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Innovation in Health Information System unit @ihisunitsciensano.bsky.social · 21h

📣 Join us on 28 October in Brussels for a practical look at how the European Health Data Space #EHDS is taking shape in Belgium. 🇪🇺 🇧🇪 We will discuss practical implementation, metadata catalogues, data quality, what can be your role in the ecosystem. 👉 Register now! www.eventbrite.be/e/reuse-of-h...

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Innovation in Health Information System unit @ihisunitsciensano.bsky.social · 30/09/2026

Meet us at #SHAIPED Stakeholder Forum: AI medical devices in the European Health Data Space #EHDS 🇪🇺 Our head of unit @nienkeschutte.bsky.social will moderate session 2 on whether Health Data is AI-ready. 📅 Mon 5 Oct, 14:00–18:00 CEST 📍 ParisSanté Campus & online 👉 docs.google.com/forms/d/e/1F...

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Innovation in Health Information System unit @ihisunitsciensano.bsky.social · 17/09/2026

📍 Meet our team at #EGI2026 in Ghent! 👉 Visit our @sciensano.be booth to discover #HealthDCATAP and practical tools supporting #EHDS implementation: www.egi.eu/article/meet... 👉 Join our European Health Data Space Forum Session on 24 September: indico.egi.eu/event/6931/s...

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QUANTUM @quantumproject.bsky.social · 14/09/2026

📨 Read the final issue of the QUANTUM newsletter! This edition bring together the latest outputs of the project, and highlights resources that will remain available beyond the project and support #EHDS implementation. 👉 Read it here: preview.mailerlite.io/preview/8260...

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Innovation in Health Information System unit @ihisunitsciensano.bsky.social · 14/08/2026

📢 Registration is open for the #SHAIPED Stakeholder Forum! Join European stakeholders in Paris or online on 5 October to discuss AI Medical Devices, the AI Act, MDR/IVDR, #EHDS and AI-ready health data. 👉 Register: forms.gle/SdtHPosW9CTq...

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Innovation in Health Information System unit @ihisunitsciensano.bsky.social · 17/06/2026

📌A date you can already save! 📅 16/11/2026. 🇧🇪 Brussels. The @tehdas.eu Final Conference "Shaping the #EHDS together - from guidelines to implementation" will reflect on the project’s results and the next steps in the implementation of the European Health Data Space. 👉 tehdas.eu/event/save-t...

tehdas.eu

Save the date: TEHDAS2 Final Conference - Tehdas

Shaping the EHDS together – from guidelines to implementation TEHDAS2 will hold its final conference on 16 November 2026 in Brussels and online, bringing together project partners, policymakers, exper...

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Innovation in Health Information System unit @ihisunitsciensano.bsky.social · 16/06/2026

Together with our @sciensano.be colleagues from @becancercentre.bsky.social, we're proud to join the BE-AI Factory Antenna, enabling 🇧🇪 organisations to develop large-scale #AI models by providing secure, ethical, compliant #healthdata and genomics data expertise with training and technical support.

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Innovation in Health Information System unit @ihisunitsciensano.bsky.social · 03/06/2026

📣 The @tehdas.eu project launched a public consultation, inviting stakeholders to comment on 7 draft guidance documents, aimed at supporting the implementation of the European Health Data Space #EHDS for secondary use. The consultation will be open until 28 June 2026. 👉 tehdas.eu/public-consu...

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Innovation in Health Information System unit @ihisunitsciensano.bsky.social · 02/06/2026

🏷️ Can #healthdata become as transparent as food labels are for nutrition? This question was at the heart of the @quantumproject.bsky.social final event last week in Brussels, bringing together project's partners, policymakers, researchers, industry to discuss the future of health data reuse in 🇪🇺.

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Innovation in Health Information System unit @ihisunitsciensano.bsky.social · 05/05/2026

We often talk about #misinformation as if the fix is just giving people better facts. In #public health, it's rarely that simple. Join us on Thursday for this event on #Infodemic management, at the occasion of the European Public Health Week! #EUPHW 👉 Info &registration: eupha.org/euphw_events...

