iiinova — where your digital self keeps evolving

OurBrainBankForGlioblastoma @ourbrainbankforgbm.bsky.social · 06/10/2026

What is integrative oncology for glioblastoma? Join us for GBM Voices with Dr. Soma Sengupta, MD, PhD, MBA. We’ll explore how different approaches to living well can fit alongside medical care. Patients, caregivers, family, and friends welcome. Oct. 7, 2026 • 11 AM PT / 2 PM ET Free and virtual

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OurBrainBankForGlioblastoma @ourbrainbankforgbm.bsky.social · 29/09/2026

Live chat today — Sept. 29, noon ET — with Dr. Lakshmi Nayak of Dana Farber on social support and life with glioblastoma. #GBM #LIFT #glioblastoma #GBMVoices #OurBrainBank us02web.zoom.us/meeting/regi...

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EANO @eanoassociation.bsky.social · 26/09/2026

📢 Just presented at #EANO2026 – now published in Neuro-Oncology! The study “Potentially Inappropriate Care at the End of Life in Patients with Glioblastoma: A Single-Center Observational Cohort Study”, presented by first author Robin Pieterman, is now available open access. 🔗 doi.org/10.1093/neuo...

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EANO @eanoassociation.bsky.social · 27/09/2026

📢 Just presented at #EANO2026 – and now published in Neuro-Oncology! The study “Impact of [18F]FET-PET on MRI-Based Radiotherapy Target Volumes in Newly Diagnosed Glioblastoma: Results from the FET-PET in Glioblastoma (FIG) Study TROG 18.06”, presented by Eng-Siew Koh: doi.org/10.1093/neuo...

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OurBrainBankForGlioblastoma @ourbrainbankforgbm.bsky.social · 16/07/2026

Today is Glioblastoma Awareness Day. When did you learn about GBM? Share your story. #GBMDay #MyGBMstory #GBMAwarenessDay

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National Brain Tumor Society @braintumor.org · 15/07/2026

More than 14,000 Americans will be diagnosed with #glioblastoma in 2026, yet treatments and survival rates have remained largely unchanged for decades. This #GBMDay, reshare stats about this devastating disease to raise public awareness and inspire action: BrainTumor.org/GBMDay

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OurBrainBankForGlioblastoma @ourbrainbankforgbm.bsky.social · 08/07/2026

Join us July 9, 2026 for a live chat on advance care planning in glioblastoma. Link in comments. #GBM #GBMVoices #BTSM

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OurBrainBankForGlioblastoma @ourbrainbankforgbm.bsky.social · 08/06/2026

Free live chat on palliative care in glioblastoma. Thursday, June 11, 2026 with Dr. Akanksha Sharma. Learn more and register: www.ourbrainbank.org/june11

Live chat on palliative care in GBM.

Many people hear the words palliative care and immediately think hospice or end-of-life care.

In reality, palliative care can play an important role throughout the brain cancer journey by helping patients and caregivers manage symptoms, improve quality of life, navigate difficult decisions, and access the support they need.

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OurBrainBankForGlioblastoma @ourbrainbankforgbm.bsky.social · 30/05/2026

At ASCO 2026? Visit our poster and say hello to Executive Director Kelli Duprey and board member Gregory Grevera. "Assessing Loneliness in Glioblastoma Patients and Caregivers Using a Nationwide Survey" Poster #80, May 30, 1:30-4:30pm CT Abs. #547028 #ASCO2026 #ASCO #GBM #glioblastoma #GBMRights

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Phil Lewis @phillewis.bsky.social · 12/05/2026

Jason Collins, the NBA's first openly gay player who has served as a global ambassador for the sport, has died from brain cancer, his family said. He was 47 www.espn.com/nba/story/_/...

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OurBrainBankForGlioblastoma @ourbrainbankforgbm.bsky.social · 03/05/2026

Going to Washington DC for Head to the Hill? Please join us for a group photo — check back here for details or email us: info@ourbrainbank.org DEMAND MORE! #Head2Hill #HeadtotheHill #BTAM #DemandMore #GBM #glioblastoma #GBMRights

Going to Washington DC for Head to the Hill? Please joins us for a group photo — check back here for details or email us: info@ourbrainbank.org

New to Head to the Hill? It's an annual event organized by the National Brain Tumor Society where advocates affected by brain cancer tell their elected officials how much we need change.

