iiinova — where your digital self keeps evolving

Emma Edwards @kernowpdnurse.bsky.social · 22/05/2026

1 in 6 people in the UK live with a neurological condition, so whatever area of nursing you work in, neuroscience care is likely to be part of your role. Join us at the RCN Neuroscience Forum Conference 2026 on 24 June in London. Book your place: www.rcn.org.uk/nfc26 #NeuroscienceNursing

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Emma Edwards @kernowpdnurse.bsky.social · 25/04/2026

Thinking about going on holiday with Parkinson’s? It is possible—with the right planning. ✔️ Ask for airport assistance ✔️ Keep meds with you (always) ✔️ Plan ahead for time zones ✔️ Choose somewhere that works for you ✔️ Pace yourself—this isn’t a race Most importantly… don’t forget to have fun.

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Emma Edwards @kernowpdnurse.bsky.social · 12/04/2026

We’re on the lookout for a new Treasurer at SpotlightYOPD. This is such an important role for us as a small but growing charity. If this might be you — or someone you know — please get in touch or share. 📧 contact@spotlightyopd.org 🗓 Deadline: End of April 2026 #parkinsons #charityrole

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Emma Edwards @kernowpdnurse.bsky.social · 24/10/2025

At Par Con today in Birmingham, hosted by @parkinsons.org.uk and representing the young onset Parkinson’s charity - SpotlightYOPD! Had lots of interactions with YoPDers already ! #parkinsons

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Neurology Academy @neurologyacademy.bsky.social · 10/10/2025

Today is #WorldMentalHealthDay and we want to talk about the importance of having open conversations about mental health in #neurology, for both the people we care for & the teams who care for them. Watch the full video on our website: neurologyacademy.org/articles/wor... @kernowpdnurse.bsky.social

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Emma Edwards @kernowpdnurse.bsky.social · 06/09/2025

Ever fancied becoming a Parkinson’s nurse?? It’s an incredibly rewarding job. @parkinsons.org.uk are not only fundraising for more nurses but will support interested nurses in gaining the skills to undertake the role. Look here for more details - prksn.uk/3HUgwke

prksn.uk

How to become a Parkinson's nurse

Learn more about the role of a Parkinson’s nurse and how you can grow your career and specialise.

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Emma Edwards @kernowpdnurse.bsky.social · 16/07/2025

Congratulations to the @moversand.bsky.social for getting their Gov petition to over 100,000 signatures. Now let’s see the issues about why Parkinson’s care is so patchy across UK discussed at the highest level. #parkinsons

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Emma Edwards @kernowpdnurse.bsky.social · 27/05/2025

Please do consider signing this Government petition that calls for better care for people with Parkinson’s. We need 100,000 signatures for it to be debated in Parliament. #parkinsons #neurology www.facebook.com/share/p/15fx...

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Emma Edwards @kernowpdnurse.bsky.social · 15/05/2025

Day 4 (last day of @rcn.org.uk Congress): lively debates on financial hardships for nursing and care planning. It’s been a great #nursing Congress and had great company from Shona, Mark and Jonathan from the Forum. Think we convinced some nurses that #Neurology was the specialty to be in!!!

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Emma Edwards @kernowpdnurse.bsky.social · 14/05/2025

Day 3 of the @rcn.org.uk Congress in Liverpool. It’s been an interesting and humbling day listening to nurses who work in Conflict areas, quality improvements, lack of learning disability nurses to name but a few! Mark from the @rcnneuro.bsky.social had a 2nd opportunity to talk on stage too!

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Emma Edwards @kernowpdnurse.bsky.social · 13/05/2025

Day 2 of the @rcn.org.uk Congress. Met up with fantastic, hard working staff from @parkinsons.org.uk who were giving out vital information on Parkinson’s to other nursing delegates. #parkinsons #rcn2025 @rcnneuro.bsky.social

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Emma Edwards @kernowpdnurse.bsky.social · 12/05/2025

Proud to be representing the @rcnneuro.bsky.social at the Liverpool RCN Congress, alongside fellow committee members Shona and Mark. