iiinova — where your digital self keeps evolving

Lydia Morsman @lydiamorsman.bsky.social · 13/09/2026

I thought my legs had doubled in size because I’d been happier and eating the cakes - but since being on new meds, they have un-puffed. Good news. Good for my vanity. not so sure about my kidneys. But at least I can see my ankles again. I missed them.

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Lydia Morsman @lydiamorsman.bsky.social · 13/09/2026

I may be a disabled vegetarian on a budget, but I love nothing more than a posh chick pea. I am a chick pea snob. Small, dry chick peas make me miserable. So does low fat humous.

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Lydia Morsman @lydiamorsman.bsky.social · 05/09/2026

I need to know if my adrenal glands are the reason I’ve been dragging myself through life on one brain cell. My husband’s read about 20 books in the time it’s taken me to write a single chapter of my novel.

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Lydia Morsman @lydiamorsman.bsky.social · 05/09/2026

2 years of hypokalemia and high blood pressure, pain and fatigue (more than the usual), hit rock bottom, pushed for more testing. My last test indicates primary hyperaldosteronism, a (hopefully) treatable condition. Waiting on a CT scan and endocrinology. Glad of progress, but if I’d not pushed…

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Reposted by Lydia Morsman

reni 🦌 @reniadeb.com · 24/07/2026

establish dominance at your next dinner party

screenshot from duolingo:

- translate this sentence
- ich esse alle kartoffeln
- i am eating all of the potatoes

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Lydia Morsman @lydiamorsman.bsky.social · 23/07/2026

Good news. I’m hypokalemia free for the first time in 20 months. And I got a distinction (utter shock) for advanced creative writing with The Open University. One more module to battle through, then this degree is done. What a week. #chronicillness #disabledstudent

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Lydia Morsman @lydiamorsman.bsky.social · 23/07/2026

Burnham seems to be buttering us up. I’m an expect the worst kinda disabled leftist. Waiting to find out when I’m being sent down the mines.

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Lydia Morsman @lydiamorsman.bsky.social · 15/07/2026

Taking comfort in not being the only overdressed person on this bus. It was chilly this morning, now it’s 700 degrees and we all look like twats in light knitwear and jeans.

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Lydia Morsman @lydiamorsman.bsky.social · 15/07/2026

Think my GP’s marked my 24 hour urine test as satisfactory when it’s not. Don’t wanna be that patient thinking she knows better (especially if I’m wrong) Anyone know if 110 mmol potassium in urine is high, in a patient with a long term average of 2.7 blood potassium? #hypokalemia #chronicillness

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Lydia Morsman @lydiamorsman.bsky.social · 26/06/2026

Today I opened my front door in the South of England and was instantly reminded of that time we disembarked a flight in Qatar.

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Lydia Morsman @lydiamorsman.bsky.social · 15/02/2026

I read a report on migraine that said food triggers might actually be cravings and it’s just part of the early phase. I’m not sure I believe this 100% I know saccharin is a trigger, I never crave it. But coffee sometimes helps, sometimes triggers… so maybe… 🤔 back to the food diary.

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Lydia Morsman @lydiamorsman.bsky.social · 15/02/2026

I get Botox for chronic migraine tomorrow and I’ve never been so excited to have so many injections in my head. How does it know how to run out after exactly 2 months, it’s like witchcraft. Or science, as my more logical friend put it. No, it’s witchcraft. #disability

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Lydia Morsman @lydiamorsman.bsky.social · 15/02/2026

Me: why can I only write decent scripts when I’m mentally ill? My husband: imagine being mentally ill and not being able to write decent scripts. Valid. #mentalhealth #creativewriting

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Lydia Morsman @lydiamorsman.bsky.social · 10/01/2026

I must have used 100,000 spoons trying to mindset myself out of chronic fatigue syndrome.

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Lydia Morsman @lydiamorsman.bsky.social · 10/01/2026

Post viral fatigue on top of CFS? Superflu sent my baseline through a trapdoor. Saw the asthma nurse yesterday, got a flu jab - too little too late. The one year I skipped it I got flu. Lesson learnt. I was doing better in the wheelchair, getting out, doing life… now I’m trying not to be bedbound

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Lydia Morsman @lydiamorsman.bsky.social · 25/12/2025

Merry Christmas and solidarity to all the vegetarians who are unwrapping vegan chocolate right now #strength 🫶🏻💪🏻

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Lydia Morsman @lydiamorsman.bsky.social · 22/12/2025

Had a bath. Destroyed me. I’m in pain. Need to wrap presents. Can’t. Need to get in bed. No energy. Take meds? Brush teeth? Nope. My heart rate will increase 40bpm when I drag myself up. Fatigue is not being tired. If I could make this go away now I would do anything. #fatigue #disability

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Lydia Morsman @lydiamorsman.bsky.social · 21/12/2025

Screenplay finished, just a 500 word reflection to write up, then my 2nd assignment shall be submitted - maybe then I can do Christmas… I think I’m over the worst of the flu. How is it Christmas? Where did the entire year go?

