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Patient Information Forum @pifonline.bsky.social · 07/09/2026

🌟@macularsociety.org has been re-certified with the PIF TICK. The PIF TICK is the only independently assessed trust mark for health information. It means health information is: - Evidence-based - Easy to understand. Want to get PIF TICK certified? Find out more: pifonline.org.uk/pif-tick/how...

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Macular Society @macularsociety.org · 24/06/2026

At a regular eye test Sue told she had macular degeneration in both eyes and from that moment she could no longer drive. “It was like a kick in the teeth," she said. She was fearful for her future but is learning to adapt and remains hopeful for a cure. www.macularsociety.org/about/media/...

macularsociety.org

“I felt this grief that I wouldn’t have my independence anymore" | News

Sue started noticing changes in her vision in her late 30s and 40s. At a regular eye test in 2023 she was given the devastating news that she had macular degeneration in both eyes and could no longer ...

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Macular Society @macularsociety.org · 14/05/2026

For #MentalHealthAwarenessWeek, Macular Society counsellor Suzanne shares her top tips for looking after our emotional well-being while living with a sight loss condition. Read here: www.macularsociety.org/about/media/...

Macular Society counsellor Suzanne, with blonde hair and a blue shirt, smiling as she looks off to the left. Black text in a yellow box reads: Hashtag, Mental Health Awareness Week.

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Macular Society @macularsociety.org · 12/05/2026

How can you #TakeAction for looking after your mental health while living with macular disease? From communication to learning, Macular Society volunteer Regan shares her best advice. #MentalHealthAwarenessWeek

Macular Society volunteer Regan with white hair, glasses, a red beaded necklace and white and navy striped top smiling while watering her houseplant. Her take action advice reads: Talk about your diagnosis, reach out for support, learn about your condition, join a support group. Hashtag Mental Health Awareness Week.

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Macular Society @macularsociety.org · 08/05/2026

Meet Paul, who aged 74 and with declining vision continues to be a proud international padel player for Wales. Paul says staying positive has kept his passion for the sport - a mix tennis and squash - alive, as well as sharing his enjoyment with others. www.macularsociety.org/about/media/...

Padel player Paul wearing his red Wales t-shirt ahead of a tournament in 2025.

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Macular Society @macularsociety.org · 22/04/2026

How can an eye clinic liaison officer (ECLO) help you? We recently caught up with Moorfields Eye Hospital ECLO Mary Bortolussi, who explains more about the important role she plays in supporting people with sight loss. www.macularsociety.org/about/media/...

Moorfield Eye Hospital ECLO Mary Bortollusi

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Daphne Jackson Trust @daphnejacksontr.bsky.social · 03/03/2026

There is still time to apply! Do you know someone who needs support returning to macular disease research? The @macularsociety.org are funding a flexible Daphne Jackson Fellowship to be held at any UK university or research institute. #ResearchReturner

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Macular Society @macularsociety.org · 12/02/2026

What is it really like to participate in a clinical trial? In our newest episode of the My Macular and Me podcast, Caroline shares her firsthand experience of taking part in macular disease research, discussing how she got involved and the impact it has had on her. Listen now: bit.ly/4bwKWoY

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Reposted by Macular Society

Daphne Jackson Trust @daphnejacksontr.bsky.social · 05/02/2026

Do you know someone who needs support returning to research? @macularsociety.org are funding a Daphne Jackson Fellowship to be held at any UK university or research institute. Please share with your network to get one more #ResearchReturner back to their career. daphnejackson.org/fellowship/m...

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Macular Society @macularsociety.org · 09/01/2026

Being diagnosed with macular disease can raise a lot of questions and fears about the future. In our latest podcast episode, Kevin from the Macular Society helpline talks us through what to expect, how to adapt, and the practical support available. Listen now: bit.ly/3YqDcNH

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Macular Society @macularsociety.org · 24/12/2025

Merry Christmas and Happy New Year from all of us at the Macular Society. Our helpline is open until 5pm today, then 9am-5pm on 29th - 31st. We will be resuming normal service on Friday 2 January. Email us at help@macularsociety.org or call 0300 3030 111.

Image shows a family greeting on Christmas. A grandad enters the house to hug his daughter and grandchild. Everyone is smiling and there are Christmas decorations around the room.

