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Rieve Alavaix

@rieve.bsky.social
827 followers 302 following 8.7K posts

An improbable coalescence of stardust Disabled, Medically Complex (EDSS 6.0) A Little Peculiar (they/them) ∞ ♥ Cats, Hockey, Video Games, Photography, Embroidery, Crochet Owner of a 6 year migraine

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Rieve Alavaix @rieve.bsky.social · 15h
🫂
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Rieve Alavaix @rieve.bsky.social · 15h
My TV's channels (I think it's Samsung, maybe?) has an Alf channel, too! I've spent quite a bit of time indulging.
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Rieve Alavaix @rieve.bsky.social · 02/10/2026
Welp. Slept all day. Hardly have the energy to sit up. Was still worth it, but PEM always sucks.
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Rieve Alavaix @rieve.bsky.social · 01/10/2026
Woke up feeling okay after last night's adventure, which means there are enough neurotransmitters etc still flooding my body that when they ebb tomorrow it's gonna hit hard. It was absolutely worth it. Doing my best to live in those precious moments in between the crush of my illnesses.
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Rieve Alavaix @rieve.bsky.social · 01/10/2026
My BP medication is the size of 2 sesame seeds which means if I drop it the first word out of my mouth is Fuck. This has happened more than once.
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Rieve Alavaix @rieve.bsky.social · 01/10/2026
A bouquet of yellow and black roses in a heart shape with "ben "Pac" satterley" on a black ribbon across the front. A black and white photo of him is on a stand beside it.
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Rieve Alavaix @rieve.bsky.social · 01/10/2026
#aew #rip #pac
Text: Heaven Gained a Bastard
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Rieve Alavaix @rieve.bsky.social · 01/10/2026
Text: AEW Dynamite
A tribute to Pac
1986-2026
Superimposed over black and white images of Pac
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Rieve Alavaix @rieve.bsky.social · 30/09/2026
Laying in bed hoping to recharge myself enough to keep up with tonight's plans. I'm so tired.
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Rieve Alavaix @rieve.bsky.social · 30/09/2026
On a more pleasant note Sora mopped all the floors today and the apartment smells nice and clean! Also got a new litter box for Charlotte to meet her aging kitty potty needs, and another on the way so she has a couple options. I have kissed her little head for all of you. ♥
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Rieve Alavaix @rieve.bsky.social · 30/09/2026
The irony here is that I was eating it to settle my stomach as the veg-and-legume heavy lunch was not sitting well. I wish this was the first time something like this had happened.
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Rieve Alavaix @rieve.bsky.social · 30/09/2026
Normally I pay very close attention to my food bc OCD/contamination issues. Today I just casually unwrapped a pre-made crepe (like you might put in a lunchbox) and ate it w/out looking at it, bc distracted/sleepy. Yes, I noticed it tasted weird but didn't think about it. I shoulda thought about it.
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Rieve Alavaix @rieve.bsky.social · 30/09/2026
With the current discussions going around just want to point out that it would be nice for people to maybe, idk, TW their shit? Please?
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GenLikesWrestling - Commisions Available @martiangen.bsky.social · 30/09/2026
Took me a few nights to feel up to making this but it felt necessary while I grieve, as I’m sure lots on here still are, to draw our wonderful Bastard Pac. Incredible doesn’t begin to describe him as a performer; nor, by all accounts, as a man. Rest well. You are sorely missed. #AEW #art 🤼
Forever our Bastard
“Pac”
Benjamin Satterley
1986 - 2026
@MartianGen.Forever our Bastard
“Pac”
Benjamin Satterley
1986 - 2026
@MartianGen.

