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Rheumatoid Patient

@rheumpatient.bsky.social
72 followers 26 following 10 posts

Patient with rheumatoid arthritis. Interested in rheumatology and patient involvement.

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Reposted by Rheumatoid Patient
ero.eular.org @ero.eular.org · 06/06/2026
Last day of #EULAR2026 with interesting insights on strength training and RMDs. 🏋🏼‍♂️ Small amount of pain doesn’t mean joints are being damaged; 🏋🏼‍♂️ Essential to tailor the prescription; 🏋🏼‍♂️ Include patients in programme development
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Reposted by Rheumatoid Patient
The European Alliance of Associations for Rheumatology @eular.org · 03/06/2026
☕Join the Breakfast at EULAR livestream at 08:00 BST for live highlights from the #EULAR2026 Programme from day one.!! Watch live 👉 pulse.ly/xk5go6xpao 🎧On the go? Tune in to the podcast version: Apple Podcasts 👉https://pulse.ly/nxgwxqjigh Spotify 👉https://pulse.ly/lwci3n4xnr
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Rheumatoid Patient @rheumpatient.bsky.social · 30/04/2026
If you didn't get a chance to attend in person, please catch up on our #oralhealth session online. #BSR26
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Rheumatoid Patient @rheumpatient.bsky.social · 29/04/2026
Tomorrow, 1.25pm, Hall 1. #oralhealth #BSR26
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Rheumatoid Patient @rheumpatient.bsky.social · 12/04/2026
Finished writing my #BSR26 presentation. Can't wait to talk in Glasgow! Come to our #OralHealth in #RheumaticDisease session Thurs 30th April, 1.25pm, Hall 1: cattendee.abstractsonline.com/meeting/2081...
cattendee.abstractsonline.com
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Reposted by Rheumatoid Patient
Mwidimi Ndosi @ndosie.bsky.social · 07/01/2026
Palindromic rheumatism is unpredictable and under-researched New study by Chapman et al captures valuable patient insights ➡️ Unpredictable flares & psychological distress ➡️ Frequent diagnostic delays ➡️ Lack of info on progression to RA @rheumjnl.bsky.social #palindromic doi.org/10.1093/rap/...
doi.org
Living with palindromic rheumatism: a qualitative interview study
AbstractObjectives. Palindromic rheumatism (PR) is an unpredictable and under-researched inflammatory condition, and patients with PR are at risk of develo
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Rheumatoid Patient @rheumpatient.bsky.social · 23/12/2025
Merry Christmas everyone!
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Reposted by Rheumatoid Patient
Nuffield Department of Primary Care Health Sciences @oxprimarycare.bsky.social · 16/10/2025
🤔 What if the key to a stronger #NHS isn't a new technology but human connection? In our latest blog, @jtaylor001.bsky.social explores how a lasting relationship between patients & GPs: ✅ improves patient health 👛 lowers system-wide costs 😀 makes the GP job more satisfying #ContinuityOfCare
phc.ox.ac.uk
The Human Connection: Why Relational Continuity Matters in General Practice
Strong, lasting relationships between patients and their clinicians can improve outcomes, reduce costs, and strengthen the NHS. Here, our Workforce and Learning Research Group explores the evidence be...
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Reposted by Rheumatoid Patient
Mwidimi Ndosi @ndosie.bsky.social · 15/10/2025
New #scoping review of 137 reviews across 47 conditions shows oral 💊 #glucocorticoids are widely used across numerous specialities. Our collaborative research aims to explore how they affect quality of life and how to minimise harms. Read more 👉 doi.org/10.1002/pds....
doi.org
Mapping Use of High Dose or Long‐Term Oral Glucocorticoids and Steroid‐Sparing Strategies in Adults With Chronic Conditions: A Rapid Scoping Review of Reviews
Purpose Oral glucocorticoids (OGCs) have a broad range of uses and are effective in treating numerous conditions. However, it is commonly acknowledged that OGCs at high doses or over long periods ha...
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Reposted by Rheumatoid Patient
Catherine Pope @cjpope.bsky.social · 14/10/2025
Our paper about GP access is out now (TLDR patients and receptionists are engaged in a quest to get the prize of an appointment but are thwarted by digital barriers and practice systems) doi.org/10.1111/1467... #NIHR @oxprimarycare.bsky.social
doi.org
Bugbears in the Waiting Room: Revisiting Arber and Sawyer's Classic Study of GP Reception Work Using Ethnography in Eight English General Practices
In 1985, Arber and Sawyer described the discretionary rationing power of general practice receptionists. Our paper revisits this territory. Much has changed in the intervening decades. Digitalisation...
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Reposted by Rheumatoid Patient
Mwidimi Ndosi @ndosie.bsky.social · 06/10/2025
🚫New RCT highlights what not to do in clinical practice. Using a fancy HandScan to guide therapy was less effective than standard care. 🔍The study also revealed high non-adherence highlighting real-world challenges of rigid treat-to-target protocols. @rheumjnl.bsky.social doi.org/10.1093/rap/...