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QUANTUM @quantumproject.bsky.social · 22/04/2026

Discover QUANTUM in video! www.youtube.com/watch?v=MH77...

youtube.com

QUANTUM - The Health Data Quality Label

YouTube video by QUANTUM - The Health Data Quality Label

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Innovation in Health Information System unit @ihisunitsciensano.bsky.social · 20/04/2026

📢 We will be glad to chair a panel at the HELT Symposium (Health, Ethics, Law & Technology), 23 April in Brussels, on responsible AI for health data permits in the European Health Data Space #EHDS. With @sciensano.be experts moderating and contributing to the discussion. 👉 events.vub.be/HELT-2026

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Innovation in Health Information System unit @ihisunitsciensano.bsky.social · 17/04/2026

🇪🇺 The European Commission has opened a public consultation on health dataset descriptions, a key step for the European Health Data Space #EHDS. It aims to set a common metadata framework to improve findability and reuse how #healthdata across borders. 👉 Have your say! ec.europa.eu/info/law/bet...

ec.europa.eu

European Commission - Have your say

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Innovation in Health Information System unit @ihisunitsciensano.bsky.social · 25/03/2026

📑 Our colleague Pascal Derycke presented a poster at #SWAT4HCLS2026 in Amsterdam. 💡 A blueprint to enhance European Health Data Space dataset catalogues with #genAI: using synthetic proxy data to make sensitive #healthdata easier to discover, explore, and experiment with. #EHDS ⤵️

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Innovation in Health Information System unit @ihisunitsciensano.bsky.social · 24/03/2026

🇪🇺 Last week, we held a @tehdas.eu workshop, bringing together 270 participants to discuss how to 𝘀𝗮𝗳𝗲𝗴𝘂𝗮𝗿𝗱 𝗜𝗻𝘁𝗲𝗹𝗹𝗲𝗰𝘁𝘂𝗮𝗹 𝗣𝗿𝗼𝗽𝗲𝗿𝘁𝘆 𝗥𝗶𝗴𝗵𝘁𝘀 𝗮𝗻𝗱 𝗧𝗿𝗮𝗱𝗲 𝗦𝗲𝗰𝗿𝗲𝘁𝘀 𝗶𝗻 𝘁𝗵𝗲 𝗰𝗼𝗻𝘁𝗲𝘅𝘁 𝗼𝗳 𝘁𝗵𝗲 𝗘𝘂𝗿𝗼𝗽𝗲𝗮𝗻 𝗛𝗲𝗮𝗹𝘁𝗵 𝗗𝗮𝘁𝗮 𝗦𝗽𝗮𝗰𝗲 #𝗘𝗛𝗗𝗦. 💡Insights will feed into recommendations and the upcoming public consultation. Stay tuned!

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Innovation in Health Information System unit @ihisunitsciensano.bsky.social · 24/02/2026

Our colleague Claudio spoke at a webinar by the European Burden of Disease Network, highlighting why the quality and utility of #healthdata must be assessed. He presented the @quantumproject.bsky.social data quality and utility labelling tool. 🔗 www.burden-eu.net/activities/w...

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Innovation in Health Information System unit @ihisunitsciensano.bsky.social · 22/01/2026

📬 SHAIPED newsletter #3 is out! Discover how our team contributes to advancing #AI as a medical device, supporting secure, efficient and regulation-compliant data pathways within the European Health Data Space #EHDS. 👉 mcusercontent.com/aca6400104f6...

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Innovation in Health Information System unit @ihisunitsciensano.bsky.social · 19/11/2025

📣 PUBLIC CONSULTATION — Have your say on the secondary use of health data and the European Health Data Space #EHDS. 📑 @tehdas.eu seeks feedback on 11 draft guidelines covering fees, penalties, data access, data protection and citizens’ rights. More info 👉 tehdas.eu/public-consu...

