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Karen Woolley @profwoolley.bsky.social · 08/10/2025

Same, same, but (quite) different. 1st comparison of #PubMed vs #EuropePMC for #PatientAuthor pubs. Same = can search both Same = rapid increase clear Different = 2x difference in output We need research on research methods to advance patient authorship! @ismpp.bsky.social @bmj.com @jama.com

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Peer Review Congress #PRC11 Coming 2029! @peerreviewcongress.bsky.social · 15/09/2025

The Peer Review Congress celebrates the life of Drummond Rennie. His intellect and vision created the Congress and the field of meta-research, and sustained both for over 40 year. He was a champion of inclusion, a consummate teacher, and a wonderful friend who enriched us all. Godspeed Drummond.

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Reposted by Karen Woolley

Elisabeth Bik @elisabethbik.bsky.social · 03/09/2025

ACPG: Retractions for misconduct or ethical/legal reasons had an underrepresentation of women. Gender equality might enhance research integrity. Limitations: assigning gender based on names. Discussion: are women more clever, and not caught? :-) Paper: journals.plos.org/plosone/arti... #PRC10

Slide showing stats on reasons for misconduct vs gender
This figure is also available in the linked PLOS ONE paper, as Figure 2 "Women’s representation among authors of retracted papers, stratified by reason for retraction."

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Reposted by Karen Woolley

Elisabeth Bik @elisabethbik.bsky.social · 03/09/2025

ASM: Higher democracy scores were associated with lower retraction rates (per 10,000 publications). GDP per capita was positively associated with retraction rates, suggesting better detection mechanisms in wealthier, more effectively governed countries. #PRC10

Two maps of the world, top one colored for mean retraction rates per 10,000 articles, the bottom one showing mean democracy index.

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Karen Woolley @profwoolley.bsky.social · 26/05/2025

May reporting guideline updates for #PPI continue! Well done to #CONSORT & #SPIRIT (2025) #CHEERS (2022). Why not other main study types? Is #PRISMA next re, evidence of PPI value in systematic reviews (Zhou Q J Clin Epid 2024) @equatornetwork.bsky.social @ismpp.bsky.social

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Karen Woolley @profwoolley.bsky.social · 26/05/2025

Great to see SPIRIT 2025 update w #PPI reporting. Hoping to see update of websites on/referring to SPIRIT - 2013 is out of date now. @equatornetwork.bsky.social

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Karen Woolley @profwoolley.bsky.social · 20/05/2025

International #ClinicalTrialsDay 2025 - will 2026 see a better way for #patients to find trials they (& other patients) trust? Our 'call-to-action' publication identifies a gap in registries that should be fixed. #CTD2025 #PPI

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Karen Woolley @profwoolley.bsky.social · 16/05/2025

What if the flip happens? A patriarchal dismissal of #Patient involvement in #publications might be dismissed sooner than (some) people think. Ready to adapt processes, practices & attitudes? #PatientAuthor #PlainLanguageSummary @ismpp.bsky.social

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Karen Woolley @profwoolley.bsky.social · 12/03/2025

NEW! How do journals' fee waivers affect #PatientAuthor publications? "Waivers to those in financial need should be considered regardless of geography (country),discipline, or affiliation of the author." @ismpp.bsky.social publicationethics.org/guidance/gui...

publicationethics.org

Author fees and waivers

How to disclose, apply, and administer author fees and waivers, discounts, or incentives. And how to maintain the independence of editorial decision making.

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Karen Woolley @profwoolley.bsky.social · 14/02/2025

Power in patient partnerships. Do you have it? Do you share it? Don’t underestimate the power of power. Our preprint is live. doi.org/10.31219/osf.i… @JanelleBowden @PGee51 @alexhaagaard @anitarena @anetto @CodiePrimeau @ATricco @KT_trainee @LLi_1 @HettyMulhall

doi.org

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Karen Woolley @profwoolley.bsky.social · 05/02/2025

A patient-authored publication a day keeps tokenism (& paternalism) away. It's so hard to change medical #publications - until we do. Kudos #PatientAuthor pioneers & allies! #PPI @ismpp.bsky.social @envisionpharma.bsky.social @amicascientific.com @bmj.com @amyprice.bsky.social

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Karen Woolley @profwoolley.bsky.social · 04/02/2025

Man-made paywalls block artificial intelligence (& humans too!) #OpenAccess "AI can only access what it can find and read in a few minutes, and paywalled articles remain out of reach - this represents a fundamental shift in how AI can engage with academic literature." tinyurl.com/yckctfdb

oneusefulthing.org

The End of Search, The Beginning of Research

The first narrow agents are here

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Karen Woolley @profwoolley.bsky.social · 27/01/2025

Mush mush #MeSH? Time to introduce a MeSH Term for 'Patient and Public Involvement' #PPI? Diverting to 'Patient Participation' (MeSH term est 1978) takes patients back to passive vs active role in research. Would help w MeSH On Demand re. related pubs too! @ismpp.bsky.social @nihr.bsky.social #PPI

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Karen Woolley @profwoolley.bsky.social · 16/01/2025

THIS...in such an international & influential document! 3.1 TRIAL DESIGN. 3.1.3 Sponsors should consider inputs from a wide variety of interested parties, for example, healthcare professionals and PATIENTS, to support the DEVELOPMENT PLAN and clinical trial PROTOCOLS... ich.org/news/ich-e6r...

ich.org

ICH Official web site : ICH

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Karen Woolley @profwoolley.bsky.social · 06/01/2025

What's a new year without new #ISMJE recommendations? Not too many changes, but always worth another read. icmje.org/news-and-edi...

icmje.org

ICMJE | News & Editorials

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Karen Woolley @profwoolley.bsky.social · 19/12/2024

First post. I think it's worthy. Beyond excited, beyond grateful...THANK YOU @rockefellerfdn.bsky.social for selecting me as a Bellagio Center Resident in 2025. Honoured & humbled (!) to follow Ruth Bader Ginsburg, Maya Angelou, Mary Robinson et al! Re-read those names! #RFBellagioResident

Karen Woolley standing in her lab coat in the waters of Lake Weyba Australia

Picture of Lake Como and the Bellagio Center in Italy

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