DEMAND MORE!

#Head2Hill #HeadtotheHill #BTAM #DemandMore #GBM #glioblastoma #GBMRights

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OurBrainBankForGlioblastoma @ourbrainbankforgbm.bsky.social · 14/04/2026

Watch Good Morning America on Friday, April 17! April 17, 7-9am ET Good Morning America, ABC Hulu Disney+ (streaming, after live broadcast)

Watch Good Morning America on Friday, April 17 to see OurBrainBank trustee Sundas Hashmi speak with host Michael Strahan about brain cancer — her brother's and her own — and OurBrainBank for Glioblastoma. Michael Strahan's daughter is also living with a brain tumor.

April 17, 7-9am ET
Good Morning America, ABC
Hulu Disney+ (streaming, after live broadcast)

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OurBrainBankForGlioblastoma @ourbrainbankforgbm.bsky.social · 31/03/2026

Join us on April 1 @ noon ET for a live chat with Laura Hynes, Exec. Director of the non-profit Brain Tumor Network. Laura will cover the free navigation services that BTN offers to people in the US diagnosed wtih a brain tumor and their care partners. Link: ourbrainbank.org/btn #GBM #Glioblastoma

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OurBrainBankForGlioblastoma @ourbrainbankforgbm.bsky.social · 20/03/2026

Our founder, Jessica Morris (1963-2021), like the woman in this article, was also a longterm glioblastoma survivor (five years) and also did the herpes trial.

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OurBrainBankForGlioblastoma @ourbrainbankforgbm.bsky.social · 20/03/2026

Our lead researcher's op-ed about the myth of privilege in US healthcare when it comes to glioblastoma. Even with good insurance, if you're not told about: • tumor testing • second opinions • Optune • palliative care You're not getting the best GBM care. www.latimes.com/opinion/stor...

latimes.com

Contributor: Being insured in America is not the same as having access to care

Privilege in healthcare is shaped by geography, timing and a patient’s ability to navigate an unforgiving system while in crisis.

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OurBrainBankForGlioblastoma @ourbrainbankforgbm.bsky.social · 03/03/2026

Our founder Jessica Morris (1963-2021) was on this trial and survived five years following her glioblastoma diagnosis. Thank you Dr. Chiocca and everyone working in GBM research.

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OurBrainBankForGlioblastoma @ourbrainbankforgbm.bsky.social · 20/02/2026

Join us Tuesday, Feb. 24th at 11:30am ET for a talk by Jason Binder on the use of AI in navigating glioblastoma. Jason lost his wife to GBM in 2025. During her illness, he built an AI tool to help their family navigate treatment decisions and overwhelming information. www.ourbrainbank.org/binder

ourbrainbank.org

Live Zoom chat with Jason Binder: GBM & AI - OurBrainBank

Learn how a GBM widower is helping others navigate GBM using AI

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OurBrainBankForGlioblastoma @ourbrainbankforgbm.bsky.social · 31/12/2025

2025 was a big year for us! • Presented our Glioblastoma Disparities Survey at SNO & ASCO • Close to launching our innovative DANO-GBM (Digital Assessment Neuro-Oncology for GBM) project with Harvard Please consider a gift so we can reach our goal of $15,000 in 2025. Thank you! (link in comments)

Help support OurBrainBank for Glioblastoma

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Visit our shop https://www.bonfire.com/store/ourbrainbank/
Help support OurBrainBank for Glioblastoma

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OurBrainBankForGlioblastoma @ourbrainbankforgbm.bsky.social · 10/12/2025

Sad to read that Sophie Kinsella has died. We're dedicated to collecting data on glioblastoma — the deadliest type of brain tumour. Our hope is that one day, the information we collect will help turn this terminal disease into a treatable one.

