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rthm_health @rthm.bsky.social · 24/09/2026

Preventing PEM often means looking beyond exertion alone. In this clip, Dr. Lucinda Bateman discusses approaches that may support baseline function, including improving restorative sleep & using fluids strategically before upright activity. Watch the webinar here: www.youtube.com/watch?v=Na5z...

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rthm_health @rthm.bsky.social · 14/09/2026

PEM can look different from person to person, and treatment may depend on a person’s specific triggers and clinical picture. Dr. Jennifer Curtin discusses how she approaches cognitive versus physical PEM, & why treatment often needs to be individualized. Watch the full webinar: youtu.be/Na5znc92ylY

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rthm_health @rthm.bsky.social · 02/09/2026

Have you tried Low Dose Naltrexone (LDN) for Long COVID, ME/CFS, or other chronic illness symptoms? According to real-world data, 61% of RTHM Platform users who had taken LDN reported improvements, and 39% of those described the benefits as significant. Learn more: www.rthm.com

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rthm_health @rthm.bsky.social · 01/09/2026

Could dextromethorphan help reduce the severity of PEM? Join Dr. David Putrino, Dr. Lucinda Bateman, Dr. Jennifer Curtin, and moderator Charlie McCone for the full How to Manage and Treat Post-Exertional Malaise (PEM) webinar. Watch the full webinar here: www.youtube.com/@RTHM_Health

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Reposted by rthm_health

ME/CFS San Diego @mecfssd.bsky.social · 27/08/2026

COVID treatment & LC prevention: @rthm.bsky.social guide www.rthm.com/resources/bl... remains useful but 2026 update: Paxlovid evidence for preventing LC has weakened; metformin evidence has strengthened, while Xocova is now available for PEP but access remains limited.

rthm.com

You've Got COVID! Minimize Your Symptoms and Reduce Your Long COVID Risk

Essential guidance for managing acute COVID-19 to minimize symptoms and reduce Long COVID risk. Learn what to do when you test positive.

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rthm_health @rthm.bsky.social · 17/08/2026

Dr. David Putrino and Dr. Jennifer Curtin explore why PEM triggers may vary so much from person to person, including possible roles for mitochondrial dysfunction, persistent infections, and ongoing inflammation. Watch the full webinar recording here: youtu.be/Na5znc92ylY

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rthm_health @rthm.bsky.social · 17/08/2026

In our webinar on the Long COVID Treatment Guide, Dr. Zachary Spiritos highlights the importance of truly listening when caring for patients with complex chronic illness. Download the Long COVID Treatment Guide here: rthm.com/resources/bl... Watch the full webinar on YouTube: youtu.be/VdfPnwz7fmA

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ME/CFS San Diego @mecfssd.bsky.social · 17/08/2026

@rthm.bsky.social PEM Webinar Recording: Dr. Lucinda Bateman discusses exercise-study findings showing measurable immune, autonomic and neurologic changes in ME/CFS that persisted 48 hours after exertion, and how repeated exertion may contribute to rolling PEM. youtu.be/Na5znc92ylY

youtu.be

How to Manage and Treat Post-Exertional Malaise (PEM)

YouTube video by RTHM Health

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rthm_health @rthm.bsky.social · 05/08/2026

Tomorrow at August 6th 2pm PST | 5 pm EST, join Dr. David Putrino, Dr. Lucinda Bateman, Dr. Jennifer Curtin, and moderator Charlie McCone for a discussion on how to best manage and treat post-exertional malaise (PEM). Sign up here: ow.ly/FLoJ50ZtEba

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rthm_health @rthm.bsky.social · 05/08/2026

We’ll be addressing questions and concerns like this during tomorrow’s webinar, including the broader barriers that can make PEM management impossible for many patients.

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rthm_health @rthm.bsky.social · 05/08/2026

This is such an important point. For many people, avoiding PEM is not simply a matter of pacing—it is shaped by whether they have access to adequate financial support, workplace accommodations, and social protections.

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rthm_health @rthm.bsky.social · 05/08/2026

Yes, this will be recorded and we will post the webinar recording on our YouTube channel after the event.

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rthm_health @rthm.bsky.social · 27/07/2026

Join Dr. David Putrino, Dr. Lucinda Bateman, Dr. Jennifer Curtin, & moderator Charlie McCone for a discussion on how to best manage and treat post-exertional malaise. Learn about the different types of PEM, how to navigate a crash, and interventions for reducing PEM. Sign up here: ow.ly/nAvg50ZtEb8

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rthm_health @rthm.bsky.social · 23/07/2026

In our webinar on the Long COVID Treatment Guide, PLRC patient advocate Charlie McCone shares how he found the motivation to re-engage with treatment after feeling demoralized by the trial-and-error process. Listen to the full webinar: youtu.be/VdfPnwz7fmA

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rthm_health @rthm.bsky.social · 14/07/2026

Have you tried pyridostigmine for Long COVID, ME/CFS, Orthostatic Hypotension, or POTS-related symptoms? Swipe to learn why some RTHM users are finding pyridostigmine to be a helpful tool in managing complex chronic illness. Click here to get started: www.rthm.com

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rthm_health @rthm.bsky.social · 08/07/2026

