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Pedram Dara @pedramdara.bsky.social · 10/10/2026

I’m so happy WHO chose lived experience as the official theme. Good decisions start by listening to the people most affected by them. And those voices should help shape what happens next, because they are the ones who will live with the impact of those decisions.

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Pedram Dara @pedramdara.bsky.social · 09/10/2026

This really stayed with me. Being part of research should not mean being left to navigate the gap back to regular care on your own.

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Pedram Dara @pedramdara.bsky.social · 06/10/2026

Looking forward to exploring these important topics together. Join us.

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Pedram Dara @pedramdara.bsky.social · 06/10/2026

Looking forward to exploring these important topics together. Join us.

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Pedram Dara @pedramdara.bsky.social · 29/09/2026

Really looking forward to this year's summit. We’ve built the 2026 program around the questions that keep coming up after treatment ends and I’m glad to finally share it. I hope you'll join us. Happy to answer any questions here.

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Pedram Dara @pedramdara.bsky.social · 22/09/2026

Before psychedelic research, I built software. Then an MDMA-assisted therapy trial showed me that clinical research has a user-experience problem. For @onemindorg.bsky.social, I wrote about why lived experience should shape research, not just decorate it. onemind.org/lived-experi... #psychedelics

onemind.org

What My Psychedelic Clinical Trial Taught Me About Lived Experience - One Mind

By Pedram Dara, One Mind Community Advisory Network “Can you advise our clinical development team on integrating lived experience expertise?” “Can you present at our conference or training program on...

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Pedram Dara @pedramdara.bsky.social · 18/09/2026

New paper: Lived experience should be treated as evidence, not dismissed as anecdote. My new Perspective article is now published in @FrontPubHealth Lived experience as systems-relevant evidence in psychedelic public health. www.frontiersin.org/journals/pub... #psychedelics #publichealth

Screenshot of a Frontiers in Public Health article page showing the Perspective article “Lived experience as systems-relevant evidence in psychedelic public health,” published September 14, 2026, by Pedram Dara of Psychedelic Lived Experiences in Ottawa, Canada. The image includes the Frontiers in Public Health journal branding, publication details, article title, author photo and name, and journal metrics.

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Pedram Dara @pedramdara.bsky.social · 06/07/2026

Lived Experience (LX) in healthcare is what User Experience (UX) is in software. The idea is simple...the people who actually use a product or service should help shape its design, priorities, and continuous improvement. Lived experience helps reveal what can’t be seen from the outside.

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Pedram Dara @pedramdara.bsky.social · 30/06/2026

Here’s to looking less at trials from the top down and more from the inside.

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Pedram Dara @pedramdara.bsky.social · 23/06/2026

This is one of the biggest gaps I see. What patients and trial participants carry can be very real even when it does not fit neatly into a checkbox.

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Pedram Dara @pedramdara.bsky.social · 09/06/2026

This has been the most purposeful and meaningful work I've done in my life that's much bigger than myself. Feeling thankful for the impact it's made so far and the people who've supported it.

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Pedram Dara @pedramdara.bsky.social · 09/06/2026

This has been the most purposeful and meaningful work I've done in my life that's much bigger than myself. Feeling thankful for the impact it's made so far and the people who've supported it.

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Pedram Dara @pedramdara.bsky.social · 20/05/2026

If participant experience helps make the research possible, it should also help shape how that research is designed, supported, and understood. Here's to helping shape a future where healthcare advances with rigor, integrity and the people most affected at the center.

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Pedram Dara @pedramdara.bsky.social · 30/04/2026

I've always appreciated Ron's unfiltered communication. His experience is vital for researchers designing trials and for regulators approving protocols. The clinical research field needs better experience design so that science doesn't get put above participant wellbeing.

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Pedram Dara @pedramdara.bsky.social · 30/04/2026

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Pedram Dara @pedramdara.bsky.social · 29/04/2026

Thank you @sasanianshah.bsky.social that's such a well written piece and still relevant years later.

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Pedram Dara @pedramdara.bsky.social · 29/04/2026

This is really at the core of it for me. Too many important issues get dismissed as anecdotal when they are actually showing us where the system is falling short and how it could improve.

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Pedram Dara @pedramdara.bsky.social · 21/04/2026

Really important point, Tehseen. What sounds philosophical on the surface often has direct consequences for how people are understood and treated.

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Pedram Dara @pedramdara.bsky.social · 17/04/2026

The outside story and the inside reality are not always the same and this is the main reason why lived experience input matters so much in this field.

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Pedram Dara @pedramdara.bsky.social · 14/04/2026

This is such an important reminder that what participants need most is not always captured by the study design. Thank you, Elizabeth, for sharing so openly.

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Pedram Dara @pedramdara.bsky.social · 13/04/2026

What I appreciate about this paper is that it goes beyond scorekeeping and takes seriously how participants themselves describe the changes they experienced compared with standard care.

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Pedram Dara @pedramdara.bsky.social · 09/04/2026

This is something I’ve heard again and again from patients and trial participants. Knowing a practitioner has relevant lived experience can change how safe the whole process feels. Thanks @drmonnica.bsky.social for sharing this.

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Pedram Dara @pedramdara.bsky.social · 08/04/2026

It's a bit like reading about surgery risks before an operation. You may do your best to understand the words but you still don't really know what recovery will feel like in your body and mind until you are fully living it.

