Sign in

Miles for Migraine

@milesformigraine.bsky.social
36 followers 46 following 38 posts

A community hosting impactful events + programs which foster awareness + raise essential funding for migraine/headache disease.

PostsRepliesMedia
Reposted by Miles for Migraine
billtheadvocate.bsky.social @billtheadvocate.bsky.social · 25/07/2026
Inappropriate touching in anticipation of @milesformigraine.bsky.social #purplemustacheproject on September 27 in Philadelphia at the Navy Yard
131
Reposted by Miles for Migraine
Julie McDonald @jewels3081.bsky.social · 28/06/2026
When he has a full handlebars mustache, he'll dye it purple for the @cityofphiladelphia.bsky.social @milesformigraine.bsky.social Walk, Run, or Relax event! You can help us reach our goal by donating to Migraine and Headache research here: bit.ly/3R4zysD?r=qr
bit.ly
Donate to help The Purple Mustache Project raise money for Miles for Migraine Pennsylvania - 2026’s fundraising campaign, on September 27, 2026
The team, The Purple Mustache Project, is raising money for a great cause by participating in Miles for Migraine Pennsylvania - 2026 on September 27, 2026. They need your help to reach their team goal...
011
Reposted by Miles for Migraine
Julie McDonald @jewels3081.bsky.social · 27/06/2026
I got to talk about #MigraineAndHeadacheAwarenessMonth & the burden of #Migraine this morning on KATV. You can watch below & help by donating here: bit.ly/3R4zysD?r=qr Look for a post featuring @billtheadvocate.bsky.social of @milesformigraine.bsky.social later, too. katv.com/news/local/m...
katv.com
Migraine Awareness Month highlights misunderstood disease affecting 1 billion worldwide
Purple sunglasses and hair dye are helping shine a light on a disease that affects more than 1 billion people worldwide, yet remains widely misunderstood and un
021
Reposted by Miles for Migraine
Julie McDonald @jewels3081.bsky.social · 13/06/2026
Annnndddd, the report is it"s awesome to have a doc so committed to advocacy and awareness! He was giggling a little too gleefully about his #purplemustacheproject in these photos. @milesformigraine.bsky.social @Philadelphia, get ready for the purple mustached man!
021
Reposted by Miles for Migraine
Clusterbusters, Inc. @clusterbusters.bsky.social · 17/06/2026
Wild to think the Cure for Cluster 5k began with only 27 people. Now it’s worldwide and helping fund real research. If you want to take part this June, invite a few people you love and make it a group thing. 👉 runsignup.com/Race/DC/Wash...
021
Reposted by Miles for Migraine
Therese Gleason @theresegleason.bsky.social · 06/06/2026
June is Migraine and Headache Awareness Month, and I'm donating 15% my sales of signed author copies of my poetry collection, HEMICRANIA, to @milesformigraine.bsky.social a non-profit advocacy organization. Order your copy from my website, theresegleason.com, or dm me. thank you! 💜 🧠
013
Reposted by Miles for Migraine
Therese Gleason @theresegleason.bsky.social · 06/06/2026
Thank you to The Poetry Shop for partnering with me to raise awareness about migraine, an often invisible neurological disease that impacts 1 in 6 households in the US. The Poetry Shop is donating 15% of sales of HEMICRANIA in June to @milesformigraine.bsky.social, as am I (dm for signed copy) 🧠💜
122
Reposted by Miles for Migraine
Solve M.E. @solveme.bsky.social · 09/04/2026
Tired of your health conditions being treated separately instead of together? Join experts & community members @ the HER - Women’s Health Conference on May 3rd and learn how to connect the dots in your care. Free! Join in person (Phoenix, AZ) or online. Sign up: ow.ly/BcMt50YGKZy
ow.ly
HER: Health Empowerment Revolution
This event is designed to equip you with knowledge, tools, and support to better understand & manage migraine along side other chronic conditions.
022
Reposted by Miles for Migraine
billtheadvocate.bsky.social @billtheadvocate.bsky.social · 11/03/2026
#purplemustacheproject is underway! Despite a young voter’s choice the sheriff won! Currently in growth phase. Mustache wax manufacturers may want to increase production. The world’s first bleached and dyed purple mustache will be displayed for all @milesformigraine.bsky.social September 27, 2026.
milesformigraine.bsky.social
Miles for Migraine (@milesformigraine.bsky.social)
