Reposted by RikkaPikTom Kindlon @tomkindlon.bsky.social · 11/10/2026ME Research UK: As part of our Symptom Saturday series over the past 2 months, we’ve been exploring research insights into the core symptoms of ME/CFS. For ease of access & sharing, we’ve collated & summarised the info. Follow link for full overview. tinyurl.com/MEcoresympto... #MEcfs #CFS #PwME 1145
Reposted by RikkaPikTom Kindlon @tomkindlon.bsky.social · 11/10/2026It has quite often seemed like many proponents of biopsychosocial approaches like GET and graded activity-oriented CBT didn’t want much biomedical research, particularly the type that would challenge their theories e.g. Royal Colleges report on CFS. Not very admirable. #MEcfs #PwME #CFS 5255
Reposted by RikkaPikTom Kindlon @tomkindlon.bsky.social · 14hSpringer Nature Removes Description of "Fatigue" Patients as "Combative" and "Reproachful" - UPDATED by David Tuller virology.ws/2026/10/10/t... Screenshot from latest Science for ME weekly update #MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome 2228
Reposted by RikkaPikTom Kindlon @tomkindlon.bsky.social · 11/10/2026Low Vasopressin in Myalgic Encephalomyelitise/Chronic Fatigue Syndrome Vasopressin is also known as antidiuretic hormone www.endocrinepractice.org/article/S153... Screenshot from AMMES October 2026 newsletter #MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome 13511
Reposted by RikkaPikBilly Hanlon @bhanlon15.bsky.social · 09/10/2026George Mason Univ: 'New Study Explores Overlap Between Long COVID and Post-Treatment Lyme Disease' 'Although public attention has shifted away from the pandemic, long COVID remains a significant health concern' science.gmu.edu/news/new-stu...science.gmu.eduNew Study Explores Overlap Between Long COVID and Post-Treatment Lyme Disease | GMU College of Science 1106
Reposted by RikkaPikTom Kindlon @tomkindlon.bsky.social · 10/10/2026Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed www.theguardian.com/commentisfre... Screenshot from AMMES October 2026 newsletter #MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome 25618
RikkaPik @rikkapik.bsky.social · 10/10/2026I hate my #ME. Either I lay down and my back stops hurting... but then I can't breathe because my asthma kicks in. So I sit up and am able to get oxigen into my body. But them some sadistic mad scientist wraps his homemade chimera of a porcupine and an electric eel around my spine... 000
Reposted by RikkaPikTom Kindlon @tomkindlon.bsky.social · 09/10/2026From the US Neurocognitive Indices of Long COVID: Dysregulated Engagement of Inhibitory Control and Oscillatory Slowing www.mdpi.com/2673-4087/7/... Screenshot from latest Science for ME weekly update #LongCovid #NeuroPASC #COVIDBrain #PASC #PwLC #postcovid #postcovid19 1125
Reposted by RikkaPikBilly Hanlon @bhanlon15.bsky.social · 09/10/2026Yahoo Health: 'Research offers a clue to why long COVID can leave people mentally drained' 'Researchers found that people with long-COVID fatigue had slightly lower cerebral blood flow and slower, more variable responses during a 20-minute attention test.' health.yahoo.com/conditions/m...health.yahoo.comResearch offers a clue to why long COVID can leave people mentally drainedA small Swedish study may now offer a clue about what is happening inside the brain. Researchers found that people with long-COVID fatigue had slightly lower cerebral blood flow and slower, more varia... 093
Reposted by RikkaPikpurr.in.ink @purrinink.bsky.social · 09/10/2026A little good luck for you. 😽😽🤍 9764225
Reposted by RikkaPikTom Kindlon @tomkindlon.bsky.social · 09/10/2026"The survey has identified multiple different ways that psychologists can potentially give that support & help people with ME/CFS" Extract from British Psychological Society ME/CFS Guidelines (September 2026 Update) meassociation.org.uk/wp-content/u... #MEcfs #PwME #CFS #MyalgicEncephalomyelitis 44112