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Lydia Morsman @lydiamorsman.bsky.social · 16/12/2025

Got dressed and put makeup on today. Now sitting in a chair.

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Lydia Morsman @lydiamorsman.bsky.social · 16/12/2025

I was doing an English Lit and Creative Writing degree, but English Lit with chronic migraine isn’t the funnest… so I’ve switched to Arts & Humanities specialising in Creative Writing. I’ve already achieved a diploma in English Lit & CW - the hard work has paid off ✨#disabledstudent #openuniversity

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Lydia Morsman @lydiamorsman.bsky.social · 16/12/2025

Superflu is no fun. On the plus I got steroids for the asthma flare up and they’ve banished the chronic fatigue, so I can crack on my with screenplay/creative writing assignment… I’m going out for cake first 🍰 #disability #flu #asthma #mecfs #openuniversity

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Lydia Morsman @lydiamorsman.bsky.social · 04/11/2025

The Hangnail He said he’d climb my ladder right to the top rip off my tights with his teeth Well I’ve seen men do all sorts with their teeth but not that I’ll peel off my own tights thanks very much removing them is the easy part Nylon snags when dragged over thighs When hangnails get involved

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Lydia Morsman @lydiamorsman.bsky.social · 30/10/2025

Is anyone else with the chronic illness or disability in the ‘I can never sleep when I have to get up early’ club? Doesn’t matter what I do. It’s like my brain knows it’s gonna be a struggle to wake up, so it prevents the struggle from occurring at all.

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Lydia Morsman @lydiamorsman.bsky.social · 29/10/2025

Tonight, our quiz team, The Sex Mittens, won our regular quiz night’s October quiz for the second year running. Full marks on the Halloween round 🎃 (and the Jurassic Park round 🦖 ) We even aced the sport round - unheard of. We will come back next year to defend our crown 👑

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Lydia Morsman @lydiamorsman.bsky.social · 27/10/2025

I’ve decided I need to celebrate myself more, and I’m halfway to 90 on Thursday. So I’ve decided to have more fun, like leaving the house, and hunting ghosts in Cologne for Halloween. Never been to Germany, never taken my wheelchair out of the country, very excited about this 👻

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Lydia Morsman @lydiamorsman.bsky.social · 01/10/2025

Just bought the textbooks and entire reading list for my uni module that starts next October, because reading, chronic fatigue and brain fog are the perfect combination for a passing level 3 of an English Literature and Creative Writing degree. I start level 3 today. So naturally I’m here…

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Lydia Morsman @lydiamorsman.bsky.social · 27/09/2025

Within a few days of starting HRT my brain went quiet. I had no idea how bad it was. The anxiety, rumination, paranoia, brain fog, almost gone in a week. I don’t know how to describe it. It’s like the world feels real. I’m fatigued, but more sleepy, super relaxed. #mentalhealth #perimenopause

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Lydia Morsman @lydiamorsman.bsky.social · 23/09/2025

I’m manifesting millions. It can be done. Like when you are thinking about pizza, and you got on Facebook and get a Dominos ad pop up, that isn’t the algorithm, it’s the universe. Stop thinking about pizza, stark thinking about that lottery win. It will happen, trust me, I’m disabled.

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Lydia Morsman @lydiamorsman.bsky.social · 23/09/2025

My brain fog, fatigue & poor cognition have become unbearable. I’m intolerant to most foods. I have acne, UTIs, insomnia, constant headaches, wild paranoia, joint pain, pelvic issues and more. Tonight I started HRT. I’m 44. I hope symptoms are at least exacerbated by hormones #perimenopause

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Lydia Morsman @lydiamorsman.bsky.social · 19/09/2025

If anyone has any #lowfodmap vegetarian tips, would love to know. I’m a fussy eater, no energy to cook. Obsessed with melon, blueberries, tofu, potatoes, olives. That’s kinda my diet. Need more green things. Not the biggest fan of green things. Can whip up a stunning carbonara, not the healthiest…

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Lydia Morsman @lydiamorsman.bsky.social · 19/09/2025

This year I went from a walking stick to a powerchair. Changed my life. No longer 90% housebound. More energy, less pain. Weeks later. IBS from Hell. Intolerant to everything. Debilitating fatigue. Did low fodmap diet. Was just feeling stronger. Ate ice cream yesterday. Big mistake. HUGE mistake.

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Lydia Morsman @lydiamorsman.bsky.social · 17/09/2025

Went to my dermatologist, she suggested HRT. I’d mentioned perimenopause symptoms to my GP, but he never suggested it. Noticed women in peri groups are really concerned about pleasing partners. I’m on the asexual spectrum. Libido/no libido’s never bothered me. I told my GP this. He offers HRT.

