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RikkaPik

@rikkapik.bsky.social
247 followers 379 following 709 posts

Suffering from ME/CFS, turning to art to keep (almost) sane. PTSD survior, broken brain lefty and demiace Gen X. Some stuff:https://www.deviantart.com/rikkapik

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Tom Kindlon @tomkindlon.bsky.social · 11/10/2026
ME Research UK: As part of our Symptom Saturday series over the past 2 months, we’ve been exploring research insights into the core symptoms of ME/CFS. For ease of access & sharing, we’ve collated & summarised the info. Follow link for full overview. tinyurl.com/MEcoresympto... #MEcfs #CFS #PwME
ME/CFS core symptoms: Research insights 
ME Research UK Symptom Saturday: Research summary compilation 
INFORM. INFLUENCE. INVEST. 411% RESEARCH S E0S6942
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Tom Kindlon @tomkindlon.bsky.social · 11/10/2026
It has quite often seemed like many proponents of biopsychosocial approaches like GET and graded activity-oriented CBT didn’t want much biomedical research, particularly the type that would challenge their theories e.g. Royal Colleges report on CFS. Not very admirable. #MEcfs #PwME #CFS
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Tom Kindlon @tomkindlon.bsky.social · 14h
Springer Nature Removes Description of "Fatigue" Patients as "Combative" and "Reproachful" - UPDATED by David Tuller virology.ws/2026/10/10/t... Screenshot from latest Science for ME weekly update #MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
Trial by Error by David Tuller Springer Nature Removes Description of "Fatigue" Patients as "Combative" and "Reproachful" - UPDATED
A German paper on chronic fatigue syndrome published by Springer Nature contained derogative language about patients. This resulted into a joint statement with objection from many healthcare providers and scientists. It later turned out the characterisations had been added by a psychiatrist who was responsible editor of the project the paper was part of.
Article l Thread
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Tom Kindlon @tomkindlon.bsky.social · 11/10/2026
Low Vasopressin in Myalgic Encephalomyelitise/Chronic Fatigue Syndrome Vasopressin is also known as antidiuretic hormone www.endocrinepractice.org/article/S153... Screenshot from AMMES October 2026 newsletter #MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
Photo of someone lying, collapsed on sand looking exhausted

With the following text

LOW VASOPRESSIN IN MYALGIC ENCEPHALOMYELITIS/CHRONIC FATIGUE SYNDROME
In a consecutive series of ME-CFS patients, majority had very low vasopressin levels, relatively high plasma osmolality and low urine osmolality, in absence of overt hypothalamic or hypophyseal pathology. Chronic down-regulation of vasopressin mimicking central diabetes insipidus may contribute to the core symptoms of ME/CFS.  
Read more here>>
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Billy Hanlon @bhanlon15.bsky.social · 09/10/2026
George Mason Univ: 'New Study Explores Overlap Between Long COVID and Post-Treatment Lyme Disease' 'Although public attention has shifted away from the pandemic, long COVID remains a significant health concern' science.gmu.edu/news/new-stu...
science.gmu.edu
New Study Explores Overlap Between Long COVID and Post-Treatment Lyme Disease | GMU College of Science
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Tom Kindlon @tomkindlon.bsky.social · 10/10/2026
Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed www.theguardian.com/commentisfre... Screenshot from AMMES October 2026 newsletter #MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
Photo of someone looking pensive with the following text
Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed
I’ve spent my working life covering neglected issues. But few are neglected like the devastating chronic condition ME/CFS (myalgic encephalomyelitis, or chronic fatigue syndrome). In severe cases, the illness shuts down people’s lives almost entirely, causing an extreme loss of energy and a wide range of physical and cognitive symptoms that can prevent patients from working, socialising and, sometimes, even moving or eating. Yet these people have been more or less airbrushed from our minds.  
