iiinova — where your digital self keeps evolving

Kristina | Patient Advocate @kppatientadvocate.bsky.social · 03/03/2026

It’s my book birthday! 🎉 Chronically Ill, Wildly Capable is ready to help you build a flexible and sustainable career. Available on Amazon and Barnes & Noble. a.co/d/03rsY0Fu

000

Kristina | Patient Advocate @kppatientadvocate.bsky.social · 11/02/2026

Exciting news 🎉 My next book, Chronically Ill, Wildly Capable, comes out March 3rd! Packed with relatable and humorous stories, heartfelt interviews, and easy to implement strategies to start planning your flexible, sustainable career. Read the blurb ⬇️ littleenginepatientadvocacy.com/2026/01/21/h...

littleenginepatientadvocacy.com

How to Build a Flexible Career With a Chronic Illness: Introducing Chronically Ill, Wildly Capable

I was running a successful digital marketing business before I got sick with multiple autoimmune diseases. Before fatigue knocked me to the ground. Before the pain was a gnawing distraction. Before…

000

Kristina | Patient Advocate @kppatientadvocate.bsky.social · 06/12/2025

If you want to start the new year with more confidence on your health path, these 2 resources are on sale thru 12/31/25: 🎁 Streamlining Sjogren’s course: 20% off with code HEALTHYHOLIDAY 🎁 Patient Empowerment Workbook: 15% off with code POWERUP15 resources.littleenginepatientadvocacy.com

010

Kristina | Patient Advocate @kppatientadvocate.bsky.social · 14/09/2025

Feeling grateful, and excited for my second book about building a custom career with a #chronicillness. First draft is 95% complete! ☺️

010

Kristina | Patient Advocate @kppatientadvocate.bsky.social · 13/05/2025

I was honored to be invited on the Uncompany CMDQ Podcast, which explores what it’s like to leave things behind. Through sharing my story, I talked about quitting being a passenger in your healthcare journey and how to stay in the driver's seat. www.weareuncompany.com/podcasts/cmd...

010

Kristina | Patient Advocate @kppatientadvocate.bsky.social · 03/05/2025

Honored to be in @sarahschafermd.bsky.social recent newsletter. Her kind words about my book have me smiling from ear to ear! #autoimmunelife #sjogrens #patientadvocate

140

Kristina | Patient Advocate @kppatientadvocate.bsky.social · 27/04/2025

Understanding dysautonomia played a significant role in advocating for my Sjogren’s diagnosis. Excellent article that dispels myths around this autoimmune disease. dysautonomiainternational.org/blog/wordpre...

dysautonomiainternational.org

Your dysautonomia may be caused by Sjogren’s disease. Here’s why that matters. | The Dysautonomia Dispatch

092

Kristina | Patient Advocate @kppatientadvocate.bsky.social · 09/04/2025

But it’s the 5/5⭐️s across all platforms that has me 😭 Available on Amazon, Audible and Barnes & Noble online.

000

Kristina | Patient Advocate @kppatientadvocate.bsky.social · 08/04/2025

I’m at 99 books sold in less than 3 weeks! Snag the 100th copy…for you, a friend, a neighbor, or a loved one. 5/5 ⭐️ across ebook, paperback and audible. Giddy & grateful. 🥰 🛒 Amazon, Audible and Barnes & Nobles online 📷: Buddy the Foxhound

000

Kristina | Patient Advocate @kppatientadvocate.bsky.social · 02/04/2025

Shared with permission: “I cannot thank Kristina enough. That book is a game changer for me. I've been sitting here blaming God. Blaming myself. Thinking it was just me -that nobody cared about me and that's why no one was helping me because it was what I deserved...

100

Kristina | Patient Advocate @kppatientadvocate.bsky.social · 21/03/2025

Knowing how many people buy a book and never finish it (guilty myself), I had a goal of how many books I wanted to sell my 1st year. My book has been out for 4 days and I’m 60% to goal. If I didn’t have Sjogren’s, I would have tears of joy 🥹 I hope it empowers readers & gives them hope (& a laugh).

000

Kristina | Patient Advocate @kppatientadvocate.bsky.social · 18/03/2025

It is my book birthday! 🎉 As a chronically ill patient and board certified patient advocate, I wanted to create a self-help book that provided patients with validation through relatable stories and proven strategies on how to battle through common healthcare challenges. On Amazon & B&N online. ☺️

020

Reposted by Kristina | Patient Advocate

Kara Wada MD FAAAAI, DiplABLM @immuneconfidentmd.bsky.social · 18/03/2025

Double duty: patient with Sjögren's & dysautonomia AND a physician. Just finished "Being a Badass in a Broken Healthcare System" by @kppatientadvocate.bsky.social 🤯 It's like she wrote my life story... but also gave me a manual for how to be a better doc. 😅 🧵1/4

