iiinova — where your digital self keeps evolving

Reposted by Kim Horstmanshof

Long Covid SOS @longcovidsos.bsky.social · 15/03/2025

🚨 Mythbusting #LongCovid with Dr Amir Khan🚨 Long Covid is real. It’s serious. And it’s affecting millions. On #LongCovidAwarenessDay, #DrAmirKhan joins us to bust harmful myths. Watch, learn, and share—because the more we talk about Long Covid, the harder it is to ignore.

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Reposted by Kim Horstmanshof

Long Covid SOS @longcovidsos.bsky.social · 12/03/2025

We are heartbroken to share the loss of our co-founder, CEO, and beloved friend, Ondine, who passed away on Tuesday 11th March. Longcovidsos.org/post/ondine-sherwood

A black background with centered white text. The heading reads, “In Honour of Ondine Sherwood.” The message states that Long Covid SOS is heartbroken to share the loss of their co-founder, CEO, and beloved friend, Ondine, who passed away on Tuesday, 11th March. It expresses love and condolences to her family. A small horizontal line is placed at the bottom.

A black background with centered white text. The message describes Ondine as the driving force and heartbeat of the Long Covid SOS team, a dear friend, and a profound loss to the community. It expresses devastation at her passing but also a commitment to continuing her legacy. The final line states, “We will miss her every day.” A small horizontal line is placed at the bottom.

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Long Covid SOS @longcovidsos.bsky.social · 15/03/2025

Today, we honour Ondine. Every post we share on #LongCovidAwarenessDay is dedicated to our co-founder, friend, inspiration & relentless advocate, Ondine Sherwood. Her passion, determination, & unwavering fight for recognition & support have left an indelible mark on the world.

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Long Covid SOS @longcovidsos.bsky.social · 06/03/2025

Watch us pack your #LongCovid Awareness pins with love, in gorgeous spring sunshine accompanied by birdsong 🕊️🌞🌷 Another batch winging their way to you today! Buy yours at longcovidsos.org/shop - there’s still time! #longcovidawareness #longcovidawarenessday #fyp #packanorderwithme #birdsong

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Long Covid SOS @longcovidsos.bsky.social · 18/02/2025

The last week has seen direct and indirect denials of #LongCovid’s existence & attacks on the #LongCovid community. In a world of denial, it’s not easy to know who supports us. Advocacy on social media & through community networks helps us weather these storms together.

Promotional graphic for a Long Covid Awareness Day enamel pin. The background is a black colour with a silhouetted heart made of campaigning ribbons. At the top, bold white text reads ‘Pre-order now,’ followed by white text stating, ‘ Long Covid Awareness Day Enamel Pins’ In the center, there is a ribbon design with one teal side and one metallic silver side, featuring the words ‘LONG COVID SOS’ printed on the silver portion. Below the ribbon, white text says ‘Available to pre-order from Feb 15th
Wear yours with pride on March 15th to show support!’

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Long Covid SOS @longcovidsos.bsky.social · 16/02/2025

And don’t forget our new #LongCovidAwareness ribbon pin badges, sold directly by us at longcovidsos.org/shop - international & UK shipping available, starting at £3+P&P Wear it with pride, and show solidarity with our #CovidConscious community 🩵🩶🖤

longcovidsos.org

SHOP | Long Covid SOS

Help us to continue our work to to push for greater recognition and understanding of Long Covid, to drive forward targeted research and to provide support and resources to those struggling to recover.

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Long Covid SOS @longcovidsos.bsky.social · 16/02/2025

Reminder of the sale on all of our #LongCovidAwareness fundraising merch continues through Monday 17th - don’t hang around! Click through to our global store here to get ready for International #LongCovid Awareness Day on 15 March longcovidsos.myspreadshop.co.uk

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Long Covid SOS @longcovidsos.bsky.social · 15/02/2025

Our ribbon pin represents all that is positive and powerful about our #LongCovid community. Pre-order yours today and wear it with pride. International & UK shipping begins early March, ready for International Long Covid Awareness Day on 15th March www.longcovidsos.org/shop

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Reposted by Kim Horstmanshof

Long Covid SOS @longcovidsos.bsky.social · 15/02/2025

Huge thanks to everyone who has pre-ordered our new limited edition #LongCovidAwareness ribbon pins, we didn’t expect so many sales so soon! Our team have written about why these pins are such an important & powerful sign of our community’s strength www.longcovidsos.org/post/new-rib...

longcovidsos.org

New ribbon pins for Long Covid Awareness Day - pre-orders open!