Reposted by RikkaPikTom Kindlon @tomkindlon.bsky.social · 07/10/2026New CDC study Characterizing Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Symptom Burden, Functional Impairment, and Comparison With Adults www.jpeds.com/article/S002... #MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome 2237
Reposted by RikkaPikTom Kindlon @tomkindlon.bsky.social · 07/10/2026Recording of the 24 September 2026 ME Support webinar featuring Chris Ponting @cgatist.bsky.social is up: www.youtube.com/watch?v=UJYU... #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME 0176
Reposted by RikkaPikTom Kindlon @tomkindlon.bsky.social · 06/10/2026Norway Demonstration scheduled for 28th October www.facebook.com/events/18087... www.me-foreldrene.no/markering-pa... Screenshot from latest Science for ME weekly update #MEcfs #PwME #CFS #MyalgicEncephalomyelitis #LongCovid @meforeningen.bsky.social 0125
RikkaPik @rikkapik.bsky.social · 07/10/2026Okay, starting again. #ME/CFS is not like as a name for our condition. Doctors don't like the ME part, because it does not decribe the condition correctly. The CFS part is so unspecific I know of people who got their depression labed as CFS (because is sounds better then burnout?) and fatigue is 130
Reposted by RikkaPikTom Kindlon @tomkindlon.bsky.social · 05/10/2026I was one of a number of patient scientists and advocates who was interviewed for this sympathetic, open access paper "Patient's knowledge, doctor's ignorance: The production of knowledge about myalgic encephalomyelitis" www.sciencedirect.com/science/arti... #MEcfs #PwME #epatient #epatients #CFS 46728
Reposted by RikkaPikBilly Hanlon @bhanlon15.bsky.social · 05/10/2026Tri-City Herald (WA): 'Guest Opinion: COVID-19‘s long-haulers are suffering and need our support' 'our elected officials need to come together in a bipartisan effort to help these unlucky few whose bodies were negatively affected long-term.' amp.tri-cityherald.com/opinion/opn-...amp.tri-cityherald.comGuest Opinion: COVID-19‘s long-haulers are suffering and need our supportIt’s time to find answers for the unlucky people dealing with continuing effects of COVID-19 3196
Reposted by RikkaPikTom Kindlon @tomkindlon.bsky.social · 06/10/2026He is also on IG with the same username #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #meawareness #mecfsawareness 03712
Reposted by RikkaPikBilly Hanlon @bhanlon15.bsky.social · 05/10/2026July 2020, Cleveland: 'A mild case of COVID-19 is not a mild case of the flu: Long-haulers’ symptoms linger for months, and lasting effects are still a mystery' “Anyone can be a long hauler...we don’t know why this is happening.” - Dr. Christopher Babiuch www.cleveland.com/coronavirus/...cleveland.comA mild case of COVID-19 is not a mild case of the flu: Long-haulers’ symptoms linger for months, and lasting effects are still a mysteryCOVID-19 patients who call themselves “long haulers" are defined as patients with persistent symptoms that last more than two weeks.Symptoms include extreme fatigues, shortness of breath and brain fog... 4189
Reposted by RikkaPikBilly Hanlon @bhanlon15.bsky.social · 04/10/2026Science Alert: 'Brain Scans of 24 People With Long COVID Reveal Signs of Injury to Dopamine Neurons' "Our findings provide compelling evidence that long COVID involves the loss of dopamine-releasing neurons" www.sciencealert.com/brain-scans-...sciencealert.comBrain Scans of 24 People With Long COVID Reveal Signs of Injury to Dopamine NeuronsScientists have discovered a distinct change in the brains of people with long COVID that might explain some of the illness's most debilitating symptoms. 22586255
