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Pam Mace

@pdmace2.bsky.social
33 followers 46 following 24 posts

RN. Raising awareness of Fibromuscular Dysplasia. Survivor of bilateral carotid and vertebral dissections. ED of FMDSA

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Reposted by Pam Mace
International Society of Hypertension @ishbp.bsky.social · 10/06/2026
A survey from the European Society of Hypertension is investigating global practice patterns in the screening and management of fibromuscular dysplasia (FMD). We encourage ISH members with relevant experience to participate: survey.sogolytics.com/r/4oPjg4 Responses are requested by 31 July 2026
survey.sogolytics.com
Survey Participation
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Vascular Medicine @vmj-svm.bsky.social · 03/09/2026
From the latest issue: Pitocco and colleagues present ultra-high-resolution photon-counting CT images of a case of focal renal fibromuscular dysplasia. doi.org/10.1177/1358...
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medRxivpreprint @medrxivpreprint.bsky.social · 20/09/2026
Use of Renal Duplex To Detect Renal Artery Stenosis in Fibromuscular Dysplasia www.medrxiv.org/content/10.64898/20…
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Pam Mace @pdmace2.bsky.social · 27/08/2026
Registration for the FMDSA Patient Symposium is now open! November 5-6th, Ann Arbor, Michigan www.eventbrite.com/e/fmdsa-annu... #FMD #SCAD
eventbrite.com
FMDSA Annual Symposium
Important: Thursday’s event: Danto Auditorium at the Frankel Cardiovascular Center. Friday’s event: Graduate Hotel. Both in Ann Arbor, MI
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Reposted by Pam Mace
Pam Mace @pdmace2.bsky.social · 05/08/2026
FMDSA Patient Symposium. November 5th and 6th in Ann Arbor, Michigan. #FMD
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Pam Mace @pdmace2.bsky.social · 05/08/2026
We are grateful to the authors for continuing to advance education and awareness of FMD. @fmd-eu.bsky.social
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Pam Mace @pdmace2.bsky.social · 05/08/2026
FMDSA Patient Symposium. November 5th and 6th in Ann Arbor, Michigan. #FMD
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FMDSA @fmdsa.bsky.social · 05/08/2026
Ten Tips for the Diagnosis and Management of Fibromuscular Dysplasia, offers practical guidance to help improve recognition, diagnosis, and care for individuals living with FMD. We are grateful to the authors for continuing to advance education and awareness of FMD.
academic.oup.com
Ten tips for the diagnosis and management of fibromuscular dysplasia
ABSTRACT. Fibromuscular dysplasia (FMD) is an under-recognized, non-atherosclerotic, and non-inflammatory arteriopathy that predominantly affects women and
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Reposted by Pam Mace
Mark Lindsay @markelindsay.bsky.social · 23/07/2025
Thrilled to be the MGH site PI for the ALIGN-FMD Leducq collaboration. This five year effort lead by @santhikganesh.bsky.social and @jasonkovacic.bsky.social‬, with Nabila Bouatia-Naji , Manuel Mayr, and Stephanie Debatte will work to uncover the pathobiology of fibromuscular dysplasia (FMD)
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Pam Mace @pdmace2.bsky.social · 27/07/2026
What an amazing few days. The International FMD Symposium was inspiring, educational, and left everyone motivated and excited for the future!
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Pam Mace @pdmace2.bsky.social · 03/07/2026
Exciting news. The ALIGN-FMD international research network shares its vision for advancing our understanding of FMD through global collaboration and innovative research. FMDSA is proud to represent the patient voice Read the full article here: academic.oup.com/eurheartj/ad...
academic.oup.com
ALIGN-FMD Leducq funded network: Demystifying Fibromuscular Dysplasia
Fibromuscular dysplasia (FMD) is an under-studied medical mystery. Once considered rare, current estimates are that up to 3%–4% of adults have FMD.1–4 Impo
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Ian Weissman, DO @drianweissman.bsky.social · 01/06/2026
What’s the safest swimsuit color to help prevent drownings? Skip blue and black. Let neon traffic cones inspire your next bathing suit purchase. www.popsci.com/science/safe...
popsci.com
What’s the safest swimsuit color? Skip blue and black.
Let traffic cones inspire your next bathing suit purchase.
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Reposted by Pam Mace
Healthcare-Global @healthcare-global.bsky.social · 01/06/2026
www.thehealthy.com/news/cvs-tum...
thehealthy.com
A Popular Antacid Has Been Recalled by a Major Retailer
Customers who purchased the heartburn-relief tablets should stop using them “immediately,” says the store chain.
