iiinova — where your digital self keeps evolving

Lobular Breast Cancer UK @lobularbcuk.bsky.social · 27/04/2026

Huge congrats to Ben, our first ever #LondonMarathon runner! Yesterday Ben smashed his target time by 9 minutes. He was aiming for 3 and a half hours and completed the marathon in 3 hours and 21 mins - what an epic achievement. Ben has also smashed his fundraising target of £5,000 🙌 Thank you Ben!

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Lobular Breast Cancer UK @lobularbcuk.bsky.social · 28/08/2025

- For better screening programmes and imaging as a priority, as Lobular can be difficult to be seen on mammograms for some patients - For more clinical trials and for Lobular patients to be proportionately represented and their data to be reported on

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Lobular Breast Cancer UK @lobularbcuk.bsky.social · 28/08/2025

Yesterday we were proud to join 60 cancer charities to speak as #OneCancerVoice. Together, we are calling on the government to deliver a fully-funded National Cancer Plan for England. In order to make real change happen for people living with cancer, the Plan must meet six essential tests.

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Lobular Breast Cancer UK @lobularbcuk.bsky.social · 11/08/2025

One of our goals is to support people to become their own best advocate & get involved as patient advocates in research & campaigning. The learning that Claire will be bringing back will strengthen our current strategy & collaboration with researchers, clinicians & other breast cancer charities.

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Lobular Breast Cancer UK @lobularbcuk.bsky.social · 11/08/2025

“I've already learnt so much about the basic biology of breast cancer and know I'm going to come back with a much clearer strategy, evidence base and knowledge. I'm aiming to think better, challenge bolder, and be a transformative advocate for research and policy change in breast cancer.”

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Lobular Breast Cancer UK @lobularbcuk.bsky.social · 11/08/2025

This month, our CEO, Claire Turner, was in San Diego attending the @nbccstopbc.bsky.social's Project Lead - the world leading 6-day patient advocacy science training programme.

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Lobular Breast Cancer UK @lobularbcuk.bsky.social · 15/07/2025

Due to its unique growth pattern, Lobular Breast Cancer rarely forms a lump, making it hard to detect on scans. Remember - you know your body best, so always be aware of any changes or differences that you see and feel. The signs & symptoms of Lobular: lobularbreastcancer.org.uk/signs-and-sy...

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Lobular Breast Cancer UK @lobularbcuk.bsky.social · 05/06/2025

Are you a woman with Lobular Breast Cancer? Got 15 -20 mins to spare? In partnership with University of Aberdeen, we're conducting research to understand the emotional & informational needs of women with Lobular & how these needs can be supported through online resources.

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Lobular Breast Cancer UK @lobularbcuk.bsky.social · 28/05/2025

We're recruiting for Trustees who can help us to continue improving our work, challenging how we do things, and who want to make positive change in the lives of everyone affected by Lobular. Read more & download our Trustee Recruitment pack: lobularbreastcancer.org.uk/could-you-be...

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Lobular Breast Cancer UK @lobularbcuk.bsky.social · 06/05/2025

Due to the growth of LBCUK’s activities and our expanding role in advocacy and research across the UK and internationally, we’re delighted to announce that Claire Turner has been appointed as Interim part time Chief Executive for the charity.

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Lobular Breast Cancer UK @lobularbcuk.bsky.social · 29/04/2025

Meet Sankari Nagarajan, a Breast Cancer Research Scientist at Cancer Research UK Cambridge Institute, Deputy Director at the @mcr-breastcentre.bsky.social and lecturer in Chromatin Biology.

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Lobular Breast Cancer UK @lobularbcuk.bsky.social · 15/04/2025

We welcome the news that capivasertib with fulvestrant will be offered on the NHS to women with metastatic breast cancer in England and Wales.

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Lobular Breast Cancer UK @lobularbcuk.bsky.social · 09/04/2025

Meet Renée, a Postdoctoral Research Scientist at The Institute of Cancer Research in London. Renée's work explores the therapeutic potential of targeting extracellular matrix (ECM) remodelling in Invasive Lobular Carcinoma (ILC). 1/2 #LobularBreastCancer #WomenInScience #CancerResearch

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Lobular Breast Cancer UK @lobularbcuk.bsky.social · 04/04/2025

Ollie is running the #BrightonMarathon on Sunday for LBCUK! It's his first ever marathon and he's running in support of his mum, Angela 💜 Drop a 🙌 to wish him luck! If you'd like to support Ollie, you can donate to his JustGiving page here: www.justgiving.com/page/oliver-...

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Lobular Breast Cancer UK @lobularbcuk.bsky.social · 03/04/2025

The Government is writing a new national cancer plan. Share your opinions & help inform them of the wider needs of Lobular patients – how it’s a distinct disease that needs better understanding, more research and more effective treatment guidelines. consultations.dhsc.gov.uk/shaping-the-...

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Lobular Breast Cancer UK @lobularbcuk.bsky.social · 24/03/2025

Have you had a Metastatic Lobular diagnosis? Could you help Lobular Breast Cancer researchers at the Lee-Oesterreich Lab at UPMC Hillman Cancer Center and the University of Pittsburgh School of Medicine in the US with their research?

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Lobular Breast Cancer UK @lobularbcuk.bsky.social · 21/03/2025

This time last week we were with the clinicians at St Bartholemew’s Hospital to participate in their annual Barts Health NHS Trust Breast Cancer meeting. Our Chair, Claire Turner, and Trustee, Emma Amos, did a presentation about the impact of a Lobular diagnosis on patients.

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Lobular Breast Cancer UK @lobularbcuk.bsky.social · 20/03/2025

Do you know what one of the simplest things you can do to raise awareness of Lobular Breast Cancer is? Call it by its name. Most people have never heard of Lobular Breast Cancer so the more we name it and talk about it, the more awareness we will raise.

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