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Maureen Smith 🇨🇦

@maureenchats.bsky.social
150 followers 93 following 10 posts

Passionate about patient/citizen engagement, teacher @ heart, rare disease advocate, Adjunct Professor, U of Toronto DLSPH, Canada’s Drug Agency Board member, INFORM RARE, McMaster Health Forum Citizen Partner, IMPaCT Trials, SPOR Evidence Alliance

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Maureen Smith 🇨🇦 @maureenchats.bsky.social · 29/09/2025
Great to see this update has added perspectives « It builds up on a 2014 scoping review by our team and aims to enhance the usability, completeness, and transparency of NMA reporting for diverse audiences, including patients and the public. » @sporalliance.bsky.social
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Reposted by Maureen Smith 🇨🇦
Carolyn Thomas 🇨🇦 @heart-sisters.bsky.social · 24/08/2025
Patients are the actual end users of medical research. Patient partners improve researcher understanding of the real life priorities and impact of their work. myheartsisters.org/2021/08/01/u...
myheartsisters.org
Why patients don’t have admin assistants
Are patient partners in healthcare research and education appreciated as people with varied skills and life experiences? Dr. Dawn Richards says NO. @TO_dpr @tatterededge
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Maureen Smith 🇨🇦 @maureenchats.bsky.social · 06/06/2025
It’s never too late to join the fun! Ranking top 5 is up next.
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Reposted by Maureen Smith 🇨🇦
Dawn Richards, PhD @dawnrichards.bsky.social · 20/05/2025
It's International #ClinicalTrials Day. Thanks to everyone who contributes to clinical trials 🙏. And an article co-written with patients on the research ethics review in 🇨🇦 - our thoughts and hopes for the future - healthydebate.ca/2025/05/topi... @healthydebate.bsky.social
healthydebate.ca
How do patients feel about research ethics review? - Healthy Debate
Research ethics reviews in Canada have come under the media spotlight, with claims the process is exploitative and calls for innovation or reform.
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Maureen Smith 🇨🇦 @maureenchats.bsky.social · 13/05/2025
How about making it a family project? Kids doing The Kid’s Trial and adult family members doing thepeoplesreview.ir Great dinner table conversations!
thepeoplesreview.ir
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Maureen Smith 🇨🇦 @maureenchats.bsky.social · 25/04/2025
Did you ever wonder what goes into conducting and sharing a systematic review? Everyone is welcome to this one! Topic: to be determined by the people!
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Maureen Smith 🇨🇦 @maureenchats.bsky.social · 23/04/2025
@sporalliance.bsky.social @mcmasterforum.bsky.social @evidencecomm.bsky.social
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Maureen Smith 🇨🇦 @maureenchats.bsky.social · 14/04/2025
Please consider joining us - evidence synthesis is for everyone! We’d love to hear your perspectives. @sevenworldscollide.bsky.social
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Reposted by Maureen Smith 🇨🇦
Timothy Caulfield @caulfieldtim.bsky.social · 05/04/2025
RFK Jr’s proposal to remove public commentary from US health policy is a threat to science & public health www.bmj.com/content/389/... "The ability to participate in regulatory decision making is not a privilege: it’s a legal requirement and a fundamental right in a democratic society."
bmj.com
Robert F Kennedy Jr’s proposal to remove public commentary from US health policy is a threat to science and public health
With confidence and trust in science and public health already under pressure, we must double down on transparency and public participation in policy decisions, write Liz Salmi and colleagues Since ...
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Maureen Smith 🇨🇦 @maureenchats.bsky.social · 10/02/2025
All the credit goes to INFORM RARE’s amazing youth advisory group! We are so proud to collaborate with them. I’m the lucky adult who had the honour of submitting it. Available in English & French on informrare.ca
informrare.ca
INFORM RARE
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SPORAlliance @sporalliance.bsky.social · 28/01/2025
New publication! The SPOR Evidence Alliance published a paper describing the co-creation and evaluation of two capacity-building courses on knowledge synthesis for patient and public partners. Read more: www.jclinepi.com/article/S089... @andreatricco.bsky.social @ktprogram.bsky.social
Graphic promoting the publication, 'Cobuilding Patient and Public Capacity in Knowledge Synthesis: Designed and Delivered by Patient and Public Partners for Patient and Public Partners.'
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Maureen Smith 🇨🇦 @maureenchats.bsky.social · 04/12/2024
Happy news to share! I’m honoured. It’s wonderful to see people with lived experience at the governance table of our Canada Drug Agency.
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Reposted by Maureen Smith 🇨🇦
Family Engagement in Research Training Program @ferprogram.bsky.social · 19/11/2024
"When Life Happens: Being Vulnerable About Your Reality as a Research Partner" by Rae Martens explores the often-unspoken challenges faced by patients and caregivers engaged in research partnerships. Rae candidly reflects on the realities of living with illness or caring for others, including /1
Two hands reaching out across the background of the sky.
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Lawrence (Larry) Mróz @drmroz.bsky.social · 20/11/2024
@stirlingbryan.bsky.social Stirling is on BlueSky! So far the only SPOR Unit on is @absporu.bsky.social - Alberta SPOR SUPPORT Unit. Let's get the rest on here!
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Reposted by Maureen Smith 🇨🇦
The People's Review @thepeoplesreview.ie · 18/11/2024
Hello Bluesky 👋 #ThePeoplesReview is a citizen science project inviting the public to get involved in a systematic review about health! Check out this video for more info about what The People’s Review is all about - youtu.be/4OoIjJY0tbE
youtu.be
What is The People's Review?
YouTube video by The People's Review
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Reposted by Maureen Smith 🇨🇦
Rae Martens ♿️ @coffeeandresearch.bsky.social · 16/11/2024
We must tackle misinformation. Our youth’s health depends on it healthydebate.ca/2024/11/topi...
healthydebate.ca
We must tackle misinformation. Our youth’s health depends on it - Healthy Debate
It's time to treat misinformation as the public health crisis it truly is, particularly among youth in marginalized Black, Indigenous and People of Colour communities.
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