iiinova — where your digital self keeps evolving

Lobular Breast Cancer UK @lobularbcuk.bsky.social · 29/04/2026

Fantastic to see another Lobular Breast Cancer research programme from Dr Megan Cruse who also works closely with patient advocates and is a key part of the international Lobular research community.

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Lobular Breast Cancer UK @lobularbcuk.bsky.social · 27/04/2026

Huge congrats to Ben, our first ever #LondonMarathon runner! Yesterday Ben smashed his target time by 9 minutes. He was aiming for 3 and a half hours and completed the marathon in 3 hours and 21 mins - what an epic achievement. Ben has also smashed his fundraising target of £5,000 🙌 Thank you Ben!

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Lobular Breast Cancer UK @lobularbcuk.bsky.social · 22/09/2025

Happy 4th birthday to us! 🎈 🎉 Read all about what we have done over the last 12 months, thanks to the support of our fundraisers, volunteers and supporters: lobularbreastcancer.org.uk/lobular-brea...

lobularbreastcancer.org.uk

Lobular Breast Cancer UK turns 4! - Lobular Breast Cancer UK

On 22 September 2025 we're celebrating our 4th birthday and everything we've achieved as a small, mostly volunteer-led charity.

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Lobular Breast Cancer UK @lobularbcuk.bsky.social · 28/08/2025

Yesterday we were proud to join 60 cancer charities to speak as #OneCancerVoice. Together, we are calling on the government to deliver a fully-funded National Cancer Plan for England. In order to make real change happen for people living with cancer, the Plan must meet six essential tests.

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Lobular Breast Cancer UK @lobularbcuk.bsky.social · 11/08/2025

This month, our CEO, Claire Turner, was in San Diego attending the @nbccstopbc.bsky.social's Project Lead - the world leading 6-day patient advocacy science training programme.

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Lobular Breast Cancer UK @lobularbcuk.bsky.social · 15/07/2025

Due to its unique growth pattern, Lobular Breast Cancer rarely forms a lump, making it hard to detect on scans. Remember - you know your body best, so always be aware of any changes or differences that you see and feel. The signs & symptoms of Lobular: lobularbreastcancer.org.uk/signs-and-sy...

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Lobular Breast Cancer UK @lobularbcuk.bsky.social · 08/06/2025

Just a reminder that the deadline to apply to become a LBCUK Trustee is Wednesday 11 June.

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Lobular Breast Cancer UK @lobularbcuk.bsky.social · 05/06/2025

Are you a woman with Lobular Breast Cancer? Got 15 -20 mins to spare? In partnership with University of Aberdeen, we're conducting research to understand the emotional & informational needs of women with Lobular & how these needs can be supported through online resources.

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Lobular Breast Cancer UK @lobularbcuk.bsky.social · 02/06/2025

This #VolunteersWeek we’d like to say a huge ‘Thank You’ to all our amazing Trustees. We couldn’t do what we do without you 🧡 And we’re recruiting for new Trustees to join our small but mighty charity! Could this be you? ⬇️

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Lobular Breast Cancer UK @lobularbcuk.bsky.social · 29/05/2025

Thank you Ellie for a great article and for featuring us!

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Lobular Breast Cancer UK @lobularbcuk.bsky.social · 28/05/2025

We're recruiting for Trustees who can help us to continue improving our work, challenging how we do things, and who want to make positive change in the lives of everyone affected by Lobular. Read more & download our Trustee Recruitment pack: lobularbreastcancer.org.uk/could-you-be...

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Lobular Breast Cancer UK @lobularbcuk.bsky.social · 06/05/2025

Due to the growth of LBCUK’s activities and our expanding role in advocacy and research across the UK and internationally, we’re delighted to announce that Claire Turner has been appointed as Interim part time Chief Executive for the charity.

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Lobular Breast Cancer UK @lobularbcuk.bsky.social · 29/04/2025

Meet Sankari Nagarajan, a Breast Cancer Research Scientist at Cancer Research UK Cambridge Institute, Deputy Director at the @mcr-breastcentre.bsky.social and lecturer in Chromatin Biology.

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Lobular Breast Cancer UK @lobularbcuk.bsky.social · 17/04/2025

What are the challenges in diagnosing Lobular and what new methods of testing are available? BBC News presenter Jane Hill interviews Professor Elinor Sawyer to find out. Watch the interview on our YouTube channel. www.youtube.com/watch?v=H6D6...

youtube.com

Jane Hill in conversation with Oncologist Elinor Sawyer

YouTube video by Lobular Breast Cancer UK

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Lobular Breast Cancer UK @lobularbcuk.bsky.social · 15/04/2025

We welcome the news that capivasertib with fulvestrant will be offered on the NHS to women with metastatic breast cancer in England and Wales.

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Lobular Breast Cancer UK @lobularbcuk.bsky.social · 09/04/2025

Meet Renée, a Postdoctoral Research Scientist at The Institute of Cancer Research in London. Renée's work explores the therapeutic potential of targeting extracellular matrix (ECM) remodelling in Invasive Lobular Carcinoma (ILC). 1/2 #LobularBreastCancer #WomenInScience #CancerResearch

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Lobular Breast Cancer UK @lobularbcuk.bsky.social · 04/04/2025

Ollie is running the #BrightonMarathon on Sunday for LBCUK! It's his first ever marathon and he's running in support of his mum, Angela 💜 Drop a 🙌 to wish him luck! If you'd like to support Ollie, you can donate to his JustGiving page here: www.justgiving.com/page/oliver-...

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Lobular Breast Cancer UK @lobularbcuk.bsky.social · 03/04/2025

The Government is writing a new national cancer plan. Share your opinions & help inform them of the wider needs of Lobular patients – how it’s a distinct disease that needs better understanding, more research and more effective treatment guidelines. consultations.dhsc.gov.uk/shaping-the-...

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Lobular Breast Cancer UK @lobularbcuk.bsky.social · 24/03/2025

Have you had a Metastatic Lobular diagnosis? Could you help Lobular Breast Cancer researchers at the Lee-Oesterreich Lab at UPMC Hillman Cancer Center and the University of Pittsburgh School of Medicine in the US with their research?

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Lobular Breast Cancer UK @lobularbcuk.bsky.social · 21/03/2025

This time last week we were with the clinicians at St Bartholemew’s Hospital to participate in their annual Barts Health NHS Trust Breast Cancer meeting. Our Chair, Claire Turner, and Trustee, Emma Amos, did a presentation about the impact of a Lobular diagnosis on patients.

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Lobular Breast Cancer UK @lobularbcuk.bsky.social · 20/03/2025

Do you know what one of the simplest things you can do to raise awareness of Lobular Breast Cancer is? Call it by its name. Most people have never heard of Lobular Breast Cancer so the more we name it and talk about it, the more awareness we will raise.

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Reposted by Lobular Breast Cancer UK

European Lobular Breast Cancer Consortium @elbcc-2018.bsky.social · 27/02/2025

We have overhauled www.elbcc.org and ask all existing and future participants to register and indicate their preferred working groups. Check the site, current members, and spread the word! @christinedesmedt.bsky.social @pwbderksen.bsky.social @lobularbcuk.bsky.social @lobularbca.bsky.social

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Lobular Breast Cancer UK @lobularbcuk.bsky.social · 15/01/2025

Great footage from 2024’s Invasive Lobular Breast Carcinoma (ILC) Symposium. Thank you for sharing European Lobular Breast Cancer Consortium and looking forward to working with you to continue driving change for Lobular patients in 2025.

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