Reposted by @lucyainsley.bsky.socialAdam @abrokenbattery.bsky.social · 26/09/2026Full interview (9 mins): youtu.be/H2rRf_f2hJs George’s recent article www.theguardian.com/commentisfre...youtu.beLBC | Natasha Devon interview with George Monbiot YouTube video by Broken Battery 39328
Reposted by @lucyainsley.bsky.socialNatasha Devon @natashadevon.bsky.social · 24/09/2026George will be coming on my show this weekend to discuss this very important article. 29436137
Reposted by @lucyainsley.bsky.socialGeorge Monbiot @georgemonbiot.bsky.social · 24/09/2026Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2 www.theguardian.com/commentisfre...theguardian.comAbandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George MonbiotChanges in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot 17925311730
Reposted by @lucyainsley.bsky.socialGeorge Monbiot @georgemonbiot.bsky.social · 22/09/2026Sorry not to be reply to everyone who responded to my info request about #ME/CFS treatment y'day. Totally overwhelmed by utterly horrific stories. Now busy pulling it all together. And starting to see that there's a whole other story to be written (one day) about capital and chronic conditions. 1/2 29704114
Reposted by @lucyainsley.bsky.socialGeorge Monbiot @georgemonbiot.bsky.social · 21/09/2026Intending to write another column about the treatment of #ME/CFS patients this week, pegged to new research findings on the biological basis. My question for sufferers: Are any of you still being offered inappropriate (psych/GET etc) "treatments"? Please email george at monbiot dot info. Thanks. 131711288
Reposted by @lucyainsley.bsky.socialGeorge Monbiot @georgemonbiot.bsky.social · 21/09/2026Thanks so much everyone for a massive response. I've now had as many emails as I can cope with, so no more please - thank you. They paint a really grim and heatbreaking picture. The neglect and abuse of patients goes on and on. I hope to try to do the issue justice. #ME/CFS 28770201
lucyainsley.bsky.social @lucyainsley.bsky.social · 10/08/2026I just signed this important open letter on Organise, please can you add your name? Urgent Call for the Creation of an NHS Protocol for Severe Myalgic Encephalomyelitis (M.E.) - M.E. Foggy Dog Campaign organise.network/s/a2d0d6873ff8organise.networkUrgent Call for the Creation of an NHS Protocol for Severe Myalgic Encephalomyelitis (M.E.) - M.E. Foggy Dog CampaignAdd your name: 000
lucyainsley.bsky.social @lucyainsley.bsky.social · 14/07/2026Win donations for Invest in ME in The Big Summer Raffle! 🎟️☀️ Join #easyfundraising, reveal today's raffle ticket, and see instantly if you've won. There are 1,000 chances to win every day. Plus, keep raising free donations Sign up free today: join.easyfundraising.org.uk/investinme/N...join.easyfundraising.org.ukYou spend, brands donate to Invest in ME.Help us when you shop with 7,000+ brands. Join now. 000
lucyainsley.bsky.social @lucyainsley.bsky.social · 25/10/2025mygivingcircle.org/invest-in-me... Free, quick and easy, vote for @investinmeresearch.bsky.social to win free research money! #pwME #MyalgicE #LongCovid #MyalgicEncephalomyelitis #ME #cute #vote #joy #LongCovidKids 021
Reposted by @lucyainsley.bsky.socialGeorge Monbiot @georgemonbiot.bsky.social · 08/10/2025On the one hand, medical science is beginning to get a handle on the very complex physiological basis of this disease. On the other hand, we can expect the greatest medical scandal (so far) of the 21st Century – the mass mistreatment and neglect of ME/CFS sufferers – to continue. 639447