doi.org
HandScan criteria versus ACR/EULAR Boolean remission as treatment target in early rheumatoid arthritis: results of a randomized controlled trial
AbstractObjectives. The HandScan is a novel method to quickly and objectively quantify RA disease activity using optical spectral transmission in hands and
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Reposted by Rheumatoid Patient
Trish Greenhalgh @trishgreenhalgh.bsky.social · 30/09/2025
How do we keep GPs in the job? New research from Sophie Park. www.phc.ox.ac.uk/news/gp-work...
phc.ox.ac.uk
How can we keep GPs in the job? New review points to relationships, meaning, and learning
New research shows GP retention depends on how services are organised, not just individual resilience. Meaningful work, strong relationships, and learning cultures help GPs stay in post and deliver be...
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Reposted by Rheumatoid Patient
Mwidimi Ndosi @ndosie.bsky.social · 30/09/2025
AI and NLP analysed >8,400 patient-written free-text symptom descriptions. Clinically relevant patterns helped distinguish #osteoarthritis, #fibromyalgia and immune-mediated rheumatic diseases. This may reduce misdiagnosis and support earlier triage. @rheumjnl.bsky.social doi.org/10.1093/rap/...
academic.oup.com
Let’s ask the patient: disease prediction based on patients’ symptom descriptions in free text
AbstractObjective. This study evaluates the value self-reported free-text symptom descriptions for supporting diagnostic decisions in osteoarthritis (OA),
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Reposted by Rheumatoid Patient
Catherine Pope @cjpope.bsky.social · 25/09/2025
Why aren't we doing cutting edge emergency stroke care (thrombectomy)? We asked healthcare professionals. bmjopen.bmj.com/content/15/9... (part of #NIHR Optimist/SPEEDY trial) @oxprimarycare.bsky.social @exeter.ac.uk @newcastleuni.bsky.social @ouhospitals.bsky.social @rdm.ox.ac.uk
bmjopen.bmj.com
10 years on from the landmark stroke thrombectomy trials, where are we now? A qualitative study examining professional views on the implementation of endovascular treatment for ischaemic stroke in Eng...
Objective To explore multiprofessional views about system-wide factors influencing (impeding or facilitating) the delivery of stroke mechanical thrombectomy (MT) services and/or improvements to this p...
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Reposted by Rheumatoid Patient
Trish Greenhalgh @trishgreenhalgh.bsky.social · 24/09/2025
Ooh - my new paper on case study is out! What’s a case study, how do you do one, how do you spot a good one? Includes niche examples like the REF impact case study (though it’s mainly about research case studies).
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Reposted by Rheumatoid Patient
Trish Greenhalgh @trishgreenhalgh.bsky.social · 22/09/2025
I took paracetamol in both my pregnancies for minor joint troubles. I had a better pregnancy experience because I wasn't in pain. Neither of my kids is autistic. The high-quality studies and reviews confirm there is NO evidence that paracetamol taken by the mother causes autism in the child. 🧪
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Dr Rachel Clarke @drrachelclarke.com · 23/09/2025
Please know that this is Trump scaremongering. There is no good scientific evidence linking paracetamol (Tylenol) to autism. A 2024 Swedish study of 2.4 million births found no relationship whatsoever between exposure to paracetamol in utero & subsequent autism. www.theguardian.com/us-news/2025...
theguardian.com
Trump attacks Tylenol as officials unveil highly contentious conclusions on autism
President says acetaminophen – also known as paracetamol - increases risk when taken by pregnant women, assertion contradicted by research
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Rheumatoid Patient @rheumpatient.bsky.social · 23/09/2025
Session accepted for #BSR26. Glasgow, here I come!
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Reposted by Rheumatoid Patient
Juvenile Arthritis Research @jarproject.bsky.social · 29/04/2025
Big advantages of JAK inhibitors for children include... - effective - safe - fast acting - oral (no injections!) - no need to take methotrexate at the same time Thanks to Prof Ramanan for sharing the results of so many trials so clearly. #BSR25
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Reposted by Rheumatoid Patient
Mwidimi Ndosi @ndosie.bsky.social · 29/04/2025
Think patients cannot inform evidence synthesis? Think again Young people with musculoskeletal fatigue co-designed a scoping review, shaping search terms, flagging gaps and making findings relevant Excellent talk by Katie Fishpool at #BSR25 @chcr-uwe.bsky.social Abstract: doi.org/10.1093/rheu...
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Rheumatoid Patient @rheumpatient.bsky.social · 20/11/2024
Hi All! I've moved over from X (Twitter) to see what life is like on on the other side.
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