A community hosting impactful events + programs which foster awareness + raise essential funding for migraine/headache disease.
021
Miles for Migraine @milesformigraine.bsky.social · 05/01/2026
Ever had a medication prescribed only to be denied by insurance? Interested in learning more about the prior authorization process, and how to navigate? Join us online, Sunday 2/22. Details and sign up: www.eventbrite.com/e/empowering...
eventbrite.com
Empowering Patients and Clinicians to Overcome Insurance Barriers Together
An educational presentation on navigating Prior Authorizations with confidence
000
Reposted by Miles for Migraine
American Headache Society @ahsheadache.bsky.social · 05/01/2026
Scholarship applications are now available for #AHSAM 2026. Join us June 4–7 in Orlando, FL! Available Scholarships: Frontiers in Headache Research Runnin’ for Research (R4R) 👉 Learn more & apply by February 22 here: bit.ly/3KZX0o3
011
Miles for Migraine @milesformigraine.bsky.social · 03/01/2026
“If it wasn’t for my friend, I would never have taken the initiative to find a specialist and try to get real answers.” www.bustle.com/wellness/fin...
bustle.com
How Finding A Migraine Community Can Be Empowering
As isolating as they may feel, you don't need to deal with your migraines alone.
010
Reposted by Miles for Migraine
Beth Morton @migrainechat.bsky.social · 16/11/2025
Learn more about #migraine and #IBS, #MCAS, #POTS, & #hEDS at this upcoming talk hosted by @milesformigraine.bsky.social. Dec. 12, 4:30p ET #MigraineChat #NEISvoid
eventbrite.com
Exploring Migraine with IBS, MCAS, POTS, and hEDS (Instagram Live Event)
Learn how migraine interacts with several chronic conditions including POTS, IBS, mast cell activation syndrome, hEDS and more.
2146
Reposted by Miles for Migraine
billtheadvocate.bsky.social @billtheadvocate.bsky.social · 30/09/2025
The #purplemanbunproject / purple pony has solved the no pocket protector problem. @miles4migraine bit.ly/m4mpmb
021
Reposted by Miles for Migraine
billtheadvocate.bsky.social @billtheadvocate.bsky.social · 24/09/2025
I dyed #purplemanbunproject @miles4migraine bit.ly/m4mpmb
121
Reposted by Miles for Migraine
Julie McDonald @jewels3081.bsky.social · 20/09/2025
Have you supported me and @milesformigraine.bsky.social yet? Well, get going! I'm really close to my goal! #Migraine
raceroster.com
Help Julie raise money for participating in Miles for Migraine - Pennsylvania 2025 on September 28, 2025
Migraine changed the course of my life. I went from a young, ambitious, eager law student to a bedridden shell of myself when Migraine attacks became chronic. Through the help of Dr. Young and Jeffers...
021
Reposted by Miles for Migraine
billtheadvocate.bsky.social @billtheadvocate.bsky.social · 21/09/2025
On Tuesday September 23 hair will be bleached and dyed #purplemanbunproject @miles4migraine Donate bit.ly/m4mpmb 😃
011
Reposted by Miles for Migraine
Julie McDonald @jewels3081.bsky.social · 15/09/2025
Hey--I went purple again to raise money for #Migraine research! I'm joining @billtheadvocate.bsky.social and @milesformigraine.bsky.social to raise funds for the #Philadelphia Run, Walk, Relax Event. Help us out by donating here: bit.ly/juliem4m25
132
Reposted by Miles for Migraine
Clusterbusters, Inc. @clusterbusters.bsky.social · 02/08/2025
Clusterbusters and Yale University are conducting a brief survey with those who experience cluster headache and have used a specific treatment. Eligibility criteria is on the first page. survey.alchemer.com/s3/8319518/O...
022
Reposted by Miles for Migraine
billtheadvocate.bsky.social @billtheadvocate.bsky.social · 12/09/2025
Dr Gottschalk and I having a “Bun-off” at @clusterbusters.bsky.social in Dallas #purplemanbunproject @milesformigraine.bsky.social
011
Reposted by Miles for Migraine
billtheadvocate.bsky.social @billtheadvocate.bsky.social · 12/09/2025
Making progress toward the goal Please help and donate: bit.ly/m4mpmb #purplemanbunproject @milesformigraine.bsky.social
011
Miles for Migraine @milesformigraine.bsky.social · 11/09/2025
We are excited to announce the launch of our new initiative, Miles for Women’s Health, dedicated to supporting women navigating migraine + other chronic health conditions. Learn More: www.milesformigraine.org/migraine-edu...
Introducing Miles For Women’s Health