Reposted by @lucyainsley.bsky.socialGeorge Monbiot @georgemonbiot.bsky.social · 08/10/2025ME/CFS is a devastating condition that has long been denied, dismissed, psychologised and underdiagnosed. Research is at last starting to catch up with it, with glimmers of hope for those who have been left untreated for so long. There's a huge BUT coming ...🧵 www.theguardian.com/society/2025...theguardian.comScientists develop first ‘accurate blood test’ to detect chronic fatigue syndromeResearch could offer hope for ME patients – but some experts urge caution and say more studies needed 571511633
lucyainsley.bsky.social @lucyainsley.bsky.social · 21/09/2025mygivingcircle.org/invest-in-me... Free, quick and easy, vote for @investinmeresearch.bsky.social to win free research money! #pwME #MyalgicE #LongCovid #MyalgicEncephalomyelitis #ME #cute #animals #giraffe 011
lucyainsley.bsky.social @lucyainsley.bsky.social · 12/09/2025mygivingcircle.org/invest-in-me... Free, quick and easy, vote for @investinmeresearch.bsky.social to win free research money! #pwME #MyalgicE #LongCovid #MyalgicEncephalomyelitis #ME #cute #ducks 011
lucyainsley.bsky.social @lucyainsley.bsky.social · 27/08/2025mygivingcircle.org/invest-in-me... Free, quick and easy, vote for @investinmeresearch.bsky.social to win free research money! #pwME #MyalgicE #LongCovid #MyalgicEncephalomyelitis #ME #balloon 021
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lucyainsley.bsky.social @lucyainsley.bsky.social · 28/07/2025mygivingcircle.org/invest-in-me... Free, quick and easy, vote for @investinmeresearch.bsky.social to win free research money! #pwME #MyalgicE #LongCovid #MyalgicEncephalomyelitis #ME #cats 031
lucyainsley.bsky.social @lucyainsley.bsky.social · 13/07/2025mygivingcircle.org/invest-in-me... Free, quick and easy, vote for @investinmeresearch.bsky.social to win free research money! #pwME #MyalgicE #LongCovid #MyalgicEncephalomyelitis #ME #heatwave 021
lucyainsley.bsky.social @lucyainsley.bsky.social · 07/07/2025mygivingcircle.org/invest-in-me... Free, quick and easy, vote for @investinmeresearch.bsky.social to win free research money! #pwME #MyalgicE #LongCovid #MyalgicEncephalomyelitis #ME 012
lucyainsley.bsky.social @lucyainsley.bsky.social · 02/07/2025mygivingcircle.org/invest-in-me... Free, quick and easy, vote for @investinmeresearch.bsky.social to win free research money! #pwME #MyalgicE #LongCovid #MyalgicEncephalomyelitis #ME 000
Reposted by @lucyainsley.bsky.socialCarole Bruce @cabruce.bsky.social · 30/06/2025Third delay to #ME care plan prompts backlash from patients. We #pwME are put firmly onto the back burner once again. No ring fencing for research, apparently no money available at all. Let’s face it, they just don’t care. www.thetimes.com/article/a09b...thetimes.comThird delay to ME care plan prompts backlash from patientsThe health department failed to explain the postponement to its long-awaited strategy for treating chronic fatigue syndrome which affects hundreds of thousands 23610
lucyainsley.bsky.social @lucyainsley.bsky.social · 25/06/2025mygivingcircle.org/invest-in-me... Free, quick and easy, vote for @investinmeresearch.bsky.social to win free research money! #pwME #MyalgicE #LongCovid #MyalgicEncephalomyelitis #ME 012
lucyainsley.bsky.social @lucyainsley.bsky.social · 17/06/2025mygivingcircle.org/invest-in-me... Free, quick and easy, vote for @investinmeresearch.bsky.social to win free research money! #pwME #MyalgicE #LongCovid #MyalgicEncephalomyelitis #ME 011
lucyainsley.bsky.social @lucyainsley.bsky.social · 08/06/2025mygivingcircle.org/invest-in-me... Free, quick and easy, vote for @investinmeresearch.bsky.social to win free research money! #pwME #MyalgicE #LongCovid #MyalgicEncephalomyelitis #ME 011
lucyainsley.bsky.social @lucyainsley.bsky.social · 01/06/2025mygivingcircle.org/invest-in-me... Free, quick and easy, vote for @investinmeresearch.bsky.social to win free research money! #pwME #MyalgicE #LongCovid #MyalgicEncephalomyelitis #ME 023
