iiinova — where your digital self keeps evolving

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iamals.bsky.social @iamals.bsky.social · 11h

Meet Jenny 🏃👟🏃 Jenny DeVaughn is training for her first marathon, the TCS NYC Marathon on Nov. 1. We're so lucky to have her on Team I AM ALS. "I would be honored to carry their courage across that finish line." Cheer Jenny on at bit.ly/JennyIAA

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iamals.bsky.social @iamals.bsky.social · 05/10/2026

The U.S. is in a caregiver crisis. Caregiving is time-consuming, exhausting, and expensive, and for ALS caregivers, it only gets more expensive as the disease progresses. Tell Congress to pass the Credit for Caring Act: bit.ly/credit4care

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iamals.bsky.social @iamals.bsky.social · 04/10/2026

Community, Meet Kellie! 🏃‍♀️🎽 After her father, Brian, was diagnosed with bulbar-onset ALS in 2022, Kellie felt drawn to the ALS movement. Kellie is close to the halfway mark, and YOU can help get her closer to hitting her goal. Support Kellie → bit.ly/KellieIAA

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iamals.bsky.social @iamals.bsky.social · 30/09/2026

Reauthorizing ACT for ALS this week wouldn't have been possible without our incredible volunteers and Community Teams. Join us tomorrow, Oct. 1st at 2 pm EST for our first-ever I AM ALS Virtual Open House to hear what it takes to keep this movement going! RSVP: bit.ly/IAAOpenHouse

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iamals.bsky.social @iamals.bsky.social · 29/09/2026

ACT for ALS protects $500M in federal ALS research funding over the next 5 years! Our community, legislative champions, allies, and advocates overcame huge hurdles to get this bill passed. We’re incredibly grateful. Thank your legislators: bit.ly/A4A-TY

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iamals.bsky.social @iamals.bsky.social · 29/09/2026

ACT for ALS passed Congress with ONE DAY to spare! 🎉 Your emails, calls, meetings, petition signatures & relentless advocacy made this possible. THANK YOU! Thank our congressional champions: bit.ly/A4A-TY Keep this work going: bit.ly/giveALS

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iamals.bsky.social @iamals.bsky.social · 27/09/2026

ACT for ALS expands access to potential treatments. In just 4 days, our community gathered 20,100+ petition signatures urging Congress to reauthorize it. It expires next Wednesday. Tell your legislators to act now. 🔗 bit.ly/fundALS

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iamals.bsky.social @iamals.bsky.social · 21/09/2026

LAST PUSH: ACT for ALS expires September 30. Our community drafted this bill, championed it, and saw it pass in 2021. If it lapses now, people with ALS could wait months they don't have. Protect our progress toward a cure. Tell your senators: Pass the bill → bit.ly/fundALS

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iamals.bsky.social @iamals.bsky.social · 18/09/2026

We're close to new ALS treatments and can't slow down now. This week: 20,000+ petition signatures, 3,000+ emails, and in-person visits from our co-chairs, board, and staff. Both chambers passed the bill. It expires Sept 30. Tell your senators: PASS THE BILL. bit.ly/fundALS

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iamals.bsky.social @iamals.bsky.social · 18/09/2026

We're on the cusp of new ALS treatments, and every dollar brings us closer. 3 days left in Week of Impact. Every gift counts. Donate: bit.ly/giveWOI Let's fuel the movement.

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iamals.bsky.social @iamals.bsky.social · 15/09/2026

THANK YOU!! In just 4 days, we collected more than 20,000 signatures telling the House & Senate to GET THIS DONE now, and delivered this powerful video along with the petition. Tell your own rep about the petition & our national push to finish the job: bit.ly/fundALS

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iamals.bsky.social @iamals.bsky.social · 15/09/2026

This year, the I AM ALS community reached 11.8B people and logged 13,451 legislative actions. In just five days, our ACT for ALS push alone drove: 📢 20,498 legislative actions ✍️ 20,148 petition signatures 📱 34,500 social engagements Donate today: bit.ly/giveWOI

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More Perfect Union @moreperfectunion.bsky.social · 15/09/2026

A 'tidal wave' of forever chemicals are being pumped out to satisfy the AI industry, according to The Guardian. Nearly all of the 10 biggest manufacturers of Pfas are planning to increase production for use in semi-conductors and data center cooling systems.

theguardian.com

‘Tidal wave’ of Pfas being launched to satisfy AI industry, campaigners warn

Big manufacturers planning to produce more of the forever chemicals to meet demand from datacentres

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Dr. Vin Gupta @vinguptamd.bsky.social · 14/09/2026

“MAHA” says environmental exposures are driving chronic disease. So why is the EPA of the same administration weakening protections against some of the best-documented environmental health risks? Yet again, California stepping into the void of federal leadership.

