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Long Covid Library For Change

@longcovidchange.bsky.social
790 followers 177 following 63 posts

A COVID-conscious space dedicated to improving awareness and understanding of Long Covid, and the lives of those affected. Focus on UK public health, but good information and community support are global.

PostsRepliesMedia
Long Covid Library For Change @longcovidchange.bsky.social · 20/09/2026
"POTS identified in nearly two thirds of long covid patients" www.news-medical.net/news/2026091...
news-medical.net
POTS identified in nearly two-thirds of Long COVID patients
Dizziness, fatigue, brain fog and a racing heart. They're commonly associated with Long COVID, but new Adelaide University research suggests that for some people, these symptoms may also be indication...
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Long Covid Library For Change @longcovidchange.bsky.social · 18/09/2026
Canada: "Covid 19 benefit repayment is hurting low-income Canadians, report says" www.cbc.ca/news/politic...
cbc.ca
COVID-19 benefit repayment is hurting low-income Canadians, report says | CBC News
Over six years after the COVID-19 pandemic began, the federal government is still trying to track down billions of dollars sent to Canadians who were later found to be ineligible for benefits. Accordi...
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Long Covid Library For Change @longcovidchange.bsky.social · 16/09/2026
"Bezisterim may help with some long covid symptoms drugs developer reports in early trial results" thesicktimes.org/2026/09/15/b...
thesicktimes.org
Bezisterim may help with some Long COVID symptoms, drug’s developer reports in early trial results - The Sick Times
While the phase 2 clinical trial results, shared by BioVie in a webinar on Tuesday, have yet to be peer-reviewed, investigators say they can inform a confirmatory phase 3 trial.
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Long Covid Library For Change @longcovidchange.bsky.social · 16/09/2026
"COVID, 6 years on: The Pandemic's long clinical shadow" www.medscape.com/viewarticle/...
medscape.com
COVID, 6 Years on: The Pandemic’s Long Clinical Shadow
Although acute COVID is generally less severe today, long COVID, limited treatment options, and ongoing controversy still define the pandemic’s aftermath.
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Long Covid Library For Change @longcovidchange.bsky.social · 09/09/2026
"Welcome to the LEARN long Covid curriculum. This project is supported by the Washington State Department of Health/Power of Providers program. Each module will feature a video lecture, additional readings and resources, and interactive quizzes" uw.pressbooks.pub/learnlongcov...
uw.pressbooks.pub
Welcome – LEARN Long COVID
Welcome Welcome to the LEARN Long COVID curriculum. This project is supported by the  Washington State Department of Health/Power of Providers program. Each module will…
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Reposted by Long Covid Library For Change
John Dupuis @dupuisj.bsky.social · 08/09/2026
What do we really care about as a society? We should add public health to that list! johndupuis.substack.com/p/caring-abo...
johndupuis.substack.com
Caring about Covid, Immune systems for buildings, Vaccine integrity, Medieval plagues, and more
Bonus Still surging
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Long Covid Library For Change @longcovidchange.bsky.social · 08/09/2026
"Five Questions on Long Covid - The Royal Society asks 'Is there hope for people with long Covid?'" royalsociety.org/blog/2026/07...
royalsociety.org
Five questions on Long Covid | Royal Society
This article builds on the 2024 blog post ‘Is there hope for people with Long Covid?’
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Long Covid Library For Change @longcovidchange.bsky.social · 08/09/2026
Long Covid Support has a new website and is now known as Long Covid UK. Link below 👇 www.longcovid.org?fbclid=Iwb21...
longcovid.org
Long Covid UK | Support Long Covid Awareness Today
Long Covid UK is a national charity dedicated to supporting those affected by Long Covid through community engagement, research, and systemic change. Join us today.
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Long Covid Library For Change @longcovidchange.bsky.social · 06/09/2026
"From HIV to SARS-CoV-2 associated neurological disorder (HAND to SAND): Viral infection as a "time bomb" for the aging brain" www.sciencedirect.com/science/arti...
sciencedirect.com
From HIV to SARS-CoV-2 associated neurological disorder (“HAND” to “SAND”): Viral infection as a “time-bomb“ for the aging brain
In 2020, a novel Coronavirus, Severe Acute Respiratory Syndrome-Covid-2 (SARS-CoV-2), spread globally to provoke a pandemic that infected over 750 mil…
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Long Covid Library For Change @longcovidchange.bsky.social · 20/08/2026
"How to manage and treat post exertional malaise (PEM)" youtu.be/Na5znc92ylY?...
youtu.be
How to Manage and Treat Post-Exertional Malaise (PEM)
YouTube video by RTHM Health
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Long Covid Library For Change @longcovidchange.bsky.social · 20/08/2026
UK only petition: "Develop and fund a national long covid strategy to protect patients and society" www.change.org/p/develop-an...
change.org
Sign the Petition
Develop and Fund a National Long COVID Strategy to Protect Patients and Society
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Long Covid Library For Change @longcovidchange.bsky.social · 18/08/2026
A work in progress courtesy of Sean Mullen on Facebook. Please share if you find this resource useful. livingwithcovidmuseum.com?fbclid=Iwb21...
livingwithcovidmuseum.com
Living with COVID Museum
A living evidence and education project about COVID, Long COVID, prevention, history, and misinformation. Every reviewed Museum claim carries its evidence strength and its limits.
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Long Covid Library For Change @longcovidchange.bsky.social · 17/08/2026
Poor sleep and fatigue remained widespread after the covid-19 pandemic. www.kcl.ac.uk/news/poor-sl...
kcl.ac.uk
Poor sleep and fatigue remained widespread after the COVID-19 pandemic | King's College London
Poor sleep, fatigue and anxiety remained common after COVID-19 restrictions ended, according to new research led by King's College London and Flinders University.
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Long Covid Library For Change @longcovidchange.bsky.social · 17/08/2026
Breast cancer exposed the lack of care I receive for long covid. thesicktimes.org/2026/08/14/b...
thesicktimes.org
Breast cancer exposed the lack of care I receive for Long COVID - The Sick Times
Cancer has a sadly well-worn path. It showed me that I deserve dignity and support for Long COVID.
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Long Covid Library For Change @longcovidchange.bsky.social · 19/01/2024
Long Covid study looking for participants, please see link below 👇 twitter.com/ahandvanish/...
twitter.com
Tweet by @ahandvanish
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Long Covid Library For Change @longcovidchange.bsky.social · 12/01/2024
A desaturated photo of a whitherd, brown, unpeeled Banana.