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OurBrainBankForGlioblastoma @ourbrainbankforgbm.bsky.social · 24/11/2025

Please consider a gift to help OurBrainBank for Glioblastoma on December 2nd for Giving Tuesday. secure.givelively.org/donate/ourbr...

secure.givelively.org

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OurBrainBankForGlioblastoma @ourbrainbankforgbm.bsky.social · 19/11/2025

Visit our poster, attend a session, meet our Ex. Dir. Kelli Duprey, and learn about shocking disparities in GBM care in the USA. Proud to be selected for the 2025 Health Disparities & Quality Improvement Award #GBM #glioblastoma #GBMDisparities #SNO2025

“Disparities in Tumor Treating Fields (TTFields) Awareness, Access, and Patient Experience: Findings from a National GBM Survey” (Abstract DISP-34)
Oral Session: Friday, November 21, 11:30am-12:30pm
Poster Session: Saturday, November 22, 11:45am-1:05pm

“Disparities in Glioblastoma Care: A National Survey on Access to Trials, Testing, and Informed Decision-Making” (Abstract QOL-35)
Oral Presentation: Saturday, November 22, 4:30-5:30pm
Selected for the 2025 Health Disparities & Quality Improvement Award

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National Brain Tumor Society @braintumor.org · 16/07/2025

More than 13,000 Americans will be diagnosed with #glioblastoma in 2025, yet treatments and survival rates have remained largely unchanged for decades. 📣 This #GBMDay, reshare these stats to raise public awareness and inspire action. Learn more: braintumor.org/events/gliob...

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OurBrainBankForGlioblastoma @ourbrainbankforgbm.bsky.social · 16/07/2025

Today, July 16, 2025, is Glioblastoma Awareness Day. You can help: - Share your GBM story - Post about GBM Day (ourbrainbank.org/gbm-day-2025) - Donate to OurBrainBank so we can launch our new study! #GBM #glioblastoma #GBMDay #GBMAwarenessDay OurBrainBank.org/give

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Rachel Maddow @maddow.bsky.social · 08/06/2025

"Tanner, a chemist at the Univ. of Mississippi working to develop a novel approach for treating glioblastoma, was notified in April that the grant was terminated. “I would like to cure brain cancer,” Dr. Tanner said. “I think that's not particularly controversial.” www.nytimes.com/interactive/...

nytimes.com

The Gutting of America’s Medical Research: Here Is Every Canceled or Delayed N.I.H. Grant

Some cuts have been starkly visible, but the country’s medical grant-making machinery has also radically transformed outside the public eye.

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Reposted by OurBrainBankForGlioblastoma

Dr.rer.pol. Sabine Schwab @sabine-nj.bsky.social · 07/06/2025

The things we do on a Thursday night. Being a panelist for @Ourbrainbankforgbm.bsky.social (OBB), sharing my thoughts on patient power, hope, science, and politics . This event honored the late GBM superstar Jessica Morris, founder of OBB and author of “All in my head.” (a.co/d/8QnYrZg) #btsm

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OurBrainBankForGlioblastoma @ourbrainbankforgbm.bsky.social · 03/06/2025

In the NYC area? Limited tickets for our June 5th event are still available. #glioblastoma #JessicaMorris #AllinMyHead #GBM

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OurBrainBankForGlioblastoma @ourbrainbankforgbm.bsky.social · 02/06/2025

At ASCO? Stop by our booth and meet Ex. Dir. Kelli Duprey and learn about our survey about GBM care disparities in the USA. #ASCO #ASCO2025 #ASCO25 #GBM #glioblastoma #GBMDisparities #GBMRights #BTSM

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Dr.rer.pol. Sabine Schwab @sabine-nj.bsky.social · 01/06/2025

On this #NationalCancerSurvivorDay I’m doing the things I love to do: spreading awareness, networking, and connecting with others affected by (brain) cancer. If you/your loved one is facing a #Glioblastoma diagnosis, check out: @ourbrainbankforgbm.bsky.social #btsm

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OurBrainBankForGlioblastoma @ourbrainbankforgbm.bsky.social · 01/06/2025

At ASCO? Stop by our booth and meet Ex. Dir. Kelli Duprey and learn about our survey about GBM care disparities in the USA. #ASCO #ASCO2025 #ASCO25 #GBM #glioblastoma #GBMDisparities #GBMRights

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OurBrainBankForGlioblastoma @ourbrainbankforgbm.bsky.social · 31/05/2025

