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🤗 A sincere thank you to all partners (35 organisations from 15 countries) for their commitment and engagement! Large-scale European collaboration is inherently complex, but this consortium has demonstrated the dedication, expertise and openness of partners working towards a common objective. 5/5

Across policy, research, industry, and patient perspectives, several themes came back repeatedly: scalability in diverse contexts, balancing ambition with usability, and ensuring that implementation supports rather than burdens data holders. 4/5

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Patients and stakeholders remained part of the conversation Insights from the Project Forum and Patients Forum reinforced the need for meaningful stakeholder engagement to ensure health data systems work for those they ultimately serve. 3/5

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Sessions presented the QUANTUM work on data quality and utility (and data holders' maturity) for secondary use: the framework, the labelling approach, pilot implementations, and experiences from applying these tools in real settings across Europe. 2/5

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QUANTUM @quantumproject.bsky.social · 06/05/2026

The QUANTUM final event took place in Brussels over two days, bringing together project's partners, EU institutions, researchers, industry, key stakeholders and friends to reflect on results achieved so far and on what it takes to move from design to operational use within the #EHDS. 🧵1/5

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New QUANTUM report! 💡 Mid-scale testing shows the tool works well for single datasets. The real challenge is scaling: governance gaps, uneven maturity across organisations, and the need for better workflow support. Next step: guidance, templates and automation. 👉 zenodo.org/records/1966...

QUANTUM @quantumproject.bsky.social · 27/04/2026

❓ How is #DataQuality assessed in QUANTUM? This infographic provides a clear overview of how the QUANTUM project approaches data quality and utility, through 12 key dimensions. A quick way to understand what matters for data quality and utility 👇 #EHDS

QUANTUM @quantumproject.bsky.social · 21/04/2026

📩 Get to know the latest updates from the QUANTUM project. Check out our latest newsletter ! 👉 preview.mailerlite.io/preview/8260...

QUANTUM @quantumproject.bsky.social · 10/04/2026

Europe is building the European Health Data Space #EHDS, where high-quality and usable #healthdata are key. Our Final Event will bring together policymakers, regulators, and EU institutions to discuss the next steps for adoption and scale-up. 👉 Info & registration: quantumproject.eu/event/final_...

QUANTUM @quantumproject.bsky.social · 30/03/2026

Final QUANTUM Patients & Citizens Forum session! 📅 14 April, 14:00–15:00 CEST Meet the team, explore the Work Packages & see how QUANTUM improves #healthdata quality. A chance to ask your questions directly. 👉 Register: sciensano.webex.com/weblink/regi...

QUANTUM @quantumproject.bsky.social · 16/03/2026

Reposted by QUANTUM

📢 Don’t miss the QUANTUM Final Event! Discover project results, the QUANTUM label, and join discussions on health data quality in Europe. 📅 27–28 May | 📍 Brussels & Online Register by 20 May: forms.office.com/Pages/Respon...

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QUANTUM @quantumproject.bsky.social · 16/03/2026

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QUANTUM @quantumproject.bsky.social · 06/03/2026

How can we strengthen trust in health data used for research and innovation? The QUANTUM project is working towards a Data Quality Label for #healthdata, supporting both researchers and data holders across Europe. Discover our new web flyer! ⬇️

QUANTUM @quantumproject.bsky.social · 24/02/2026

📅 Join us in Brussels & online on 27–28 May, as we present our final results and the future of health #dataquality in Europe. From policy to implementation, from pilots to scale-up, discover how QUANTUM contributes to the European Health Data Space (#EHDS). More details & registration coming soon!

QUANTUM @quantumproject.bsky.social · 24/02/2026

Our colleague Claudio (@sciensano.be) spoke at a webinar by the European Burden of Disease Network, highlighting why the quality and utility of #healthdata must be assessed. He presented the QUANTUM labelling tool. 🔗 www.burden-eu.net/activities/w...

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QUANTUM @quantumproject.bsky.social · 05/02/2026

📋 When assessing data quality, one key question is often overlooked: is a dataset fit for a given purpose? 💡 The 4th QUANTUM Project Forum will explore this user-centric approach through an interactive validation session. 📆 12 Feb | Online 👉 Interested? Contact us! quantumproject.eu/contact-us/

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QUANTUM @quantumproject.bsky.social · 28/01/2026

✅ On #DataProtectionDay, we recognise how essential strong safeguards are for #healthdata. Trust also grows through transparency, #dataquality and responsible reuse the focus of QUANTUM. 👉 www.quantumproject.eu

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QUANTUM @quantumproject.bsky.social · 28/01/2026

🗺️ In 2025, QUANTUM took part in many meetings, events and conferences across Europe, connecting researchers, institutions, patients, advancing #DataQuality and utility in health research. In 2026, we build on this momentum towards a European data quality label. 👉 quantumproject.eu #EHDS

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QUANTUM @quantumproject.bsky.social · 18/12/2025

🎄 We wish you a very merry Christmas and a healthy, quality-filled New Year! 2025 was a milestone year. We released first project outputs, attended numerous high-impact events, and built many valuable connections with key stakeholders. Much more is coming in 2026, stay tuned! 👉 quantumproject.eu

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QUANTUM @quantumproject.bsky.social · 19/11/2025

🇩🇪 QUANTUM joins the BfArM Health Data Event in Bonn on 24–25 Nov. 🗣️ Our coordinator Enrique Bernal Delgado will contribute to discussions on how EU projects like QUANTUM can support secure, interoperable #healthdata ecosystem in the European Health Data Space #EHDS. 👉 www.bfarm.de/EN/News/even...

