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@notunpackedyet.bsky.social
1.4K followers 819 following 2.3K posts

Here to talk about #MEcfs, #MEspine, #hypermobility, #POTS, #hEDS, #LongCovid, #ChronicIllness and #disability ...but I also have opinions on other things. You have been warned :P

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Kodiak149 @kodiak149.bsky.social · 07/10/2026
Just a reminder
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Firstname Lastname #FuckTrump @notunpackedyet.bsky.social · 18h
FFS!
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Robert Reich @rbreich.bsky.social · 19h
Billionaire families have spent $1.7 BILLION on the 2026 midterms so far — a 5,200% increase since the 2010 midterms. Citizens United is among the worst decisions in history. It corrupts our system every day. Big Money is the root of our dysfunction.
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WATERSHED Investigations @watershed-i.bsky.social · 09/10/2026
608bn litres of industrial wastewater entered sewage plants last year. Sources include power stations, abattoirs, landfill, some with consents for chemicals such as mercury + cyanide - entering plants not designed to treat such waste. Our new report, out now: www.theguardian.com/environment/...
theguardian.com
Revealed: the ‘black box’ wastewater trade that rakes in millions for UK utility companies
Exclusive: Firms made more than £340m last year from processing industrial and commercial wastewater at sewage works that are unable to remove many chemical pollutants
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Mark Hamill @markhamillofficial.bsky.social · 10/10/2026
ONE WEEK FROM TODAY IS NO KINGS #4 (Details at: nokings.org) We must turn up in MASSIVE numbers to show the world we don't support this Administration or a criminal president who has enriched himself to an obscene level at the expense of everyday hardworking Americans! #GettingReadyToDump-tRUMP 🟠💩 👎
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Sunder Katwala (sundersays) @sundersays.bsky.social · 10/10/2026
The Bjg Time Chatlie account seeking to identify & incite vs RNLI staff as traitors was run by a recruitment consultant in Worcestershire who is a Restore donor & Cromwell Club member. He hss now deactivated the anon troll account after being publicly identifird www.theguardian.com/uk-news/2026...
theguardian.com
Recruitment boss accused of being behind ‘doxxing’ campaign against RNLI and anti-racism activists
Tom Watson, of Worcester, alleged to be behind Big Time Charlie X account that created so-called Traitorbase
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Daniel Pomarède @pomarede.bsky.social · 10/10/2026
Mastcam imagery captured two days ago in Valle Grande by Curiosity #Mars Oct. 8, 2026 - Sol 5038 🧪🔭 Credits: NASA/JPL-Caltech/MSSS/fredk
An ochre toned image capturing a Martian landscapeAn ochre toned image capturing a Martian landscapeAn ochre toned image capturing a Martian landscapeAn ochre toned image capturing a Martian landscape
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carolmac80💙🌈☮️🏳️‍⚧️🇺🇸🇺🇦🧿🌊 @carolmac80.bsky.social · 09/10/2026
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Richard Corbett CBE @richardcorbett.bsky.social · 07/10/2026
British public opinion moves relentlessly in favour of rejoining the EU. Brexit has failed Britain.
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Krassensteins @krassenstein.bsky.social · 09/10/2026
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Ellen Jæger 🌻 @gerellen.bsky.social · 10/10/2026
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Adam Cohen (My Personal Views Only) @axidentaliberal.bsky.social · 10/10/2026
It was inevitable that Trump would betray Ukraine-and the US-while funding Putin’s war by purchasing red-dye diesel fuel We knew it when Marco Rubio’s Senate Committee showed innumerable ties between his campaign and Russia The dumbest part-this “big deal” will only cover about 3 days of fuel
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Qasim Rashid, Esq. @qasimrashid.com · 09/10/2026
Men - stop whining about having to face consequences for the thing you exclusively broke.
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Mark Hamill @markhamillofficial.bsky.social · 09/10/2026
All these years later.... I'm STILL a member of The Resistance.
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UK in a Changing Europe @ukandeu.bsky.social · 09/10/2026
A rather sad announcement from @anandmenon.bsky.social on the future of UK in a Changing Europe. ukandeu.ac.uk/announcement...
UK in a Changing Europe (UKICE) was founded 12 years ago. We hired our first member of staff on the day of the 2015 election, the outcome of which guaranteed that there would be a referendum on EU membership. The subsequent period has been tumultuous, yet, throughout it all, we have done our utmost to be a source of impartial, research-based analysis.
We were initially supported by the Economic and Social Science Research Council (ESRC), who generously funded the organisation for over a decade. Their foresight in recognising the need to bring social science to the attention of external audiences in this area was impressive. 