Discover our new Long Covid Awareness ribbon pin representing all that is positive and powerful about our community. Pre-order yours today and wear it with pride.

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Reposted by Kim Horstmanshof

Long Covid SOS @longcovidsos.bsky.social · 15/02/2025

🚨 Limited Edition Alert! 🚨 Show your support for Long Covid Awareness Day on March 15th with our exclusive enamel pin! 💙✨ Pre-order NOW before they’re gone—let’s raise awareness together! ⬇️ www.longcovidsos.org/shop #LongCovid #LongCovidAwarenessDay #WearItWithPride

longcovidsos.org

SHOP | Long Covid SOS

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Long Covid SOS @longcovidsos.bsky.social · 13/02/2025

We were shocked by this Sky News report suggesting with little more than anecdotes that increased presentations at A&E by young people with chest pain is due to health anxiety when chest pain & palpitations are common #LongCovid symptoms

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Long Covid SOS @longcovidsos.bsky.social · 13/02/2025

#LongCovid making you feel muggy-headed? We’ve got a mugnificent 22% off fundraising mugs - and more- to lift your spirits (and your coffee) for #LongCovidAwarenessDay on 15 March longcovidsos.myspreadshop.co.uk/accessories+...

A black background with a stack of mugs with Long Covid Awareness Day slogans and designs.

Text around the mugs says:
22% off everything 11-17 February
Not just mugs
Get ready for LongCovidAwarenessDay

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Reposted by Kim Horstmanshof

Alt National Park Service @altnps.bsky.social · 12/02/2025

Last night, the Trump administration stated that it would not fire probationary employees. However, layoffs of probationary employees have already begun at several offices, including the CFPB, OPM, and GSA, and are still continuing today.

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Reposted by Kim Horstmanshof

Long Covid SOS @longcovidsos.bsky.social · 12/02/2025

A late alert for all of our international followers - 22% off all our fundraising merch today through Monday 17th. Express your feelings about #LongCovid, raise awareness, and be ready for #LongCovidAwarenessDay on 25 March. longcovidsos.myspreadshop.co.uk/f+lc+-+aware...

A partial image of a white t-shirt hanging up. The t-shirt has the slogan F* Long Covid with the F* followed by a stylised awareness ribbon on its side that looks like the letters c and k.

Above the image there is text saying:
22% off everything
11 - 17 Feb
#LongCovidAwarenessDay
March 15 2025
BE PREPARED!

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Reposted by Kim Horstmanshof

Long Covid SOS @longcovidsos.bsky.social · 12/02/2025

How are you? I’m fine…. Why do we do this? 🤐 Because explaining all of it is exhausting - physically, mentally, and emotionally. #LongCovid is complex, and most people don’t truly understand it. And many would rather not know.

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Long Covid SOS @longcovidsos.bsky.social · 08/02/2025

Our statement on Andrew Gwynne’s sacking as junior minister for Public Health and Prevention www.theguardian.com/politics/202... #longcovid #AndrewGwynne @longcovidsupport.bsky.social @longcovidkids.bsky.social @longcovidphysio.bsky.social

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Long Covid SOS @longcovidsos.bsky.social · 07/02/2025

Statement of Concern regarding the future of #LongCovidClinics across the UK (in pics & alt text) We are receiving many messages from the #LongCovid community about announced/ potential closures. We are actively pursuing this issue urgently as answers are needed. We hope better news lies ahead 🤞

A grey background with the following text:

Statement of Concern:
The Future of Long Covid Clinics
We have received numerous emails and messages from patients, families, and healthcare professionals expressing deep concern over the potential closure of Long Covid clinics. These clinics provide vital, specialised care for thousands of people still struggling with the long-term effects of Covid-19.

