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LS Guide

@lsguide.bsky.social

32 followers 226 following 17 posts

Everything you need to know about vulval LS in one place. www.lichensclerosusguide.org.uk linktr.ee/LSGuide

Posts Replies Media

LS Guide @lsguide.bsky.social · 31/07/2025

Delighted to share that the Lichen Sclerosus Guide has been shortlisted for a Picker Experience Network Award, which recognise excellence in patient experience. It's a privilege to have been shortlisted, can't wait to meet the other finalists! #PEN25 @pen-news.bsky.social

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LS Guide @lsguide.bsky.social · 16/04/2025

In a lot of cases, vulval lichen sclerosus (LS) can be diagnosed by your doctor, based on an examination and a conversation about your symptoms. However, for a small number of people, the signs can be less clear, and a biopsy might be recommended to make sure LS is the right diagnosis.

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LS Guide @lsguide.bsky.social · 31/03/2025

www.lichensclerosusguide.org.uk/information-... Need advice about caring for someone with vulval lichen sclerosus? Visit our website today! Whether you’re caring for a partner, family member, or you're a professional carer, we have a whole page dedicated to this.

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LS Guide @lsguide.bsky.social · 19/03/2025

We're putting together a calendar of events where we will be promoting the LS Guide this year. So exciting! Our first announcement is that we will be at the @bssvdinsta BSSVD Scientific Meeting in Liverpool in June. We'd love folks to come and say hi, and share any feedback on the Guide.

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LS Guide @lsguide.bsky.social · 06/03/2025

Health professionals (esp primary care) and people with vulval LS should know that yearly check-ups are recommended in the BAD guidance. More info on our website! lichensclerosusinfo.blogs.bristol.ac.uk/diagnosis-ch...

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LS Guide @lsguide.bsky.social · 13/02/2025

Fantastic to see this - a whole hour of discussion about LS on mainstream radio! Thanks for giving us a shout out @vulvalcanceruk.bsky.social and @drnighatarif.bsky.social

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Reposted by LS Guide

Dr Nighat Arif @drnighatarif.bsky.social · 13/02/2025

BBC5 Live: That Time Of The Month: Spotlight on Lichen Sclerosis 🎧⬇️ www.bbc.co.uk/programmes/p... Guess how many times we said “Vulva” and “Vagina” at lunchtime!??

bbc.co.uk

BBC Radio 5 Live - 5 Live News Specials, That Time of the Month: Lichen Sclerosus

That Time of the Month with Naga Munchetty, Dr Nighat Arif & Dr Christine Ekechi

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LS Guide @lsguide.bsky.social · 30/01/2025

Are you a health professional who supports people with vulval lichen sclerosus (LS)? We have a downloadable treatment plan template that might be useful! It comes with clear diagrams and prompts for points to explain to patients. Find it here www.lichensclerosusguide.org.uk/information-...

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LS Guide @lsguide.bsky.social · 20/01/2025

There are over 24 topics covered in the LS Guide, and each is packed with information! We cover what LS is, how to perform self-checks, accessing support, treatment, everyday life with LS, and LS in the long term and more. There's also info for health professionals, partners, & carers! Check it out!

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LS Guide @lsguide.bsky.social · 17/01/2025

The Lichen Sclerosus Guide is now LIVE! Empowering everyone with vulval lichen sclerosus (LS) to learn about the condition, access the right treatment and live more comfortably. If you’ve got vulval LS, or you’re supporting someone who has, we’ve created this guide to help you.

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LS Guide @lsguide.bsky.social · 15/01/2025

SNEAK PEEK! We are so excited to launch in just 2 days' time on 17th January, World LS Awareness Day. LS Guide will be a brand new resource about vulval lichen sclerosus, providing information to empower everyone to learn about the condition, access the right treatment, and live more comfortably.

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LS Guide @lsguide.bsky.social · 13/01/2025

This Friday 17th January, World Lichen Sclerosus Awareness Day, we launch a new resource for people who have vulval lichen sclerosus (LS). The aim is to empower people living with LS to learn about the condition, access the right treatment, and live more comfortably. We can't wait to share this!

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