Women living with migraine and other headache disorders are often navigating much more than one condition.

Research shows that migraine frequently coexists with a range of chronic diseases, including asthma, other pain conditions, depression, anxiety, autoimmune conditions, sleep disorders, and more. This overlapping burden means women are
managing not only the debilitating symptoms of migraine, but also multiple other health challenges that impact their quality of life. This becomes even more confusing because all women will experience perimenopause and menopause, and the complication of hormones and migraine is overwhelming.

Despite this complexity, most women do not receive coordinated or comprehensive care. These conditions are often treated in isolation, each one addressed by a different specialist or clinic, with little to no integration. Primary care providers, though well-intentioned, are often too overwhelmed by patient volume and administrative demands to provide the coordination and continuity women need across their health conditions.

To make matters worse, women are typically caregivers in their families and often work full-time. Many of the women in our community report having three or more chronic conditions—and still being expected to manage work, caregiving, and household responsibilities. They simply do not have the time or energy to navigate a fragmented and confusing healthcare system on their own.

That’s why we are creating Miles for Women’s Health.

To kick off this initiative, we are hosting a national Women’s Health Summit, where experts will speak on the conditions women commonly face, the barriers of fragmented care, and ways to build coordinated solutions for a more supportive healthcare journey.

Our mission is to walk alongside women in their health journeys, offering the support, tools, and connection they need to feel seen, heard, and well at every stage of life.
010
Reposted by Miles for Migraine
Julie McDonald @jewels3081.bsky.social · 09/09/2025
Check @billtheadvocate.bsky.social out. Donate to his #PurpleManBunProject team for the #Philadelphia @milesformigraine.bsky.social event today! bit.ly/m4mpmb
bit.ly
Donate to help The Purple Man Bun Project raise money for Miles for Migraine - Pennsylvania 2025’s fundraising campaign, on September 28, 2025
Help Me Turn Heads—Support the Purple Man Bun Challenge!Why blend in when you can stand out for a cause? Think about it—the Ice Bucket Challenge didn’t go viral because it was subtle. Now, it’s time t...
011
Reposted by Miles for Migraine
Julie McDonald @jewels3081.bsky.social · 20/08/2025
#Migraine peeps--this is my doc. He has been growing his hair so he can wear a purple man bun at the #Philadelpia @milesformigraine.bsky.social Run, Walk, Relax Event. We have to raise a bunch of 💲💲! His team is the #PurpleManBunProject, & funds raised will go to Jefferson Headache Center.
011
Reposted by Miles for Migraine
Julie McDonald @jewels3081.bsky.social · 04/08/2025
This is my #Migraine doc, Dr. Young.He believes in wearing his advocacy. He's been growing his hair so he can have a #PurpleManBun at Philly's @milesformigraine.bsky.social event. He's got a big goal to meet to raise $ for Migraine research, and he needs our help! Please donate. donorbox.org/billpmb
011
Miles for Migraine @milesformigraine.bsky.social · 13/06/2025
Join our hosts Alicia and Dino Migliazzo on Saturday, June 22 at 1pm ET for a free, virtual cooking class featuring bold, garden-fresh flavors and three of their favorite recipes: 🍅 Zesty Homemade Salsa
🍗 Creamy Pollo a La Crema
🍚 Fluffy Mexican Rice
Miles for Migraine Presents:

