iiinova — where your digital self keeps evolving

Clusterbusters, Inc. @clusterbusters.bsky.social · 03/10/2026

We’ve redesigned our website to make finding help for cluster headache faster and easier. The updated site focuses on diagnosis, treatment, and connection. Our new companion site will dive deep into alternative treatments and how to effectively use them to manage CH! Visit clusterbusters.org

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Clusterbusters, Inc. @clusterbusters.bsky.social · 30/09/2026

The Clusterbusters U.S. Conference is Oct 8–11 in Rosemont. Treatment updates, mental health + caregiver sessions, hands‑on demos, advocacy conversations, and the first‑ever Pediatric Program. This is the place to connect! Details: cbrosemont2026.planningpod.com

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Clusterbusters, Inc. @clusterbusters.bsky.social · 27/09/2026

✈️ Traveling with cluster headache? Preparation matters. Know your triggers, pack meds + oxygen info, and plan for sleep changes. Watch our travel webinar for real‑world tips on flying, hotels, and managing attacks: 🎥 www.youtube.com/watch?v=rCkK... Learn more: clusterbusters.org #ClusterHeadache

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Travel Webinar

Tips about traveling while living with cluster headache. Link to resources mentioned in video: https://drive.google.com/drive/folders/17lRFtC4hTnKuFp-59iCajvDoTXskm8QU?usp=sharing

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Clusterbusters, Inc. @clusterbusters.bsky.social · 25/09/2026

Earn CME credits with Clusterbusters while learning directly from patients, researchers, and experts on cluster headaches. Attendees call it “an amazing experience with tangible advice we can bring back to our own practice." Register: cbrosemont2026.planningpod.com

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Clusterbusters, Inc. @clusterbusters.bsky.social · 25/09/2026

Speaker Spotlight: Tammy Isaac Tammy joins us for her second year, sharing her expertise in grief and emotional wellbeing. She’ll lead a mental health discussion for adults and a separate kids‑only session. We’re looking forward to her guidance again this October in Rosemont.

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Clusterbusters, Inc. @clusterbusters.bsky.social · 18/09/2026

21st Annual Clusterbusters Conference ✨ 🎓 Travel scholarships are available. If cost is a barrier, apply — we want you there. 👉 Apply here: forms.gle/ASdCEMzJ5DH4...

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Clusterbusters, Inc. @clusterbusters.bsky.social · 14/09/2026

🌟 25‑Day Countdown! We’re just 25 days away from the 21st Annual Clusterbusters U.S. Conference — October 8–10 in Rosemont, IL. Three days of education, community & connection. 💛 Registration is open: cbrosemont2026.planningpod.com #Clusterbusters #ClusterHeadache #Community #Education

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Clusterbusters, Inc. @clusterbusters.bsky.social · 12/09/2026

Honoring 9/11 and those still carrying its impact. 🚒 After Ground Zero, Joe McKay faced brutal cluster headaches that nearly cost him everything. Psilocybin brought relief and helped him heal. 🌱 Now a Clusterbusters advocate fighting for legal access. ▶️ Watch the attached video to hear Joe’s story.

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Joe McKay: Fireman Relieved from Cluster Headaches by Psilocybin (Mushrooms)

Fireman Joe McKay began suffering from frequent cluster headaches, also known as suicide headaches due to their severity and lack of treatment, six months after 9/11. He, like many with cluster…

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Clusterbusters, Inc. @clusterbusters.bsky.social · 11/09/2026

Behind the pain can be silent despair. Cluster headache is more than pain — it can impact every part of life. You are not alone. 💛 #WorldSuicidePreventionDay #ClusterHeadacheAwareness #YouMatter

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Clusterbusters, Inc. @clusterbusters.bsky.social · 11/09/2026

At the 21st CB Conference, in partnership with U.S. Pain Foundation, we are launching a Pediatric Program for kids 8 and up who live with cluster headache. Kids will learn from experts & share experiences in a supportive environment. Register today cbrosemont2026.planningpod.com

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Clusterbusters, Inc. @clusterbusters.bsky.social · 02/09/2026

We’re creating a space for families living with pediatric cluster headache — a condition that’s often misunderstood and overlooked. If your child is navigating cluster attacks, or you support kids who do, you’re invited to join us. Community Matters! cbrosemont2026.planningpod.com

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Clusterbusters, Inc. @clusterbusters.bsky.social · 30/06/2026

DMT is a short-acting psychedelic. 1 or 2 puffs from a vape pen is a low-dose experience that lasts about 15-mins. Guide with more info about DMT and how it can be used to abort attacks: ℹ️ www.clusterinfo.org/en/guides/dm...