Blue text says " COVID can cause erectile dysfunction and permanent shrinkage,

Still...

No hard feelings
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Long Covid Library For Change @longcovidchange.bsky.social · 05/01/2024
An incredible video from Victoria State Department, Australia, documenting Jordan's life with long Covid. twitter.com/VicGovDH/sta...
twitter.com
Tweet by @VicGovDH
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Long Covid Library For Change @longcovidchange.bsky.social · 05/01/2024
Why do we need clean air in schools? Find out below 👇 youtu.be/yng7AjL09rM?...
youtu.be
Why do we need clean air in schools?
Clean air in schools has many benefits.Sources:[1] Long Covid Household Pulse Survey: https://www.cdc.gov/nchs/covid19/pulse/long-covid.htm[2] Sekendiz, Cogn...
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Long Covid Library For Change @longcovidchange.bsky.social · 02/01/2024
How respirators really work and which is best ? twitter.com/jeffgilchris...
twitter.com
Tweet by @jeffgilchrist
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Long Covid Library For Change @longcovidchange.bsky.social · 01/01/2024
"No one I know has Long Covid" johnsnowproject.org/primers/no-o...
johnsnowproject.org
“No one I know has Long Covid”
If you know nine people, you know someone who has had Long Covid - according to the latest data from Canada.
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Long Covid Library For Change @longcovidchange.bsky.social · 01/01/2024
Wishing a Happy New Year and a prosperous 2024 from everyone at the Long Covid Library For Change.
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Reposted by Long Covid Library For Change
Katie Mack @astrokatie.com · 27/12/2023
I dunno, I feel like I talk to a lot of people who are like “I’m not worrying about it anymore” but also casually bring up that they were the sickest they’ve ever been in their lives for two weeks and then coughed for three months and then they shrug
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Long Covid Library For Change @longcovidchange.bsky.social · 27/12/2023
Wishing strength and solidarity to all of you who are doing your best to keep yourelves, your loved ones and your communities safe from COVID and other illnesses. We see you. We appreciate you. Stay strong, comrades.
ID: A rectangular image.
Heavy black capitals say, "Covid still kills.  Covid still disables.  Good masks save lives, potentially your own."