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Pam Mace @pdmace2.bsky.social · 09/05/2026
Meet Cheryl, she was diagnosed 22 years ago with #FMD in her bilateral carotid, vertebral, renal, iliac and celiac arteries. #FMDAwarenessMonth
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Pam Mace @pdmace2.bsky.social · 04/05/2026
📢 Reminder: University Hospitals Fibromuscular Dysplasia (FMD) and Arterial Dissection Virtual Support Group Tuesday, May 5, 2026, from 6:00 PM to 7:30 PM EST Topic:Managing the Mental Health Impact of FMD and Dissection Free and open to all. uhhospitals.zoom.us/webinar/regi... #FMD
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Pam Mace @pdmace2.bsky.social · 04/05/2026
Save the date for the FMDSA Patient Symposium. Held immediately following the ALIGN-FMD International Research Meeting, this symposium offers a unique opportunity for patients and families to hear directly from leading #FMD experts from around the world.
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Pam Mace @pdmace2.bsky.social · 04/05/2026
Sharing stories to raise awareness "I am a 39-year-old male recently diagnosed with #FMD Following a vascular ultrasound that revealed over 60% narrowing in a renal artery, a renal angiography in April confirmed the diagnosis. I subsequently underwent a balloon angioplasty” #MenWithFMD
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Pam Mace @pdmace2.bsky.social · 04/05/2026
#FibromuscularDysplasia #FMD
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Pam Mace @pdmace2.bsky.social · 28/04/2026
Save the date for the FMDSA Patient Symposium. Held immediately following the ALIGN-FMD International Research Meeting, this symposium offers a unique opportunity for patients and families to hear directly from leading FMD experts from around the world. #FMD #SCAD
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Reposted by Pam Mace
Mark Lindsay @markelindsay.bsky.social · 11/10/2025
Are you interested in the genetics of Spontaneous Coronary Artery Dissection (SCAD)? Please watch our SCAD Alliance webinar where Esther Kim and I discuss clinical genetic testing, research genetics, and the gVASC study youtu.be/UyoiYE0nysQ...
youtu.be
Ask the Experts: Exploring the Genetics of SCAD and the gVasc Study
YouTube video by SCAD Alliance
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Pam Mace @pdmace2.bsky.social · 08/04/2026
Excited to see this collaboration and the impact it will have for #FMD patients. Looking forward to what’s ahead! Congratulations!
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kireports.bsky.social @kireports.bsky.social · 16/12/2025
Insights From the UK on #Fibromuscular #Dysplasia in #Pregnancy doi.org/10.1016/j.ekir.2025.09.013 #KIRNephrologyRounds
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Pam Mace @pdmace2.bsky.social · 25/01/2026
The North American Registry for FMD just added its 22nd site, Jobst Vascular Institute in Toledo, Ohio.  We welcome Dr. John Fish and team! This is the 3rd FMD site in Ohio.
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Pam Mace @pdmace2.bsky.social · 25/01/2026
The North American Registry for FMD just added its 22nd site, Jobst Vascular Institute in Toledo, Ohio.  We welcome Dr. John Fish and team! This is the 3rd FMD site in Ohio.
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Santhi K. Ganesh, MD @santhikganesh.bsky.social · 22/07/2025
Honored and grateful to receive transformative support from the 𝗟𝗲𝗱𝘂𝗰𝗾 𝗙𝗼𝘂𝗻𝗱𝗮𝘁𝗶𝗼𝗻 of our research on 𝗙𝗶𝗯𝗿𝗼𝗺𝘂𝘀𝗰𝘂𝗹𝗮𝗿 𝗗𝘆𝘀𝗽𝗹𝗮𝘀𝗶𝗮. Excited to begin work with our 𝗔𝗟𝗜𝗚𝗡-𝗙𝗠𝗗 Network and proud to partner with Jason Kovacic, Stéphanie Debette, Nabila Bouatia-Naji, Manuel Mayr, and Mark Lindsay. #FMD
linkedin.com
We are thrilled to share that Michigan Medicine has been awarded a new, international research grant for more than $8.5 million by the Leducq Foundation to advance research into fibromuscular… | Michi...
We are thrilled to share that Michigan Medicine has been awarded a new, international research grant for more than $8.5 million by the Leducq Foundation to advance research into fibromuscular dysplasi...