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Pedram Dara @pedramdara.bsky.social · 07/04/2026

What stays with people is how the team made them feel while going through it. Thank you, @beccakacanda.bsky.social for sharing your experience.

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Reposted by Pedram Dara

Psychedelic Lived Experiences @psych-lived-exp.bsky.social · 06/04/2026

Are you a clinician, therapist, researcher, QA, program lead, or study staff? Discover how to leverage lived experience as quality and safety infrastructure in psychedelic care. 🗓 Apr 11, 2026 • 10 AM PT / 1 PM ET / 17:00 UTC (19:00 Central Europe) #psychedelics #PatientSafety #LivedExperience

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Pedram Dara @pedramdara.bsky.social · 06/04/2026

Key workshop takeaways: - A shared vocabulary you can use in teams & institutions - A practical integration map (design → consent → conduct → follow-up → interpretation) - A one-page checklist to reduce tokenism and strengthen impact and accountability - Networking with peers & fellow professionals

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Pedram Dara @pedramdara.bsky.social · 02/04/2026

Degrees can signal knowledge, but they do not automatically signal the judgment, presence, and humility this work requires for patients and trial participants to feel safe, supported, and genuinely cared for.

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Pedram Dara @pedramdara.bsky.social · 01/04/2026

Some of the most important improvements in care begin when lived experience is treated as expertise, not just input.

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Pedram Dara @pedramdara.bsky.social · 31/03/2026

This is exactly why study design should be informed not only by methodology, but by what participation actually feels like. Inspired by your courage, Kathy, for speaking up.

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Pedram Dara @pedramdara.bsky.social · 30/03/2026

The real question is not whether lived experience is invited in, but whether it is trusted enough to shape decisions.

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Pedram Dara @pedramdara.bsky.social · 29/03/2026

Looking forward to running this workshop for professionals working in psychedelic clinical trials and practice with an interest in safety and quality control. I hope to see you there.

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Pedram Dara @pedramdara.bsky.social · 29/03/2026

Looking forward to running this workshop for professionals working in psychedelic clinical trials and practice with an interest in safety and quality control. I hope to see you there.

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Pedram Dara @pedramdara.bsky.social · 27/03/2026

The real test is not whether a study looks rigorous on paper but whether its safeguards hold up in lived reality.

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Pedram Dara @pedramdara.bsky.social · 26/03/2026

I’m especially grateful to Joost and the OPEN Foundation for making real space for patient and trial participant voices at ICPR. It is one of the few conferences I’d strongly recommend for both the quality of the presentations and the strength of the connections you can build there.

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Pedram Dara @pedramdara.bsky.social · 26/03/2026

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Pedram Dara @pedramdara.bsky.social · 25/03/2026

Many safety blind spots only show up once the structure of care starts to fall away.

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Pedram Dara @pedramdara.bsky.social · 24/03/2026

Feeling safe is not a small detail in this work. It shapes the whole experience.

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Pedram Dara @pedramdara.bsky.social · 23/03/2026

Some of the most important safety questions begin after the obvious risk has passed.

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Pedram Dara @pedramdara.bsky.social · 22/03/2026

A new workshop for professionals working in psychedelic clinical trials and practice on leveraging lived experience as quality and safety infrastructure. Hope to see you there.

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Pedram Dara @pedramdara.bsky.social · 20/03/2026

What stood out to me is how much of real experience lives outside the boxes we define. That gap is where a lot of the signal actually is.

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Pedram Dara @pedramdara.bsky.social · 19/03/2026

Peer support is not extra. For many people, it is part of what makes reintegration possible.

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Pedram Dara @pedramdara.bsky.social · 18/03/2026

I’ll be sharing a practical framework and checklist to move lived experience from “nice-to-have” input to a structured tool for safer, more valid decisions. Bring your questions and see you at the workshop!

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Pedram Dara @pedramdara.bsky.social · 17/03/2026

Loss of agency can be one of the hardest parts of research participation.

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Pedram Dara @pedramdara.bsky.social · 13/03/2026

Lived experience should not just inform the conversation. It should help shape the decisions.

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Pedram Dara @pedramdara.bsky.social · 12/03/2026

Some of the most valuable clinical insight comes from people who have actually lived the journey.

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Pedram Dara @pedramdara.bsky.social · 11/03/2026

Some of the most important outcomes are the hardest to quantify, but that does not make them less real.

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Pedram Dara @pedramdara.bsky.social · 10/03/2026

One thing I hear repeatedly from participants is that the courage to feel difficult emotions often comes from the sense of safety created by the therapeutic setting. That environment can make a huge difference in how the experience unfolds.

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Pedram Dara @pedramdara.bsky.social · 09/03/2026

The more conversations I have with trial participants, the more clear it becomes that many early warning signals about risks and challenges already exist in lived experience. We just need systems that are willing to listen.

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Pedram Dara @pedramdara.bsky.social · 06/03/2026

One thing I’ve learned from speaking with dozens of trial participants is that subjective experience often contains insights our current measurement tools miss. The question isn’t brain or experience. It’s whether we’re willing to take both seriously.

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Pedram Dara @pedramdara.bsky.social · 05/03/2026

Good clinical research and practice include people with lived and living experience throughout the design and delivery of treatments.

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