melinda_is_done @melindaiscomplex.bsky.social · 22/03/2026👋🏻 #severeME sux #MECFS #LongCovid #ChronicIllness 131
melinda_is_done @melindaiscomplex.bsky.social · 02/01/2026I have been participating in the #RECOVERSleep trial since the beginning of November. I qualified for the med arm, but of course don't officially know if I have the med or placebo. While still severe/very severe, I have had improvement in cognitive ability and have days with useable hour(s). 1/ 120
melinda_is_done @melindaiscomplex.bsky.social · 20/07/2025Got a new tee from @berlin-buyers-club.bsky.social for #DisabilityPrideMonth #AbleismLooksGoodOnNoOne 061
melinda_is_done @melindaiscomplex.bsky.social · 11/02/2025In calendar, click on settings then click on holidays, then add religious holidays 150
melinda_is_done @melindaiscomplex.bsky.social · 24/10/2024Today in person #EarlyVoting begins in Maryland! Find an early voting center elections.maryland.gov/elections/Vo... My ballot has officially been counted. I voted via mail-in ballot/drop box and am thankful being bed-bound disabled I have accessible voting in #Maryland. #VoteEarly 040
melinda_is_done @melindaiscomplex.bsky.social · 09/05/2024Millions of people with ME, including me, in the U.S. do not have access to a specialist who can care for their complex disease. Teach ME, Treat ME so that we can educate the next generation of ME specialists. #MillionsMissing2024 #MEcfs #MEawarenessmonth #PwME #PwLC #MedEd #MEAction #severeME 22810
melinda_is_done @melindaiscomplex.bsky.social · 07/05/2024I am joining #MEAction's #TeachMETreatME campaign so that I can get the care I and the millions like me deserve. Please share this @meactnet.bsky.social CME with your healthcare provider: bit.ly/MayoCME8 #MillionsMissing #MEcfs #PwME #PwLC #MedEd 085
melinda_is_done @melindaiscomplex.bsky.social · 06/10/2023No, I'm not acutely ill or have a fever. This is what #PEM can look like. What did I do for this you ask? Had a telehealth appt with my headache specialist earlier that day... Sheldon is good at comfort 😻 #MEcfs #MyalgicEncephalomyelitis #ComplexChronicIllness #LongCovid #IACC 1130
melinda_is_done @melindaiscomplex.bsky.social · 28/08/2023Here it is 2023. We are years into a pandemic & the CDC is rolling out its ME playbook from 1990. Join the Read ME book club to read & discuss Hillary Johnson's The Why: The Historic ME/CFS Call to Arms on Sept. 9th bookclubs.com/clubs/596855... Please excuse alt text, limited capacity today. 100
melinda_is_done @melindaiscomplex.bsky.social · 27/08/2023This is how we do this, right? I didn't see the movie not because I don't want to, but because I'm bedridden by #SevereME. About Severe ME youtu.be/CTxwlf7LSrA?... 060