Our ESRC funding ended in April 2025. Since that time, we have kept going courtesy of the generosity of King’s College London and donations from numerous other sources including the Children’s Investment Fund Foundation, Amazon Web Services and the Spanish Government. I’d like to express my heartfelt gratitude to all those who have contributed to the organisation’s longevity.
Sadly, it is now time to bring down the curtain on this act. UKICE will cease to operate at the end of this year. This is – for us at least – a sad occasion. However, we will soon be able to inform you of the exciting ways in which our work – blogs, reports, lunchtime seminars and more – will continue. The website, containing its rich treasure trove of blogs, reports, videos and the Brexit Witness Archive will, of course, remain accessible thanks to the generosity of the Policy Institute at King’s College London. 
I’m incredibly proud of what we’ve accomplished over the last decade and of the way we have assessed the Brexit process, the development of the United Kingdom since 2016 and the evolution of UK-EU relations. UKICE has attempted to bridge the gap between social scientists and what some people call the ‘real world’. We have shown a new way of doing social science – engaging, accessible and impartial. While it would be too much to claim to have shaped the debate, I g…
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Rachel Salvidge @rachelsalvidge.bsky.social · 09/10/2026
Thought the sewage scandal was bad? Think again. Sewage works are also a major industrial waste disposal route. Power stations, airports, hospitals, landfills: ~608bn litres last year. No independent regulator. www.theguardian.com/environment/...
theguardian.com
Revealed: the ‘black box’ wastewater trade that rakes in millions for UK utility companies
Exclusive: Firms made more than £340m last year from processing industrial and commercial wastewater at sewage works that are unable to remove many chemical pollutants
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Tom Kindlon @tomkindlon.bsky.social · 08/10/2026
New from the US searchMECFS: An Online, Interactive Platform to Facilitate Secondary Use of Biospecimens and Associated Research Data From Myalgic Encephalomyelitis Studies doi.org/10.3768/rtip... #MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
Abstract
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex,
debilitating disease affecting multiple body systems, with no established biomarkers
for diagnosis or treatment. This publication introduces searchMECFS, a free, interactive
online platform developed by the Data Management and Coordinating Center of the
ME/CFS Research Network, with funding from the National Institutes of Health. The
platform’s purpose is to facilitate the secondary use of biospecimens and associated
research data from ME/CFS clinical studies by improving accessibility, visibility, and
sharing of these resources. Currently, searchMECFS facilitates access to biospecimens
and associated data from two studies: The Chronic Fatigue Initiative study, funded
by the Hutchins Family Foundation, and the Multi-Site Clinical Assessment of ME/
CFS study, funded by the Centers for Disease Control and Prevention. Users can query
participant demographics and clinical information and request available biospecimens
through an application process. Eight specimen types are currently available,
though availability varies by study. The results highlight a case where a researcher
used the searchMECFS platform to identify 40 serum samples, which contributed to
published research on circadian rhythm disruption in ME/CFS. searchMECFS aims to
accelerate scientific discovery within the ME/CFS research community by improving
biospecimen utilization, fostering data sharing, and supporting collaboration.
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Bob @psychobob4q2.bsky.social · 08/10/2026
👇
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NPR @npr.org · 08/10/2026
María del Carmen Abascal, the 87-year-old woman whose eviction from her Madrid home sparked nationwide protests across Spain and unleashed a political crisis, died on Wednesday while hospitalized. n.pr/47IKX60
n.pr
Maricarmen, the 87-year-old woman whose eviction shook Spain, has died
María del Carmen Abascal, the 87-year-old woman whose eviction from her Madrid home sparked nationwide protests across Spain and unleashed a political crisis, died on Wednesday while hospitalized.
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Xela Hart @xelahart.bsky.social · 07/10/2026
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Josiah Mortimer @josiahmortimer.bsky.social · 08/10/2026
The Greens would "limit ownership of the press to 20% maximum for any one company and require divestment for companies with larger market shares” bylinetimes.com/2026/10/08/g...
bylinetimes.com
Green Party Would Force Daily Mail Owner to Sell Up Papers
Zack Polanski's party also backs plans to force media companies to operate under a licence granted by a regulator
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38 Degrees @38degrees.bsky.social · 01/10/2026
Today, on the International Day of Action against Palantir, we handed in 295,348 petition signatures to Downing Street demanding the Government end US spy-tech company Palantir’s contract and stop our private health data being accessed by them.