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Lydia Morsman @lydiamorsman.bsky.social · 17/09/2025

I start my 3rd year of uni soon. One module, Advanced Creative Writing, it looks great. Lots of scriptwriting and I’m experienced, but this disabled body/brain… start HRT this week. Anxious… CPTSD is so hormone triggered. But hoping the fog might ease up. Maybe the insomnia… maybe other things🤞🏻

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Lydia Morsman @lydiamorsman.bsky.social · 20/08/2025

My husband, on brain fog…You’re not 5G, you’re on dial up, from 1999. I mean, he’s not wrong. But now I can almost hear my own brain loading. #disability #mecfs

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Lydia Morsman @lydiamorsman.bsky.social · 09/08/2025

Today I braved Tescos. Needed special snacks - IBS is battering me. Needed emergency low fodmap carbs. Tescos is Hell, sensory overload, still a thing. Couldn’t do the bus after, wheelchaired myself a good mile home. Gluten free bread is hideous. #cptsd #disability #IBS

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Lydia Morsman @lydiamorsman.bsky.social · 09/08/2025

Went to my writing group, explained the concept for my literary novel, writing friends get excited and give me all kinds of amazing ideas for the tech crime thriller it could be, and I’m like, well done, fantastic, great, but this is my LITERARY novel you pesky writing bitches. Good ideas though.

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Lydia Morsman @lydiamorsman.bsky.social · 07/08/2025

The film I watched last night killed a dog. Top marks from me. Love it when they go there. Hate me.

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Lydia Morsman @lydiamorsman.bsky.social · 07/08/2025

I’m working on a serial killer book. The dystopian was messing with my messy head. It’s taking too long to be the novel of my dreams. I don’t wanna call this new one a thriller, I’m not about hitting those beats, but it’s literary, and it’s about a serial killer. Right now that’s all I know.

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Lydia Morsman @lydiamorsman.bsky.social · 07/08/2025

In good news, my electric wheelchair has been changing my life. Should have got one years ago.

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Lydia Morsman @lydiamorsman.bsky.social · 07/08/2025

Been awol from here for a while. Still writing, still battling the health things. Was feeling a little better for the first time in a long time, then the IBS came to crush me. Who knew it could be so bad? Apparently everybody. Low fodmap is my new obsession. I despise diets.

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Lydia Morsman @lydiamorsman.bsky.social · 26/06/2025

A little story I’m working on. It’s 1995 and Ian’s writing: Braveheart, the One Man Satirical Musical, for the Edinburgh fringe #amwriting #shortstories #flashfiction #writerscommunity

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Lydia Morsman @lydiamorsman.bsky.social · 22/06/2025

I just messed up my longest streak on wordle, 10 long days.

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Lydia Morsman @lydiamorsman.bsky.social · 21/06/2025

M&S gave me soft pats of butter with my toasted tea cake. I shall never set foot in Costa again.

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Lydia Morsman @lydiamorsman.bsky.social · 13/06/2025

I got assaulted by a hornet tonight. Last time I wear Britney’s perfume to writing group. Made a right twat of myself in the pub garden, screamed like a child #hornets #writerlife

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Lydia Morsman @lydiamorsman.bsky.social · 11/06/2025

Started coconut water to fix my low potassium levels. The prescribed supplement makes me so ill - turns out it’s related to my latex allergy. Like bananas. There’s no winning in this hypokalemia game. The good news is my low levels aren’t making me feel too unwell. But this is so tricky to manage.

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Lydia Morsman @lydiamorsman.bsky.social · 11/06/2025

My dad met my mum at Bible college in the 1970s, studying theology. They married, had 3 daughters, and he worked as a housing officer, until he retired. Since he retired he’s been studying again. He’s getting ordained at Canterbury Cathedral this month ✝️ I’m so utterly proud of him 🥲 🥰

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Reposted by Lydia Morsman

Mary Beth Defer @shewordcrafts.bsky.social · 10/06/2025

a charm of finches bomb the dove in the feeder tiny birds eat #dailyhaikuprompt #flies #haiku #poetry #photography

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Lydia Morsman @lydiamorsman.bsky.social · 07/06/2025

Getting an electric wheelchair has highlighted even more how real invisible illness is. People are way kinder & more helpful when I use wheels. Even though I’m more mobile and comfortable than when I use a walking stick. No stick, and it’s a nightmare. We need to be kinder to each other #disability

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Lydia Morsman @lydiamorsman.bsky.social · 07/06/2025

Going hard on the coconut water right now. My potassium is 2.7 AKA really low. Hands and feet are buzzy. Fatigue is fatiguing. I’m intolerant to the only supplement I can be prescribed and my Ileitis/diverticulitis kinda hates food right now. Also allergic to banana. Coconut water it is… 🥥 🏝️

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Lydia Morsman @lydiamorsman.bsky.social · 07/06/2025

Broke the absolute fear of going to my GP about autism/adhd. The mental health team should have referred me last year and didn’t after they diagnosed CPTSD. He said he’ll approve my referral if I do the patients right to choose pathway, he was so nice about it. Relieved. I’d like to know either way.

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