RikkaPik @rikkapik.bsky.social · 04/10/2026Challenge: just a clay #render in #blender. Prompt was breakfast. I tried to separate the items with lighting. 010
Reposted by RikkaPikBilly Hanlon @bhanlon15.bsky.social · 03/10/2026Radiology Business: 'MRI links long COVID fatigue to reduced cerebral blood flow' radiologybusiness.com/topics/medic...radiologybusiness.comMRI links long COVID fatigue to reduced cerebral blood flowThe study also distinguishes between feeling fatigued and becoming progressively less able to maintain performance post-COVID. 02912
Reposted by RikkaPikBilly Hanlon @bhanlon15.bsky.social · 02/10/2026The Star (WA): 'Nurse now homebound from Long COVID: Only Congress can change what happens next' 'Long COVID is real. ME/CFS is real. It came for me, and it can come for anyone. What’s left is a single line in a spending bill and lawmakers willing to write it.' www.grandcoulee.com/story/2026/0...grandcoulee.comNurse now homebound from Long COVID: Only Congress can change what happens nextI spent nearly 30 years as a nurse, including in an infectious disease clinic, before I stepped away, worn down by the relentless work. But when COVID swept the nation, I came back to help my fellow S... 13017
Reposted by RikkaPikBilly Hanlon @bhanlon15.bsky.social · 03/10/2026Nov. 2021, Washington Post: 'Could long covid unlock clues to chronic fatigue and other poorly understood conditions?' “This is our best chance to figure out ME/CFS,” Koroshetz said, “with the resources and an army of people.” www.washingtonpost.com/health/2021/...washingtonpost.comCould long covid unlock clues to chronic fatigue and other poorly understood conditions?As millions of people nationwide suffer from long-haul covid, patient advocates are cautiously hopeful that new research may unlock clues to other conditions that appear to crop up after infections, i... 0258
RikkaPik @rikkapik.bsky.social · 01/10/2026I just saw a reaction to the #deadinternettheory So... Ölaf is a gremlin, troll, and a real goblin. 🍍🍍🍍🍍 Just bring back the goblins, as the web is my social lifeline now. 000
Reposted by RikkaPikTom Kindlon @tomkindlon.bsky.social · 01/10/2026DNA methylation: unifying framework for complex chronic conditions www.cell.com/trends/genet... Screenshot from latest Science for ME weekly update #MEcfs #LongCovid #PwME #CFS #Fibromyalgia 0134
Reposted by RikkaPikBilly Hanlon @bhanlon15.bsky.social · 01/10/2026The Conversation: 'Covid fatigue linked to reduced brain blood flow' 'For many people living with long COVID, things are different. Reading, working at a computer or concentrating on a conversation can require far more effort than it once did...' theconversation.com/covid-fatigu...theconversation.comCovid fatigue linked to reduced brain blood flowEveryday activities can require enormous effort for people living with post-COVID fatigue. This study examines the brain mechanisms that may contribute to fatigue. 0293
Reposted by RikkaPikBilly Hanlon @bhanlon15.bsky.social · 01/10/2026Many thanks to @angeladavismpr.bsky.social for covering this important topic today with @mprnews.org 0255
Reposted by RikkaPikBilly Hanlon @bhanlon15.bsky.social · 29/09/2026NIH: 'Antiviral drug did not improve Long COVID symptoms' 'The findings suggest that other approaches to manage symptoms and treat Long COVID are needed.' 'This study is part of a large NIH initiative called Researching COVID to Enhance Recovery (RECOVER).' www.nih.gov/news-events/...nih.govAntiviral drug did not improve Long COVID symptomsA clinical trial for Long COVID found that treating patients with a common antiviral drug for up to 25 days did not improve symptoms. 0125
