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Lydia Makaroff

@makaroff.bsky.social
599 followers 1.3K following 53 posts

📍Cambridge, UK | she/her | Chief Executive, Multiple Sclerosis International Federation. Patient advocacy, non-profit leadership, healthcare policy, & public health 🌍. Enjoys Mars rovers 🚀, bookcrossing 📚, & birdwatching 🦜.

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Lydia Makaroff @makaroff.bsky.social · 28/04/2025
Got an exercise bike gathering dust? 🚴‍♀️ I’m riding 50km in May with the Indoor Pedallers to support MS research. Every kilometre counts. No pressure. Join us here: www.themay50k.com/fundraisers/... #TheMay50K #IndoorCycling
A black and red exercise bike in a shed
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Lydia Makaroff @makaroff.bsky.social · 17/04/2025
A real pleasure to meet @rohangreenland.bsky.social in London this morning, fresh off the plane from Oz 🦘. Grateful to have him on the Board of the #MultipleSclerosis International Federation as we chatted about challenges & solutions over breakfast ☕ 🌏 #MSCommunity #MSAwareness
Lydia Makaroff and Rohan Greenland smiling in the sunshine after breakfast in London. Lydia is wearing a black jacket and Australian patterned scarf; Rohan is in a brown jacket and sunglasses on his head. Urban buildings and a clear blue sky form the backdrop.
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Lydia Makaroff @makaroff.bsky.social · 05/03/2025
WELCOME TO #TheMay50K! I put on my red t-shirt for the first time, and we had our first team training day in London! Roll, walk or run 50K this May to support people living with #MultipleSclerosis 💙 themay50k.com
A group of seven people wearing bright red “The May 50K” t-shirts pose for a selfie in a park on a sunny day. They are smiling and looking at the camera, with trees, grass, and a few buildings in the background.
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Lydia Makaroff @makaroff.bsky.social · 28/02/2025
I deleted my #Twitter today. 😢😡 Joined in 2008 as user #14,857,473, back when @Replies was new, #FailWhale was frequent, #iPhone3G was launched, & #ThisWeekInTech was my go-to podcast. Grateful for my 5,598 followers, but it's time. Used helloquittex.com to find friends on Bluesky. #GoodBye 👋
Deactivated. Your account is deactivated. Sorry to see you go. #GoodBye
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Lydia Makaroff @makaroff.bsky.social · 28/02/2025
Trying out a Recumbent Cross Trainer, which helps people with #MultipleSclerosis stay active with low-impact exercise. It’s designed to improve strength, balance, & health. The Italian MS Society is publishing important research on the best rehab approaches. Grateful to learn from them! #MSRehab
Lydia using seated bike
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Lydia Makaroff @makaroff.bsky.social · 25/02/2025
The Italian MS Society’s #SentiComeMiSento workshops help us all understand invisible MS symptoms. Tools include TENS machines for tremors, scratched glasses for optic neuritis, gloves for sensory loss, and weights for fatigue. These simulations build awareness of MS challenges. #MSAwareness
Lydia with a TENS machine on her arm and a pen in her hand.
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Lydia Makaroff @makaroff.bsky.social · 24/02/2025
👟 Visiting the Associazione Italiana Sclerosi Multipla (Italian MS Society) today, I was able to hold a pair of The SMeakers - sneakers that share the words of Cristina, Federico, and Rachele, who all live with MS. “Movement is life, even when it takes unexpected paths.” 💙 #MSAwareness
A pair of white sneakers with black calligraphy-style writing on them sit on a white shelf. The shoes feature handwritten messages in Italian about movement, life, and multiple sclerosis. Behind them, a golden and white award plaque reads “Excellence in Life Science 2022 – Best Patient Advocacy Program.”