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Macular Society @macularsociety.org · 12/12/2025

How will the autumn budget impact those living with macular disease? Our latest episode of Bitesize Benefits unpacks key welfare updates and what they could mean for the sight loss community. Listen to the podcast now: bit.ly/4iM0DKB

Text: Bitesize Benefits, Autumn Budget, Listen Now. Image shows cartoon pictures of pound coins and a microphone in a speech bubble

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RNIB Campaigns @rnibcampaigns.bsky.social · 02/12/2025

Proud to join #WestminsterEyeHealthDay, funded by Roche Products Ltd. The event brought together MPs, Peers, and sector leaders to champion eye health and launch a new report. We're working with #TheEyesHaveIt & @marshadecordova.bsky.social a to back action to improve eye care.

Three men holding a placard in front of a fancy white drape. Left to right is Lord Taylor of Holbeach, Mike from RNIB, and Greg from Royal College of Ophthalmology. The placard reads "I'm calling for action to prevent avoidable sight loss and better support people living with eye health conditions".

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Macular Society @macularsociety.org · 17/11/2025

Revolutionary new implant has enabled patients with dry AMD to read again. Mahi Muqit joins our webinar tomorrow at 7pm to discuss the groundbreaking PRIMA system trial results. Register to learn what this means for the future of treatment: bit.ly/4i4G1gk

Text: Revolutionary new implant for dry age-related macular degeneration with Mr Mahi Muqit. My Macular and Me webinar. Tuesday 18 November, 7pm. Image of research participant using the PRIMA system glasses.

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Macular Society @macularsociety.org · 12/11/2025

After losing his vision to age-related macular degeneration (AMD), Brian struggled with everyday tasks, but he refused to give up. He discovered a number of simple adaptations at home that boosted his confidence and helped him maintain his independence. Read Brian's story: bit.ly/479mwhz

Brian is an older white gentleman with short brown hair. He is wearing glasses with grey frames and a rugby top.

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Macular Society @macularsociety.org · 06/11/2025

What is diabetic macular oedema (DMO) and what treatments are available? Consultant ophthalmologist Samantha Da Silva joins our My Macular and Me podcast to discuss DMO including the symptoms to look out for, treatment options, and the latest developments in research. Listen now: bit.ly/4oseeJ4

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Macular Society @macularsociety.org · 24/10/2025

"The certificate can be a way of enabling access to further support that can often make a huge difference to people's quality of life." Professor Omar Mahroo discusses how registering as sight impaired can help people living with macular disease in our latest webinar: bit.ly/4753f22

A consultation between a doctor and a patient. They are looking at forms together at a desk with eye scans on the computer screen in the background.

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Macular Society @macularsociety.org · 21/10/2025

What are the benefits of registering as sight impaired? Join our My Macular and Me webinar tonight as Professor Omar Mahroo explores the process of certifying as visually impaired, the challenges patients and clinicians face, and how the system could be improved. Register now: bit.ly/47isPj0

Text: What are the benefits of registering as sight impaired? With professor Omar Mahroo. My Macular and Me webinar tonight, 7pm. Image is of Professor Mahroo sat on a panel. He has dark hair and a beard and is wearing glasses and a grey suit jacket.

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Macular Society @macularsociety.org · 20/10/2025

What is the new implant helping people to see? When will it become available? Here's all you need to know about the revolutionary eye implant which has enabled people with dry AMD to read again. www.macularsociety.org/about/media/...

A woman wearing a face covering uses a screwdriver to tighten a screw as she fits together a pair of the black PRIMA System glasses.

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Macular Society @macularsociety.org · 20/10/2025

A revolutionary new implant has restored some vision to patients with dry age-related macular degeneration (AMD), enabling them to read words and numbers, boosting hopes of a breakthrough treatment. Read more: www.macularsociety.org/about/media/...

The PRIMA System black glasses being fitted. Yellow text in a black box reads: A new era for artificial vision - implant offers hope for dry AMD treatment.

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Macular Society @macularsociety.org · 15/10/2025

Maddy initially resisted using her white cane, but she now won't leave the house without it. It has become an extension of herself, helping drivers see her at crossings and giving her the confidence to ask strangers for assistance #WhiteCaneAwarenessDay

Text: "You don#t normally think that something so simple would make a difference, but the cane is now an extension of me." White Cane Awareness Day. Image is of Maddy, standing with her arms crossed against a wall. She is a younger woman with shoulder length brown hair. She is smiling and is wearing a dark blue cardigan with a floral pattern on one side.