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Firstname Lastname #FuckTrump @notunpackedyet.bsky.social · 03/10/2026
#MEcfs #LongCovid it's a faff to sign up, but it's worth 10mins for the advocacy. Two other papers have >300 votes, this is just over 100. Getting medicine to listen re this model is near impossible, so any recognition is gold dust. #MEspine #IACC
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Emma Monk @monkemma.bsky.social · 07/10/2026
This person tweeted in response to the LBC clip that it "took him less than a minute" - to prove Goodwin correct. And I'm sure it did take Gemini less than a minute - but it got all the same things wrong as TPA and GF. Because, of course, it used GF as its source 🙄 28/
Gemini AI screenshot:

The £74.3 million figure represents UK taxpayer funds spent on promoting branded contraceptives through local shops and pharmacies in Pakistan. e
Key Details of the Spending
• The Project: The money is part of the UK
Foreign Office's wider Accelerating Family Planning in Pakistan programme.
• The Breakdown: Out of an £88 million
total spend on contraception in the country, about £74.33 million specifically pays to market and sell branded contraceptives in private shops. Another
£13.44 million is used to study cultural barriers to modern birth control.
• The Timeline: Research by the TaxPayers' Alliance showed that the overall scheme started in 2017 and is planned to run until
2028. ø
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Emma Monk @monkemma.bsky.social · 07/10/2026
If you don't like people leaving countries like Pakistan in search of a better life, then you really should be in support of making Pakistan a more prosperous country going forward, even if global maternal health and infant mortality are of no interest to you 🤷‍♀️ 25/
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Emma Monk @monkemma.bsky.social · 07/10/2026
🧵 Matt Goodwin demanded to be fact-checked live on air when he claimed the UK spent "£100 million PER YEAR on family planning and condoms in Pakistan". He then 'corrected' himself to £74.3 million, saying it was based on a "major news story from October 2025" He was, of course, still wrong... 1/30
Screenshot of LBC tweet:

How much has the UK actually spent on condoms in Pakistan? 

Henry Riley is sceptical about Matt Goodwin's numbers so the reform politician calls himself to be fact-checked live on air.
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Nature @nature.com · 07/10/2026
None of this year's science Nobel Prizes have gone to women. The number of these prizes to go to women remains at 27 out of more than 600. See how many you can name in our quiz: www.nature.com/immersive/d4...
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Firstname Lastname #FuckTrump @notunpackedyet.bsky.social · 07/10/2026
I think the words "journalist" and "journalism" have to do a lot of heavy lifting when it's the Torygraph.
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Campaign against Climate Change @campaigncc.bsky.social · 07/10/2026
Protest in Matlock against the Reform-led Derbyshire county council removing all references to climate change and net zero from their "Environmental Strategy".
Protesters with banners: 'Climate Emergency, be part of the solution' and 'Derby and Derbyshire Climate Coalition' and placards.
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Zack Polanski @zackpolanski.bsky.social · 07/10/2026
Great to catch up with the Camden New Journal. Tomorrow on the ballot paper in Holborn & St Pancras - a Green win means I'll be in Parliament pushing on housing costs, nationalising Thames Water and keeping oil & gas in the ground. Vote Green! 💚 youtu.be/bM4YgbS96Nw?...
youtu.be
Zack Polanski in Brighton – one of his few conference interviews
YouTube video by Peeps
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Anti-Reform @antireform.bsky.social · 07/10/2026
Never forget that both Tommy Robinson & Nigel Farage seem to think the best way to 'protect women and girls' is to publicly promote a pornographer brainwashing young boys into misogyny, who faces charges of rape, sexual exploitation, ABH, child porn ... meme via Truth Against Hate
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Humanists UK @humanists.uk · 07/10/2026
A very happy 50th birthday to our patron Tim Minchin. Thank you for the music, the laughter, and these really lovely words on living, happiness, and finding meaning in the here and now. Happy Birthday, Tim!
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Reform Party UK Exposed @reformexposed.bsky.social · 07/10/2026
Reform MP raises concerns about second homes – then buys one for £800,000 Sarah Pochin bought Anglesey property two days after writing to minister about impact of second home ownership on rural communities www.theguardian.com/politics/202...
theguardian.com
Reform MP raises concerns about second homes – then buys one for £800,000
Sarah Pochin bought Anglesey property two days after writing to minister about impact of second homes on rural communities
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Sarah Murphy @13sarahmurphy.bsky.social · 07/10/2026
Seriously… how can a party that insists on scrapping all progress with the EU, binning NetZero and leaving the ECHR, so that it can abuse its power without accountability… how can that party claim “the soul of the nation”. The ruin - maybe. The soul - definitely not.