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Lydia Makaroff @makaroff.bsky.social · 11/02/2025
I am looking for online interactive workshops on communication, collaboration, or connection - any recommendations? I learn best in live sessions, not pre-recorded modules. #Workshops #InteractiveLearning #Communication #Collaboration #LiveWorkshops #SkillBuilding #OnlineLearning
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Pilar Garcia-Vello @pilargvello.bsky.social · 10/02/2025
🚨 Love science, advanced data analysis, and making a real impact? 🚨 We're hiring! 📊🌍 My team is looking for a 𝗥𝗲𝘀𝗲𝗮𝗿𝗰𝗵 𝗔𝗱𝘃𝗶𝘀𝗼𝗿 and an 𝗘𝗽𝗶𝗱𝗲𝗺𝗶𝗼𝗹𝗼𝗴𝘆 𝗔𝗱𝘃𝗶𝘀𝗼𝗿 Join us! msf.lu/en/oradvisor... msf.lu/en/conseille... @msf.ca @amrishbaidjoe.bsky.social #medsky #episky #aidsky #idsky
msf.lu
Operational Research Advisor (f,m,x) — Association d'aide médicale humanitaire — Médecins Sans Frontières Luxembourg
A one-year contract with the possibility of extension Based in Luxembourg
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Lydia Makaroff @makaroff.bsky.social · 10/02/2025
Thinking about #PaidAds today. 🤔 Looking to reach the broader #MultipleSclerosis community. Which platforms should I focus on? 📢💙 #LinkedIn, #Instagram, #Facebook, #YouTube, #Reddit, #GoogleAds, #Nextdoor, #PatientsLikeMe… Any others I should consider? Drop your thoughts! ⬇️ #MSCommunity #Advertising
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Lydia Makaroff @makaroff.bsky.social · 09/02/2025
Flashback to when we met this magnificent great horned owl in Vancouver Canada in 2007. #superbowl
Photo of a great horned owl against green trees
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Lydia Makaroff @makaroff.bsky.social · 09/02/2025
Sunday reset. ☁️📂🌿 The sky is grey, but it is decent weather for #decluttering 🧹, #filing 📁, and #weeding 🌱 - clearing out the old to make space for the new. A slow, quiet reset before the week begins. How do you reset? ✨ #SundayVibes
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Lydia Makaroff @makaroff.bsky.social · 08/02/2025
I'm off to the #RaspberryPi store today to begin the next phase of my #SmartHome adventure. Attempting to link up #GoogleNest accessories with #AppleHome. I'm feeling a little intimidated, so I'm glad I have friends on call and the internet at my fingertips. Like all things, one step at a time 🤓
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Lydia Makaroff @makaroff.bsky.social · 07/02/2025
#FridayThoughts 💅 What should my next #manicure be? 🌍What are my goals as a new Chief Executive working in #GlobalHealth? ☕ Do I need #coffee? 💙 What does it mean to represent the #MultipleSclerosis movement when I am not living with the disease? 🧊Will I ever manage to solve a #RubiksCube on my own?
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Lydia Makaroff @makaroff.bsky.social · 06/02/2025
Watching Season 2 of #Severance, I wonder if embodying my “innie” from 9 to 5 and my “outie” from 5 to 9 would improve balance. Right now, it’s just a work to-do list by day and a home to-do list by night. What would it feel like to truly switch between these parts of myself?
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Lydia Makaroff @makaroff.bsky.social · 05/02/2025
My rule-loving brain wants to pinpoint the exact moment Winter becomes Spring ❄️➡️🌱 Is it when snowdrops bloom? When frost melts? When elder trees bud? But the soft animal part of me knows that seasons blur & blend, one unfolding into the next. No sharp edges, just change in its own time ✨ #Liminality
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Lydia Makaroff @makaroff.bsky.social · 04/02/2025
I’m new to the #MultipleSclerosis community and eager to learn! 💜🧠 ✨💡 If you are #LivingWithMS - what do you wish people without MS understood? 🔬💬 If you work in #MS advocacy, research, or support - what do you wish you had known when you first started?
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Snowfloe @snowfloe.bsky.social · 08/08/2024
Thank you. Right, this is the link you need to give people to access the feed, or they can search the feeds for it. Remembering it HAS to be case sensitive to weed out as much non relevant stuff as possible, so use #MSWeekend #MSFriday or #MS exactly as written here. Any feed issues let me know.
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Lydia Makaroff @makaroff.bsky.social · 02/02/2025
Winter gnats (Trichocera annulata) have a lifecycle evolved for the cold. Adults males dance in winter to woo females who then lay eggs in damp soil. By spring, larvae hatch & feed on decaying matter, then pupate & metamorphose through autumn, then emerge in the next winter #BugLife #CambridgeUK
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Cambridge City Council @camcitco.bsky.social · 09/01/2025
↘️ Our Planning Committee met yesterday to consider a number of planning applications for #Cambridge. Read our update for a quick summary of applications and decisions made by the Committee. www.cambridge.gov.uk/news/2025/01...
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Lydia Makaroff @makaroff.bsky.social · 31/01/2025
A splash of gold in the chill 🌼 Winter aconites (Eranthis hyemalis) are blooming in our garden. One of the first flowers each year, they are native to Southern France & Italy, and provide early nectar for waking pollinators 🌱✨🐝 #WinterAconite #PollinatorFriendly #NatureInWinter #WinterBlooms
A close-up of bright yellow winter aconite flowers (Eranthis hyemalis) blooming in a damp garden setting. Their green leaves glisten with dewdrops, contrasting against the dark wet soil and fallen leaves.