Cooking Fresh From the Garden

Cook along with us or just watch and enjoy to learn some new techniques. Virtual Social Event 

June 22nd at 1pm ET

Free sign up!
100
Reposted by Miles for Migraine
Migraine Canada @migrainecanada.bsky.social · 11/06/2025
Today was the kick off of the EMHA (European Migraine and Headache Alliance) conference in Brussels. Proud to have Canada involved with global patient organizations to share and learn. Today we visited the EU Parliament for a tour. More to come with a full day of meetings Thursday and Friday.
021
Reposted by Miles for Migraine
Migraine Canada @migrainecanada.bsky.social · 04/06/2025
Join our Move for Migraine Calgary Walk! Save the date! 🗓️ June 7 ⏰ 9:30 AM Mountain Time 📍 Bowness Park, in front of Seasons of Bowness Restaurant. Option for a 5 or 7Km walk. Remember to record your steps at: migrainecanada.org/move-for-migraine
001
Reposted by Miles for Migraine
Beth Morton @migrainechat.bsky.social · 05/06/2025
#MigraineChat #NEISvoid Please give me your favorite fragrance-free shampoos and conditioners recs. Bonus if they're very moisturizing. TY.
10113
Miles for Migraine @milesformigraine.bsky.social · 04/06/2025
Migraine is not “just a headache” Help us raise awareness and learn more by visiting: migraineheadacheawarenessmonth.org #mham
Migraine, Not Just Head Pain 

Facial Tenderness/Sensitivity/Pain - Scalp Tenderness/Sensitivity/Pain - Neck Stiffness, Aching or Pain - Brain Fog - Gastrointestinal Changes (Nausea, Diarrhea, Constipation) - Food Cravings - Changes in Mood (Depression, Euphoria) - Irritability - Difficulty Concentrating - Increased Thirst - Increased Urination - Frequent Yawning - Fatigue - Difficulty Sleeping - Sensitivity to Light or Sound - Difficulty Reading or Speaking - Hyperactivity - Blind Spots (Outlined with Geometric Designs) - Shimmering Stars or Spots - Zigzag Lines Floating Across Vision - Flashes of Light - Temporary Vision Loss - Abdominal Pain - Smell Sensitivity - Ear Pain - Ringing in Ears - Vomiting - Nasal Congestion - Runny Nose - Pain with Light Touch - Dizziness - Motion Intolerance - Vertigo (Spinning) - Phantom Smells - Sinus Pressure/Pain - Jaw (TMJ) Pain - Tooth Pain - Difficulty Finding Words -
Loss of Balance - Disorientation and Rocking - Joint Pain and StiffnessInvisible Disease, Real Symptoms.

