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Ranto

@rantogethernow.bsky.social
275 followers 696 following 380 posts

#ND, parent of NDs. #EDS #MCAS #POTs, #Dysautonomia etc. Arts nature animals politics news. I'd be delighted if you use AltText (and more likely to repost...). Probably the wrong temperature.

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Reposted by Ranto
Robin Ince @robinince.bsky.social · 08/06/2026
This week’s gigs #comedy #poetry #books #bookshop www.robinince.com
THIS WEEK'S GIGS
8/G
BOOKISH, CRICKHOWELL
9/6
STORYVILLE, PONTYPRIDD
10/6
QUINNS, MARKET HARBOROUCH
11/6
DROP CITY, STOKE ON TRENT
12/6
THE SPEAKEASY, LINCOLM
13/6
CHIPPENHAM PRIDE
14/6
WATERSTONES, CHIPPENHAM 11am
& & robin.ince
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Joanne Harris @joannechocolat.bsky.social · 07/06/2026
Unsolicited writing advice, no. 661: If you’ve decided to donate your services for free (eg: to a charity, or a cause you support), consider doing this. Send them a voided invoice showing your usual fee. That way, you’re donating to the cause, not giving out the message that your time is worthless.
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Disability News Service @johnpring.bsky.social · 04/06/2026
DWP secretly exposes 150,000 PIP claimants to new assessment system that is ‘recipe for disaster’ #DWP #PIP www.disabilitynewsservice.com/dwp-secretly...
disabilitynewsservice.com
DWP secretly exposes 150,000 PIP claimants to new assessment system that is ‘recipe for disaster’
The Department for Work and Pensions (DWP) is secretly testing sweeping new rules – described as a “recipe for disaster” – on disability benefit assessments, which will reduce the influence of heal…
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Ranto @rantogethernow.bsky.social · 02/06/2026
Looks great. Hope you enjoyed it 😊
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Ranto @rantogethernow.bsky.social · 01/06/2026
🤦🏻‍♀️
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Ranto @rantogethernow.bsky.social · 23/05/2026
Late to this, sorry. Arty was such a special boy and so well loved. Sorry for your loss x
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Chloe Cumming @chloecumming.bsky.social · 22/05/2026
Hi, not sold anything for a wee while, these pieces of original art are still available and I think they’re good and thought someone might want them. Though you know. Who knows? Thank you all for being supportive www.chloecumming.com
Milky the dog, lurcher dog drawing in black and white pastel pencil on grey paper Rearing tiny horse on white paper, graphite Front bit of a green grasshopper, layered marks Pink monkey in a black background all soft and sweet and nice and textures
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N.R. Lines⁷ (she/her) @nrlines.bsky.social · 19/05/2026
Boosting for Lev because credit card debt sucks and Lev had no choice back when 2023 happened (read Lev's quoted thread for the details).
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Ranto @rantogethernow.bsky.social · 19/05/2026
I agree Ben, it makes a real difference to feel connected.
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Ranto @rantogethernow.bsky.social · 19/05/2026
Good news 😊
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Ranto @rantogethernow.bsky.social · 19/05/2026
Yay!!
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Ranto @rantogethernow.bsky.social · 10/05/2026
🧡🧡🧡
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Doodlecats @doodlecats.com · 08/05/2026
That's a lot of coasters!! We have a great selection for you to choose from :D www.doodlecatsshop.co.uk/coasters/
17 different coasters with colourful cartoon cat designs
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Ranto @rantogethernow.bsky.social · 08/05/2026
Fabulous Congratulations 🎉
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Ranto @rantogethernow.bsky.social · 07/05/2026
Hey Larry, please remember to add AltText to images
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Ranto @rantogethernow.bsky.social · 21/04/2026
But slightly more unfeasible and with more swearing....