Long Covid SOS

A grey background with the following text:
Without these dedicated services, patients will be left without the support they desperately need, placing further strain on GPs, hospitals, and the wider healthcare system. We need more and better funding for these clinics, not their closures.
The loss of these clinics would not only harm individuals but also have wider consequences for the workforce and economy, as many people with Long Covid struggle to return to work.
Long Covid SOS

A grey background with the following text:

We urge decision-makers to listen to these concerns and commit to keeping Long Covid clinics open, fully funded, and accessible. We will be actively pursuing this issue and pushing for the
continued support, more funding and expansion of these vital services. Failing to act would be a step backwards in addressing the long-term consequences of the pandemic and would leave many without the care they need to recover.

Long Covid SOS

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Reposted by Kim Horstmanshof

Nature Portfolio @natureportfolio.nature.com · 06/02/2025

The protective effects of natural infection against repeated exposure to SARS-CoV-2 reduced substantially after the emergence of the Omicron variant, according to a study in Nature. A decline was observed in both the level of protection and duration of immunity in the post-Omicron era. 🧪

go.nature.com

Differential protection against SARS-CoV-2 reinfection pre- and post-Omicron - Nature

Two distinct patterns in the protective effect of natural infection against reinfection in the Omicron variant versus pre-Omicron eras show that SARS-CoV-2 immune protection is shaped by dynamic interaction between host immunity and viral evolution.

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Reposted by Kim Horstmanshof

Frances Ryan @francesryan.bsky.social · 06/02/2025

Labour is expected to finalise a package of benefit cuts in the next fortnight in a “radical overhaul” that could affect hundreds of thousands of disabled people. My col. in today’s paper on a system that expects those with the least to lose the most. www.theguardian.com/commentisfre...

theguardian.com

As Labour touts more brutal cuts to benefits, how is this different from life under the Tories? | Frances Ryan

There may be no nasty impulse to punish ‘skivers’, but the end result – those who need help most hit hardest – is exactly the same, says columnist Frances Ryan

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Reposted by Kim Horstmanshof

Long Covid SOS @longcovidsos.bsky.social · 05/02/2025

#LongCovid sufferers in Britain .. lives devastated by "invisible" condition...costing countries billions of dollars Significant numbers taken out of the workforce, desperate, forgotten, struggling, please share and support us raising awareness www.context.news/socioeconomi...

context.news

"Living nightmare": Long COVID upends lives and finances | Context

Long COVID sufferers in Britain tell of lives devastated by "invisible" condition that is costing countries billions of dollars

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Reposted by Kim Horstmanshof

George Monbiot @georgemonbiot.bsky.social · 01/02/2025

1. If Trump runs out of immigrants to persecute, I suspect the next target for his performative sadism will be people with disabilities. Already, without a shred of evidence, he has blamed the air crash on disabled air traffic controllers, with horrible, stereotyping slurs about their disabilities.🧵

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George Monbiot @georgemonbiot.bsky.social · 01/02/2025

4. Already, he is attacking trans and gay people, Black and Brown people, Muslims, women, political opponents, journalists .... For the far right, the list of potential victims never ends. Either we stand with all those they target, or we will be picked off one by one.

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Reposted by Kim Horstmanshof

Alt NIH Bluesky 🧪 @altnih4science.bsky.social · 30/01/2025

This account is for sharing info with US scientists, both extramural and intramural to NIH, about attacks on science in the US. Education is power, and we can help advocate for science and medicine together. 💪🧪 We are a team of NIH people. Please ask us questions you might have.

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Danielle Beckman @daniellebeckman.bsky.social · 30/01/2025

Covid 'brain fog' likely factor in train's near-miss www.1news.co.nz/2025/01/30/c... A locomotive engineer experiencing brain fog after #COVID infection likely played a role in a KiwiRail coal train's near miss with another train, an investigation has found. No one could have foreseen this. 🙄

1news.co.nz

Covid 'brain fog' likely factor in train's near-miss

Transport Accident Investigation Commission finds a KiwiRail engineer was likely to be cognitively impaired when he ran a stop signal near Arthur's Pass.

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Squidge Rugby @squidgerugby.bsky.social · 27/01/2025

This is the worst news for Rugby Union in the UK for decades. The Six Nations is the only time most people here give a shit about rugby. You take that off free-to-air TV and the sport becomes a closed shop with no shot at ever growing.

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Long Covid SOS @longcovidsos.bsky.social · 25/01/2025

"The evidence of Dr Ritchie was a significant outlier being inconsistent with all expert evidence adduced in the Inquiry."