Blind Spots | Brain Fog | Mood Swings | Difficulty Concentrating | Trouble Reading Or Speaking | Insomnia | Fatigue | Facial Pain Or Tenderness |
Light Flashes | Food Cravings | Frequent Yawning | Nausea Or Digestive Issues | Hyperactivity | Increased Thirst | Frequent Urination | Irritability | Neck Pain Or Stiffness | Scalp Sensitivity | Light Or Sound Sensitivity |
Shimmering Spots | Temporary Vision Loss | Zigzag Lines Drifting Across Your Vision | Blind Spots | Brain Fog | Mood Swings | Difficulty Concentrating | Trouble Reading Or Speaking | Insomnia | Fatigue | Facial Pain Or Tenderness | Light Flashes | Food Cravings | Frequent Yawning | Nausea Or Digestive Issues | Hyperactivity | Increased Thirst | Frequent Urination | Irritability | Neck Pain Or Stiffness | Scalp Sensitivity | Light Or Sound Sensitivity | Shimmering Spots | Temporary Vision Loss
010
Miles for Migraine @milesformigraine.bsky.social · 30/05/2025
“It’s time for Congress to prioritize migraine as a national health issue—by funding research, ensuring access to diagnosis and treatment through increased screening, and supporting legislation like the HEADACHE Act.” www.realclearhealth.com/articles/202...
realclearhealth.com
The Price of Pain
Every year, millions of Americans—most of them women—suffer in silence from a disease that is often dismissed as
000
Reposted by Miles for Migraine
Chronic Migraine Awareness @chronicmigrainecma.bsky.social · 26/05/2025
We’re honored to welcome Qasim Amin Nathari to #ComorbidityCon, where he’ll lead a powerful session on “Challenges Facing Black Men in Diagnosis and Treatment.” Qasim brings deep insight and lived experience to the intersection of race, gender, and chronic illness.
021
Miles for Migraine @milesformigraine.bsky.social · 18/05/2025
Did you know that anxiety is up to five times more common in people with migraine? The uncertainty of when a migraine attack might strike often leads to tension and worry—ironically increasing the likelihood of another episode. milesformigraine-org.zoom.us/meeting/regi...
milesformigraine-org.zoom.us
Welcome! You are invited to join a meeting: Miles for Migraine - Unwinding Anxiety for Migraine. After registering, you will receive a confirmation email about joining the meeting.
Did you know that anxiety is up to five times more common in people with migraine? The uncertainty of when a migraine attack might strike often leads to tension and worry—ironically increasing the lik...
100
Miles for Migraine @milesformigraine.bsky.social · 12/05/2025
Having difficulty sleeping due to migraine? Want to learn strategies for better sleep? 😴 At our upcoming event, Dr. Gregory Amatrudo will dive into the connection between sleep and migraine. Join us online or in-person, Sunday June 8th for this free event. www.milesformigraine.org/migraine-edu...
000
Miles for Migraine @milesformigraine.bsky.social · 06/05/2025
Join us for the 10th Annual Illinois Walk/Run/Relax Event in Chicago on Saturday, June 7th! This special day is more than just a 5K — it’s a chance to connect, learn from one another, and share your story. Walk, run, or relax — every step makes a difference. Sign up: CHI.MilesForMigraine.Org
Two people with arms in the air standing in front of the Miles for Migraine start finish arch with their purple miles for migraine t-shirts and shades for migraine sunglasses.

Text: miles for migraine Illinois, Saturday 6/7 @ 9:30am, Diversey Harbor, Chicago, CHI.MilesForMigraine.Org
000
Miles for Migraine @milesformigraine.bsky.social · 03/05/2025
The U.S. Food and Drug Administration (FDA) has approved a 505(b)(2) New Drug Application (NDA) for Atzumi™ (dihydroergotamine (DHE)) nasal powder for the acute treatment of migraine with or without aura in adults. Atzumi was previously known as STS101.
100
Miles for Migraine @milesformigraine.bsky.social · 01/05/2025
Do you live with multiple chronic conditions? If so you're not alone. Learn more:
complexdisorders.org
Research & Resilience Blog — CODA
Follow CEO Amy Rochlin’s blog for personal insights, scientific discovery, and updates on CODA’s mission. Her professional experience in driving research nonprofit success collides with her personal m...
010
Reposted by Miles for Migraine
Beth Morton @migrainechat.bsky.social · 01/05/2025
Shared by @milesformigraine.bsky.social: Are you a man living with migraine and/or long COVID? Consider taking part in a new research study. Contact Kate Freeman at Case Western Reserve University with questions at: migrainelongcovidproject@gmail.com. Compensation available. #MigraineChat
cwru.az1.qualtrics.com
Qualtrics Survey | Men's Experiences with Migraine and Long COVID
The most powerful, simple and trusted way to gather experience data. Start your journey to experience management and try a free account today.
185
Reposted by Miles for Migraine
Katie @katiehambor.com · 25/04/2025
Less than two days until the @milesformigraine.bsky.social CT race! Any donations to my fundraising page are greatly appreciated! 💜🧠 raceroster.com/events/2025/... #chronicillness #migraine #chronicmigraine
A graphic with a purple background that says "While most sufferers experience attacks once or twice a month, more than 4 million people have chronic daily migraine, with at least 15 migraine days per month. I have 30 days per month. Help us find a cure." On the right, there is a photo of me wearing tinted glasses. The bottom right says "migrainerds, Miles for Migraine team."
121
Miles for Migraine @milesformigraine.bsky.social · 23/04/2025
Ever wondered what makes a Headache Specialist different from a Neurologist? A Headache Specialist is a medical provider with advanced training focused specifically on headache and migraine disorders—starting their journey as a “Headache Fellow.”
Two healthcare providers walking in a hallway chatting. Text: What is a Headache Fellow and Headache Specialist?
100
Miles for Migraine @milesformigraine.bsky.social · 15/04/2025
Join us virtually or in-person for Mastering Migraine: Your Essential Toolkit for Relief, taking place on June 8th.  Sign Up/Info: milesformigraine.org/migraine-educational-events/mastering-migraine-essential-toolkit-relief/
“Mastering Migraine, Your Essential Toolkit for Relief. 

