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Rightful Lives

@rightfullives.bsky.social
956 followers 1K following 42 posts

A UK based creative campaign and community focussed on the Human Rights of Autistic people and people with Learning Disabilities. www.rightfullives.org.uk

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Rightful Lives @rightfullives.bsky.social · 25/07/2026
Important development concerning welfare deputyships rookirwinsweeney.co.uk/court-of-app...
rookirwinsweeney.co.uk
Court of Appeal clarifies law on personal welfare deputyships | Rook Irwin Sweeney - Public Law. Human Rights.
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Rightful Lives @rightfullives.bsky.social · 24/06/2026
“He said that he wanted all seclusion rooms turned into broom cupboards.” Read what happened when Jack Cavanagh met the Welsh Government. 👇 rightfullives.org.uk/blog/jack-cavanagh-meets-the-welsh-government/
rightfullives.org.uk
Jack Cavanagh meets the Welsh Government – Rightful Lives
When the Welsh Government (WG) said they wanted to visit Jack and where he was living, everyone wondered how best to play it.
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Rightful Lives @rightfullives.bsky.social · 06/06/2026
Statement on the recent Supreme Court DoLS judgement. We are concerned at how this sits against the background of everything else that is currently eroding the rights of autistic people and people with learning disabilities. rightfullives.org.uk/blog/statement-on-the-supreme-court-dols-judgement/
rightfullives.org.uk
Statement on the Supreme Court DoLS Judgement – Rightful Lives
The recent weakening of Deprivation of Liberty Safeguards (DoLS) protections is not an isolated development. It forms part of a wider and deeply concerning pattern in which the rights of autistic people and people with learning disabilities are being steadily eroded across health, social care and education.
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Rightful Lives @rightfullives.bsky.social · 04/06/2026
This was made nine years ago and #NothingHasChanged youtu.be/n3hqZ2jkvns?...
youtu.be
STUCK IN THE SYSTEM: Care in Crisis
YouTube video by Cody Godwin
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Rightful Lives @rightfullives.bsky.social · 31/05/2026
This is our vigil from five years ago. Watch it and listen to the words of two autistic people locked away. Then share it because five years later #NothingHasChanged. #Winterbourne15 #Winterbourne10 youtu.be/ftIwWjG7rGw?...
youtu.be
Winterbourne 10 year Vigil
YouTube video by Rightful Lives
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Rightful Lives @rightfullives.bsky.social · 31/05/2026
From five years ago and #NothingHasChanged
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Rightful Lives @rightfullives.bsky.social · 31/05/2026
Says it all. #Winterbourne15 #NothingHasChanged From Stolen Lives
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Rightful Lives @rightfullives.bsky.social · 31/05/2026
TODAY IT IS 15 YEARS SINCE WINTERBOURNE VIEW: WHY ARE THE NUMBERS STILL RISING? Today, May 31st, we mark the 15th anniversary of the Winterbourne View scandal. At the time, the world promised "never again”. Watch our video to see why this was a lie.
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Rightful Lives @rightfullives.bsky.social · 30/05/2026
COUNTDOWN TO WINTERBOURNE DAY 6 🎙️NOTHING HAS CHANGED 🕯️ Alexis Quinn’s work on thePatient 11 podcast exposed the fact that sexual abuse and violence are still rife in these wards. It is a culture, not a coincidence.
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Rightful Lives @rightfullives.bsky.social · 29/05/2026
COUNTDOWN TO WINTERBOURNE DAY 5 🏘️ FROM WARDS TO THE STREETS What happens when you close a hospital without a community roadmap? You create a pipeline to prison or the streets. 🏚️🚓 #ForensicPathways #Homelessness #Winterbourne15 #HomesNotHospitals #NothingHasChanged
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Rightful Lives @rightfullives.bsky.social · 28/05/2026
COUNTDOWN TO WINTERBOURNE DAY 4: ⏳THE LEGISLATIVE HOSTAGE
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Rightful Lives @rightfullives.bsky.social · 27/05/2026
COUNTDOWN TO WINTERBOURNE DAY 3: ⛓️THE "STUCK" POPULATION If you have a learning disability in the UK today, you are statistically more likely to be part of the "stuck" population—detained for 10, 15, or even 20 years. ⏳ 15 years after Winterbourne.