262

Kristina | Patient Advocate @kppatientadvocate.bsky.social · 16/03/2025

3 more days until 🚀! I poured my heart and spoons into this book for the past 13 months. I wrote it for anyone who feels alone, scared, frustrated, and abandoned in their chronic illness journey. Get your copy Tuesday, March 18th on Amazon and Barnes & Noble online. ☺️ #spoonies #zebras #healthcare

010

Kristina | Patient Advocate @kppatientadvocate.bsky.social · 08/03/2025

5 Reasons to Preorder "How to Be a Badass in a Broken Healthcare System" on Barnes & Noble! 📚

120

Kristina | Patient Advocate @kppatientadvocate.bsky.social · 07/03/2025

The audiobook version of my book is live! Available on Audible and iTunes. It’s a mix of relatable stories and proven strategies for my fellow chronic illness warriors or caregivers. Ebook & paperback will be available Tuesday, March 18th on Amazon and B&N online.

000

Kristina | Patient Advocate @kppatientadvocate.bsky.social · 05/03/2025

My debut book, How to Be a Badass in a Broken Healthcare System, is #1 and #2 in new releases in two categories 🥰 for Kindle preorder. Thank you for the early support. All formats come out Tuesday, March 18th on Amazon and Barnes & Noble online. Let’s feel better together!

000

Kristina | Patient Advocate @kppatientadvocate.bsky.social · 28/02/2025

It’s Rare Disease Day. As someone navigating a rare disease, I know how challenging it can be to get that elusive diagnosis, find a care team you can truly trust, and then figure out what actually works for your body. It’s like trying to solve a puzzle that doesn’t even have all the pieces.

110

Kristina | Patient Advocate @kppatientadvocate.bsky.social · 21/02/2025

Only a few spots remain for advanced copy readers (ARC) for my new book. Free ebook for an honest review. It’s a mix of stories (told with sass & humor) and strategies from a board certified patient advocate to empower chronically ill patients. Reach out if interested & I’ll send more details.

000

Kristina | Patient Advocate @kppatientadvocate.bsky.social · 16/01/2025

Do your doctors appointments leave you feeling dismissed, hopeless, angry & confused? We can’t control how providers show up, but we can control how we show up. The Patient Empowerment Workbook teaches effective communication & goal setting. resources.littleenginepatientadvocacy.com/patient-empo...

60% of patients say they forget key concerns during their appointment appointments

A clear goal may improve your healthcare appointments

Photo of the patient, empowerment, workbook, tools, and tactics for powering up your appointments.

000

Kristina | Patient Advocate @kppatientadvocate.bsky.social · 13/01/2025

Getting excited for my book, How to be a Badass in a Broken System! It was written for chronically ill patients who want to go from overwhelmed to empowered. Coming out in March!

000

Kristina | Patient Advocate @kppatientadvocate.bsky.social · 15/12/2024

Coming in March! A complete guide for being your own best advocate. Perfect for chronic illness patients struggling to be seen and heard in the healthcare system. Help get the care you deserve! Still same spots available for ARC readers. Let me know if you’re interested.

Printed book. Cover pages text says How to be a Badass in a Broken Healthcare System.

020

Kristina | Patient Advocate @kppatientadvocate.bsky.social · 27/11/2024

If you struggled to get diagnosed with your chronic illness, would you have joined a program / bought a course that provided tips & tactics to help reduce time to diagnosis & care?

010

Reposted by Kristina | Patient Advocate

ACR Journals @acr-journals.bsky.social · 25/11/2024

Week 52 efficacy results and up to 2-year safety follow-up of ianalumab in patients with Sjögren’s disease from a phase 2b dose-finding study In A&R acr.tw/3CEmaUJ #Medsky Figures (1) Summary of efficacy data at week 52 compared to week 24 (2) Stimulated salivary flow rate over time up to week 48

Summary of efficacy data at week 52 compared to week 24

Only patients with week 24 measurements and at least 1 measurement after week 24 were included

Stimulated salivary flow rate over time up to week 48

Change from baseline for dose arms studied in treatment protocol 2 following the new treatment assignment at week 24. Baseline was defined as the last assessment performed on or prior to the date of administration of the first dose of the study treatment

095

Kristina | Patient Advocate @kppatientadvocate.bsky.social · 20/11/2024

Excited to be on this platform and off of x. After battling symptoms & dismissive doctors for years, I found my way to answers & treatment. As a result, I went back to school & just passed my board exam as a patient advocate. I’ll be specializing in #autoimmune and #connectivetissue conditions.

2121

Reposted by Kristina | Patient Advocate

Sjogren’s Advocate @sarahschafermd.bsky.social · 17/11/2024

It's Official: Sjogren's DISEASE, not syndrome, has been accepted by the international community. This better reflects the serious systemic nature of the disease, which is never limited to sicca. Learn more: www.sjogrensadvocate.com/post/new-sel...

sjogrensadvocate.com

New Self-Advocacy Tool – It’s Sjogren’s Disease

The official name change to Sjogren's disease can be used to encourage clinicians to address the serious, systemic nature of Sjogren's.

13214