At ASCO? Stop by our booth (#13000) or view our poster “Disparities in Glioblastoma Care: Insights from a Nationwide Survey” (May 31, Hall A, #451, 1:30-4:30pm). #ASCO2025 #ASCO #GBM #Glioblastoma #BTSM #BTAM

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OurBrainBankForGlioblastoma @ourbrainbankforgbm.bsky.social · 06/05/2025

If you're at #Head2Hill, say hello to Kelli Duprey, Ex. Dir. of OurBrainBank for Glioblastoma and learn about our survey showing disparities in GBM care across the USA. #gbm #glioblastoma #GBMRights #braintumorawarenessmonth #ourbrainbankforglioblastoma #BTSM #NBTS

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Brain Tumor Social Media Chat @btsmchat.bsky.social · 05/05/2025

Half of the @btsmchat.bsky.social organizer team (@sabine-nj.bsky.social and @shawncarey42.bsky.social) participate at @braintumor.org’s 2025 #Head2Hill advocacy event in DC this week. Find any one of us if you’d like to learn more about #BTSM.

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Shaun Lintern @shaunlintern.bsky.social · 13/04/2025

Doctors at one of England’s leading cancer hospitals have launched a clinical trial of headgear that emits electric fields. The pulses disrupt cell division in glioblastoma — one of the deadliest forms of brain cancer www.thetimes.com/article/23d3...

thetimes.com

Electric ‘swimming cap’ could combat brain tumours

The NHS is trialling a headset that emits electrical fields that disrupt cell division, and it may improve survival rates if used early in treatment

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The Saturday Paper @thesaturdaypaper.com.au · 11/04/2025

After being diagnosed with an inoperable glioblastoma, The Saturday Paper’s editorial cartoonist, Jon Kudelka, took time to consider what really matters – and it is not politics.

thesaturdaypaper.com.au

Lessons from political cartooning

After being diagnosed with an inoperable glioblastoma, The Saturday Paper’s editorial cartoonist took time to consider what really matters – and it is not politics.

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OurBrainBankForGlioblastoma @ourbrainbankforgbm.bsky.social · 31/03/2025

Saddened to hear about another accomplished person lost to glioblastoma. Assuming a congress person would have access to excellent healthcare, did she receive everything we advocate for via our GBM Bill of Rights? (Link to #GBMRights in the comments.) www.npr.org/sections/sho...

npr.org

Doctors still seeking cure for brain cancer that struck former Utah Rep. Mia Love

Mia Love, the first Black Republican woman elected to Congress, died three years after being diagnosed with glioblastoma, a brain cancer that is nearly always fatal.

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OurBrainBankForGlioblastoma @ourbrainbankforgbm.bsky.social · 19/02/2025

At the GBM Drug Development Summit? Stop by our poster, meet Executive Director Kelli Duprey, and learn about how people in the USA are being treated — most were not offered a chance to participate in a clinical trial. #GBMSummit #GBMDisparities #GBM #glioblastoma

GBM treatment disparities chart, most in our survey were not offered a clinical trial

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OurBrainBankForGlioblastoma @ourbrainbankforgbm.bsky.social · 28/01/2025

The Al Musella Foundation Copayment Assistance Program helps people with brain cancer. Learn more at brainumorcopays.org and follow the directions to apply.

brainumorcopays.org

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OurBrainBankForGlioblastoma @ourbrainbankforgbm.bsky.social · 30/12/2024

Anyone who's had a loved one with glioblastoma knows the heartbreaking toll it can take on care partners.

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Nicola Nuttall @shitscaredmum.bsky.social · 17/11/2024

If, like Laura I was diagnosed with #glioblastoma I’d seriously consider #AssistedDying Yet I’d have tried to talk her out of making the same choice Given a 12mth prognosis she lived well for 4yrs, travelled, studied & touched many lives Her death was hell, but she lived an entire life #bothsides

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OurBrainBankForGlioblastoma @ourbrainbankforgbm.bsky.social · 03/12/2024

On Giving Tuesday, we appreciate everyone who donates — every dollar helps us spread awareness and DEMAND MORE! for people living with glioblastoma today and tomorrow. (Donation link in comments.)

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