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Jennifer Vandooren @jennvandooren.bsky.social · 29/01/2025
Honoured to receive funding from the Charcot Foundation for our research on #proteolysis by myelin-challenged #macrophages in #MultipleSclerosis! 👉 www.fondation-charcot.org/en/winners/2... Excited to advance our #Research and looking forward to the discoveries ahead! 🔬🤩 #WomenInSTEM #ImmunoSky
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The Bridport Prize @bridportprize.bsky.social · 28/01/2025
NEW Dorset Writing Residencies! 📝 For 2 UK writers based in The Midlands or North West who are working class and/or 60+ 📝 Sun 22 June to Frid 27 June 📝 Supported by Kit de Waal, our honorary patron 📝 Apply at bridportprize.org.uk/news/residencies-2025/ 📝 Application deadline 23:59pm 28 February
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Charlotte Houldcroft @virologyhouldcroft.bsky.social · 26/01/2025
www.kings.cam.ac.uk/about/work-a... Upcoming fellowship, covers co-evolution - could be between species or between organisms and their pathogens... Deadline 3rd Feb.
kings.cam.ac.uk
The Roger Evans and Aey Phanachet Stipendiary Research Fellowship: Symbiosis and/or Co-Evolution
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Lydia Makaroff @makaroff.bsky.social · 25/01/2025
Obsessed with my new Mars Rover manicure! 💫 Now I’ve got space robots on my fingertips! 🤖 Johanna’s talent is out of this world 💅 check out her work: www.instagram.com/johanna4nails/ #MarsRover #NailArt #SpaceExploration #OutOfThisWorld #NailInspo #NailAddict #ArtOnNails #CustomNails
A close-up of a left hand with nail art inspired by Mars, featuring a glittery copper accent nail, nails with a Mars landscape design, and one nail depicting a Mars rover. The colour palette includes warm, earthy tones such as rusty red, burnt orange, and soft terracotta for the landscape, with a bright white background framing the rover illustration. The hand is wearing a grey knit sleeve and is held against a natural outdoor background.A close-up of a right hand with nail art inspired by Mars, featuring a glittery copper accent nail, nails with a Mars landscape design, and one nail depicting a Mars rover. The colour palette includes warm, earthy tones such as rusty red, burnt orange, and soft terracotta for the landscape, with a bright white background framing the rover illustration. The hand is wearing a grey knit sleeve and is held against a natural outdoor background.
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Adrian Liston @labliston.bsky.social · 03/01/2025
Building career opportunities in your PhD by @makaroff.bsky.social onlinelibrary.wiley.com/doi/10.1111/...
onlinelibrary.wiley.com
<em>Immunology & Cell Biology</em> | ASI Journal | Wiley Online Library
PhD training is incredibly versatile, with the possibility of leading to a myriad of downstream careers. However, it is often only in retrospect that the options and optimal strategies behind your ca....
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Lydia Makaroff @makaroff.bsky.social · 19/11/2024
Join the International Progressive MS Alliance panel of experts, Dr. Jeremy Chataway, Dr. Burhan Chaudry, and Dr. Patrick Vermersch, as they share insights from their recent trials. 🔬✨ Sign up for the #progressiveMS webcast on 11 Dec here 👉 msintfederation.org/4eoC9mN I hope to see you there!
msintfederation.org
Global webcast: what we are learning from clinical trials - MS International Federation
Global webcast: what we are learning from clinical trials
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Lydia Makaroff @makaroff.bsky.social · 29/09/2024
Bluesky now has over 10 million users, and I was #251,163.
A virtual certificate with text "Celebrating 10M users on Bluesky, #251,163, Lydia Makaroff ‪@makaroff.bsky.social‬, joined on Jul 5, 2023"
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Lydia Makaroff @makaroff.bsky.social · 17/08/2023
I'm not sure who I love more: Irrepressible Thoughts of Death Barbie, or Weird Barbie handing out Birkenstocks.
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jen @censoredpixel.bsky.social · 05/07/2023
happy uk taylor swift presale lottery scramble to all who celebrate
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chris @tallghost.bsky.social · 04/07/2023
Softly press an open hand against the lichen to download the latest software update.
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Lydia Makaroff @makaroff.bsky.social · 05/07/2023
Skeet images of four of your favourite characters and let people assume things about you.
Scarlet O’HaraWillow and Buffy the Vampire Slayer
Kipo and the age of the Wonderbeasts Adora of She-Ra
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Lydia Makaroff @makaroff.bsky.social · 05/07/2023
I am trying to explain to my cat that she is lactose intolerant and cannot eat cheese.
Cat asking for cheese sandwich
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Lydia Makaroff @makaroff.bsky.social · 05/07/2023
Reflecting on the Fight Bladder Cancer Meeting at #GMB23 Congress. Grateful to have shared the stage with people like Dorothy. We addressed bladder cancer at work and discussed crucial steps towards awareness & support. fightbladdercancer.co.uk/blog/fight…
4 people at the Fight Bladder Cancer booth
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Matt Bothwell @mattbothwell.com · 04/07/2023
This is the 36-inch telescope at the Institute of Astronomy, Cambridge. It's one of the biggest optical telescopes in the UK (as well as the place that the spectroscopic technique used to find exoplanets was first developed). We're going to try to refurbish it and make it accessible to the public!🧪
A large, old, cobwebby telescope in a wooden dome. A large, old, cobwebby telescope in a wooden dome.
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