Reposted by RikkaPikTom Kindlon @tomkindlon.bsky.social · 30/09/2026The Post-Acute Effects of COVID-19 Are Not Associated with Robust Long-Term Regional or Global Brain Volumetric Changes: A Bayesian Meta-Analytic Evidence www.sciencedirect.com/science/arti... Screenshot from Science for ME update #LongCovid #NeuroPASC #COVIDBrain #PASC #postcovid #postcovid19 164
Reposted by RikkaPikTom Kindlon @tomkindlon.bsky.social · 30/09/2026From Germany Evaluation of an Integrated Multidisciplinary Care Model for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A Prospective, Open-label, Non-randomized Controlled Intervention Study www.amjmed.com/article/S000... Screenshot from Science for ME weekly update #MEcfs #PwME #CFS 2117
Reposted by RikkaPikBilly Hanlon @bhanlon15.bsky.social · 29/09/2026MPR: 'Long COVID affects many Minnesotans years after the pandemic' 'And we want to hear from you, too.' Coming up at 9AM on Wednesday, 9/30/26 www.mprnews.org/episode/2026...mprnews.orgLong COVID affects many Minnesotans years after the pandemicIt’s been six years since the start of the COVID-19 pandemic, but many Minnesotans are still suffering its aftermath. Coming up at 9 a.m. on Wednesday, MPR News host Angela Davis talks about the extre... 24622
Reposted by RikkaPikGalder @galder.bsky.social · 28/09/2026Goodbye Summer! Wilkins and Sakara definitely had a good time :D. #warcraft #fantasy #illustration #couple #anthro #worgen #werewolf #beach #art #digitalart 1259
Reposted by RikkaPikBilly Hanlon @bhanlon15.bsky.social · 28/09/2026Health Rising: 'Bezisterim – the Best Long COVID Drug Trial Yet? BioVie Aims for a Big, Phase III Trial' '..the Dept. of Defense took a leap and funded it – and, lo and behold, we have the best results of any drug trial thus far' www.healthrising.org/blog/2026/09...healthrising.orgBezisterim - the Best Long COVID Drug Trial Yet? BioVie Aims for a Big, Phase III Trial - Health RisingBezisterim produces moderate and broad treatment effects in several different long COVID subsets. BioVie, the drug manufacturer, hopes to move forward with a big phase III trial. 0155
Reposted by RikkaPikTom Kindlon @tomkindlon.bsky.social · 28/09/2026“I look fine, but dealing with chronic illness is my full-time job” (Pittsburgh's Public Source) www.publicsource.org/pots-long-co... First person account about coping with chronic illness triggered by COVID infection. #LongCovid #invisibleillness #hiddenillness #chronicillnesspublicsource.orgI look fine, but dealing with chronic illness is my full-time jobJennifer McCalla doesn't look sick, but living with long COVID and POTS is a full-time job. She writes about invisible illness and the fight to be believed. 14915
Reposted by RikkaPikTom Kindlon @tomkindlon.bsky.social · 28/09/2026The Severe & Very Severe ME Research Registry has been created. It gives people with severe and very severe ME from Germany, Austria, & Switzerland the opportunity to participate in research through home visits severe-me-registry.de #SevereME #MEcfs #CFS #PwME #VerySevereME #ChronicFatigueSyndromesevere-me-registry.deSevere & Very Severe ME Research RegistryDas Severe and Very Severe ME Research Registry verbindet ME Schwer- und Schwerstbetroffene mit biomedizinischer, häuslicher Forschung. 16429
RikkaPik @rikkapik.bsky.social · 27/09/2026I can't play Clair Obscure Expedition 33. That does not mean it does not resound with me on many levels. One of the things stuck in my mind is the "true art is a mask and a mirror" #artonbluesky #E33 030
Reposted by RikkaPikAdam @abrokenbattery.bsky.social · 27/09/2026“It has sent many people from having mild or moderate cases to severe #MECFS… it has turned people housebound, bedbound. It has completely destroyed their lives.” @georgemonbiot.bsky.social on the harm caused by graded exercise therapy (GET) for #MECFS. 27334