Reposted by @lucyainsley.bsky.socialTom Kindlon @tomkindlon.bsky.social · 10/05/2025I'm one of millions missing from our lives due to Myalgic Encephalomyelitis, each with their own challenges and losses. Unlike Covid lockdowns, the lockdowns we have dealt with for years due to #ME continue #May12 #MEcfs #PwME 25112
lucyainsley.bsky.social @lucyainsley.bsky.social · 10/05/2025mygivingcircle.org/invest-in-me... Free, quick and easy, vote for @investinmeresearch.bsky.social to win free research money! #pwME #MyalgicE #LongCovid #MyalgicEncephalomyelitis #ME 025
Reposted by @lucyainsley.bsky.socialDavid Tuller @davetuller1.bsky.social · 01/05/2025well, the crowdfunder has reached two-thirds of the goal and there's still several days left! It's a very tough time all around so I'm pleased it's done this well: crowdfund.berkeley.edu/project/46120crowdfund.berkeley.eduDavid Tuller's Trial by Error Spring 2025Help UC Berkeley raise $68,000 for the project: David Tuller's Trial by Error Spring 2025. Your gift will make a difference! 02111
lucyainsley.bsky.social @lucyainsley.bsky.social · 03/05/2025mygivingcircle.org/invest-in-me... Free, quick and easy, vote for @investinmeresearch.bsky.social to win free research money! #pwME #MyalgicE #LongCovid #MyalgicEncephalomyelitis #ME 010
Reposted by @lucyainsley.bsky.socialCathy Sergi @cjsergi9.bsky.social · 05/01/2025Pls take a minute to vote for Invest in ME Research & help them receive a share of £500,000 in grants at MyGivingCircle.org. Every vote counts, so let's rally together & make an impact. It’s free to vote so go on… pls 🙏🏻 mygivingcircle.org/invest-in-me... #pwME #MECFSmygivingcircle.orgVote for the charities you love to share $500,000Each year MyGivingCircle gives $1,500,000 011
lucyainsley.bsky.social @lucyainsley.bsky.social · 25/04/2025mygivingcircle.org/invest-in-me... Free, quick and easy, vote for @investinmeresearch.bsky.social to win free research money! #pwME #MyalgicE #LongCovid #MyalgicEncephalomyelitis #ME 021
Reposted by @lucyainsley.bsky.socialTom Kindlon @tomkindlon.bsky.social · 28/03/2025I thought I would repost this to highlight again some of the many varied symptoms that can be found in #MyalgicEncephalomyelitis/#ChronicFatigueSyndrome Particularly relevant when similarities with the #LongCovid presentation in some people are being missed #MEcfs #CFS #PwLC 1/ 1238
lucyainsley.bsky.social @lucyainsley.bsky.social · 29/03/2025mygivingcircle.org/invest-in-me... Free, quick and easy, vote for @investinmeresearch.bsky.social to win free research money! #pwME #MyalgicE #LongCovid #MyalgicEncephalomyelitis #ME 025
lucyainsley.bsky.social @lucyainsley.bsky.social · 22/03/2025mygivingcircle.org/invest-in-me... Free, quick and easy, vote for @investinmeresearch.bsky.social to win free research money! #pwME #MyalgicE #LongCovid #MyalgicEncephalomyelitis #ME 021
Reposted by @lucyainsley.bsky.socialTom Kindlon @tomkindlon.bsky.social · 20/03/2025It's 8-year anniversary of this paper of mine. It could be useful if somebody feels coerced into doing graded activity or exercise programmes; also to counter claims that the #PACEtrial showed graded activity programs are safe. journals.sagepub.com/doi/full/10.... #MEcfs #CFS #MyalgicE #CBT 34715
lucyainsley.bsky.social @lucyainsley.bsky.social · 15/03/2025mygivingcircle.org/invest-in-me... Free, quick and easy, vote for @investinmeresearch.bsky.social to win free research money! #pwME #MyalgicE #LongCovid #MyalgicEncephalomyelitis #ME 023
Reposted by @lucyainsley.bsky.socialCarole Bruce @cabruce.bsky.social · 09/03/2025Daily view! #severeME The flowers will change but will the circumstances. It’s the same for millions of us and is anyone listening? 0332