Notably public disclosure in the Inquiry showed the Public Health England informed the UK IPC cell as early as December 2020 that the understanding of aerosol transmission had changed. This evidence supports airborne routes has always been a significant factor in the spread of Covid-19.

Scientific evidence: Urgent review of IPC guidance
12. We understand from your statement of 16 January 2025 that you would welcome an informed review of the current scientific evidence on routes of transmission.
13. We draw your attention to the enclosed Long Covid Groups joint letter endorsed by several other Core Participants seeking
urgent interim
recommendations that:
By 1 March 2025, UKHSA, NHSE, DHSC and other public health agencies (including those in the Devolved Nations), with the benefit of multi-disciplinary input from experts in physical sciences and the UK's Health and Safety regulator, the HSE, revise IPC guidance in the NIPCM and HTM guidelines to ensure:
(a) recognition of the role of airborne transmission of SARS-Cov-2; and
(b) there is appropriate guidance on measures to limit airborne transmission of respiratory viruses such as Covid-19 including the use of FFP3 masks, improved standards of ventilation and air filter devices in healthcare settings (both clinical and non-clinical) and ensure the distribution of those guidelines to all employers/providers of clinical and non-clinical healthcare
Any such review must include consultation with key stakeholders
14. We trust as Minister for health protection that you will want to take the opportunity support the call for interim recommendations to review IPO guidance in light of the evidence heard at the Covid-19 Public Inquiry
15. We would ask that you provide your response by 14 February 2025.
Your faithfully
Bhatt Murphy

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Reposted by Kim Horstmanshof

Long Covid SOS @longcovidsos.bsky.social · 25/01/2025

"Our clients are troubled that you have referred to a long outdated guidance and have apparently not considered the overwhelming scientific evidence in the Covid-19 Public Inquiry supporting airborne transmission. Further your statement incorrectly reports the WHO position"

6. It is extremely troubling that the Government appears to be continuing to minimise the
role of airborne transmission rather than
focusing on
preventative measures such as investment in ventilation in public buildings including schools and hospitals.
Expert evidence: Airborne Transmission
7. The Covid-19 Inquiry experts to the Inquiry on IPC controls, Professor Clive Beggs, Dr Ben Warne and Dr Gee Yen Shin all agree that Covid-19 is transmitted through the airborne route. All agree that FFP3 respirators provide more protection for healthcare workers than surgical masks and there is an urgent need to update the IPC guidance to recommend the routine use of FFP3s and improve standards of ventilation and air filtration in the NHS estate to mitigate airborne transmission of Covid-19 and other respiratory viruses.
8. The evidence of Dr Ritchie was a significant outlier being inconsistent with all expert evidence adduced in the Inquiry.
9. Prof. Clive Beggs, explained to the Inquiry that Covid 19 is transmitted
"predominantly by an airborne route" and based on a range of evidence that he observed there was sufficient evidence that airborne transmission was a
"strong possibility'," even in the early stages of the pandemic and was unequivocal that the position on airborne transmission was clear by September 2020.
10. Dr Barry Jones remarked that SARS-CoV-2 "was defined as aerosol transmitted from the very moment it came into the country" and Covid 19 is said to mirror the airborne transmission patterns seen in related highly sequential infectious viruses like SARS-1 and MERS* (which you will of course be aware continue to be designated airborne viruses).
11. In addition to witnesses, the Scottish Chief Medical Office, Professor Sir Gregor Smith and Professor Dame J. Harries, the Chief Executive of the UK Health Security Agency (UKHSA) both point out that "aerosol transmission was very real" and accepts that its role was "significantly higher than (that) was accounted for.