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Macular Society @macularsociety.org · 15/10/2025

Do you use a white cane? For Rita, her cane has helped her overcome her embarrassment about losing her sight and to communicate her sight loss to others. Like many, she struggled to accept the changes in her vision, but her confidence has grown as a result of using her cane #WhiteCaneAwarenessDay

Text: "It's getting over the fear and the isolation. People are very kind to you. I found that with my stick, I don't have to explain anymore." White Cane Awareness Day. The photo is of Rita, an older woman with a short grey bob hairstyle. She is smiling and wearing glasses, a white turtleneck long sleeve top and a black tartan dress

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NHS Grampian @nhsgrampian.bsky.social · 09/10/2025

#WorldSightDay 👀 If you’re experiencing eye problems such as a red or sticky eye, blurred vision, or flashes and floaters, please get in touch with your optometrist, who will be able to assist you. www.NHSInform.scot/optometry

media.tenor.com

a close up of a person 's eye with netflix written in the corner

ALT: a close up of a person 's eye with netflix written in the corner

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Macular Society @macularsociety.org · 09/10/2025

Today is World Sight Day - a reminder of the importance of accessible and affordable eyecare for everyone, everywhere. Join the global call to action: #LoveYourEyes - book a sight test, encourage others to do the same. Your vision matters. #WorldSightDay

$An elderly woman with white hair and white collared shirt stares into an autorefractor machine as part of her eye test. Text inside a yellow box reads: World Sight Day 2025.$

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Macular Society @macularsociety.org · 06/10/2025

Thinking about joining a clinical trial but not sure where to start? Our research team answers all your questions in the latest episode of the My Macular and Me podcast: mymacularandme.buzzsprout.com/2135855/epis...

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Macular Society @macularsociety.org · 01/10/2025

“If I can help somebody with macular disease, then that’s my legacy”. Six years after being diagnosed with central vein retinal occlusion and wet age-related macular degeneration, Chris leads a local support group. Volunteering has given him confidence and a sense of community: bit.ly/47huOps

Photo of Chris. An older gentleman smiling at the camera. He is wearing black rimmed glasses, a green plaid shirt and a dark blue jumper

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Macular Society @macularsociety.org · 26/09/2025

Taking care of your eyes becomes even more important as we age. From UV protection to nutrition, there are multiple ways to maintain good eye health and reduce your risk of conditions such as macular degeneration. Learn more about looking after your eye health: bit.ly/3IG2YsP #NationalEyeHealthWeek

Text: National Eye Health Week, Protecting our eyes from sunlight. Protecting your eyes from glare and ultraviolet light is important all year round. Make sure to choose sunglasses with proper UV filters, those marked UV 400 should block 100% of UV. Image in background of two people smiling and wearing sunglasses.

Text: National Eye Health Week. Smoking and sight loss. Research shows that smoking significantly increases the risk of developing age-related macular degeneration (AMD).

Current smokers face up to four times the risk compared to non-smokers, and smoking can accelerate AMD progression and reduce the effectiveness of treatment. Image in background of a no smoking sign.

Text: National Eye Health Week, Eating for our eyes. A balanced diet rich in antioxidants helps to protect against eye damage. Dark leafy greens, brightly coloured vegetables, nuts, seeds, and oily fish are all excellent sources of eye protective vitamins and minerals.

Text: National Eye Health Week. Looking out for changes in our eyesight. Macular degeneration symptoms may develop slowly, especially if it’s only in one eye. It’s important to monitor your vision carefully and schedule an appointment with your optician if you notice any changes in your vision. Image in background of an optician looking into an elderly gentleman's eyes.

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Reposted by Macular Society

RNIB @rnib.bsky.social · 22/09/2025

Since it’s National Eye Health Week, it’s a good time to remind you to book an eye test if you’re due one 🗓 Regular eye tests are an important health check for your eyes, even if you have no problems with your vision and don't need glasses. Have you booked yours?

“It’s recommended to have an eye test at least every two years”. A yellow graphic with black text. Below is an image of a calendar with ‘Eye test!’ circled on 25 September.

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Macular Society @macularsociety.org · 25/09/2025

Being diagnosed with macular disease can feel daunting, especially if you’re worried about how it might affect your job. But with the right support and adjustments, most people can stay in work. Learn more about your rights and workplace support: bit.ly/42qaoaa #NationalEyeHealthWeek

Text: Sight loss and employment. National Eye Health Week. Image: A young woman sat with a laptop on her lap.

Text: National Eye Health Week. Keeping your job after diagnosis. As an employee, you are protected under the Equality Act 2010, so your employer has a duty of care to all their employees, and is expected to support anyone who reports a change in their health. Image in background is of two men talking to each other in the workplace.

Text: National Eye Health Week. Keeping your job after diagnosis. With some minor changes to the way people carry out their job, the majority can remain employed. When a person's sight loss stats to affect their work, it is important that they report this to their employer. Image in background is of two employees having a discussion.