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Cure ALS Now! @peaceflowerusa.bsky.social · 14/09/2026

All the pollution and chemicals will make more and more people sick. Stay safe and be prepared 😷😓

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iamals.bsky.social @iamals.bsky.social · 13/09/2026

The I AM ALS community secured historic research funding, held record-breaking meetings with lawmakers, and drove massive legislative action. We're closer than ever to a cure. Next week is Week of Impact. Be part of it: bit.ly/weekofimpact #WeekOfImpact #EndALS

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iamals.bsky.social @iamals.bsky.social · 07/09/2026

ACT for ALS expires THIS MONTH. Time is running out. Congress is closer than ever to reauthorizing it, but we need a vote before it expires. Tell your legislators: Schedule the vote NOW. bit.ly/fundALS

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iamals.bsky.social @iamals.bsky.social · 04/09/2026

🚨 It's go time for ACT for ALS. We have a narrow window to pass ACT for ALS ahead of its 9/30 deadline. Here's the truth: this is a long shot. If ACT for ALS doesn't happen this month, we still have a path. But we have to try for now! TAKE ACTION: bit.ly/fundALS

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Cure ALS Now! @peaceflowerusa.bsky.social · 04/09/2026

Please take a minute to use the pre-filled form to send your representative a message! #ALS #CureALS #IamALS #HealthyBrainsAct #caregiver #research #science

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Dr. Vin Gupta @vinguptamd.bsky.social · 03/09/2026

The CDC has gone quiet. National health leadership is nonexistent. So here’s what they should do: give you clear, practical, science-based guidance to protect your family. As respiratory virus season begins and our kids head back to school, here’s what you need to know.

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iamals.bsky.social @iamals.bsky.social · 31/08/2026

🚨 COMMUNITY—Congress is back, and we don’t have time to waste. The House AND Senate need to vote again to get ACT for ALS across the finish line before Sept. 30. Tell Congress: Schedule the vote. Finish the job. Pass ACT for ALS: bit.ly/fundALS

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iamals.bsky.social @iamals.bsky.social · 27/08/2026

An ALS diagnosis brings a hundred questions at once. That’s what our 1:1 ALS Support Team is here for. Our team includes certified peer support specialists personally impacted by ALS and licensed social workers. We’re here: bit.ly/GetALSSupport

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More Perfect Union @moreperfectunion.bsky.social · 26/08/2026

The water that data centers use for electricity generation in just the top 7 states with the most data centers is the equivalent of 12-times the annual water use of Los Angeles, Phoenix, and Washington, DC, combined. /1 news.bloomberglaw.com/environment-...

news.bloomberglaw.com

Data Centers Use More Water Than California Cities, Study Says

Electric power generation for data centers is a threat to water supplies even in states outside the arid Southwest, according to a report published Tuesday by the think tank Ceres.

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iamals.bsky.social @iamals.bsky.social · 25/08/2026

Flag submissions are open for 2027! 💙 Honor someone living with ALS, a familial ALS gene carrier, or someone who has passed from ALS with a flag. Request yours today: bit.ly/flags-27

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iamals.bsky.social @iamals.bsky.social · 21/08/2026

Navigating ALS can feel a little less isolating when you can connect with people who understand. 💙 I AM ALS support groups are for people living with ALS, Veterans living with ALS, caregivers, family members, and those who have lost someone to ALS. Find your group: bit.ly/ALSgroups

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iamals.bsky.social @iamals.bsky.social · 14/08/2026

Tim Lowrey wanted more people to learn about ALS. He turned that goal into a panel series for schools and workplaces. We miss Tim dearly, and we’re honored to continue the virtual conversations he started. 💙 Request a Tim Lowrey ALS Panel: bit.ly/ALSPanel

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Tedros Adhanom Ghebreyesus @drtedros.who.int · 12/08/2026

Every parent wants to keep their children safe, and vaccines are among the most powerful tools for doing that, making deadly diseases preventable.

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More Perfect Union @moreperfectunion.bsky.social · 11/08/2026

A new study shows that Medicare for All would save over 114,000 lives and over $1 trillion every year. The new research out of Yale shows that reductions in administrative overhead, lower pharmaceutical prices, less fraudulent billing, and fewer emergency care trips would lead to huge savings. /1

commondreams.org

Yale Study: Medicare for All Would Save Over 114,000 Lives and $1 Trillion a Year | Common Dreams

"Do not tell me we cannot afford Medicare for All," the senator said. "What we cannot afford is a broken healthcare system based on greed."