10am-1pm Sunday June 8th”

Miles for Migraine Mascot/Logo - Brain with a graduation cap, and sunglasses holding an apple. In the background a medical bag (toolkit) and medical forms on a clipboard.
100
Miles for Migraine @milesformigraine.bsky.social · 05/04/2025
Join us online Sunday, April 27th at 1:00pm ET for a game of Kahoot, hosted by Anikah! 🎲🥳 Sign up/info: www.milesformigraine.org/social-serie...
Image: 4 contestants standing at podiums participating in a game show. 

Text: Game Day! Join Miles for Migraine for a Rousting Game of Kahoot!!

Sunday April, 27th @ 1pm
011
Miles for Migraine @milesformigraine.bsky.social · 01/04/2025
“NOT ALONE” encompasses our desire to insure no one living with, or caring for someone with migraine or other headache disease is ever alone.💜
Image: Bead Friendship Style Bracelet including "lilac garden"  bead pattern and block lettering "NOT ALONE" 

Text: Not Alone, Little Words Project Partnership. 

Available Now! A portion of your purchase will be donated to Miles for Migraine

Purchase Here: https://www.littlewordsproject.com/products/giveback-not-alone
110
Miles for Migraine @milesformigraine.bsky.social · 31/03/2025
Looking for any tips or suggestions on how to better connect with the migraine/headache community here on Bluesky. What are you finding works best?
031
Miles for Migraine @milesformigraine.bsky.social · 31/03/2025
Join our free, online support and community group led by Deena to connect, discover and share! Groups meet the 2nd and 3rd Thursday of the month. Sign up and details: milesformigraine.org/migraine-support-community-groups/
000
Miles for Migraine @milesformigraine.bsky.social · 21/03/2025
Today, on Cluster Headache Awareness Day, we stand with those who battle the intense pain of Cluster Headache. This debilitating neurological disease deserves more awareness, research, and support. Share this post to spread awareness and support those living with cluster headache. 💜💪 Credit: EMHA
010
Miles for Migraine @milesformigraine.bsky.social · 05/03/2025
Do you live with migraine/headache disease? Please take a few moments to complete this survey to help us better understand where our community may be facing gaps in healthcare. forms.gle/ABQB9cAzCiGZ...
010
Miles for Migraine @milesformigraine.bsky.social · 19/02/2025
Migraine isolation is a common experience. Learn about overcoming isolation by checking out our latest blog post "Building a Strong Connection to Alleviate Migraine Isolation" milesformigraine.org/building-a-strong-connection-to-alleviate-migraine-isolation
000
Miles for Migraine @milesformigraine.bsky.social · 18/02/2025
To date we've donated over $3,530,000 to research, patient care and public awareness! In 2024 we had 32 beneficiaries which were granted over $184,000 thanks to the contributions and efforts of our community!! Learn more: www.milesformigraine.org/beneficiaries/
000
Miles for Migraine @milesformigraine.bsky.social · 13/02/2025
Looking to connect with others in your headache/migraine community? 💜 Learn more about Miles for Migraine’s Community and Support groups at MilesForMigraine.Org
010