(In color)
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Lyrics (Not a B0T) @lyrics.bsky.social · 30/09/2026
I am yours. However distant you may be there blows no wind but wafts your scent to me; there sings no bird but calls your name to me. Each memory that has left its trace with me lingers forever as a part of me. ~Nizami/Clapton
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Rieve Alavaix @rieve.bsky.social · 30/09/2026
Yeah, it's a complicated feeling. During the friendship I realized that I am sicker than I thought, and that they... might not be as sick as they say/think? But also I know how it feels to be accused of faking my seizures, and I don't want to make someone else feel that way.
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El is in the Details @elsbells.bsky.social · 30/09/2026
Still $131/$950—$819 needed to close the gap for rent, due Oct. 1! Hard work on my health’s starting to pay off, but staying housed is essential to my achieving stability. Your help means I keep making progress toward *being* a helper again. Cashapp/Venmo: Elsthere
paypal.me
Pay Elizabeth Leinback using PayPal.Me
Go to paypal.me/aislinndelyon and type in the amount. Since it’s PayPal, it's easy and secure. Don’t have a PayPal account? No worries.
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Rieve Alavaix @rieve.bsky.social · 30/09/2026
can't even dream of that level of functionality. (I am not saying anyone is faking, bc that would be gross, and it's not my place; but some things in our friendship sure were red flags I was probably too willing to overlook.)
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Rieve Alavaix @rieve.bsky.social · 30/09/2026
Days like today when the ME/CFS is severe I sometimes think about the ex friend who says they also have severe ME/CFS, but also hold down a full-time job and make about a hundred bsky posts a day. Just... how? I understand this illness hits us all differently, but...
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Rieve Alavaix @rieve.bsky.social · 30/09/2026
Honestly barely been able to function for weeks. Don't see it letting up any time soon. I really want to go out and enjoy this Autumn weather but I am so disregulated that my hair is falling out.
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Chronic Illness Humor @chronicillness.bsky.social · 30/09/2026
@chronicillness.bsky.social

Imagine letting someone into your life only to find out they're the type of person who immediately calls you when you text them back.

MyBodyIsTryingToKillMe.com
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Rieve Alavaix @rieve.bsky.social · 30/09/2026
Cancelled everything I could reasonably cancel this week to go to a wrestling show tonight and I -still- barely have the energy to go. Gonna go anyway, somehow. We'll make it happen. Getting accessible seats for this show has been a nightmare, though.
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Rieve Alavaix @rieve.bsky.social · 30/09/2026
One of the disconcerting mixtures of ADHD + robust religious experience in my teens is that sometimes the songs stuck playing in my head are creepy old hymns (THERE'S POWER IN THE BLOOD, POWER IN THE BLOOD!) or Twila Paris (goooddd is innn connntroollll). Not sure which is worse.
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Rieve Alavaix @rieve.bsky.social · 29/09/2026
My previous specialty pharmacy would call to get my botox injections approved and the call would last less then a minute. Humana's pharmacy robocalls me and when I return it it's a 10 minute drawn-out process. Why do they have to make this shit unnecessarily difficult?
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Rieve Alavaix @rieve.bsky.social · 29/09/2026
New Witcher III expansion, what?!?!?!
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C. Bukowski @thishurt.bsky.social · 14/09/2026
gofund.me/364106c30
gofund.me
Donate to Loki's Emergency Vet Care, organized by Charlie Bukowski
Loki, my cat, is having a medical emergency with his bladder, and I need help getting him … Charlie Bukowski needs your support for Loki's Emergency Vet Care
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Rieve Alavaix @rieve.bsky.social · 28/09/2026
Missed a bday party yesterday and busy cancelled all of this week's appointments. I just don't have the energy to function.
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Jeremy C. Shipp @jeremycshipp.bsky.social · 31/08/2026
Meet my fabric art creation: Clay-Clay Sedimento the Pet Rock. I designed and hand-sewed him, and I hand-embroidered all of his many flowers. While rolling stones gather no moss, they sometimes collect flowers. jeremycreature.bigcartel.com
Here's a lovely photo of my fabric art creation Clay-Clay Sedimento the Pet Rock. He's a gray fabric art rock with two black eyes of different sizes and a little frown. There's green fur in the background.Here's another lovely photo of Clay-Clay. Here, he's resting on my palm, showing off his back. His back is covered with embroidered flowers of many colors. There are about 34 flowers, by my count.
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Rieve Alavaix @rieve.bsky.social · 27/09/2026
Not sure if I'm going in a drastically different direction, or going to try to get a wedge cut out of the back to have less hair volume to contend with. Either way, I'm excited. Once I cut, then I can colour again!
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Rieve Alavaix @rieve.bsky.social · 27/09/2026
Booked a haircut. Currently have way too much hair. Absolute sensory overload. I wash it and it stays wet for hours. Always in my face. No energy to style it. Experiment in growing it out again was interesting but it's time to book a haircut.
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Rieve Alavaix @rieve.bsky.social · 24/09/2026
Some light reading to start off my ketamine session:
Pat the Cat Goes Camping, but it's in French
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-𝚖𝚘𝚡 @moxiest.art · 24/09/2026
#⏰🐘🧵
A typewritten note that reads

