iiinova — where your digital self keeps evolving

AbSPORU @absporu.bsky.social · 19/12/2025

First 2026 AbSPORU Patient Engagement Journal Club of the year dives into tailoring cardiovascular rehab resources with women who have lived experience. Featuring insights from Dr. Gabriela Melo Ghisi and Patient Partner Gayl McKinley. Register here: shorturl.at/oVNC5

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AbSPORU @absporu.bsky.social · 02/12/2025

🌈 Have you taken part in genetics research? If you identify as a person of colour, we’d love to hear your story! Join us for a 30–60 minute Zoom or phone chat to help us improve equity & diversity in genetics research.

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AbSPORU @absporu.bsky.social · 02/12/2025

Wrapping up the year with a powerful topic: meaningful engagement of lived & family experience in mental health + substance use research. Real voices, real experience, real impact. Register here: shorturl.at/CK3TK

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AbSPORU @absporu.bsky.social · 19/11/2025

Parents of kids aged 5–17: Do you have a baby tooth that just fell out? We’re studying links between mental and dental health. Please share the tooth + complete a 20-min survey Interested? Email JoinPed@dal.ca

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AbSPORU @absporu.bsky.social · 18/11/2025

We're looking for patient-oriented RESEARCHERS in Canada to participate in a study about measuring the impact of patient engagement in research. Please share with others to get the word out! Learn more here: shorturl.at/S9J5w

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Measuring the impacts of lived experience and family engagement on research

We are testing a new tool that measures the impact of engaging people with lived and living experience and caregivers in research.

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AbSPORU @absporu.bsky.social · 17/11/2025

We’re looking for: 🔹 Patients diagnosed with colorectal cancer in the last 5 years (currently in treatment or post-treatment) 🔹 Caregivers 🔹 Healthcare professionals. You’ll be asked about experiences, knowledge, and challenges: shorturl.at/0kTou

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AbSPORU @absporu.bsky.social · 14/11/2025

Hannah Brooks & Allison Soprovich will lead a discussion on imposter participants in qualitative research—especially online. Enjoy tea, coffee, and cookies while connecting with fellow U of A qualitative researchers. Everyone is welcome! RRSP: tinyurl.com/mupbp7y9

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Quali-Tea RSVP (DEC 4, 2025)

Hello! Please let us know if you plan to attend our gathering on Thurs, DEC 4, 12 - 1 pm, in ECHA 5-001 (Kipnes Academy). This will help us plan accordingly. Please RSVP by DEC 1.

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AbSPORU @absporu.bsky.social · 05/11/2025

True patient engagement means more than a checkbox. Join us as we explore how the Alberta Cancer Diagnosis Initiative is recruiting diverse voices to shape health system improvement. Reg here: bit.ly/3Xa6hMy

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AbSPORU @absporu.bsky.social · 28/10/2025

Big change starts close to home 🌿 At the SHARE Summit (Nov 10), see how NL-led health research is making care better for patients right here in our province. Free to join online 💻 qualityofcarenl.ca/events-train...

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AbSPORU @absporu.bsky.social · 16/10/2025

Join us to discuss: "Family-centered service through the eyes of insiders" – healthcare providers who are also parents share their unique perspective. 🔗 www.sciencedirect.com/science/arti... 👥 Open to all interested in patient engagement in research! #PatientOrientedResearch

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AbSPORU @absporu.bsky.social · 18/09/2025

Still time to register for October's Patient Engagement Journal Club! shorturl.at/DsTN8

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AbSPORU @absporu.bsky.social · 03/09/2025

Has your child (age 2–6) had a speech-language assessment in Alberta in the past year? U of A researchers want to hear from you! Join a 1-hour interview to help improve assessments for families. Telling your story can help other parents know what to expect!

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AbSPORU @absporu.bsky.social · 21/08/2025

Learning Opportunity for Researchers! 🧠 Patient Engagement (PE) in POR Certificate Learn how to: - Develop a PE plan/budget - Apply PE frameworks & ethical principles - Plan for inclusive & equitable practices - Evaluate patient partnerships Register: tinyurl.com/PE-Fall-2025

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AbSPORU @absporu.bsky.social · 21/08/2025

Curious about how implementation science drives better health care? The Implementation Science in Patient-Oriented Research Certificate gives you the tools, frameworks, & connections to put evidence into action. Discover how Alberta is advancing a learning health system!

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AbSPORU @absporu.bsky.social · 19/08/2025

Fair, inclusive care for kids starts with better data. Join us to co-create a Social Determinants of Health tool for children’s health records. Open to youth, caregivers, health pros, developers & advocates.

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AbSPORU @absporu.bsky.social · 19/08/2025

Clearer health recommendations start here—take part if you’re 16+ and can understand written english. Not all health advice is equal. We’re testing how to make the “strength” of recommendations easy to grasp. Here is the link to join: www.research.net/r/RecWording...