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Clusterbusters, Inc. @clusterbusters.bsky.social · 30/06/2026

New in Neurology: Results from international survey on DMT for cluster headache. 67% said DMT completely eliminates pain from attacks - most within 30 seconds. Research by Dr. Schindler at Yale & Clusterbusters. 📄 Study: www.neurology.org/doi/10.1212/...

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Clusterbusters, Inc. @clusterbusters.bsky.social · 28/06/2026

Thank you for taking the time to raise awareness for #clusterheadaches with us, and a special thank you to @Amneal for supporting the #CureforCluster 5k this year! Events like these make #invisibleconditions visible and spark conversations about better care. See you in June 2027!

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Clusterbusters, Inc. @clusterbusters.bsky.social · 26/06/2026

Thank you to Dr. Michael Oshinsky at NIH/NINDS for meeting with Clusterbusters and talking about how we can strategically advance research to better understand cluster headache and explore new potential treatments. There is a headache expert ally in the vast federal bureaucracy!

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Clusterbusters, Inc. @clusterbusters.bsky.social · 22/06/2026

It’s not too late to sign up — the #CureforCluster 5k is TOMORROW! Join us to walk for #ClusterHeadacheAwareness and support research through Clusterbusters. Finishers will receive tokens of appreciation in the mail. Sign up here: runsignup.com/Race/DC/Wash...

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Clusterbusters, Inc. @clusterbusters.bsky.social · 20/06/2026

We’re teaming up with AHDA for two headache‑advocacy events in D.C. next week. If you can’t attend, join the Cure for Cluster 5k from anywhere this June.

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Clusterbusters, Inc. @clusterbusters.bsky.social · 20/06/2026

Walk What You Can this June for the #CureforCluster 5k 💛 Walk with your oxygen tank to raise awareness for cluster headache treatments. If wheeling it, choose sidewalks and take short, safe walks that add up to 5k. Every step matters. runsignup.com/Race/DC/Wash...

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Clusterbusters, Inc. @clusterbusters.bsky.social · 19/06/2026

Did you know your employer can sponsor you as a participant in the #CureforCluster 5k? Sponsor a runner or pledge $ per mile to help fundraise for #cluster headache research. Update your progress by tagging Clusterbusters and using the #CureforCluster tag! shorturl.at/6hvzO

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Clusterbusters, Inc. @clusterbusters.bsky.social · 18/06/2026

💙 Illinois Cluster Headache Support Group — June 18 @ 7 PM ET A safe space for those living with cluster headaches to connect and share. Register here: Zoom Link buff.ly/tH4SWTr

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Clusterbusters, Inc. @clusterbusters.bsky.social · 18/06/2026

💜 Cluster Headache Support Group — June 17 at 7 PM ET A welcoming space for cluster headache patients to connect and share experiences. Register here: us06web.zoom.us/meeting/regi... Please share with other cluster patients who may benefit.

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Clusterbusters, Inc. @clusterbusters.bsky.social · 17/06/2026

Wild to think the Cure for Cluster 5k began with only 27 people. Now it’s worldwide and helping fund real research. If you want to take part this June, invite a few people you love and make it a group thing. 👉 runsignup.com/Race/DC/Wash...

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Clusterbusters, Inc. @clusterbusters.bsky.social · 15/06/2026

Clusterbusters will be honoring 30 people who lived with cluster headaches during our Memorial Walk in Washington, DC on June 23, 2026. If you’d like to honor someone you know or knew, please submit a short write‑up and photo by June 19: 👉 docs.google.com/forms/d/e/1F...