Reposted by @lucyainsley.bsky.socialCarole Bruce @cabruce.bsky.social · 08/03/2025#internationalwomensday #ME disproportionately affects women by a ratio of approx 4:1 & women are more likely to have #SevereME than men. We are disbelieved, mocked and ignored. Very little funding for research, treatment or education. Would this be the same if the ratio was reversed? 1116
lucyainsley.bsky.social @lucyainsley.bsky.social · 08/03/2025mygivingcircle.org/invest-in-me... Free, quick and easy, vote for @investinmeresearch.bsky.social to win free research money! #pwME #MyalgicE #LongCovid #MyalgicEncephalomyelitis #ME #iwd2025 071
Reposted by @lucyainsley.bsky.socialCarole Bruce @cabruce.bsky.social · 27/02/2025Do @actionforme and @MEAssociation support the #FundThePlan initiative? Have they seen the incredibly moving videos? Perhaps they would like to lend their support and voice to try to save the Delivery Plan and the requests that #pwME are asking for Many members would support this if they knew. 033
Reposted by @lucyainsley.bsky.socialCarole Bruce @cabruce.bsky.social · 22/02/2025The effects of #ME are vast. Families are split apart, friends turn their backs, employers can’t put up with unreliable employees. Worst of all Drs here been taught that it’s an imaginary illness because standard tests show that there’s no problem. There is! #FundThePlan 🙏 14314
Reposted by @lucyainsley.bsky.socialThereForME @thereforme.bsky.social · 21/02/2025🎥 Today we’re launching our #FundThePlan campaign! With over a month until the delivery plan is finalised, ministers can still reconsider the resources behind it. We want to show them why it is important to #FundThePlan. Share a video on social media using our template ⬇️ 25630
lucyainsley.bsky.social @lucyainsley.bsky.social · 22/02/2025mygivingcircle.org/invest-in-me... Free, quick and easy, vote for @investinmeresearch.bsky.social to win free research money! #pwME #MyalgicE #LongCovid #MyalgicEncephalomyelitis #ME 011
lucyainsley.bsky.social @lucyainsley.bsky.social · 15/02/2025mygivingcircle.org/invest-in-me... Free, quick and easy, vote for @investinmeresearch.bsky.social to win free research money! #pwME #MyalgicE #LongCovid #MyalgicEncephalomyelitis #ME 021
lucyainsley.bsky.social @lucyainsley.bsky.social · 12/02/2025mygivingcircle.org/invest-in-me... Free, quick and easy, vote for @investinmeresearch.bsky.social to win free research money! #pwME #MyalgicE #LongCovid #MyalgicEncephalomyelitis #ME 142
Reposted by @lucyainsley.bsky.socialCarole Bruce @cabruce.bsky.social · 05/02/2025From #TheRedTreeandME @putrinolab.bsky.social Let’s believe it 🤞🙏 1188
Reposted by @lucyainsley.bsky.socialWhitney Dafoe @whitneydafoe.bsky.social · 15/01/2025From Ronald W, Davis, PhD. - HOPE FOR 2025 - I am very optimistic that soon the major mechanisms that initiate the disease will be found. This will allow a concerted effort to reverse the process and find a cure…. New post on my blog: www.whitneydafoe.com/mecfs/?post=... #MECFS #LongCovidwhitneydafoe.comRon Davis's message of hope for 2025 and plea for helpI think of you all every day as I work to untangle the complex molecular basis of this horrific disease…I am very optimistic that soon the major mechanisms that initiate the disease will be found. Thi... 37132
lucyainsley.bsky.social @lucyainsley.bsky.social · 04/02/2025mygivingcircle.org/invest-in-me... Free, quick and easy, vote for @investinmeresearch.bsky.social to win free research money! #pwME #MyalgicE #LongCovid #MyalgicEncephalomyelitis #ME 021
![“Script: Dear Wes & Ashley, My name is [...] and I have ME. I used to [...]. Now I can’t [...] The Delivery Plan for ME is an opportunity to invest in our future and reverse generations of neglect. So please, fund the plan.”](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:wjbaponwuqichcsh2fiwono5/bafkreiabltmz3fvjbcanakfzgyloxps5wjyzrvmgqw67mzkwte6dkyp6tu)