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Pam Mace @pdmace2.bsky.social · 07/04/2025
Attending the #AAEM25 in Miami? stop by booth 305 and meet Kelly to learn the latest updates on #FMD #FibromuscularDysplasia #dissection #stroke #aneurysm #SCAD
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Heather Gornik @heatherlgornik.bsky.social · 29/03/2025
Congrats to Case Western MS2 Karen Ji on her presentation at #ACC25 ~10% of patients with multifocal FMD seen at UH Harrington HVI with comprehensive vasc imaging had aortic involvement, most commonly thoracic aortic dilation (ectasia and aneurysm); supports head to pelvis imaging #cardiosky
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Heather Gornik @heatherlgornik.bsky.social · 30/03/2025
#ACC25 @2scottish.bsky.social higher TMAO levels associated with more rapid infrarenal AAA growth…emerging marker for risk stratification #CarsioSky
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National Organization for Rare Disorders (NORD) @nordrare.bsky.social · 28/02/2025
Rare diseases can impact anyone, anywhere. Our disorders may differ from one another, but we share the experience of being on a rare journey. We understand one another. This #RareDiseaseDay, get to know us: rarediseases.org/rare-disease...
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Pam Mace @pdmace2.bsky.social · 27/02/2025
I signed the petition. Our lives matter! #FMD #rarediseases
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National Organization for Rare Disorders (NORD) @nordrare.bsky.social · 25/02/2025
Every parent knows this feeling: Please let my child be healthy. But 15 million kids in America face the challenges of life with a #RareDisease, a diagnosis that turns parents into fierce advocates. Read one family’s story: www.bostonglobe.com/2025/02/20/m... @bostonchildrens.bsky.social
bostonglobe.com
Advocating for a child with a rare disorder brings heartbreak. And then there’s the joy. - The Boston Globe
Advocating for a child with a rare diagnosis can be frustrating and heartbreaking. And then there’s the joy.
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Pam Mace @pdmace2.bsky.social · 27/02/2025
Done. Will you get involved?
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National Organization for Rare Disorders (NORD) @nordrare.bsky.social · 26/02/2025
Rare patients and families cannot afford delays or obstacles to receiving quality #healthcare. Take action now and urge Congress to prioritize several pieces of lifesaving #RareDisease legislation this #RareDiseaseDay, February 28. All it takes to send your message is one minute: bit.ly/41ytHhR
Graphic with megaphone and text reading, Rare Disease Action Alert: Tell Congress to Prioritize Critical Rare Disease Bills This Rare Disease Day
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@vasculitides @vasculitides.bsky.social · 24/01/2025
Radiological insights into fibromuscular dysplasia unveiled by intracranial aneurysms and iliac vein hypoplasia in suspected DVT pubmed.ncbi.nlm.nih.gov/39845280
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Pam Mace @pdmace2.bsky.social · 13/02/2025
Karena is an amazing advocate. I wish she never had to experience the pain and loss of her sister. We need more research, awareness, and education of #FMD. With so many newly diagnosed patients we have to do better.
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Raisa Amiruddin @raisaamiruddin.bsky.social · 11/02/2025
#RadSky #Radiology #PedsRad #Education Pediatric Imaging 7 y/o with hypertension. Angiography - Segmental renovascular stenosis (blue) with intervening aneurysms (red). Gold Standard - Catheter based angiography Fibromuscular dysplasia pmc.ncbi.nlm.nih.gov/articles/PMC...
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@vasculitides @vasculitides.bsky.social · 22/01/2025
Resistant Renovascular Hypertension in Youth: Fibromuscular Dysplasia or Takayasu Arteritis? pubmed.ncbi.nlm.nih.gov/39834060
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Pam Mace @pdmace2.bsky.social · 13/02/2025
This is a very well done video on Fibromuscular Dysplasia by @jasonkovacic.bsky.social
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victorchanginst.bsky.social @victorchanginst.bsky.social · 14/09/2024
Recently Published: Integrative gene regulatory network analysis discloses key driver genes of fibromuscular dysplasia dlvr.it/TDDm4k
dlvr.it
NCBI - WWW Error Blocked Diagnostic
Your access to the NCBI website at www.ncbi.nlm.nih.gov has been temporarily blocked due to a possible misuse/abuse situation involving your site. This is not an indication of a security issue such as a virus or attack. It could be something as simple as a run away script or learning how to better use E-utilities, http://www.ncbi.nlm.nih.gov/books/NBK25497/, for more efficient work such that your work does not impact the ability of other researchers to also use our site. To restore access and understand how to better interact with our site to avoid this in the future, please have your system administrator contact info@ncbi.nlm.nih.gov.