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Long Covid SOS @longcovidsos.bsky.social · 25/01/2025

Our #LongCovid Groups legal team has written to @gwynnemp.bsky.social to express our concern about comments made in his letter to @timfarron.bsky.social regarding #covid transmission #CovidIsAirborne - it is not primarily spread by droplets

Letter on Bhatt Murphy headed paper addressed to Andrew Gwynne Mp:
Dear Sir
Covid-19: Routes of Transmission
Long Covid Groups: Long Covid Physio, Long Covid Kids, Long Covid
SOS and Long Covid Support
1. We act for the Long Covid Groups in the Covid-19 Public Inquiry.
2. We write on behalf of the Long Covid Groups to express their concern regarding recent statements made by yourself asserting that Covid-19' is not predominantly transmitted via the airborne route.
3. This position appears to be at odds with the testimony of prominent officials and experts during the Module 3 Covid-19 Public Inquiry who have emphasised the significant role of airborne transmission.
4. By letter dated 16 January 2025 to Tim Farron MP, you referred to the October 2020 UK Government guidance on SARS-CoV2 routes
of
transmission and stated: "In her testimony to the Covid-19 Inquiry Dr Lisa Ritchie, NHS England's National Infection Prevention and Control Lead, reaffirmed that Covid-19 is not predominately transmitted through the airborne route. This position is supported by the Government and aligns with the scientific evidence provided by the World Health Organisation (WHO). Until scientific evidence suggests that the virus is predominately spread through the airborne route, this stance will remain unchanged."
5. Our clients are troubled that as the Minister responsible for health protection including Covid-19 and other infectious diseases that you have referred to a long outdated guidance and have apparently
not considered the
overwhelming scientific evidence in the Covid-19 Public Inquiry supporting airborne transmission. Further your statement incorrectly reports the WHO position

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Esther @elhopkins.bsky.social · 10/01/2025

The economic impact of #Longcovid was devastating on economies in 2024. We need to take preventions seriously. @uklabour.bsky.social

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Prof Christina Pagel @chrischirp.bsky.social · 20/12/2024

ATTN people interested in the UK Covid response! A volunteer & I have created a new website sagesearch.info#top to make it much easier to search all documents that fed into, or produced by, official SAGE from Apr 2020 - July 2021. Filter by category, type, date; text search of summaries! 1/3

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Reposted by Kim Horstmanshof

Long Covid SOS @longcovidsos.bsky.social · 20/12/2024

We are calling for: 🏥 Recognition that #CovidIsAirborne 🏥 Appropriate guidence on measures to limit transmission of respiratory viruses: FFP3 masks, ventilation, air purification in healthcare settings, clinical and non-clinical #LongCovid Groups 2/3

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Long Covid SOS @longcovidsos.bsky.social · 20/12/2024

🧵Today our legal team has written to UK Covid Inquiry Chair to invite her to make urgent interim recommendations to make healthcare settings safe During mod 3 we heard how the refusal to accept that #CovidIsAirborne led to inadequate PPE The IPC guidence must be revised 1/3

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Long Covid SOS @longcovidsos.bsky.social · 12/12/2024

Our co-founder Ondine Sherwood is quoted in this extensive article on the risks of taking unlicensed & non-prescribed drugs. Our Bill of Rights calls on the government, health services & research funders to guarantee pw #LongCovid the right to safe healthcare www.longcovidsos.org/bill-of-rights

longcovidsos.org

BILL OF RIGHTS | Long Covid SOS

HOME

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Long Covid SOS @longcovidsos.bsky.social · 10/12/2024

🧵📢We are excited to announce the publication of our new, revised and updated leaflet for GPs, developed with Post Covid ClinSoc & @rcgp.bsky.social It provides a comprehensive, easy reference to help doctors recognise, diagnose and identify treatments for #LongCovid www.longcovidsos.org/gp-leaflet

longcovidsos.org

GP LEAFLET | Long Covid SOS

In close partnership with the Clinical Post Covid Society we have completely revised and updated the leaflet for GPs that we co-produced with the Royal College of General Practitioners. This leaflet...

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Reposted by Kim Horstmanshof

Trish Greenhalgh @trishgreenhalgh.bsky.social · 08/12/2024

Let’s vaccinate against COVID. It reduces the risk of long COVID. This should be a no-brainer.

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Long Covid SOS @longcovidsos.bsky.social · 08/12/2024

Having one of those days where #LongCovid feels endless? We’ve got the perfect t-shirt for you… Today is the LAST day to get 25% off + free shipping in our online fundraising store. Get your orders in fast & help us campaign for answers! longcovidsos.myspreadshop.co.uk/long+covid+f...