Read more here>>
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RikkaPik @rikkapik.bsky.social · 10/10/2026
I hate my #ME. Either I lay down and my back stops hurting... but then I can't breathe because my asthma kicks in. So I sit up and am able to get oxigen into my body. But them some sadistic mad scientist wraps his homemade chimera of a porcupine and an electric eel around my spine...
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Tom Kindlon @tomkindlon.bsky.social · 09/10/2026
From the US Neurocognitive Indices of Long COVID: Dysregulated Engagement of Inhibitory Control and Oscillatory Slowing www.mdpi.com/2673-4087/7/... Screenshot from latest Science for ME weekly update #LongCovid #NeuroPASC #COVIDBrain #PASC #PwLC #postcovid #postcovid19
Neurocognitive Indices of Long COVID: Dysregulated Engagement of Inhibitory Control and Oscillatory Slowing — White et al
"Taken together, these findings clearly indicate that even mild PASC is associated with significant alterations in cell signaling, characterized by oscillatory slowing."
Article | Thread
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Billy Hanlon @bhanlon15.bsky.social · 09/10/2026
Yahoo Health: 'Research offers a clue to why long COVID can leave people mentally drained' 'Researchers found that people with long-COVID fatigue had slightly lower cerebral blood flow and slower, more variable responses during a 20-minute attention test.' health.yahoo.com/conditions/m...
health.yahoo.com
Research offers a clue to why long COVID can leave people mentally drained
A small Swedish study may now offer a clue about what is happening inside the brain. Researchers found that people with long-COVID fatigue had slightly lower cerebral blood flow and slower, more varia...
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purr.in.ink @purrinink.bsky.social · 09/10/2026
A little good luck for you. 😽😽🤍
A fluffy black cat with enormous round eyes and two tiny fangs holds a pink flower against a turquoise background. White handwritten text on black strips reads: “Rumour has it, this black cat brings good luck. It may also knock something off your table or give you a gentle bite. But mostly, it’s here to bring you good luck.”
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Tom Kindlon @tomkindlon.bsky.social · 09/10/2026
"The survey has identified multiple different ways that psychologists can potentially give that support & help people with ME/CFS" Extract from British Psychological Society ME/CFS Guidelines (September 2026 Update) meassociation.org.uk/wp-content/u... #MEcfs #PwME #CFS #MyalgicEncephalomyelitis
Welcome to the third British Psychological Society ME/CFS Guidelines update. We have been carrying out further analysis of the responses to our survey about what people with ME/CFS want psychologists to know to support both the guidelines and a planned research paper. Participants have said very clearly that the guidelines must recognise ME/CFS is a biological illness that cannot be cured by psychological methods. The role of psychology is support. The survey has identified multiple different ways that psychologists can potentially give that support and help people with ME/CFS:
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Build trust: by believing people, listening compassionately, respecting lived expertise and taking limits seriously.
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Support life with ME/CFS: including grief, identity change, loss of autonomy, loneliness, uncertainty, hope and changed relationships.
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Support pacing: by helping people recognise limits, plan around exertion and reduce guilt, shame, self-blame or pressure to push through.
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Adapt care: so psychological support is accessible, paced, flexible and appropriate for the person’s severity and energy limits.
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Support mental health safely: by adapting work on anxiety, depression, trauma or other difficulties so ME/CFS symptoms are not misinterpreted.
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Work with wider systems: including families, carers, schools, employers, healthcare, benefits, social care and voluntary-sector support to help support and educate others.
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Reduce harm: challenge psychologization, coercion and patient blaming. Avoid minimising comments and inappropriate pressure to increase activity.
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Help process trauma: disbelief, dismissal, psychologisation, delayed diagnosis, medical gaslighting, coercion and previous harmful treatment can impact mental health.
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Signposting to resources: help with practical problem solving and system navigation, including benefits, social care, mobility aids, workplace adjustments, education, housing and finances where appropriate.
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purr.in.ink @purrinink.bsky.social · 07/10/2026
⚔️🐾🤍..
A little black cat with large, round eyes wears silver armour and holds a shield and a raised sword. It sits on green grass beneath a softly blended pink, purple and blue sky. White handwritten text above reads: “I will fall, but I will get up. I will fail, but I will try again. I might be scared sometimes, but there’s a brave little heart in me.”
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Tom Kindlon @tomkindlon.bsky.social · 07/10/2026
New CDC study Characterizing Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Symptom Burden, Functional Impairment, and Comparison With Adults www.jpeds.com/article/S002... #MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
Objectives
To characterize the clinical, functional, and educational characteristics of adolescents with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and compare selected illness domains with adults in the Multi-Site Clinical Assessment of ME/CFS (MCAM) study.
Study design
Baseline cross-sectional data from adolescents aged 10–17 years enrolled in MCAM were analyzed. Standardized measures included the Short Form-36 (SF-36v2), CDC Symptom Inventory (CDC-SI), Multidimensional Fatigue Inventory (MFI-20), and selected domains of the DePaul Questionnaire. Descriptive statistics characterized the pediatric cohort and bivariate analyses compared adolescents with adults enrolled in MCAM.
Results
Forty adolescents (mean age 15.3 years; 52.5% female) were included. Mean illness duration was 4.0 years. Educational disruption was substantial: 64% received homebound or homeschool instruction, 89% missed school because of illness, and participants missed a mean of 10.8 school days during the preceding month. Physical health-related quality of life was substantially impaired. Persistent post-exertional malaise (PEM), unrefreshing sleep, fatigue, and neurocognitive symptoms were common. Compared with adults (n = 595), adolescents had shorter illness duration and better physical functioning, vitality, and social functioning, whereas mental health scores were similar. Adults reported greater burden across several physical symptom domains although many between-group differences were small.
Conclusions
Adolescents with ME/CFS experience substantial multisystem symptom burden, impaired physical functioning and educational disruption. Many core clinical features were similar to those in adults, supporting the need for early recognition and appropriate clinical and educational support.
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Tom Kindlon @tomkindlon.bsky.social · 07/10/2026
Recording of the 24 September 2026 ME Support webinar featuring Chris Ponting @cgatist.bsky.social is up: www.youtube.com/watch?v=UJYU... #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME


THE UNIVERSITY of EDINBURGH 
upport - uest Speaker nt with Chris Ponting 
ME: ME/CFS & biomarker udies ME Support 
Navigating ME/CFS and Long COV.
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Tom Kindlon @tomkindlon.bsky.social · 06/10/2026
Norway Demonstration scheduled for 28th October www.facebook.com/events/18087... www.me-foreldrene.no/markering-pa... Screenshot from latest Science for ME weekly update #MEcfs #PwME #CFS #MyalgicEncephalomyelitis #LongCovid @meforeningen.bsky.social
Norway Demonstration scheduled for 28th October at 3:00 PM
Three patient organisations — The Norwegian ME Association, The ME Parents, and the Norwegian Covid Association — are organising a demonstration outside the Norwegian Parliament demanding a stop of the planned clinical guidelines for fatigue and ME. They ask for a separate guideline and expertise in healthcare for ME and post-infectious illness with PEM. Digital participation will be possible.
Facebook event (Norwegian) l "The ME Parents" website (English translation) l Thread
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RikkaPik @rikkapik.bsky.social · 07/10/2026
Okay, starting again. #ME/CFS is not like as a name for our condition. Doctors don't like the ME part, because it does not decribe the condition correctly. The CFS part is so unspecific I know of people who got their depression labed as CFS (because is sounds better then burnout?) and fatigue is
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Tom Kindlon @tomkindlon.bsky.social · 05/10/2026
I was one of a number of patient scientists and advocates who was interviewed for this sympathetic, open access paper "Patient's knowledge, doctor's ignorance: The production of knowledge about myalgic encephalomyelitis" www.sciencedirect.com/science/arti... #MEcfs #PwME #epatient #epatients #CFS
Abstract
It is usually assumed that patient and doctor know strictly different things: the patient knows the phenomenological aspects of their illness, and the doctor knows its medical aspects. I present a case study, that of myalgic encephalomyelitis, wherein, due to severely dysfunctional institutional knowledge production and transmission mechanisms, the medical aspects of the illness are on the whole better understood by sick people than by their doctors. Indeed, lay scientists within the patient community disseminate and produce science on their disease, ensuring that patients as a whole have reliable knowledge about their disease. By contrast, systemically produced and systemically maintained ignorance on the part of medical professionals is the norm, and may be beyond the specific case study I present.