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Rightful Lives @rightfullives.bsky.social · 26/05/2026
Countdown to Winterbourne Day Two: The 152% Surge
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Rightful Lives @rightfullives.bsky.social · 25/05/2026
The Never Again Myth of Winterbourne View #NothingHasChanged
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Rightful Lives @rightfullives.bsky.social · 30/04/2026
An important new public policy report from Autism Alliance www.autism-alliance.org.uk/a-new-path-a...
autism-alliance.org.uk
A New Path Ahead — Autism Alliance UK
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Rightful Lives @rightfullives.bsky.social · 19/03/2026
Our joint statement with Stolen Lives (Wales) rightfullives.org.uk/campaigns/ri...
rightfullives.org.uk
Rightful Lives and Stolen Lives Statement on the ITV News Investigation regarding contact restrictions and gagging orders.  – Rightful Lives
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Rightful Lives @rightfullives.bsky.social · 15/03/2026
The recent rhetoric from the powers that be about Autistic people has been deeply disturbing. From education to benefits to diagnosis and support, the messaging has been negative and harmful. Yet in real life, Autistic people are being failed again and again. liveapp.inews.co.uk/category/429...
liveapp.inews.co.uk
We are failing the very people we should be supporting the most
Sam’s story shows us the reality of living with autism
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Caroline Keep @ka83k.bsky.social · 23/02/2026
If there was one thing to deal with. It is this. Locked up still going on @rightfullives.bsky.social ⬇️ How many ?
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Rightful Lives @rightfullives.bsky.social · 23/02/2026
Please read this blog by Clare Lucignoli. In it she discusses her research on the experiences of parent carers of disabled children and adults in Wales. Clare also brings in Rekha Neilson’s report about the similar experiences of families in Cambridgeshire. rightfullives.org.uk/blog/report-...
rightfullives.org.uk
Report of Experiences of Parent Carers of Disabled Children and Adults Across Wales – Rightful Lives
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Rightful Lives @rightfullives.bsky.social · 10/12/2025
For #HumanRightsDay, our admin, Dr Dawn Cavanagh, talks about her recent research into human rights in secure hospitals. Are there any? Listen here 👇 youtu.be/o8G4DGV6q54
youtu.be
Human Rights in Secure Hospitals
YouTube video by Rightful Lives
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Rightful Lives @rightfullives.bsky.social · 11/10/2025
“This is how every single person like me suffered at those institutions.” An Autistic Artist
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Rightful Lives @rightfullives.bsky.social · 05/06/2025
In our latest blog, Alexis Quinn discusses her five top PBS bugbears, their impact on people and practical solutions for staff 👇 rightfullives.org.uk/blog/top-fiv...
Photo of Alexis Quinn wearing a white shirt.
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Rightful Lives @rightfullives.bsky.social · 26/05/2025
“One family member told us that they didn’t always feel their relative was safe and staying on the Mitford Unit actually made them feel worse.” Even the so-called specialist units can’t get it right it seems. www.cqc.org.uk/press-releas...
cqc.org.uk
CQC publishes report on service run by Cumbria, Northumberland, Tyne and Wear NHS Foundation Trust - Care Quality CommissionFacebookTwitterYouTube
The Care Quality Commission (CQC) has published a report on wards for people with a learning disability or autistic people, run by Cumbria, Northumberland, Tyne and Wear NHS Foundation Trust, followin...
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Dr Georgia Pavlopoulou @jopavlopoulou.bsky.social · 22/03/2025
Subscribe to #AnnaFreud newsletter to be the first to see new animation with @aquinnunbroken.bsky.social We are passionate about neuro-diversity informed practice and we are asking professionals to un-think and re-think about seclusion and long term segregation www.annafreud.org/training/hea...
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Alexis Quinn @aquinnunbroken.bsky.social · 24/03/2025
Really pleased to have collaborated with such brilliant thought leaders to critique the idea that enforced isolation (LTS) can be therapeutic. Our new paper suggest solitary confinement has no place in modern health care. 1/4 www.cambridge.org/core/journal...
cambridge.org
Long-term segregation and seclusion for people with an intellectual disability and/or autism in hospitals: critique of the current state of affairs: commentary, Quinn et al | The British Journal of Ps...
Long-term segregation and seclusion for people with an intellectual disability and/or autism in hospitals: critique of the current state of affairs: commentary, Quinn et al
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Peter Stefanovic @peterstefanovic.bsky.social · 14/03/2025
With ministers ‘on resignation watch’, welfare cuts could be make or break for Keir Starmer www.independent.co.uk/voices/nhs-e...
independent.co.uk
With ministers on resignation watch, welfare cuts could be make or break for Starmer
Liz Kendall, work and pensions secretary, is next week expected to announce savings of £5bn a year. Sound the alarms, writes John Rentoul
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Dr Dawn Cavanagh @dawnc05.bsky.social · 12/03/2025
act.38degrees.org.uk/act/no-cruel...
act.38degrees.org.uk
NO cruel cuts to benefits
The Government is planning “catastrophic” cuts that experts say will force disabled people into poverty. Don’t think that’s right? Add your name now.