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Hillary Rodham Clinton @hillaryclinton.bsky.social · 11/08/2026

When it comes to your children’s health, listen to doctors. Not a president who once told Americans to inject bleach. The American Academy of Pediatrics’ immunization recommendations have not changed.

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Dr. Vin Gupta @vinguptamd.bsky.social · 11/08/2026

This administration continues to insult the intelligence of the people it is supposed to serve Outright lies and rehashing of long disproven “hypotheses.” There is no middle ground here. No compromise approach The human toll from this utter nonsense is already clear to see. Criminal negligence

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WHO @who.int · 11/08/2026

Timing matters for vaccines. Here’s why bit.ly/3OTdikk #VaccinesWork

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iamals.bsky.social @iamals.bsky.social · 07/08/2026

ACT for ALS is one step closer to reauthorization! 🎉 Each vote YOU helped secure supports the largest bucket of federal ALS funding in history: ACT for ALS. Thank your legislators: bit.ly/A4A-TY

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Les Turner ALS Foundation @lesturnerals.bsky.social · 30/07/2026

Every step you take and every dollar you raise helps make a difference. Your fundraising supports ALS research, multidisciplinary care, support services, equipment, grants and resources for families across our community. Register and start fundraising today: p2p.onecause.com/alswalkforlife

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Abdul El-Sayed @abdulelsayed.bsky.social · 07/08/2026

Vice President @kamalaharris.com understands the key role control of the US Senate plays in lowering prices for Michiganders and holding Trump accountable.

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Cure ALS Now! @peaceflowerusa.bsky.social · 31/07/2026

I’m from Michigan and my life is impacted by #ALS. I urge @slotkin.senate.gov to vote YES on #ACTforALS Reauthorization (S. 4472). Learn why: als.org/ACTforALS #ALSAdvocacy #EndALS

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Cure ALS Now! @peaceflowerusa.bsky.social · 31/07/2026

I'm from Michigan and my life is impacted by #ALS. I urge @peters.senate.gov to vote YES on #ACTforALS Reauthorization (S. 4472). Learn why: als.org/ACTforALS #ALSAdvocacy #EndALS

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ACLU of Michigan @acluofmichigan.bsky.social · 29/07/2026

Local election officials across Michigan – like Portage City Clerk Erica Eklov – work to make sure polling places are accessible, with tools and accommodations that help voters with a wide range of disabilities and accessibility needs cast their ballot.

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Hillary Rodham Clinton @hillaryclinton.bsky.social · 24/07/2026

Millions of women and girls pursued dreams they may have otherwise deferred. The Trump administration wants to turn Nback the clock. It's up to all of us to tell them in November that we won't go back.

NYT: Government overhauls teen pregnancy program to focus on marriage and starting families

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Dr. Vin Gupta @vinguptamd.bsky.social · 24/07/2026

Confusion can be as dangerous as contamination. With multiple potential Cyclospora outbreaks and awful messaging from the top, people deserve facts—not guesswork. We broke down what we know, what’s still uncertain, what foods warrant caution, and how to protect yourself and your family.

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Mike Quigley @quigley.house.gov · 22/07/2026

My bill reauthorizing the ACT for ALS just passed the House!🎉 This bill will renew the programs under the 2021 ACT for ALS Law for another five years, funding critical scientific research and helping people living with ALS continue to access promising treatments. Next stop, the Senate!

quigley.house.gov

Quigley, Calvert Legislation To Reauthorize ALS Research Funding Program Passes the House

On Wednesday, the House of Representatives voted on and passed the Access to Critical Therapies for ALS Reauthorization Act (ACT for ALS Reauthorization Act) of 2026 with bipartisan support. Led by Re...

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Cure ALS Now! @peaceflowerusa.bsky.social · 23/07/2026

The ACT for ALS bill passed in the House of Representatives and now heads to the Senate!

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Frank Figliuzzi @frankfigliuzzi.bsky.social · 22/07/2026

Dr. Vin Gupta on the record setting 11,500 cases of cyclosporiasis in 41 states: “It’s somewhere between a full blown crisis and a national emergency. “It’s a crisis.” Subscribe to Substack: substack.com/note/m-73b96...

substack.com

Dr. Vin Gupta on the State of American Health | The Frank Figliuzzi Show

A recording from Frank Figliuzzi and Lincoln Square's live video

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NBC News @nbcnews.com · 21/07/2026

NBC News is looking to speak with patients, medical providers and healthcare advocates about the changes they are experiencing due to a new Medicaid work mandate.

nbcnews.to

We want to hear how Medicaid work requirements are affecting you

If you have lost your health coverage or are at risk of losing it, tell us your story.

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