You're doing great

With a doodle of an elephant
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Rieve Alavaix @rieve.bsky.social · 24/09/2026
Just nuzzled Charlotte and my vision immediately got blurry. I should know better by now but she just wants some affection.
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Rieve Alavaix @rieve.bsky.social · 24/09/2026
Look at this cuteness
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Rieve Alavaix @rieve.bsky.social · 24/09/2026
This is for real one of the best things I've seen in a while. I love it so much! ♥
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Rieve Alavaix @rieve.bsky.social · 24/09/2026
Is it just me or are so many more articles pay-walled these days? Can hardly read anything online now w/out trying to do sneaky extra steps to bypass.
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Rieve Alavaix @rieve.bsky.social · 19/09/2026
In a world of big evils and catastrophes, it's ok and even necessary to celebrate life's little joys.
a snapdragon blossom in shades of pink, peach, orange and yellow sunset glow
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Sygnin @sygnin.com · 18/09/2026
Quote with your bird art 🪶 BIRB #chocobo
Art of a yellow adult Chocobo and a yellow Chocobo chick
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Rieve Alavaix @rieve.bsky.social · 18/09/2026
The cats had some kind accelerated grooming session last night. Sleep was interrupted repeatedly by "The Night of the Hairballs."
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Rieve Alavaix @rieve.bsky.social · 18/09/2026
Hell yeah! We stumbled across a similar place out here and they have the best Bhindi Masala and a really solid Thali.
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-𝚖𝚘𝚡 @moxiest.art · 11/11/2025
😴 gnbsky
A white on black typewritten note that reads:

we hope you had a good day. if you did, fuck yeah. let's make it two-in-a-row tomorrow! 

if you didn't, day's over. you survived. you won. get some sleep. try again tomorrow.
stay safe, sleep well, be kind.
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Rieve Alavaix @rieve.bsky.social · 18/09/2026
That all sounds amazing!
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comrade @nowarbutclasswar.myatproto.social · 22/04/2026
Drowning meme, showing Bluesky leadership paying attention to AI while the codebase drowns, and why's phone dead at the bottom
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Domina Olivia, pussy haver ☭⚒️ @ol1-v3.northsky.social · 17/09/2026
hello , yes , i would like some support through my recovery shit's expensive youpay.me/ol1v3 ko-fi.com/das (vanilla comments only plz)
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Rieve Alavaix @rieve.bsky.social · 18/09/2026
Missed ketamine today bc of a migraine flare, probably bc of the seizures yesterday. Slept most of the day. Getting better at not feeling guilty when I'm too sick to keep my appts; but damn I really needed my session. Depression nipping at my heels. Wish I could get it at home.
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Rieve Alavaix @rieve.bsky.social · 17/09/2026
I don't even mind the seizures themselves at this point. I mind the brain fog and the mood swings and the inability to function or focus. I also hate the focal seizures where I lose a few minutes here, a few there, and then the hours in my day are gone.
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Rieve Alavaix @rieve.bsky.social · 17/09/2026
This summer had rancid vibes. I know there aren't words that could ever make this better, bc it's not fair. If I lived close enough I'd bring you cake and wine and/or gummies and we could rant at the Universe. The Universe kinda deserves it, tbh.
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Rieve Alavaix @rieve.bsky.social · 17/09/2026
I find this photo of you possibly one of the most cute and endearing Jeremy selfies I have ever seen.
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Rieve Alavaix @rieve.bsky.social · 17/09/2026
I have barely been on SM so I did not know about Eggs. I am so sorry, Maya. Sending you any love/comfort/hugs you want/need, even if it's just to have as spares in the corner. (We could most of us use spare hugs, methinks.) Ty for sharing Eggs w/us. He was a true joy and delight. ♥
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Rieve Alavaix @rieve.bsky.social · 17/09/2026
Maya is good people. Please help if you can.
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