Schwab @sabine-nj.bsky.social · 26/04/2025

T-10 days until my 11 year cancer anniversary! I can’t believe I’ve made it this far. #btsm

Dr.rer.pol. Sabine Schwab @sabine-nj.bsky.social · 02/04/2025

Anyone suffering from increased sinus inflammation since #Covid? #ENT professionals: Do you see more patients with these symptoms? sabine365 #Sinusitis #medsky #

Dr.rer.pol. Sabine Schwab @sabine-nj.bsky.social · 30/03/2025

I’ll be joining tonight’s #btsm chat soon. Hope you’re with me!

Dr.rer.pol. Sabine Schwab @sabine-nj.bsky.social · 24/03/2025

Tell your friends, family, fellow patients, care, partners, lab buddies, coworkers, co-PI’s, fellows, residents, nurses, social workers, and anyone else in the #braintumor community to join us! #btsm

Dr.rer.pol. Sabine Schwab @sabine-nj.bsky.social · 23/03/2025

Who do I know who will be attending Head to the Hill in DC this May? #head2hill #btsm

Dr.rer.pol. Sabine Schwab @sabine-nj.bsky.social · 18/03/2025

Congratulations to the awardees. I tried to tag them but could not find them here on #bsky. If anyone knows their handle, please share the handle(s). #btsm

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Dr.rer.pol. Sabine Schwab @sabine-nj.bsky.social · 06/03/2025

Mark your calendars for the last Sunday of the first quarter of 2025! I'm honored to be the host/moderator for the inaugural #btsm #skychat. Infos on topic, date, and time below ⬇️

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Dr.rer.pol. Sabine Schwab @sabine-nj.bsky.social · 04/03/2025

This is the kind of news I like to wake up to on a Tuesday morning. #btsm 🙏🏻🥳

Dr.rer.pol. Sabine Schwab @sabine-nj.bsky.social · 04/03/2025

Scan day @mskcancercenter.bsky.social. Grateful for satellite locations and the fact that I could leave with my pictures on a CD in under 15 minutes. That's how to prioritize #patientsatisfaction. #btsm #oncosky #sabine365

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Brain Tumor Social Media Chat @btsmchat.bsky.social · 03/03/2025

Hi #Braintumor Patients, Care Partners, Clinicians, Researchers, Scientists, Friends, and Supporters! We're happy to report that our #BTSM chat starter pack is ready! In case we missed you, let us know and we'll add you to the list.

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Dr.rer.pol. Sabine Schwab @sabine-nj.bsky.social · 21/02/2025

Millions of Germans living overseas did not receive their mail-in ballot for Sunday’s elections. I am one of them. I know that Germany can do better and wonder what’s behind this mass mailing failure. 😡

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Dr.rer.pol. Sabine Schwab @sabine-nj.bsky.social · 16/02/2025

Poll: Do you finish puzzles by shape or by color? My husband @michaelschwab.bsky.social and I disagree on this important question. #sabine365

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Dr.rer.pol. Sabine Schwab @sabine-nj.bsky.social · 14/02/2025

Shout out to the @bsky.app support team. I’ve been locked out of my account for a good week, but shortly after opening a ticket, I’m able to log in again. 😍 #sabine365