The LCLC QR logo is small in the bottom left corner.  Bottom right is "tinyurl.com/lclforc".  Behind the writing is an image of a white respirator with teal headstraps, on a pale grey background.
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Long Covid Library For Change @longcovidchange.bsky.social · 25/12/2023
Covid: It's that bad... The fight of a generation www.okdoomer.io/its-that-bad/
okdoomer.io
Covid: It's That Bad
The fight of a generation.
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Long Covid Library For Change @longcovidchange.bsky.social · 23/12/2023
If you're struggling, don't suffer in silence, please reach out 👇👇 Samaritans 116123 NSPH 0800 6895652 CALM 0800 585858 Refuge 0808 2000247 Rape Crisis 0808 5002222 MAL 0808 8010327 LGBT+ 0800 0119100 AgeUK 0800 6781602 ChildLine 0800 1111 AA 0800 9177650 FRANK 0300 1236600
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Long Covid Library For Change @longcovidchange.bsky.social · 22/12/2023
Please help to save the Bees, ban Bee killing poisons!! Sign the petition below 👇 Thank you 🐝🐝🐝🐝 action.wildlifetrusts.org/page/139962/...
action.wildlifetrusts.org
Ask your MP to debate this decision
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Long Covid Library For Change @longcovidchange.bsky.social · 21/12/2023
Friends don't give friends COVID for Xmas. Even a Lynx gift set is a better alternative.
Text: "Spread joy, not germs
COVID-19  doesn't care it's Christmas.  It works all year 'round.
Airborne pathogens like C-19, noravirus, 'flu and other respiratory illnesses are airborne, meaning they spread through the air and can easily infect people, even outside.
COVID continues to kill and disable people every day.
Keep your loved ones safe."

Image of a respirator.  Text: "Mask in company - Wear a well-fitting, quality mask
(FFP2 or better)"

Image of a star with "VIP" inside.  Text: Limit numbers - Keep gatherings small; it's easier to social distance
and agree mitigations"

Image of an LFT.  Text: "Text & symptom check - Cancel plans if you feel unwell or test positive"

Image of air filter.  Text: "Clean your air - Ventilate, use HEPA filters or meet outside"

Text is white against a deep red background of festive twinkles and corona viruses.

Top right corner features LCLC logo QR code.
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Long Covid Library For Change @longcovidchange.bsky.social · 19/12/2023
Let's learn from the past and take better care of each other.
Against a gloomy rainbow background, the text:
"Our community lost enough the last time our government lied to us about a pandemic.

Take PRIDE in protecting each other."

Image of a respirator.  Text: "Mask in company - Wear a well-fitting, quality mask
(FFP2 or better)"

Image of a star with "VIP" inside.  Text: Limit numbers - Keep gatherings small; it's easier to social distance
and agree mitigations"

Image of an LFT.  Text: "Text & symptom check - Cancel plans if you feel unwell or test positive"

Image of air filter.  Text: "Clean your air - Ventilate, use HEPA filters or meet outside"