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Innovation in Health Information System unit @ihisunitsciensano.bsky.social · 14/11/2025

🧐 In the context of the BePIN (Belgian Pandemic Intelligence Network) project, we have examined how scientific evidence informed decision making during the #COVID19 crisis in Belgium and beyond. 📑 This was presented in a great poster by our colleague Miriam Saso at #EPH2025. ⬇️

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Innovation in Health Information System unit @ihisunitsciensano.bsky.social · 11/11/2025

Great start to the European Public Health Conference in Helsinki 🇫🇮 with a preconference session on the #EHDS, co-organised with @sciensano.be, the Belgian Health Data Agency, Belgian Federal Public Service, Austrian Public Health Institute, Luxembourg National Data Service and @tehdas.eu. #EPH2025

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Innovation in Health Information System unit @ihisunitsciensano.bsky.social · 05/11/2025

Discover our latest findings from Iceland 🇮🇸 on digital systems for health threat detection and response, supporting interoperability with the EU Health Emergency Preparedness and Response Authority (HERA). 👉 zenodo.org/records/1752...

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Innovation in Health Information System unit @ihisunitsciensano.bsky.social · 23/10/2025

🙂 Meet our team today and tomorrow at the #SNOMEDCTExpo 2025, in Antwerp! We are at the European Projects Pavilion, representing the Joint Action @tehdas.eu. The @quantumproject.bsky.social is there — a project we’re proud to contribute to as well! 🔗 www.snomed.org/snomedct-expo

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Innovation in Health Information System unit @ihisunitsciensano.bsky.social · 10/10/2025

🇪🇺 The European Health Data Space (#EHDS) is taking shape. 🗣️ Have your say! Under the lead of @sciensano.be, the @tehdas.eu joint action has opened a public consultation (30 Sept–30 Nov 2025) on 11 draft guidelines and technical specifications. ➡️ tehdas.eu/public-consu...

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Innovation in Health Information System unit @ihisunitsciensano.bsky.social · 06/10/2025

👉 Guideline on dataset description duties in the European Health Data Space #EHDS published! 🔗 tehdas.eu/wp-content/u... We developed it for @tehdas.eu, offering support for #healthdata holders who will need to describe and make datasets available for secondary use under the #EHDS Regulation.

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Innovation in Health Information System unit @ihisunitsciensano.bsky.social · 29/09/2025

📢 🇧🇪 Invitation to Belgian stakeholders! 🇪🇺 The European Health Data Space is taking shape. Join us on 16 Oct (15:30–17:30) for a briefing: Practical guidance for the #EHDS consultation. Discover @tehdas.eu draft guidelines & prepare your input. 👉 Register here! sciensano.webex.com/weblink/regi...

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Innovation in Health Information System unit @ihisunitsciensano.bsky.social · 26/09/2025

🇪🇺 Big step for the European Health Data Space #EHDS! HealthDCAT-AP, the metadata standard developed by our @sciensano.be unit & partners, has been transferred to the European Commission @ec.europa.eu to ensure its long-term maintenance. 👉 healthdataeu.pages.code.europa.eu/healthdcat-a...

healthdataeu.pages.code.europa.eu

HealthDCAT-AP Release 5

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Innovation in Health Information System unit @ihisunitsciensano.bsky.social · 02/07/2025

📨 The first newsletter of the project SHAIPED is out! Your gateway to updates from one of Europe’s flagship initiatives at the intersection of #healthdata governance, #AI regulation, and medical innovation! 👉 mailchi.mp/73c46986de93...

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Innovation in Health Information System unit @ihisunitsciensano.bsky.social · 30/06/2025

🧩 Last week at @ulbruxelles.bsky.social, BE-PIN partners met to connect researchers, policymakers, experts in pandemic preparedness, to rethink how we deal with future health crises. @sciensano.be backs co-creation & data-driven action for stronger future responses. 👉 www.pandemicintelligence.be

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Innovation in Health Information System unit @ihisunitsciensano.bsky.social · 26/06/2025

Earlier this month, we were glad to join the PREPARE-EU Spring School, hosted by KULeuven, to connect on #pandemicpreparedness and research. Our colleagues Miriam Saso & Shona Cosgrove presented their poster on building resilient intelligence networks in 🇪🇺, based on our work in the BE-PIN project.

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Innovation in Health Information System unit @ihisunitsciensano.bsky.social · 04/06/2025

📣 Don't miss this interesting upcoming webinar organised by the #xShare project in which @sciensano.be is involved. The event will shed light on the importance to work on a better alignment between #healthdata models and standards used in clinical care and #publichealth. 👉 ehtel.eu/events/11-ev...