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Doodlecats @doodlecats.com · 20/04/2026
Key rings! We have all sorts of cool cats to attach to your keys :D. www.doodlecatsshop.co.uk/key-rings/
six key rings with cartoon cats on. one says Save a life, adopt a cat, with a cat in a box. some are cats with books. one says I love all the cats in the world
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Rieve Alavaix @rieve.bsky.social · 17/04/2026
My friend Matthew will be needing additional surgery. Anything you can give to help with medical costs and costs of living will be appreciated. They have given tirelessly of themself to save disabled people like me. Even just sharing this will help slow them that same love and support in return.
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Ranto @rantogethernow.bsky.social · 16/04/2026
🧡🧡🧡
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The Open University Library @oulibrary.bsky.social · 14/04/2026
Do you need to brush up on your referencing skills?❓ This pathway from Being Digital will help you learn how to reference books, ejournals, module materials and websites with confidence 👉 ow.ly/uSJs50YAwkx #BeingDigital
Image contains a quote from an OU student which reads: "It explains and demonstrates the
correct way of citing books and the activity at the end was just right to test knowledge".
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Matthew Cortland (they) @matthewcort.land · 10/04/2026
Help Matthew Cover Emergency Surgery Costs If, and only if, it would NOT at all be a financial hardship, and you find what I do valuable ⤵️ www.gofundme.com/f/help-matth...
gofundme.com
Donate to Help Matthew Cover Emergency Surgery Costs, organized by Matthew Cortland
I'm writing this from a hospital bed at Tufts Medical Center, where I had … Matthew Cortland needs your support for Help Matthew Cover Emergency Surgery Costs
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Ranto @rantogethernow.bsky.social · 13/04/2026
Last couple of weeks especially. Makes sense to me to have different approaches covered. I ended up treating vagus nerve stuff and that was the start of unlocking the EDS/MCAS/POTS cycle. I'm not in a perfect place but my baseline is much better. Didn't come from conventional western med.
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Ranto @rantogethernow.bsky.social · 13/04/2026
Exactly. I learned more from other patients than I ever did from medics when first diagnosed, including finding comorbidities. We read all the papers because we have to. I miss having a big group of fellow patients to bounce ideas off.
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Ranto @rantogethernow.bsky.social · 12/04/2026
And as you say, address the gaslighting....
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Ranto @rantogethernow.bsky.social · 12/04/2026
Thank you 😊 I read this recently, but it was good to do a reread. I remember well waiting for the 2017 criteria, and the relief of being 'in'. And seeing the devastation of friends who were 'out' and had to fight even harder. I'd like to see some responsibility taken for the impact of changes.
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Ranto @rantogethernow.bsky.social · 12/04/2026
I have new specialists to see and up to date references are very useful.
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Ranto @rantogethernow.bsky.social · 12/04/2026
Thank you 😊 I'm 10 years post diagnosis and there is still more to learn!!
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Ranto @rantogethernow.bsky.social · 12/04/2026
🧡🧡🧡
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Ranto @rantogethernow.bsky.social · 12/04/2026
Thank you I'd not spotted this and it is incredibly helpful. Self and family have many of these comorbidities.
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Dr. Paula Bruno, Ph.D., L.Ac. @2heartswellness.bsky.social · 12/04/2026
Recognize any of these comorbid conditions? #ChronicIllness #ChronicPain #EDS #hEDS #MCAS #HolisticHealth #Acupuncture #TuiNa #LifestyleSupport 💕 #Wellness
buff.ly
Prevalence of various comorbidities in a cohort of individuals with hypermobile Ehlers-Danlos syndrome - Journal of Rare Diseases
Journal of Rare Diseases - Hypermobile Ehlers-Danlos syndrome (hEDS) is a heritable connective tissue disorder primarily known to cause abnormalities in the joints and skin. A variety of conditions...
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Ranto @rantogethernow.bsky.social · 10/04/2026
One of the hardest ND things I think. Like I can say I'm in 9/10 pain with a shrug - and so not be believed.