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AbSPORU @absporu.bsky.social · 18/08/2025

Join us as we dive into a patient-driven scoping review with digital health portals. These tools are becoming more common in supporting patients, and this session will highlight what we’ve learned from the research so far. Register here: cancer.jmir.org/2025/1/e72862

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AbSPORU @absporu.bsky.social · 30/07/2025

Are you 18+ and living with a chronic illness? Whether you're a patient or a student, we want to hear from you! Take a quick, anonymous 5–10 minute survey through UCalgary’s Qualtrics platform to share your lived experience.

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AbSPORU @absporu.bsky.social · 28/07/2025

🔬 N2 Canada is a not-for-profit alliance of clinical research networks enhancing trial quality & capacity nationwide. They unite researchers across Canada to share best practices, tools & advocate for high-quality, efficient research. Training link:https://n2canada.ca/education/#cid=1563&wid=2801

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AbSPORU @absporu.bsky.social · 28/07/2025

We’re looking for people in Alberta with lived experience accessing & navigating type 1 diabetes care for their children, especially from rural communities and Calgary. Join the AURORA advisory group to: 🔹 Help analyze T1D atlas data 🔹 Co-design a knowledge hub with researchers & doctors

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AbSPORU @absporu.bsky.social · 25/07/2025

🌍 PxP: For Patients, By Patients is a free, virtual conference this September! 🙌 Led by people with lived experience 🎯 Built for patient partners—but researchers are welcome too! 🧠 Learn, connect & grow patient engagement in health research Reg here: shorturl.at/n5Xe9

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AbSPORU @absporu.bsky.social · 22/07/2025

We’re looking for youth (14–23) with neurodevelopment disabilities, caregivers, health professionals, community organizations & policymakers to help shape Alberta’s pain care priorities. Let’s make research reflect what really matters!

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AbSPORU @absporu.bsky.social · 22/07/2025

Are you a neurodivergent student at UCalgary (18+)? Have trouble finding your way around campus? We’re creating Digital Buddy—a virtual guide to help you navigate campus spaces with more confidence & ease. 💻 Take our quick 5-min survey & help shape what we build!

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AbSPORU @absporu.bsky.social · 08/07/2025

We’re recruiting for an advisory group! • Adults (18+) with type 1 diabetes • Adolescents (12–19) with type 1 diabetes • Caregivers of children (2–12) or teens (12–19) with type 1 diabetes Must have lived experience for at least 2 years. Interested? Get in touch!

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AbSPORU @absporu.bsky.social · 07/07/2025

Human trafficking remains a persistent global issue. Healthcare professionals are in a key position to identify and respond to victims and survivors, many of whom interact with the health system without being recognized. Attend and learn how you can help identify victims! shorturl.at/nAXGD

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Strengthening Human Trafficking Detection in Healthcare

A review on current tools and implementation strategies for identifying victims and survivors of human trafficking in healthcare settings.

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AbSPORU @absporu.bsky.social · 24/06/2025

Still time to sign up for tomorrow's journal club!

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AbSPORU @absporu.bsky.social · 23/06/2025

We’re conducting a Delphi consensus survey to identify the most important sociodemographic determinants of health. This will help researchers collect & compare this information in a more consistent and standardized way. We’re looking for input from knowledge users!

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AbSPORU @absporu.bsky.social · 20/06/2025

Help shape caregiver support programs! We're seeking 🇨🇦 healthcare professionals (nurses, PTs, OTs, SLPs, MDs, etc.) with stroke care experience. ✅ Age 18+ ✅ English-speaking 📩 Contact fenglerd@ualberta.ca to take part in our 20-min survey. #StrokeRecovery #HealthResearch

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AbSPORU @absporu.bsky.social · 20/06/2025

Interested in Participating? If you're a caregiver, your experiences and insights matter. Help us better understand what supports work best for caregivers like you.

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AbSPORU @absporu.bsky.social · 19/06/2025

Seeking for Representatives from the Primary Care Patient Experience Community. The project goal is to develop a core set of Patient-Reported Experience Measures (PREMs) that truly reflect the patient experience in primary care. Reposted as email was incorrect.

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AbSPORU @absporu.bsky.social · 16/06/2025

The Adolescent & Young Adult (AYA) Cancer Priority Setting Partnership brought together patients, caregivers, clinicians, and community organizations from across Canada to establish the Top 10 research priorities for AYA cancer. youtu.be/l23OQL-QI2M?... via @YouTube

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Top 10 Research Priorities for Adolescent and Young Adult Cancer

YouTube video by The Thrive Lab

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AbSPORU @absporu.bsky.social · 16/06/2025

We are looking to recruit older adults (≥65 years) that have been diagnosed with cancer at any point in their lifetime. If that sounds like you, we would love to have you help us identify priorities related to sedentary behaviour.

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AbSPORU @absporu.bsky.social · 16/06/2025

We are looking to recruit caregivers of older adults (≥65 years) that have been diagnosed with cancer at any point in their lifetime. If that sounds like you, we would love to have you help us identify priorities related to sedentary behaviour.