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Billy Hanlon @bhanlon15.bsky.social · 05/10/2026
Tri-City Herald (WA): 'Guest Opinion: COVID-19‘s long-haulers are suffering and need our support' 'our elected officials need to come together in a bipartisan effort to help these unlucky few whose bodies were negatively affected long-term.' amp.tri-cityherald.com/opinion/opn-...
amp.tri-cityherald.com
Guest Opinion: COVID-19‘s long-haulers are suffering and need our support
It’s time to find answers for the unlucky people dealing with continuing effects of COVID-19
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Tom Kindlon @tomkindlon.bsky.social · 06/10/2026
He is also on IG with the same username #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #meawareness #mecfsawareness
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Billy Hanlon @bhanlon15.bsky.social · 05/10/2026
July 2020, Cleveland: 'A mild case of COVID-19 is not a mild case of the flu: Long-haulers’ symptoms linger for months, and lasting effects are still a mystery' “Anyone can be a long hauler...we don’t know why this is happening.” - Dr. Christopher Babiuch www.cleveland.com/coronavirus/...
cleveland.com
A mild case of COVID-19 is not a mild case of the flu: Long-haulers’ symptoms linger for months, and lasting effects are still a mystery
COVID-19 patients who call themselves “long haulers" are defined as patients with persistent symptoms that last more than two weeks.Symptoms include extreme fatigues, shortness of breath and brain fog...
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Billy Hanlon @bhanlon15.bsky.social · 04/10/2026
Science Alert: 'Brain Scans of 24 People With Long COVID Reveal Signs of Injury to Dopamine Neurons' "Our findings provide compelling evidence that long COVID involves the loss of dopamine-releasing neurons" www.sciencealert.com/brain-scans-...
sciencealert.com
Brain Scans of 24 People With Long COVID Reveal Signs of Injury to Dopamine Neurons
Scientists have discovered a distinct change in the brains of people with long COVID that might explain some of the illness's most debilitating symptoms.
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RikkaPik @rikkapik.bsky.social · 04/10/2026
Challenge: just a clay #render in #blender. Prompt was breakfast. I tried to separate the items with lighting.
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Billy Hanlon @bhanlon15.bsky.social · 03/10/2026
Radiology Business: 'MRI links long COVID fatigue to reduced cerebral blood flow' radiologybusiness.com/topics/medic...
radiologybusiness.com
MRI links long COVID fatigue to reduced cerebral blood flow
The study also distinguishes between feeling fatigued and becoming progressively less able to maintain performance post-COVID.
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Billy Hanlon @bhanlon15.bsky.social · 02/10/2026
The Star (WA): 'Nurse now homebound from Long COVID: Only Congress can change what happens next' 'Long COVID is real. ME/CFS is real. It came for me, and it can come for anyone. What’s left is a single line in a spending bill and lawmakers willing to write it.' www.grandcoulee.com/story/2026/0...
grandcoulee.com
Nurse now homebound from Long COVID: Only Congress can change what happens next
I spent nearly 30 years as a nurse, including in an infectious disease clinic, before I stepped away, worn down by the relentless work. But when COVID swept the nation, I came back to help my fellow S...