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Alexis Quinn @aquinnunbroken.bsky.social · 11/03/2025
My daughter created this image to depict how she felt going to school as a dual heritage autistic person... and why, in the end, she refused to attend. Heartbreaking. #EBSA
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Rightful Lives @rightfullives.bsky.social · 10/03/2025
In case you haven’t seen it yet, here is the video of the webinar about the Mental Health Bill that we co-hosted with Oliver Lewis at Doughty Street Chambers last week. www.youtube.com/watch?v=oM53...
youtube.com
A deep dive into the Mental Health Bill 2024 - Autism and learning disability
YouTube video by Doughty Street Chambers
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Lydia Wilkins @journo-lydia.bsky.social · 04/03/2025
A wonderful evening hosted by @doughtystreet.bsky.social on the impact of the forthcoming Mental Health Bill. What happens with the removal of learning disability & autism when there’s no community provision?
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Rightful Lives @rightfullives.bsky.social · 04/03/2025
Utterly horrific. t.co/fggPrPZOaL
t.co
https://www.bbc.co.uk/news/articles/cly43png991o
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Rightful Lives @rightfullives.bsky.social · 25/02/2025
Rightful Lives is co-hosting an event on 4th March at Doughty Street Chambers. It will look at the implications of the Mental Health Bill for autistic people and people with learning disabilities. Why not come along! www.doughtystreet.co.uk/event/deep-d...
doughtystreet.co.uk
A deep dive into the Mental Health Bill 2024
A deep dive into the Mental Health Bill 2024Detention and treatmentThursday 27th February 2025 | 18:00 - 19:30Location: Online via ZoomIn the second webinar of this series Sophy Miles and Elizabeth Cl...
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Rightful Lives @rightfullives.bsky.social · 03/02/2025
Trauma in the Name of Treatment. We can vouch for that… www.madinamerica.com/2025/02/trau...
madinamerica.com
Trauma in the Name of Treatment: Multiple Studies Confirm Adverse Experiences in Psychiatric Hospitalization
A comprehensive review of psychiatric hospitalizations reveals widespread harm, from coercion to retraumatization, challenging the dominant narrative of therapeutic intent.
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Ann Memmott @annmemmott.bsky.social · 27/01/2025
Dear Government. Forcing more & more disabled people into poverty does not save the taxpayer money. What did you think disabled people do with money? Stash it under the mattress? It goes back into the economy. Cold, malnourished people become very ill & cost the NHS a fortune. Please get a grip.
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Public Law Project @publiclawproject.bsky.social · 16/01/2025
🚨 BREAKING: We are delighted to share that our client @ellenclifford.bsky.social has won her case against the DWP over an unlawful consultation held on reforms tightening the #WorkCapabilityAssessment. These reforms would lead to over 400,000 people being worse off by at least £416 a month.
PLP lawyer Aoife O'Reilly and Ellen Clifford in front of the Royal Courts of Justice.
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Ann Memmott @annmemmott.bsky.social · 20/01/2025
Our gentle reminder that there's ~ 2 million autistic ppl in the UK. Research shows we are less likely to commit crime than other ppl, on average. Having an autism diagnosis is irrelevant to whether they are a criminal. It's like saying, "They have size 8 feet - let's fear all ppl with size 8 feet"
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Saba Salman @sabasalman.com · 31/12/2024
'There's no better way to show Sammy’s legacy and worth than by giving others opportunities he'd have excelled in' Patricia Alban tells @samcarlisle.bsky.social about her creative son @communitylivingmagazine.com - new articles next week. Also @maryohara1.bsky.social @georgejulian.bsky.social...