A maroon men’s t-shirt and a dark pink women’s t-shirt with the slogan “Long Covid feels like forever”

A maroon men’s hoody and a black sofa cushion with the slogan “Long Covid feels like forever”

A black baseball cap and a white mug with a red handle with the slogan “Long Covid feels like forever”

A silver reusable water bottle and a glossy transparent cut-out sticker with the slogan “Long Covid feels like forever”

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Reposted by Kim Horstmanshof

Long Covid SOS @longcovidsos.bsky.social · 07/12/2024

You loved our FU LC slogan, so how about telling the world that #LongCovid can break your heart? Get 25% off & free shipping on our whole range through 8 Dec, so you can tell the world for less! longcovidsos.myspreadshop.co.uk/'long+covid+...

A black mug and a black hoody with red hood, both with a cartoon heart that has a crack running through it and the words “Long Covid can break your heart” running across

A black umbrella and a black womens-fit t-shirt with white collar and sleeve edges, both with a red cartoon heart that has a crack running through it and the words “Long Covid can break your heart” running across it

A maroon womens-fit long-sleeved t-shirt and a white reusable water bottle with black lid, both with a red cartoon heart on that has a crack running through it and the words “Long Covid can break your heart” running across it

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Long Covid SOS @longcovidsos.bsky.social · 07/12/2024

Excellent thread and article summarising research progress in #LongCovid - what we know, what is being examined, and what we can hope to see

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Long Covid SOS @longcovidsos.bsky.social · 07/12/2024

Another cracking mythbusting column from @francesryan.bsky.social 👏

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Adam @abrokenbattery.bsky.social · 06/12/2024

"NHS to review ME services after death of Maeve Boothby O’Neill: Health minister and Nice commit to work to improve patient outcomes after landmark inquest" (The Times): www.thetimes.com/uk/healthcar...

thetimes.com

NHS to review ME services after death of Maeve Boothby O’Neill

Health minister and Nice commit to work to improve patient outcomes after landmark inquest

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Long Covid SOS @longcovidsos.bsky.social · 06/12/2024

Ever felt like saying “FU” to #LongCovid? If so we have just the T-shirt/badge/hoody/mug/hat/bag for you - in all sorts of colours and sizes. Get 25% off & free shipping through 8 Dec, so you can share your frustration with the world for less! longcovidsos.myspreadshop.co.uk/f+lc+-+aware...

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Long Covid SOS @longcovidsos.bsky.social · 05/12/2024

We have submitted our response to the @nhsengland.bsky.social consultation on their 10 Year Plan, which includes 12 proposals for policy change. Our Bill of Rights for people with #LongCovid is at the core of our response. Read about it here: www.longcovidsos.org/post/long-co...

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Long Covid SOS @longcovidsos.bsky.social · 05/12/2024

🎄Ho Ho Ho! Christmas is coming! 🎁 Help us fundraise by shopping with us- every purchase helps raise awareness of Long Covid & supports a small charity working to advocate for and assist those affected. ✨ 25% OFF + FREE SHIPPING until 8th December! ✨ longcovidsos.myspreadshop.co.uk

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elle carnitine 🪳 @ellecarnitine.bsky.social · 04/12/2024

Our rapid response to the recent BMJ systematic review, according to which CBT and GET are probably effective for Long COVID, is now online: www.bmj.com/content/387/...

bmj.com

Long COVID needs real therapeutics: time to move past disproven approaches

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Tom Kindlon @tomkindlon.bsky.social · 02/12/2024

New from Canada: Upregulation of olfactory receptors and neuronal-associated genes highlights complex immune and neuronal dysregulation in #LongCOVID patients www.sciencedirect.com/science/arti... All LC patients had ME/CFS (CCC) #PASC #PwLC #MEcfs #CFS #PwME

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Kim Horstmanshof @kim-h.bsky.social · 29/11/2024

Quick flag for any #LongCovid folk doing their Christmas shopping- my friends @longcovidsos.bsky.social have 30% off their fundraising merch today, and then 25% off and free shipping 2-8 Dec Plus lots of #LongCovidAwareness day designs ahead of 15/3 longcovidsos.myspreadshop.co.uk/long+covid+f...

longcovidsos.myspreadshop.co.uk

Long Covid feels like forever | Long Covid SOS

Long Covid feels like forever slogan in a stylised handwriting font with a tattoo-style heart arrow

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