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Billy Hanlon @bhanlon15.bsky.social · 03/10/2026
Nov. 2021, Washington Post: 'Could long covid unlock clues to chronic fatigue and other poorly understood conditions?' “This is our best chance to figure out ME/CFS,” Koroshetz said, “with the resources and an army of people.” www.washingtonpost.com/health/2021/...
washingtonpost.com
Could long covid unlock clues to chronic fatigue and other poorly understood conditions?
As millions of people nationwide suffer from long-haul covid, patient advocates are cautiously hopeful that new research may unlock clues to other conditions that appear to crop up after infections, i...
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RikkaPik @rikkapik.bsky.social · 01/10/2026
I just saw a reaction to the #deadinternettheory So... Ölaf is a gremlin, troll, and a real goblin. 🍍🍍🍍🍍 Just bring back the goblins, as the web is my social lifeline now.
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Tom Kindlon @tomkindlon.bsky.social · 01/10/2026
DNA methylation: unifying framework for complex chronic conditions www.cell.com/trends/genet... Screenshot from latest Science for ME weekly update #MEcfs #LongCovid #PwME #CFS #Fibromyalgia
DNA methylation: unifying framework for complex chronic conditions — Sharma et al
Review. "epigenetic regulation, particularly DNA methylation, offers a powerful framework for linking environmental triggers, host susceptibility, and persistent changes in gene regulation. Its relative stability, sensitivity, and accessibility in peripheral tissues position it as a leading candidate for biomarker development, disease stratification, and monitoring of disease trajectories."
Article | Thread
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Billy Hanlon @bhanlon15.bsky.social · 01/10/2026
The Conversation: 'Covid fatigue linked to reduced brain blood flow' 'For many people living with long COVID, things are different. Reading, working at a computer or concentrating on a conversation can require far more effort than it once did...' theconversation.com/covid-fatigu...
theconversation.com
Covid fatigue linked to reduced brain blood flow
Everyday activities can require enormous effort for people living with post-COVID fatigue. This study examines the brain mechanisms that may contribute to fatigue.
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Billy Hanlon @bhanlon15.bsky.social · 01/10/2026
Many thanks to @angeladavismpr.bsky.social for covering this important topic today with @mprnews.org
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Billy Hanlon @bhanlon15.bsky.social · 29/09/2026
NIH: 'Antiviral drug did not improve Long COVID symptoms' 'The findings suggest that other approaches to manage symptoms and treat Long COVID are needed.' 'This study is part of a large NIH initiative called Researching COVID to Enhance Recovery (RECOVER).' www.nih.gov/news-events/...
nih.gov
Antiviral drug did not improve Long COVID symptoms
A clinical trial for Long COVID found that treating patients with a common antiviral drug for up to 25 days did not improve symptoms.
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Tom Kindlon @tomkindlon.bsky.social · 30/09/2026
The Post-Acute Effects of COVID-19 Are Not Associated with Robust Long-Term Regional or Global Brain Volumetric Changes: A Bayesian Meta-Analytic Evidence www.sciencedirect.com/science/arti... Screenshot from Science for ME update #LongCovid #NeuroPASC #COVIDBrain #PASC #postcovid #postcovid19
The Post-Acute Effects of COVID-19 Are Not Associated with Robust Long-Term Regional or Global Brain Volumetric Changes: A Bayesian Meta-Analytic Evidence — Costa et al
"our focused examination of both global and regional volumetric changes not only provides deeper spatial insights compared to previous primary studies but also addresses the substantial methodological heterogeneity" "Results highlighted that while either global or local alteration was reported by independent studies, this evidence remains unsupported when they are considered on a meta-analytic level."
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Tom Kindlon @tomkindlon.bsky.social · 30/09/2026
From Germany Evaluation of an Integrated Multidisciplinary Care Model for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A Prospective, Open-label, Non-randomized Controlled Intervention Study www.amjmed.com/article/S000... Screenshot from Science for ME weekly update #MEcfs #PwME #CFS
Evaluation of an Integrated Multidisciplinary Care Model for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A Prospective, Open-label, Non-randomized Controlled Intervention Study — Peters et al
"At the post-rehabilitation visit the Bell scale was lower in 45% of patients and higher in only 14% compared with baseline" "Our findings question the clinical value of current rehabilitation in ME/CFS, even when specifically adapted to the disease, particularly for severely affected patients."