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AbSPORU @absporu.bsky.social · 13/06/2025

Have you been a family caregiver for a patient in the ICU? After they were discharged from the hospital, did you receive any support to help care for them? Join our study and help us understand what support is needed to take part in health research.

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AbSPORU @absporu.bsky.social · 10/06/2025

AbSPORU Patient Engagement team Journal Club for June is: Engaging people with lived experience of dementia in research meetings and events: insights from multiple perspectives. Such an important topic! shorturl.at/TMm2t

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AbSPORU @absporu.bsky.social · 03/06/2025

Join our study and help us understand what support is needed to take part in health research.

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AbSPORU @absporu.bsky.social · 08/05/2025

Want to share your experiences regarding mental health/substance use challenges? Join our study and be part of making changes in this area of health!

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AbSPORU @absporu.bsky.social · 25/04/2025

Still hoping to attend our 10th Annual Northwest SPOR Collaborative Forum in Calgary, AB from May 12 - 14, 2025? A few tickets have been released! They will go quick! tinyurl.com/2025-CF-Tick... This year’s theme is: ABSPOR & YOU: Partnership. Innovation. Impact.

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AbSPORU @absporu.bsky.social · 22/04/2025

Still time to register for the April Patient Engagement Journal Club! Topic is: 'Sharing Pediatric Trial Results With Youth and Families: From Why to How'. Study results are not always shared after trials, learn more about this. Register: shorturl.at/dLBHS

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AbSPORU @absporu.bsky.social · 15/04/2025

Engaging patients as research partners is fundamental to patient-oriented research. The Patient Engagement in Patient-Oriented Research Certificate course introduces key concepts, methods, & strategies for engaging patients as partners. Reg here: shorturl.at/t5aje

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AbSPORU @absporu.bsky.social · 08/04/2025

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AbSPORU @absporu.bsky.social · 07/04/2025

Your voice can help improve care for future patients. Are you a former ICU female patient, discharged in the past 5 years? We want to talk to you to provide better support for women w/critical illness experiences. Must be 18+ to participate.

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AbSPORU @absporu.bsky.social · 07/04/2025

AbSPORU April Patient Engagement Journal Club topic is: 'Sharing Pediatric Trial Results With Youth and Families: From Why to How'. Study results are not always shared after trials, learn more about this. Register: shorturl.at/dLBHS

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AbSPORU @absporu.bsky.social · 03/04/2025

Caregiving at home during end-of-life is tough. Our team, including bereaved caregivers, explores ways to better support them. Join our Café Klatsch to hear how lived experiences shaped our research, the challenges of caregiver-led work. shorturl.at/szjJW

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AbSPORU @absporu.bsky.social · 02/04/2025

Join us on Monday, May 12 for a FREE, 1/2 day Masterclass on Brain Story & Resilience Scale Framework hosted by Palix Foundation & Alberta Family Wellness Initiative. Select as a pre-conference add-on during registration: shorturl.at/YenOG

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2025 Northwest SPOR Collaborative Forum

The 2025 Northwest SPOR Collaborative Forum brings together professionals, students, patients and more to discuss patient-oriented research.

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AbSPORU @absporu.bsky.social · 02/04/2025

🥳 Celebrating 10 years of impact! Join us for our 10th Annual Northwest SPOR Collaborative Forum in Calgary, AB from May 12 - 14, 2025. 🎫 Tickets on sale now! tinyurl.com/2025-CF-Tick... This year’s theme is: ABSPOR & YOU: Partnership. Innovation. Impact.

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2025 Northwest SPOR Collaborative Forum

The 2025 Northwest SPOR Collaborative Forum brings together professionals, students, patients and more to discuss patient-oriented research.

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AbSPORU @absporu.bsky.social · 27/03/2025

Excited to recruit individuals with lived experience in perinatal brain injury (fetal diagnosis, CP, HIE, etc.). Seeking 5-10 diverse members. Interested? Contact Dr. Mary Dunbar: pblab@ucalgary.ca

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AbSPORU @absporu.bsky.social · 27/03/2025

Two of our AbSPORU Patient Engagement members are authors on this paper. We've been supporting this research team to advance our knowledge of equity & wellness in people with advanced cancer from racialized communities in Canada www.frontiersin.org/journals/onc...

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Frontiers | Improving equity and wellness in cancer care with people of Latin American and African Descent: a study protocol

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AbSPORU @absporu.bsky.social · 27/03/2025

Join the Alberta Strategy for Patient-Oriented Research SUPPORT Unit (AbSPORU) in celebrating 10 years of impact at their annual conference on patient-oriented research. 🗓️ When: May 12 - 14, 2025 📍 Where: Calgary, Alberta 🏨 Venue: BMO Centre 💭 Theme: AbSPOR & YOU: Partnership. Innovation. Impact.

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