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Innovation in Health Information System unit @ihisunitsciensano.bsky.social · 04/06/2025

Excited to be part of #SHAIPED, a 🇪🇺 project aiming to facilitate the access to #healthdata for #AI -based medical devices. @sciensano.be leads WP3 on tools & services needed under the European Health Data Space #EHDS. 🎥 Watch our colleague Pascal explain: youtu.be/aN1Vn7TwFgs More info 🔗 shaiped.eu

youtu.be

A European space for AI in healthcare : the SHAIPED project kicks-off

YouTube video by Health Data Hub

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Reposted by Innovation in Health Information System unit

QUANTUM @quantumproject.bsky.social · 21/05/2025

👋 Welcome to QUANTUM on BlueSky! We are enhancing health data quality across Europe with a Data Quality & Utility Label supporting the EHDS. Join us in building a trustworthy health data ecosystem. 🔗 quantumproject.eu #HealthData #DataQuality #EHDS

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QUANTUM @quantumproject.bsky.social · 26/05/2025

The recording of our last patients and citizen forum session is now online! We discussed on how a quality label can build trust and encourage data sharing, with real-life patient perspectives on the power of data in shaping care. 👉 www.youtube.com/watch?v=TfDc...

youtube.com

"Why should I care?" QUANTUM patients & citizens forum session 2 - Benefits of Health Data Labelling

YouTube video by QUANTUM - The Health Data Quality Label

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Innovation in Health Information System unit @ihisunitsciensano.bsky.social · 27/05/2025

Interesting event tomorrow! Organised by the xShare project, it will present how the European Health Data Space, the European Electronic Health Record Exchange Format (EEHRxF) and the xShare Yellow Button can put citizens in control of their #healthdata. 👉 xshare-project.eu/adoption_kit... #EHDS

xshare-project.eu

Click and xShare: Transforming Health Data Access for patients in Europe - The Yellow Button experience within the European Health Data Space - xShare

Read the Terms and Privacy Policy.

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Innovation in Health Information System unit @ihisunitsciensano.bsky.social · 08/05/2025

🗣️ Our colleague Claudio Proietti Mercuri will be speaking at the HELT talks, tomorrow, in the VUB campus. He will explore the evolving role of #dataquality in the secondary use of #healthdata, especially under the European Health Data Space (#EHDS) regulation. ℹ️ hall.research.vub.be/helt-talks-6

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Innovation in Health Information System unit @ihisunitsciensano.bsky.social · 04/04/2025

How did we contribute to develop a new metadata standard for #healthdata in Europe? ⏯️Discover the Health DCAT-AP standard with our colleague Pascal Derycke, Data Engineer at @sciensano.be, and Natalia Żylińska-Puta (@ec.europa.eu): youtu.be/y4RMGViB6wM?... #EHDS

youtu.be

#EHDS "Health DCAT-AP metadata standard" | HealthData@EU Pilot

YouTube video by Health Data Hub

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Innovation in Health Information System unit @ihisunitsciensano.bsky.social · 27/02/2025

In the end of last year, our colleague Pascal Derycke, together with the @ec.europa.eu presented the European Health Data Space and the new Health DCAT-AP metadata standard in a data.europa academy webinar which is now accessible online! #EHDS #healthdata 📹 www.youtube.com/watch?v=gEDz...

youtube.com

'Data spaces: experience from the European Health and Common Energy data spaces' data.europa academy

YouTube video by Publications Office of the European Union

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Reposted by Innovation in Health Information System unit

TEHDAS2 joint action @tehdas.eu · 26/02/2025

What is the goal of the TEHDAS2 guideline for data holders on data description and who will it benefit? Hear from @nienkeschutte.bsky.social of @ihisunitsciensano.bsky.social This draft guideline is open for public consultation until this Friday, 28 Feb: tehdas.eu/public-consu... #HealthUnion

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Innovation in Health Information System unit @ihisunitsciensano.bsky.social · 13/02/2025

At the occasion of the #EHTEL 25th anniversary event, our head of unit @nienkeschutte.bsky.social gave a presentation on: "Leveraging the EHDS: advancing public health and citizen impact." 📹 The recording is now available! www.youtube.com/watch?v=ioQv...

youtube.com

Leveraging the EHDS: advancing public health and citizen impact | Nienke Schutte

YouTube video by EHTEL

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