Article | Thread
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Billy Hanlon @bhanlon15.bsky.social · 29/09/2026
MPR: 'Long COVID affects many Minnesotans years after the pandemic' 'And we want to hear from you, too.' Coming up at 9AM on Wednesday, 9/30/26 www.mprnews.org/episode/2026...
mprnews.org
Long COVID affects many Minnesotans years after the pandemic
It’s been six years since the start of the COVID-19 pandemic, but many Minnesotans are still suffering its aftermath. Coming up at 9 a.m. on Wednesday, MPR News host Angela Davis talks about the extre...
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Galder @galder.bsky.social · 28/09/2026
Goodbye Summer! Wilkins and Sakara definitely had a good time :D. #warcraft #fantasy #illustration #couple #anthro #worgen #werewolf #beach #art #digitalart
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Billy Hanlon @bhanlon15.bsky.social · 28/09/2026
Health Rising: 'Bezisterim – the Best Long COVID Drug Trial Yet? BioVie Aims for a Big, Phase III Trial' '..the Dept. of Defense took a leap and funded it – and, lo and behold, we have the best results of any drug trial thus far' www.healthrising.org/blog/2026/09...
healthrising.org
Bezisterim - the Best Long COVID Drug Trial Yet? BioVie Aims for a Big, Phase III Trial - Health Rising
Bezisterim produces moderate and broad treatment effects in several different long COVID subsets. BioVie, the drug manufacturer, hopes to move forward with a big phase III trial.
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Tom Kindlon @tomkindlon.bsky.social · 28/09/2026
“I look fine, but dealing with chronic illness is my full-time job” (Pittsburgh's Public Source) www.publicsource.org/pots-long-co... First person account about coping with chronic illness triggered by COVID infection. #LongCovid #invisibleillness #hiddenillness #chronicillness
publicsource.org
I look fine, but dealing with chronic illness is my full-time job
Jennifer McCalla doesn't look sick, but living with long COVID and POTS is a full-time job. She writes about invisible illness and the fight to be believed.
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Tom Kindlon @tomkindlon.bsky.social · 28/09/2026
The Severe & Very Severe ME Research Registry has been created. It gives people with severe and very severe ME from Germany, Austria, & Switzerland the opportunity to participate in research through home visits severe-me-registry.de #SevereME #MEcfs #CFS #PwME #VerySevereME #ChronicFatigueSyndrome
severe-me-registry.de
Severe & Very Severe ME Research Registry
Das Severe and Very Severe ME Research Registry verbindet ME Schwer- und Schwerstbetroffene mit biomedizinischer, häuslicher Forschung.
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RikkaPik @rikkapik.bsky.social · 27/09/2026
I can't play Clair Obscure Expedition 33. That does not mean it does not resound with me on many levels. One of the things stuck in my mind is the "true art is a mask and a mirror" #artonbluesky #E33
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Adam @abrokenbattery.bsky.social · 27/09/2026
“It has sent many people from having mild or moderate cases to severe #MECFS… it has turned people housebound, bedbound. It has completely destroyed their lives.” @georgemonbiot.bsky.social on the harm caused by graded exercise therapy (GET) for #MECFS.
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George Monbiot @georgemonbiot.bsky.social · 27/09/2026
I talked this week about the mental health crisis afflicting young people, in particular the isolation and loneliness caused by the neoliberal smashing of society. Everyone needs community. Everyone needs belonging. We cannot survive without them.