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Clusterbusters, Inc. @clusterbusters.bsky.social · 13/06/2026

The 10th Annual #CureforCluster 5k is coming up this June. You can run or walk anytime during the month or join us live on June 23 at 9am ET as we walk 3.1 miles together in DC and around the world to raise awareness for cluster headaches. If you want to take part, sign up below: buff.ly/4An2l3z

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Clusterbusters, Inc. @clusterbusters.bsky.social · 13/06/2026

What to you bring with you on the #CureforCluster Virtual 5k run/walk? Pain relief treatments, water/electrolytes, a snack, and wear a Clusterbusters shirt, previous race shirt, or something purple to make #clusterheadaches visible for awareness month. shorturl.at/YhNCl

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Clusterbusters, Inc. @clusterbusters.bsky.social · 13/06/2026

21st Clusterbusters Conference “I felt welcomed and included from the moment I arrived, met Andrew, and joined a Safe Room discussion my first night. The entire conference was excellent, and I am so thankful for you all.” Travel scholarships available: cbrosemont2026.planningpod.com

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Clusterbusters, Inc. @clusterbusters.bsky.social · 12/06/2026

Most people (and doctors) don’t know about cluster headaches and the unique treatment options that provide pain relief. You can spread awareness of cluster headaches during #MigraineHeadacheAwarenessMonth by striking up a conversation during the #CureforCluster virtual 5k. buff.ly/4An2l3z

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Clusterbusters, Inc. @clusterbusters.bsky.social · 11/06/2026

CLUSTER HEADACHE TESTIMONIALS WANTED: Clusterbusters is asking for volunteers to send in 30-second clips describing a cluster headache attack or another aspect of living with this terrible disease. Please email your videos to info@clusterbusters.org #clusterheadaches

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Clusterbusters, Inc. @clusterbusters.bsky.social · 10/06/2026

We’re happy to share that ClusterBuds and ClusterBusters have formed a friendly alliance. We’re still our own organizations, but united by shared values, mutual respect, and a commitment to the cluster headache community. Built on collaboration and our belief that we’re stronger together.

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Clusterbusters, Inc. @clusterbusters.bsky.social · 10/06/2026

Sign up to walk for #clusterheadacheawareness in June for the 10th annual #CureforCluster 5k. Anyone who completes the #CureforCluster and posts about their experience will receive tokens of appreciation in the mail afterward. shorturl.at/YhNCl

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Clusterbusters, Inc. @clusterbusters.bsky.social · 06/06/2026

Did you know your employer can sponsor you as a participant in the #CureforCluster 5k? Sponsor a runner or pledge $ per mile to help fundraise for #cluster headache research. Keep us posted on your progress by tagging Clusterbusters and using the #CureforCluster tag! shorturl.at/6hvzO

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Clusterbusters, Inc. @clusterbusters.bsky.social · 06/06/2026

Big news for clusterheads! 💥 ClusterInfo.org just launched — a multilingual hub with treatment guides, expert insights, and easy‑to‑follow info for patients + providers. A huge step forward for our community. Please share! #ClusterHeadache #Migraine #HeadacheAwareness

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Clusterbusters, Inc. @clusterbusters.bsky.social · 05/06/2026

Walk-What-You-Can in June for the #CureforCluster 5k. Participants can walk with their oxygen tank to raise awareness of treatments for #clusterheadaches and to have pain relief on the go. shorturl.at/YhNCl

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Clusterbusters, Inc. @clusterbusters.bsky.social · 03/06/2026

Clusterbusters is looking for 30 people with #clusterhheadaches to honor during the Memorial Walk in Washington DC on June 23, 2026. If you would like to honor someone you know or knew with CH, please send in a short write-up and a picture using this form: buff.ly/dbA5t2L

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Clusterbusters, Inc. @clusterbusters.bsky.social · 03/06/2026

Build your walking/running group for the #CureforCluster 5k by asking friends, family, and coworkers to join you in June to raise awareness for #MigraineHeadacheAwarenessMonth! shorturl.at/YhNCl

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Clusterbusters, Inc. @clusterbusters.bsky.social · 01/06/2026