Reposted by RikkaPikGeorge Monbiot @georgemonbiot.bsky.social · 27/09/2026I talked this week about the mental health crisis afflicting young people, in particular the isolation and loneliness caused by the neoliberal smashing of society. Everyone needs community. Everyone needs belonging. We cannot survive without them. 911908466
Reposted by RikkaPikTom Kindlon @tomkindlon.bsky.social · 26/09/2026RECOVER researchers and caregivers shared insights into Long COVID social risk factors and how Long COVID affects children’s learning and school experiences—including what researchers hope to learn next. Text plus video recording recovercovid.org/r3-seminar-s... #LongCovid #LongCovidKids #LCKidsrecovercovid.orgGrowing up with Long COVID—Risk factors and school impactsFindings from RECOVER’s pediatric observational study show that Long COVID can affect children’s health and daily lives in different ways. During the September 15, 2026, RECOVER Research Review (R3) S... 218093
Reposted by RikkaPikTom Kindlon @tomkindlon.bsky.social · 26/09/2026“Blistering New Monbiot Column on ME/CFS Mistreatment, Neglect” By David Tuller virology.ws/2026/09/26/t... #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME 13715
RikkaPik @rikkapik.bsky.social · 26/09/2026We all are stardust, connected by matter made in stars, diveded by time and space. 300.000 years between early members of our species and the building of great telescopes in space that let us see this. #artonbluesky 021
Reposted by RikkaPikBilly Hanlon @bhanlon15.bsky.social · 23/09/2026JAMA: 'Long COVID: The Problem Society Wants to Forget: A Healthy Dialogue With E. Wesley Ely' jamanetwork.com/journals/jam...jamanetwork.comLong COVID: The Problem Society Wants to ForgetLong COVID, including the difficulty in defining it and caring for patients experiencing it, is discussed by JAMA Senior Editor Derek C. Angus, MD, MPH, and E. Wesley Ely, MD, MPH, professor of medici... 0169
Reposted by RikkaPikBilly Hanlon @bhanlon15.bsky.social · 24/09/2026The Guardian: 'Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed' By George Monbiot www.theguardian.com/commentisfre...theguardian.comAbandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George MonbiotChanges in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot 1245
Reposted by RikkaPikBilly Hanlon @bhanlon15.bsky.social · 24/09/2026CIDRAP: 'More than 1 in 10 US healthcare workers report ongoing long-COVID symptoms, study finds' www.cidrap.umn.edu/covid-19/mor...cidrap.umn.eduMore than 1 in 10 US healthcare workers report ongoing long-COVID symptoms, study finds 1178
Reposted by RikkaPikGeorge Monbiot @georgemonbiot.bsky.social · 24/09/2026Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2 www.theguardian.com/commentisfre...theguardian.comAbandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George MonbiotChanges in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot 17925411731
Reposted by RikkaPik⛩️ 𝑫𝒆𝒂𝒕𝒉 𝒃𝒚 𝑯𝒊𝒃𝒂𝒄𝒉𝒊 ⛩️ @deathbyhibachi.bsky.social · 24/09/2026Devoid Of Light #Art by Kris Verwimp 117734
Reposted by RikkaPikTom Kindlon @tomkindlon.bsky.social · 21/09/2026From Sweden Cognitive fatigue is related to reduced cerebral perfusion & sustained attention in patients with post COVID-19 condition: An fMRI study www.sciencedirect.com/science/arti... Screenshot from Science for ME update #LongCovid #NeuroPASC #COVIDBrain #PASC #PwLC #postcovid #postcovid19 1288
Reposted by RikkaPikGalder @galder.bsky.social · 21/09/2026Did I promise it wouldn't hurt? Oh sorry, I lied.. But I promise not to lie again! One of the most volatile and most extravangant newcomers to the Brigade is House Vex Satyr by the name of Felgren. #warcraft #wow #satyr #portrait #oc #art #digitalart #fantasy #gaming 3196