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Tom Kindlon @tomkindlon.bsky.social · 26/09/2026
RECOVER researchers and caregivers shared insights into Long COVID social risk factors and how Long COVID affects children’s learning and school experiences—including what researchers hope to learn next. Text plus video recording recovercovid.org/r3-seminar-s... #LongCovid #LongCovidKids #LCKids
recovercovid.org
Growing up with Long COVID—Risk factors and school impacts
Findings from RECOVER’s pediatric observational study show that Long COVID can affect children’s health and daily lives in different ways. During the September 15, 2026, RECOVER Research Review (R3) S...
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Tom Kindlon @tomkindlon.bsky.social · 26/09/2026
“Blistering New Monbiot Column on ME/CFS Mistreatment, Neglect” By David Tuller virology.ws/2026/09/26/t... #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
Trial By Error: Blistering New Monbiot Column on ME/CFS Mistreatment, Neglect
Leave a Comment / By David Tuller / 26 September 2026
By David Tuller, DrPH

George Monbiot, the British investigative journalist and longtime contributor to The Guardian, has written a corker of a column about the mistreatment and abuse of people with ME/CFS, including those with Long COVID. This newest piece follows two of Monbiot’s previous Guardian essays—in March, 2024, and October, 2024–that were equally blunt about the failures of the medical and academic establishments in this domain.
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RikkaPik @rikkapik.bsky.social · 26/09/2026
We all are stardust, connected by matter made in stars, diveded by time and space. 300.000 years between early members of our species and the building of great telescopes in space that let us see this. #artonbluesky
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Billy Hanlon @bhanlon15.bsky.social · 23/09/2026
JAMA: 'Long COVID: The Problem Society Wants to Forget: A Healthy Dialogue With E. Wesley Ely' jamanetwork.com/journals/jam...
jamanetwork.com
Long COVID: The Problem Society Wants to Forget
Long COVID, including the difficulty in defining it and caring for patients experiencing it, is discussed by JAMA Senior Editor Derek C. Angus, MD, MPH, and E. Wesley Ely, MD, MPH, professor of medici...
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Billy Hanlon @bhanlon15.bsky.social · 24/09/2026
The Guardian: 'Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed' By George Monbiot www.theguardian.com/commentisfre...
theguardian.com
Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot
Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot
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Billy Hanlon @bhanlon15.bsky.social · 24/09/2026
CIDRAP: 'More than 1 in 10 US healthcare workers report ongoing long-COVID symptoms, study finds' www.cidrap.umn.edu/covid-19/mor...
cidrap.umn.edu
More than 1 in 10 US healthcare workers report ongoing long-COVID symptoms, study finds
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George Monbiot @georgemonbiot.bsky.social · 24/09/2026
Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2 www.theguardian.com/commentisfre...
theguardian.com
Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot
Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot
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⛩️ 𝑫𝒆𝒂𝒕𝒉 𝒃𝒚 𝑯𝒊𝒃𝒂𝒄𝒉𝒊 ⛩️ @deathbyhibachi.bsky.social · 24/09/2026
Devoid Of Light #Art by Kris Verwimp
Death skully screams in agony
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Tom Kindlon @tomkindlon.bsky.social · 21/09/2026
From Sweden Cognitive fatigue is related to reduced cerebral perfusion & sustained attention in patients with post COVID-19 condition: An fMRI study www.sciencedirect.com/science/arti... Screenshot from Science for ME update #LongCovid #NeuroPASC #COVIDBrain #PASC #PwLC #postcovid #postcovid19
Cognitive fatigue is related to reduced cerebral perfusion and sustained attention in patients with post COVID-19 condition: An fMRI study — Hedberg et al
"Perfusion analysis revealed reduced CBF, not only in several regions but also globally across the whole brain and correlated with overall reaction time as well as individual performance variability"
Article | Thread
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Galder @galder.bsky.social · 21/09/2026
Did I promise it wouldn't hurt? Oh sorry, I lied.. But I promise not to lie again! One of the most volatile and most extravangant newcomers to the Brigade is House Vex Satyr by the name of Felgren. #warcraft #wow #satyr #portrait #oc #art #digitalart #fantasy #gaming
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