In our latest webinar, Dr. Binita Kane and Dr. Jennifer Curtin discuss how Dr. Kane uses the Long COVID Treatment guide in her clinic in the UK. She highlights how the guide brings key treatment options into one concise, practical resource for both providers and patients. youtu.be/VdfPnwz7fmA

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rthm_health @rthm.bsky.social · 25/06/2026

In our webinar on the Long COVID Treatment Guide, Dr. Zachary Spiritos and PLRC patient advocate Charlie McCone discuss tips on how patients can share this guide with clinicians in a way that may help a doctor’s visit be more successful. Watch the full webinar: youtu.be/VdfPnwz7fmA

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rthm_health @rthm.bsky.social · 29/05/2026

Join RTHM, Patient-Led Research Collaborative (PLRC), Dr. Zachary Spiritos, and Dr. Binita Kane on June 12 at 9:30 a.m. PST // 12:30 p.m. EST // 5:30 p.m. GMT+1 for a live discussion on the new Long COVID Treatment Guide. Register here: us06web.zoom.us/j/8738963156...

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rthm_health @rthm.bsky.social · 27/05/2026

Want to know how the latest Long COVID research relates to your case? Here are 5 recent publications related to Long COVID, ranging from immune and vascular changes to viral reactivation. Sign up to receive studies curated to your health & topics of interest: www.rthm.com/research-cor...

Impaired peripheral oxygen delivery during submaximal exercise in adults with long COVID PMID: 42026739

This study on Long COVID (LC) reveals that individuals exhibit impaired muscle oxygenation and recovery during repeated exercise. Specifically, LC participants showed compromised peripheral oxygen extraction, and their physical performance declined significantly on a second exercise day compared to controls. The findings suggest that tissue hypoxia may contribute to the exacerbation of symptoms in LC.

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rthm_health @rthm.bsky.social · 20/05/2026

In POTScast Ep 306, Dr. Jennifer Curtin and patient advocate Charlie McCone explain how the Long COVID Treatment Guide, a collaboration between RTHM & PLRC, helps patients and clinicians have meaningful conversations about treatment options that can be considered as part of a personalized care plan.

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rthm_health @rthm.bsky.social · 22/04/2026

PLRC and RTHM Clinic recently released the Long COVID Treatment Guide to support more informed conversations between patients and their clinicians. Today, we’re highlighting rapamycin, a medication that has shown promise for those with ME/CFS and Long COVID. Download the guide here rthm.com/treat…

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rthm_health @rthm.bsky.social · 08/04/2026

Thank you for sharing this so openly. We’re so sorry you went through that. Akathisia and severe insomnia can be deeply distressing, especially without clear guidance. Experiences like yours underscore why better clinician education and clearer information on what to watch for are so needed. 💙

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loscharlos @loscharlos.bsky.social · 07/04/2026

From @cortjohnson.bsky.social: “The free @rthm.bsky.social & @patientled.bsky.social #LongCovid Treatment Guide is one of those publications that makes you wonder, ‘Why hasn’t this been done before?’ A succinct, evidence-based guide drs can quickly turn to learn about LC treatments.”

healthrising.org

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rthm_health @rthm.bsky.social · 31/03/2026

Thank you for sharing this. That shift in PEM sounds really meaningful, especially going from needing to stay in bed to more just wanting to. Even that kind of change can make a big difference in daily life.

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rthm_health @rthm.bsky.social · 30/03/2026

There can be a kind of rebound or temporary dysregulation that shows up as restlessness or akathisia. For people with more sensitive nervous systems, that effect can feel more intense or last longer.

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rthm_health @rthm.bsky.social · 30/03/2026

In some cases, this can happen because LDN interacts with the opioid system, which is closely tied to dopamine signaling and nervous system regulation. After being on it for a longer period, the body can adapt to those changes, and when it’s reduced or stopped.

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rthm_health @rthm.bsky.social · 30/03/2026

That’s really powerful, especially feeling like it’s helping hold the line & prevent further worsening. It sounds like you were very intentional in finding your personal dosage, and that kind of careful titration can make a big difference. Interesting how going higher didn’t mean better for you.

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rthm_health @rthm.bsky.social · 30/03/2026

That sounds like a really difficult experience, especially after giving it such a thoughtful and extended trial. Going through months of symptoms like akathisia on top of everything else is a lot to carry, and it makes sense you’d want answers around the why.

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rthm_health @rthm.bsky.social · 27/03/2026

Have you tried Low Dose Naltrexone (LDN) for Long COVID, ME/CFS, or other chronic illness symptoms? Please share in comments. According to real-world data, 57% of RTHM Platform users who had taken LDN reported improvements, and 38% of those described the benefits as significant. www.rthm.com

Top Symptom Improvements

24% Experienced reduced fatigue

18% Had improved mental clarity

11% Saw reduced post-exertional malaise

18% Saw reduced aches and pains

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rthm_health @rthm.bsky.social · 23/03/2026

Long COVID may be affecting how some children learn and participate in school. In a survey of 11,000+ U.S. kids, those with LC were 2.5× more likely to experience chronic illness-related absenteeism and reported higher rates of learning, memory, & concentration difficulties. doi.org/10.3201/eid3...

Recent Study:

Long COVID among school-aged children associated with chronic absenteeism.

Authors: Nicole D. Ford, Regina M. Simeone, Caroline Pratt, and Sharon Saydah

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