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Karen Woolley

@profwoolley.bsky.social
27 followers 21 following 19 posts

Failed retiree Passionate advocate for greater patient involvement in medical research

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Karen Woolley @profwoolley.bsky.social · 08/10/2025
Same, same, but (quite) different. 1st comparison of #PubMed vs #EuropePMC for #PatientAuthor pubs. Same = can search both Same = rapid increase clear Different = 2x difference in output We need research on research methods to advance patient authorship! @ismpp.bsky.social @bmj.com @jama.com
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Karen Woolley @profwoolley.bsky.social · 26/05/2025
May reporting guideline updates for #PPI continue! Well done to #CONSORT & #SPIRIT (2025) #CHEERS (2022). Why not other main study types? Is #PRISMA next re, evidence of PPI value in systematic reviews (Zhou Q J Clin Epid 2024) @equatornetwork.bsky.social @ismpp.bsky.social
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Karen Woolley @profwoolley.bsky.social · 26/05/2025
Great to see SPIRIT 2025 update w #PPI reporting. Hoping to see update of websites on/referring to SPIRIT - 2013 is out of date now. @equatornetwork.bsky.social
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Karen Woolley @profwoolley.bsky.social · 20/05/2025
International #ClinicalTrialsDay 2025 - will 2026 see a better way for #patients to find trials they (& other patients) trust? Our 'call-to-action' publication identifies a gap in registries that should be fixed. #CTD2025 #PPI
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Karen Woolley @profwoolley.bsky.social · 16/05/2025
What if the flip happens? A patriarchal dismissal of #Patient involvement in #publications might be dismissed sooner than (some) people think. Ready to adapt processes, practices & attitudes? #PatientAuthor #PlainLanguageSummary @ismpp.bsky.social
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Karen Woolley @profwoolley.bsky.social · 05/02/2025
A patient-authored publication a day keeps tokenism (& paternalism) away. It's so hard to change medical #publications - until we do. Kudos #PatientAuthor pioneers & allies! #PPI @ismpp.bsky.social @envisionpharma.bsky.social @amicascientific.com @bmj.com @amyprice.bsky.social
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Karen Woolley @profwoolley.bsky.social · 19/12/2024
First post. I think it's worthy. Beyond excited, beyond grateful...THANK YOU @rockefellerfdn.bsky.social for selecting me as a Bellagio Center Resident in 2025. Honoured & humbled (!) to follow Ruth Bader Ginsburg, Maya Angelou, Mary Robinson et al! Re-read those names! #RFBellagioResident
Karen Woolley standing in her lab coat in the waters of Lake Weyba AustraliaPicture of Lake Como and the Bellagio Center in Italy
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