Cover of Community Living magazine with the title in yellow capital letters above a photo of Sammy
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Rightful Lives @rightfullives.bsky.social · 31/12/2024
Without Accountability, nothing will change… www.theguardian.com/society/2024...
theguardian.com
Controversial face-down restraint still being used for mental health patients in England
Dangerous practice was supposed to be phased out but new data reveals thousands of incidents every year
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Paula McGowan OBE @oliverscampaign.bsky.social · 21/12/2024
#Oliverscampaign This powerful new animation has been co-designed co-produced with autistic people & people with a learning disability It is aimed at helping staff and employers across health & social care to understand Oliver's Training & why it is so vitally important youtu.be/ouhKSOGm49g?...
youtu.be
The Oliver McGowan Mandatory Training on Learning Disability and Autism
YouTube video by NHS England Workforce, Training and Education
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Rightful Lives @rightfullives.bsky.social · 17/12/2024
Our statement regarding a paper published in the British Journal of Psychiatry rightfullives.org.uk/blog/stateme...
rightfullives.org.uk
Statement re paper published in the British Journal of Psychiatry – Rightful Lives
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Saba Salman @sabasalman.com · 10/12/2024
#HumanRightsDay Not all people are seen as fully human, with little recognition that rights are relevant to proper care, support, advocacy - and an everyday life. Reminder here, inc @learningdiseng.bsky.social @cchangescotland.bsky.social @rightfullives.bsky.social www.bihr.org.uk/our-work/our...
bihr.org.uk
Human Rights Day 2024: Open Letter | BIHR
Read our letter to the Prime Minister and political leaders, signed by over 70 organisations from across the UK.
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Ian Birrell @ianbirrell.bsky.social · 11/12/2024
This grim article shows why institutionalised abuse of people with learning disabilities & autistic citizens drags on. Evidence is clear: long term segregation is harmful. This is a squalid example of a profession protecting its own back & not caring about patients www.cambridge.org/core/journal...
cambridge.org
Long-term segregation and seclusion for people with an intellectual disability and/or autism in hospitals: critique of the current state of affairs | The British Journal of Psychiatry | Cambridge Core
Long-term segregation and seclusion for people with an intellectual disability and/or autism in hospitals: critique of the current state of affairs
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Paula McGowan OBE @oliverscampaign.bsky.social · 07/12/2024
#Oliverscampaign I fully stand by @BaronessHollins & this report PLEASE SHARE Baroness Hollins' final report: My heart breaks - solitary confinement in hospital has no therapeutic benefit for people with a learning disability and autistic people www.gov.uk/government/p...
gov.uk
Baroness Hollins' final report: My heart breaks - solitary confinement in hospital has no therapeutic benefit for people with a learning disability and autistic people
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Dr Dawn Cavanagh @dawnc05.bsky.social · 03/12/2024
Heart breaking. This human rights scandal just goes on and on... Imagine losing your daughter to brain cancer and then your grandson, who is struggling with the loss of his mother, to a bloody hospital. Please BBC News show this lady some respect. 'Granny' FFS 😡 www.bbc.co.uk/news/article...
bbc.co.uk
I hope I live long enough to get my autistic grandson out of hospital
Dorothy Lafferty says doctors long ago agreed her grandson does not need to be cared for in hospital.
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Dr Dawn Cavanagh @dawnc05.bsky.social · 04/12/2024
Stolen Lives motion unanimously passed in the Senedd. Thank you to Hefin David MS, Sioned Williams MS and Mark Isherwood MS. At last, the inhumane hospitalisation of people with learning disabilities and autistic people has been recognised by the WG as the human rights injustice that it is.
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Rightful Lives @rightfullives.bsky.social · 03/12/2024
Could be a game changer 👇👇👇👇
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The Mental Elf @thementalelf.bsky.social · 29/11/2024
All eyes on the ward: the use and impact of surveillance in inpatient mental health settings buff.ly/49aqQO8 "The evidence base does not support the use of surveillance technologies and intended outcomes are not being achieved."
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Rightful Lives @rightfullives.bsky.social · 28/11/2024
NHSE Culture of Care standards presented today at #RRNConf24. Remember the Mental Health Act Code of Practice says that “care, support and treatment given under the Act should be given in accordance with up-to-date national guidance…” www.england.nhs.uk/long-read/cu...
england.nhs.uk
NHS England » Culture of care standards for mental health inpatient services
Including those for people with a learning disability and autistic people.
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Rightful Lives @rightfullives.bsky.social · 26/11/2024
Utterly shameful yet it’s so widespread with no sign of it stopping. www.bbc.co.uk/news/article...
bbc.co.uk
CCTV shows pupils abused and locked in padded room
Police have said staff will not face action over abuse of autistic children shown in videos leaked to the BBC.
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Shaun Lintern @shaunlintern.bsky.social · 26/11/2024
The consultation to regulate NHS managers has opened. You can respond directly here: www.gov.uk/government/c...
gov.uk
Leading the NHS: proposals to regulate NHS managers
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