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Home - QUANTUM: The health data quality label

Thanks too all the attendees, speakers and panellists for this great session! More informaiton about QUANTUM: quantumproject.eu

quantumproject.eu

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The session ended with a panel discussion with some of these data holders having tested the QUANTUM labelling tool, discussing feedback, challenges, and improvements for the tool.

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Jan-Willem Boiten (Health-RI) presented the first findings from the first mid-scale test of the QUANTUM quality labeling tool, with health data holders willing to test the tool and the assessment process with enough variability regarding organisation typology, size, maturity level and data types.

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Claudio Proietti Mercuri (@ihisunitsciensano.bsky.social) is now presenting the QUANTUM tool itself, which allows data holders to: - Assess datasets quality/utility - Generate and visualise data quality and utility labels, - Provide transparent assessment of data holders maturity...

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Lorenz Dolanski-Aghamanoukjan (@goeg.at), presented more in depth the QUANTUM label, the specifications of the datasets’ quality and utility label, the specifications que the data holders' maturity, the consensus process and implementation challenges.

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Enrique Bernal Delgado, coordinator of @quantumproject.bsky.social presenting the projects and its main goal: respond to the #EHDS regulation by providing a #dataquality and utility label for the secondary use of #healthdata. #EPH2025

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Elina Drakvik, coordinator of the @tehdas.eu joint action opened the session by presenting key aspects of the European Health Data Space, and TEHDAS' expected impact, which is to improve, implementation, coordination and best practices for the #EHDS and the secondary use of #healthdata. #EPH2025

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QUANTUM @quantumproject.bsky.social · 30/10/2025

We are very glad to be at the European Public Health Conference in Helsinki 🇫🇮 with a pre-conference session dedicated to QUANTUM, and how it aims to ensure Health Data Quality for better public health research and policymaking. #EPH2025

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🧐 Read the last QUANTUM newsletter: preview.mailerlite.io/preview/8260... 📬 Get the next one ine your mailbox! Subscribe here: preview.mailerlite.io/preview/8260...

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QUANTUM @quantumproject.bsky.social · 24/10/2025

😊 QUANTUM was at the SNOMED CT Expo #SCTExpo25 in Antwerp! We joined the first-ever European Projects Pavilion, sharing our work on #dataquality in the #EHDS. Our colleague Monica Jones (HDR UK) also presented the QUANTUM Data Holder’s Maturity Model — great discussions on data governance followed!

QUANTUM @quantumproject.bsky.social · 21/10/2025

Missed our latest QUANTUM Patients & Citizens Forum? We talked about what’s new with the European Health Data Space (#EHDS) and what it means for patients and their organisations. ▶️ Watch the recording! youtu.be/vFma9D2t9Z8?...

youtu.be

The European Health Data Space progress, news and what’s next for patients - QUANTUM Patients forum

YouTube video by QUANTUM - The Health Data Quality Label

QUANTUM @quantumproject.bsky.social · 20/10/2025

❓ Are you part of a project interested in the QUANTUM Data Quality and Utility Labelling Tool? 🙋‍♂️ Join the 3rd QUANTUM Project Forum on 28 October – an event designed to engage stakeholders, gather feedback, and explore collaborations and synergies. 👉 Interested? info[at]quantumproject.eu

QUANTUM @quantumproject.bsky.social · 08/10/2025

Join us this afternoon! 👉 sciensano.webex.com/weblink/regi... Together with Birgit Bauer, Carola Schulz, Antonella Cardone (@cancerpatientseu.bsky.social), Katharina Schneider, we'll discuss the latest progress/next steps of the European Health Data Space #EHDS, and what it means for patients.

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Reposted by QUANTUM

QUANTUM @quantumproject.bsky.social · 19/09/2025

📅 8 October | 14:00–15:00 CET | Online Join us for the 4th session of the QUANTUM Patients and Citizens Forum. This time, we’ll focus on: 💬 The European Health Data Space: progress, news and what’s next for patients 👉 Register now: sciensano.webex.com/weblink/regi... #EHDS

QUANTUM @quantumproject.bsky.social · 19/09/2025

Will you be at #EPH2025 @ephconference.bsky.social in Helsinki this November? Join our preconference session! We’ll showcase our health data quality label, with a walkthrough of the QUANTUM tool + a panel sharing first implementation experiences. ℹ️ Info & registration: ephconference.eu

QUANTUM @quantumproject.bsky.social · 19/09/2025

QUANTUM @quantumproject.bsky.social · 08/07/2025

🎥 Missed our 25 June QUANTUM patients and citizens forum session on ethics, privacy & the #EHDS? Watch the replay: www.youtube.com/watch?v=_2cH... 🗳️ Our next forum is in October — help choose the topic! Vote now 👉 www.menti.com/alfiq7nz7n2y

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The Ethical & Legal Side of Health Data: Trust, Privacy & the EHDS - QUANTUM Patients Forum #3

YouTube video by QUANTUM - The Health Data Quality Label

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QUANTUM @quantumproject.bsky.social · 25/06/2025

🤝 QUANTUM is proud to join forces with #EUCAIM through a new Memorandum of Understanding: together, we’ll push for high-quality, reusable #healthdata to support better #CancerResearch across Europe. Collaboration is key to building trust and value in data. 👉 cancerimage.eu/eucaim-annou...

QUANTUM @quantumproject.bsky.social · 11/06/2025

Don't miss the next session of the QUANTUM patients & citizens forum! We’ll explore how ethical and legal (#ELSI) frameworks, the European Health Data Space (#EHDS), and #GDPR support trust, privacy & fairness in #healthdata and #AI use. 👉 quantumproject.eu/event/patien...