Text: National Eye Health Week. Disclosing your sight loss at work. Depending on the nature of your job, changes can be made to the way people work so they are able to keep their job. Some of these changes are: Flexible working, re-deployment into another role within the company, and/ or reasonable adjustments within the workplace. Image in the background is of a woman using an iPad at her work desk.

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Macular Society @macularsociety.org · 24/09/2025

How can you make the most out of your optician appointments? Regular checks can spot changes in the macula even before you notice them. Listen to our podcast to find out key questions to ask your optician how to prepare for your next visit: bit.ly/4m7cx1B #NationalEyeHealthWeek

Text: How can I make the most out of my optician appointments? National Eye Health Week. Image in background is of optician equipment

Text: How often should I have an eye test? Everyone should have an eye test carried out by an optometrist every two years to check the health of their eyes. Changes to your macula can be discovered, even if you are not aware of them. National Eye Health Week. Image in background is of glasses held up against a Snellen chart.

Text: What questions shall I ask my optician? There are no silly questions when it comes to eye health, and it may be that you need more clarification about your macular disease condition. So ask as many questions as you feel you need to. National Eye Health Week. Image in background is of an optician doing an OCT scan on an older lady.

Text is: Will my optometrist diagnose macular disease? While an optometrist will perform an eye exam, they will refer you to your hospital's eye clinic for further tests and a diagnosis if they spot anything of concern. National Eye Health Week. Image in background is of a lady having her eyes tested, a close up look at the equipment and her face.

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Suffolk Sight @suffolksight.bsky.social · 23/09/2025

Routine sight tests are vital health checks for all. They can spot signs of eye disease years before you notice a change in your vision & detect a range of common health conditions, including Diabetes, Hypertension & Heart Disease. Find out more: www.nhs.uk/nhs-services... #NationalEyeHealthWeek

Image shows a woman having an eye health check - the wording says " Sight tests are essential health checks"

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Macular Society @macularsociety.org · 11/09/2025

Clinical trials play a vital role in trialling the development of new treatments for conditions such as age-related macular degeneration and diabetic macular oedema. But how do they work and why is participation important? Find out more: bit.ly/4myCxE2

a syringe going into a vial with a clear liquid in

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Macular Society @macularsociety.org · 22/08/2025

What are the chances of inheriting macular disease? Genetic counsellor Elena Schiff, from Moorfields Eye Hospital, joins our webinar to take a closer look at inherited macular conditions, what they are, how they’re passed on, and the different genetic tests available. Watch now: bit.ly/479vRYs

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Macular Society @macularsociety.org · 22/08/2025

In the latest episode of Bitesize Benefits, we explore the government’s latest welfare reforms and what they mean for people living with macular disease. We look at proposed changes to PIP, Universal Credit and Access to Work, and how they could affect you. Listen now: bit.ly/3JofMnP

Text reads: Bitesize Benefits, Welfare Update, Listen now. Imagery is a yellow background with pound coins and a speech bubble with a microphone

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Macular Society @macularsociety.org · 19/08/2025

What is genetic counselling and how can it help you? Elena Schiff, a genetic counsellor at @moorfields.bsky.social , joins our My Macular and Me webinar tonight at 7pm to explain her role, the different genetic tests available, and what the results might mean. Register now: bit.ly/4kE5qwQ

Text: Genetic counselling for macular disease with Elena Schiff, from Moorfields Eye Hospital. My Macular and Me webinar, tonight, 7pm. Elena is on the right hand side. She is a white woman with long dark brown hair and she has round dark glasses. She is smiling.

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Macular Society @macularsociety.org · 08/08/2025

Kelly, a mum of three, shares her journey of parenting with sight loss in our latest My Macular and Me podcast episode. Living with Best disease, she reflects on the challenges and the surprising positives. Listen now: mymacularandme.buzzsprout.com/2135855/epis...

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Macular Society @macularsociety.org · 17/07/2025

Have you been involved in a clinical trial? Find out more about how they work in our latest webinar. We discuss why they matter and how researchers are working to include patients at al stages of AMD in their studies. Catch up below: bit.ly/4eRoVAQ

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Macular Society @macularsociety.org · 15/07/2025

Geraldine Hoad and Sarah Clinton from the Macular Society research team join this evening’s webinar to explore what clinical trials are, why they matter and how you can get involved. Join us tonight at 7pm. Register here: bit.ly/4kE5qwQ

Text: Exploring clinical trials with Geraldine Hoad and Sarah Clinton. My Macular and Me webinar tonight, 7pm. Image on right of Geraldine, white woman with long light blonde hair, and Sarah, white woman with long dark brown hair.