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NF Bot @nfbot.bsky.social · 23/01/2025
Radiological insights into fibromuscular dysplasia unveiled by intracranial aneurysms and iliac vein hypoplasia in suspected DVT
pubmed.ncbi.nlm.nih.gov
Radiological insights into fibromuscular dysplasia unveiled by intracranial aneurysms and iliac vein hypoplasia in suspected DVT
Radiological insights into fibromuscular dysplasia unveiled by intracranial aneurysms and iliac vein hypoplasia in suspected DVT
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Reposted by Pam Mace
Ian Weissman, DO @drianweissman.bsky.social · 13/02/2025
At least 24 million people in the U.S. have caught the #flu so far this season, and that number only continues to climb. time.com/7221325/why-...
time.com
This Is One of the Worst Flu Seasons in Decades
You're not imagining it: a lot of people are sick right now.
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Eric Topol @erictopol.bsky.social · 24/01/2025
How a heart medication—digoxin—might help prevent cancer spread by dissolving clusters of circulating tumor cells www.nature.com/articles/s41...
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AHA Science @ahascience.bsky.social · 28/01/2025
A total of $12 million in grant funding is available to fund 3 investigators/investigative teams proposing novel uses of Artificial Intelligence to revolutionize cardiovascular and cerebrovascular/brain health and health care delivery. Learn more: professional.heart.org/en/research-...
professional.heart.org
Novel Artificial Intelligence Approaches to Advance Cardiovascular and Cerebrovascular/Brain Health
Research funding opportunity focused on novel AI approaches to advance cardiovascular and cerebrovascular/brain health
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Eric Topol @erictopol.bsky.social · 29/01/2025
Painful, chronic peripheral neuropathy from cancer chemotherapy is common, especially from platinum-based drugs and taxanes, as reported today in a meta-analysis of 77 studies from 28 countries
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Mark Lindsay @markelindsay.bsky.social · 24/01/2025
JCI Insight - Map2k6 is a potent genetic modifier of arterial rupture in vascular Ehlers-Danlos syndrome mice insight.jci.org/articles/vie...
insight.jci.org
JCI Insight - Map2k6 is a potent genetic modifier of arterial rupture in vascular Ehlers-Danlos syndrome mice
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Eric Topol @erictopol.bsky.social · 22/01/2025
A randomized trial showed Factor XIa inhibitor (abelacimab) compared with the currently used Factor Xa blocking agents (rivoroxaban) for atrial fibrillation led to significantly less bleeding events, leading to early trial termination nejm.org/doi/full/10....
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Santhi K. Ganesh, MD @santhikganesh.bsky.social · 10/12/2024
Agree 💯 that more work is needed to address gaps in women's health research in the recent National Academies report, including CVDs. www.science.org/content/arti... nap.nationalacademies.org/download/28586
nap.nationalacademies.org
A New Vision for Women's Health Research: Transformative Change at the National Institutes of Health
Read online, download a free PDF, or order a copy in print.
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Santhi K. Ganesh, MD @santhikganesh.bsky.social · 27/01/2025
www.ahajournals.org/doi/10.1161/... #FMD
ahajournals.org
Arterial Hypertension in Women: State of the Art and Knowledge Gaps | Hypertension
Hypertension is the leading risk factor for cardiovascular disease and premature death among women globally. However, there is a fundamental lack of knowledge regarding the sex-specific pathophysiolog...
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Santhi K. Ganesh, MD @santhikganesh.bsky.social · 28/01/2025
www.sciencedirect.com/science/arti... #SCAD
sciencedirect.com
Pregnancy-Associated Myocardial Infarction in Alberta: A Population-Based Study
Cardiac disease is the leading cause of maternal mortality in developed countries, and myocardial infarction (MI) is an important cause of pregnancy-a…
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American College of Cardiology @accintouch.bsky.social · 07/01/2025
#SGLT2 inhibitors are key in preventing adverse CV events & improving outcomes in patients w/ heart failure, diabetes & chronic kidney disease. Explore the updated #CardioSmart SGLT2 inhibitor package w/ an infographic, discussion guide, & more. bit.ly/3PssDFq #CardioSky #MedSky
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