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Phil M 🦻🏼💚 🍉 🏳️‍⚧️ 🇵🇸 @phillm.bsky.social · 06/10/2026
Thanks again, to @monkemma.bsky.social: "You have to ask why the Guido Fawkes headline, the City AM headline and Matt Goodwin wanted you to focus on condoms for Pakistani men rather than the family planning and maternal health services for the rural women" monkdebunks.substack.com/p/no-we-dont...
monkdebunks.substack.com
No, we don't spend £74 million a year on branded condoms for Pakistan
Tracing the City AM headline, from Matt Goodwin's LBC claim and back through Guido Fawkes to a UK aid programme for women in rural Pakistan
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Mia Farrow @miafarrow.bsky.social · 06/10/2026
In April, Brookings researchers found 205,000 children affected by ICE 71 % are US citizens. Most lost one parent, but 35,000 kids are left with no parent at all. Since April ICE arrests increased. In July, they arrested 49,000 ppl, most have no criminal record www.theatlantic.com/magazine/202...
theatlantic.com
The Babies Left Behind in America
The United States is deporting parents without their children, creating a whole new family-separation crisis.
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Anna Kaminski @anna-writes.bsky.social · 05/10/2026
Some good news to start the week: Two nonprofits will abolish $34M in medical debt for +21,000 Kansans. “This isn’t actually about medical debt,” said Melissa Morales. “This is about a broken healthcare system that people can’t afford.” #ksleg kansasreflector.com/2026/10/05/n...
kansasreflector.com
Nonprofits to erase $34 million in medical debt for 21,000 Kansans • Kansas Reflector
More than 21,000 Kansans are set to receive a letter this month notifying them that their medical debt has disappeared.
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Margot Finn @eicathomefinn.bsky.social · 06/10/2026
'seven women...have told the Guardian they are survivors of domestic abuse carried out by key figures in the anti-immigration street patrol movement. All have chosen to come forward to make the public aware of the patterns of violence behind this new form of activism.'
theguardian.com
‘Bully in every way’: domestic abuse survivors say ex-partners behind far-right UK street patrols
Seven women share their stories to make people aware of patterns of violence behind anti-immigration street patrol movement
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Firstname Lastname #FuckTrump @notunpackedyet.bsky.social · 06/10/2026
Shows the depth of concern and desperation of patients. Anything that gives voice to our cause is so rare that you grab it.
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Firstname Lastname #FuckTrump @notunpackedyet.bsky.social · 06/10/2026
I hope Sharpe et al. live long enough to be utterly discredited and shamed by every medical and teaching institution around the world.
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Johnedd @johneddyshaw.bsky.social · 06/10/2026
I'm through and the drawbridge is up
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Adam Bienkov @adambienkov.bsky.social · 06/10/2026
The utter shamelessness of Kemi Badenoch boasting at Conservative party conference about 'defending press freedom' and berating Reform for banning critical journalists from their conference, just days after banning Byline Times journalists from her own
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Zack Labe @zacklabe.com · 06/10/2026
100 years of September sea surface temperature anomalies... watch until the end (record high) 🫣 Data from ERSSTv6: www.ncei.noaa.gov/products/ext... 🌊
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Alem Matthees @alemmatthees.bsky.social · 05/10/2026
"The troubling paradox is that women experience more pain, yet their pain is also more likely to be dismissed, diagnosed late or undertreated ... This enormous study shows that the higher burden of pain in women is remarkably consistent across the body and in a remarkably diverse global population."
theguardian.com
Women suffer more pain than men across the whole body, major global study finds
Researchers looked at pain around the world and across the human lifespan, finding steepest rise happens before age 55
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Mark Hamill @markhamillofficial.bsky.social · 06/10/2026
Who you gonna believe, the lying liar or your own eyes? 👀
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Science X / Phys.org @sciencex.bsky.social · 05/10/2026
Keeping the forest floor intact helped preserve soil carbon after logging. Removing it and harvest residue left total soil carbon 33% below preharvest levels 20 years later. doi.org/hcmmqw
phys.org
Long-term logging experiment reveals how protecting the forest floor helps preserve soil carbon
Forest soils store an estimated 40% of the world's terrestrial carbon, but estimates suggest that around 15–30% of that soil carbon is lost when a forest is harvested.
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Firstname Lastname #FuckTrump @notunpackedyet.bsky.social · 05/10/2026
Well done! Thanks Tom
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Taniel @taniel.bsky.social · 05/10/2026
Arguably the biggest democracy referendum next month: Virginia is one of only three states where the state constitution says people should lose their right to vote FOR THEIR ENTIRE LIFE if they are convicted of any felony. This measure would allow anyone to vote after prison.
boltsmag.org
“It’s Time”: Virginians Will Decide Whether to Repeal Jim Crow-Era Lifetime Ban on Voting - Bolts
Voters will decide this year whether to end Virginia’s uniquely harsh felony disenfranchisement rules. They'll also vote on abortion, gay marriage, and redistricting.
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Firstname Lastname #FuckTrump @notunpackedyet.bsky.social · 05/10/2026
The absence of rest in #MEcfs is fucking awfully painful. That life does not allow rest, makes living horrible.
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Firstname Lastname #FuckTrump @notunpackedyet.bsky.social · 05/10/2026
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