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Macular Society @macularsociety.org · 11/07/2025

Tributes have been paid to one of the world’s top eye researchers, Professor Pete Coffey, who has sadly passed away. His groundbreaking research brought hope to millions affected by age-related macular degeneration, and will continue to positively shape the future of eye health: bit.ly/40G3ywu

Professor Pete Coffey is stood in a lab, smiling. He is a white man with short dark grey hair and a short grey beard. He is wearing a brown blazer and a white shirt.

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Macular Society @macularsociety.org · 09/07/2025

We’re incredibly grateful to Danny and everyone at Craven For Change FC whose recent charity match at Bradford City FC's Valley Parade raised £2,000 to #BeatMacularDisease. www.macularsociety.org/about/media/...

The yellow Macular Society fundraising t-shirt is held by two players on the Bradford City pitch.

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Macular Society @macularsociety.org · 27/06/2025

Could self-administered eye drops treat dry age-related macular degeneration (AMD)? Dr Lisa Hill of @unibirmingham.bsky.social explains her latest project. Your donations are helping us to Beat Macular Disease #MacularWeek2025 www.macularsociety.org/get-involved...

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Macular Society @macularsociety.org · 27/06/2025

A year after her devastating diagnosis of punctate inner choroidopathy (PIC), Anna reflects on how things have gradually gotten better and encourages others to hold on to hope. If you’re newly diagnosed or finding things difficult right now, you’re not alone. We’re here for you #MacularWeek2025

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Macular Society @macularsociety.org · 25/06/2025

"I used to cry in the shower - there was so much anger." Trevor shares his story for #MacularWeek2025, opening up about the impact of sight loss and how counselling helped him in his darkest moments. Read his story: bit.ly/4k8sfsn

Trevor is a white middle aged man, wearing glasses, smiling. He has short brown hair and a grey beard. He is wearing a rugby zip up jacket and holding a rugby ball.

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Macular Society @macularsociety.org · 24/06/2025

“It was just the thought of a needle in my eye, that was the worry. When I started them, they weren’t as bad as a I feared. That made me a bit cross with myself that I hadn’t taken the option beforehand with my right eye.” Keren is sharing her experience to raise awareness during #MacularWeek2025

Keren is a white woman in her 70s with short grey hair. She is smiling at the camera. Text reads: Keren. "It was just the thought of a needle in my eye, that was the worry. But I didn't want my left eye to go like my right eye. I thought if there was something that could be done, I wanted to do it. Losing two eyes will make life a lot more difficult."

Keren is a white woman in her 70s with short grey hair. She is smiling at the camera. Text reads: Keren. "But when I started them in my left eye they weren't as bad as I had feared. That made me a bit cross with myself to be honest, that I hadn't taken the option beforehand with my right eye."

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Macular Society @macularsociety.org · 23/06/2025

“Being told you’ll lose your sight is a shock and a massive traumatic event. It feels like a bereavement. I know that there are people every day getting the same diagnosis. I want to tell them it’s going to be ok.” Lynda shares her story to mark #MacularWeek2025 bit.ly/4lbXXpE

Lynda is a white woman in her 60s with short blonde hair, smiling and holding her husband's hand outside. Her husband is a white man in his 60s with white/ grey hair. The text across the centre reads 'Macular Week 2025'

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Association of Medical Research Charities @amrc-uk.bsky.social · 16/06/2025

Congratulations to all those recognised in the King's Birthday Honours List, including many across our sector👏 Delighted to see honours for Karen Addington, CEO @breakthrought1duk.bsky.social, Oliver Kemp, CEO @pcr-uk.bsky.social, & Cathy Yelf, previous AMRC trustee & former CEO @macularsociety.org

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Peter Bloomfield @psbloom.bsky.social · 03/06/2025

At @macularsociety.org we couldn't do what we do without a huge range of volunteers! Thank you to all of them for being incredible people #VolunteersWeek2025

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Macular Society @macularsociety.org · 20/05/2025

Reading can be slow, tiring, and less enjoyable for those with central vision loss. Join our webinar tonight at 7pm as Dr Dirk Seidel shares a new technique, Biomimetic Scrolling, designed to make reading easier and more comfortable for people with sight loss. Register here: bit.ly/3xtS57O

Text: helping people with sight loss read more easily with Dr Dirk Seidel. My Macular and Me webinar tonight, 7pm. Image of an eye on the right hand side, black and white but with a tracker over the eye, following eye movements

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