Top right corner features LCLC logo QR code.
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Reposted by Long Covid Library For Change
viza.bsky.social @viza.bsky.social · 19/12/2023
"We tend to think of COVID-19 and influenza as acute events, short-term illnesses that we recover from, but in reality, both cause long-haul illness, and the greatest risks come in the weeks and months after initial infection."
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Long Covid Library For Change @longcovidchange.bsky.social · 19/12/2023
Covid is not just the flu. A very interesting article from the John Snow Project. johnsnowproject.org/primers/covi...
johnsnowproject.org
COVID-19 is not "just the flu"
New research shows that COVID-19 is significantly more harmful than flu and that most of the harms come after the acute phase of the illness has passed.
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Long Covid Library For Change @longcovidchange.bsky.social · 17/12/2023
I just signed this important petition on Organise, please can you add your name? 🚨Reinstate the role of Minister for Disabled People now!🚨 organise.network/actions/peti...
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Reposted by Long Covid Library For Change
Protect the Heart of the Arts 💕🎗️🌈 😷 @heartofthearts.bsky.social · 15/12/2023
Neil Gaiman @neilhimself.neilgaiman.com has requested audience masking at his live events.😷😷 He also encourages people to stay updated on their vaccines.
Screenshot of tumblr post. Neil Gaiman text: “I got COVID early in October and had to close down my life to recover. Yesterday afternoon I walked into my local drugstore and got this year’s vaccine.”
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Reposted by Long Covid Library For Change
Melimelo Arizapalala 😷7💉 🩷🤍💜🖤💙 I-/ @MelimeloPlu @melimeloplu.bsky.social · 15/12/2023
Vaccines and masks. So easy to prevent killing and disabling people !
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Reposted by Long Covid Library For Change
Juzabel @juzabel.bsky.social · 15/12/2023
Excellent initiative. Please share.
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Reposted by Long Covid Library For Change
Juzabel @juzabel.bsky.social · 16/12/2023
Excellent. Fans protecting artists for the win.
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StarDust949 @stardust949.bsky.social · 16/12/2023
#CovidIsAirborne #CovidIsNotOver
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Reposted by Long Covid Library For Change
Melissa Challenor @picklemelissa.bsky.social · 16/12/2023
#ProtectTheHeartOfTheArts @DonmarWarehouse for Macbeth starring #DavidTennant COVID safe performances and venues for punters and players 😷 London 🇬🇧 and the world 🗺️
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Reposted by Long Covid Library For Change
Protect the Heart of the Arts 💕🎗️🌈 😷 @heartofthearts.bsky.social · 16/12/2023
*PRESS COVERAGE!* Bylines Cymru’s🏴󠁧󠁢󠁷󠁬󠁳󠁿 article on “Protect the Heart of the Arts” mask hand-out at David Tennant’s Macbeth. Performers with Long Covid will sound the alarm on Covid’s devastating impact on performing arts.😷 TONIGHT Sat 16 Dec 6 pm, Donmar Warehouse, London. @neilhimself.neilgaiman.com
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Reposted by Long Covid Library For Change
Bylines Network @bylinesnetwork.co.uk · 16/12/2023
’Alas, poor country!’: performers suffering from long Covid to distribute masks at David Tennant’s Macbeth tonight Performing artists, staff, and patrons are impacted by long Covid. Venues need mitigations including masks. Covid is airborne and not over.
bylines.cymru
Long Covid-suffering performers to hand out masks at Macbeth
Many performing artists have been open about the impacts of long Covid on their lives and work. Venues need mitigations including masks
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Reposted by Long Covid Library For Change
Protect the Heart of the Arts 💕🎗️🌈 😷 @heartofthearts.bsky.social · 15/12/2023
**LONDON MASK HAND-OUT** #ProtectTheHeartOfTheArts, a campaign of performers suffering from Long Covid, and allies, will sound the alarm on Covid’s devastating impact on the performing arts. Likes/shares help get the word out. ProtectTheHeartOfTheArts.carrd.co cc @neilhimself.neilgaiman.com
Invitation. Purple rectangle. Text: Protect the heart of the arts. London Mask Hand-out. Donmar Warehouse 41 Earlham Street London. Sat 16 Dec 6-7:30 pm.
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Long Covid Library For Change @longcovidchange.bsky.social · 15/12/2023
We deserve better. Fight back against this boring and easily fixable dystopia. tinyurl.com/lclforc
Rectangular image.  Modernist text reads: "Welcome to the future, where clean air is a privilege reserved for the elite."
Image depicts a series of steps of increasing height, drawn in chalk, with a suited stick figure on the highest and a smaller figure in a dress on the lowest step.  A child's hand is visible holding the chalk stick.  Dirty smoke obscures the lower steps and small figure.  The LCLC logo is top right.  In the bottom right corner, the link, tinyurl.com/lclforc.
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Long Covid Library For Change @longcovidchange.bsky.social · 14/12/2023
Spread Joy, Not Germs! Stay safe this Christmas ⛄🎄
Text: "Spread joy, not germs
COVID-19  doesn't care it's Christmas.  It works all year 'round.
Airborne pathogens like C-19, noravirus, 'flu and other respiratory illnesses are airborne, meaning they spread through the air and can easily infect people, even outside.
COVID continues to kill and disable people every day.
Keep your loved ones safe."