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Ranto @rantogethernow.bsky.social · 10/04/2026
That's a whole different thing. Hope you can finally get some support
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Michael Rosen @michaelrosenyes.bsky.social · 09/04/2026
This little medley of Funny Poems has just reached 70k views. | Kids Poems and Stories with Michael Rosen youtu.be/i2z_4Be6lCI?... via @YouTube
youtu.be
Michael Rosen Funny Poems | Kids Poems and Stories with Michael Rosen
YouTube video by Kids’ Poems and Stories With Michael Rosen
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Ranto @rantogethernow.bsky.social · 07/04/2026
🧡🧡🧡
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Chloe Cumming @chloecumming.bsky.social · 28/01/2026
Having a little lull so not very confident about these posts buuuuuut I think my art is good and maybe someone would like to buy it/support its continuation. There’s hopefully something good about that. www.chloecumming.com
Textural leisure hare, green yellow red Toilet with shimmering wibbles, soft textures Horse all bent round, white horse in oil pastels green blue background Dove flapping near a hospital sign
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Robin Ince @robinince.bsky.social · 25/03/2026
London show has just gone on sale - stories, poetry and music www.kingsplace.co.uk/whats-on/com...
kingsplace.co.uk
Robin Ince: Let the Quiet Ones Rise Launch • Comedy • Kings Place
To celebrate the paperback launch of Normally Weird and Weirdly Normal and his new poetry colletion, Robin Ince returns to Kings Place with a show about standing up and standing out.
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Ranto @rantogethernow.bsky.social · 25/03/2026
Progress 😃 I think one thing I have got better at over the years is with subluxes etc stopping fast and bracing, resting etc. Keep it up (or rather, down 🤔😉)
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Ranto @rantogethernow.bsky.social · 25/03/2026
Good luck 😊
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Ranto @rantogethernow.bsky.social · 25/03/2026
Ow ouchie. Take it gently if you can. Sometimes I don't realise I've had improvements until I get a 'new' thing go and I remember what it can be like 🫣
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Ranto @rantogethernow.bsky.social · 24/03/2026
Hope you get closer to baseline soon x
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NORTHERN RESIDENT ARTIST @northresidentart.bsky.social · 09/03/2026
The Grapes, Liverpool Retweets/Sharing appreciated 6th pub painted out of painting every Liverpool pub #Liverpoolpubs #Liverpool #ScousePubs
Pub
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Ranto @rantogethernow.bsky.social · 21/03/2026
Hope it works for you. I had about a week feeling a bit odd, then never looked back!!
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Ranto @rantogethernow.bsky.social · 20/03/2026
Ha! I'm definitely looking forward to trying. I hope it is as good as I remember. I'm also trying to convince myself (tiny amounts of dark) chocolate may be fine. I suspect oral allergy syndrome may be responsible for some symptoms and maybe worth a try.
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Ranto @rantogethernow.bsky.social · 20/03/2026
Hi Let's hope we find a bit more of it! I definitely miss the company and sounding board.
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Ranto @rantogethernow.bsky.social · 20/03/2026
Thank you for sharing all of this. It has been fantastic to see some of your 'wins' along the way.
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Ranto @rantogethernow.bsky.social · 20/03/2026
There are so many factors which can impact, what you've set out here gives me some starting points. I'm aiming to try things which weren't problematic before but got lost along the way. Who knew one day I'd be excited at the prospect of trying broccoli again 😂
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Ranto @rantogethernow.bsky.social · 20/03/2026
This is fantastic, I will have a good read through all the lists. I'd got as far as working out the big lists were maybe not that useful, but this 'how to' is great. I've been waiting for a lower stress spot too, as I know that massively affects my reactions, and I've ended up stressed about food
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Ranto @rantogethernow.bsky.social · 20/03/2026
I miss that! Good to say hi, I enjoy your posts here
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Ranto @rantogethernow.bsky.social · 20/03/2026
Hey good to meet you 😊
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Chloe Cumming @chloecumming.bsky.social · 20/03/2026
Many coloured fruit dove (approx)
A colourful dove ink drawing kind of kooky and pink and yellow and green
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