The 21st Clusterbusters U.S. Conference is Oct. 8-11, 2026, in Rosemont, IL. Schedule includes Oct. 8: evening reception & small groups, Oct. 9 & 10: daytime presentations, Oct. 10: evening Halloween themed dinner. CMEs are available for CPs. More info at cbrosemont2026.planningpod.com

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Clusterbusters, Inc. @clusterbusters.bsky.social · 26/05/2026

Sign up today for the 10th Annual #CureforCluster 5k! Run anytime in June or join us virtually June 23rd to raise #awareness for #ClusterHeadaches shorturl.at/YhNCl

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Clusterbusters, Inc. @clusterbusters.bsky.social · 20/05/2026

Register for the 10th Annual #CureforCluster 5k on June 23, 2026! Participants can run or walk anytime in June, or join us live on Tuesday, June 23, at 9 am ET as we walk 3.1 miles (5k) to raise awareness for cluster headaches. runsignup.com/Race/DC/Wash...

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Clusterbusters, Inc. @clusterbusters.bsky.social · 05/09/2025

Lobe Sciences and Cynaptec Pharmaceuticals presenting at this year’s conference on developing a form of psilocybin as a medical treatment for Chronic Cluster Headache. www.lobesciences.com (OTCQB:LOBEF CSE:LOBE) Sponsor Content

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Clusterbusters, Inc. @clusterbusters.bsky.social · 04/09/2025

We'd like to give a quick shout out to our sponsors- without them, this conference would not be possible. Clusterbusters 20th Annual US Patient Conference Grapevine (DFW), TX September 11-14th More information and register here: cbdallas2025.planningpod.com

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Clusterbusters, Inc. @clusterbusters.bsky.social · 02/08/2025

Clusterbusters and Yale University are conducting a brief survey with those who experience cluster headache and have used a specific treatment. Eligibility criteria is on the first page. survey.alchemer.com/s3/8319518/O...

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Clusterbusters, Inc. @clusterbusters.bsky.social · 22/07/2025

Bob Wold - Founder/Executive Director Episodic cluster headache with periods of chronic - 40+ years Clusterbusters 20th Annual US Patient Conference Grapevine (DFW), TX September 11-14th More information and register here: cbdallas2025.planningpod.com

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Clusterbusters, Inc. @clusterbusters.bsky.social · 19/07/2025

Introducing our Team:⁠ Anna Williams - Vice President⁠ Duties include: US Conference Planning Committee, ClusterBuddies and 5k Coordinator⁠ ⁠ Clusterbusters 20th Annual US Patient Conference⁠ Grapevine (DFW), TX September 11-14th⁠ More information and register here: cbdallas2025.planningpod.com

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Clusterbusters, Inc. @clusterbusters.bsky.social · 18/07/2025

Care Partner Perspective Clusterbusters 20th Annual US Patient Conference Grapevine (DFW), TX September 11-14th More information and register here: cbdallas2025.planningpod.com

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Clusterbusters, Inc. @clusterbusters.bsky.social · 16/07/2025

Have you wondered how NIH funding affects research for cluster headache? NINDS is the department for most headache diagnoses. Clusterbusters 20th Annual US Patient Conference Grapevine (DFW), TX September 11-14th More information and register here: cbdallas2025.planningpod.com

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Clusterbusters, Inc. @clusterbusters.bsky.social · 09/07/2025

🎉 A Beloved Clusterbusters Tradition: The Silent Auction & Raffle! 🎟️ Clusterbusters 20th Annual US Patient Conference Grapevine (DFW), TX September 11-14th More information and register here: cbdallas2025.planningpod.com

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Clusterbusters, Inc. @clusterbusters.bsky.social · 08/07/2025

Clusterbusters 20th Annual US Patient Conference Grapevine (DFW), TX September 11-14th More information and register here: cbdallas2025.planningpod.com

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Clusterbusters, Inc. @clusterbusters.bsky.social · 07/07/2025

Clusterbusters 20th Annual US Patient Conference Grapevine (DFW), TX September 11-14th More information and register here: cbdallas2025.planningpod.com

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