Image of a respirator.  Text: "Mask in company - Wear a well-fitting, quality mask
(FFP2 or better)"

Image of a star with "VIP" inside.  Text: Limit numbers - Keep gatherings small; it's easier to social distance
and agree mitigations"

Image of an LFT.  Text: "Text & symptom check - Cancel plans if you feel unwell or test positive"

Image of air filter.  Text: "Clean your air - Ventilate, use HEPA filters or meet outside"

Text is white against a deep red background of festive twinkles and corona viruses.

Top right corner features LCLC logo QR code.
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Long Covid Library For Change @longcovidchange.bsky.social · 14/12/2023
🚨Government scraps minister for disabled people🚨 www.itv.com/news/2023-12...
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Long Covid Library For Change @longcovidchange.bsky.social · 13/12/2023
Refuse to be a sacrifice to the economy. You deserve better than that.
Rectangular image:
Black stencil-text says: "Capitalism doesn't care if you drop down dead, so long as you're spending money and paying taxes until you do.  Defy their agenda by valuing human life.  Wear a mask.  Refuse to be a sacrifice to the economy."  The background is a faded-out image of corporate charts and industrial scenes.  A line drawing of a respirator with teal headstraps and nose strip is featured centrally.  The LCLC QR logo is in the bottom left corner, and in the bottom right, the link, tinyurl.com/lclforc
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Long Covid Library For Change @longcovidchange.bsky.social · 13/12/2023
Something you may want to print on cards/stickers you can give to healthcare workers/stick to consent forms. We do not consent to being infected through others' negligence.
COVID-19 transmission can be prevented with the effective use of good quality, well-fitting masks.
As my healthcare provider, you have a duty of care that requires you to prioritise patient safety.
I do not consent to being infected and reserve the right to take legal action if infected in a healthcare setting.

Created by the Long Covid Library for Change | Please share/use freely

QR code in teal featuring LCLC logo.
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Long Covid Library For Change @longcovidchange.bsky.social · 13/12/2023
It's getting quietly festive at the Library. Long Covid can leave people so isolated, so our users have set up a gift exchange, to help each other feel connected and valued this winter. If you'd like to be part of a community like that, find it at tinyurl.com/lclforc
tinyurl.com
Join the Long Covid Library For Change Discord Server!
Check out the Long Covid Library For Change community on Discord – hang out with 159 other members and enjoy free voice and text chat.
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Long Covid Library For Change @longcovidchange.bsky.social · 13/12/2023
Stop by the Long Covid Library for Change. A space to organise, share experiences, and be part of a caring, supportive community. With news, petitions, studies, and tools for activism and advocacy. tinyurl.com/lclforc
tinyurl.com
Join the Long Covid Library For Change Discord Server!
Check out the Long Covid Library For Change community on Discord – hang out with 159 other members and enjoy free voice and text chat.
084
Reposted by Long Covid Library For Change
Nico Reznick @nicoreznick.bsky.social · 13/12/2023
Follow @longcovidchange.bsky.social for info & resources around COVID and Long Covid. Stop by the Long Covid Library for Change for access to a growing repository of free resources and to be part of a supportive, inclusive community. tinyurl.com/lclforc
tinyurl.com
Join the Long Covid Library For Change Discord Server!
Check out the Long Covid Library For Change community on Discord – hang out with 158 other members and enjoy free voice and text chat.
053
Long Covid Library For Change @longcovidchange.bsky.social · 11/12/2023
Utterly disgusting.. twitter.com/DavidSteadso...
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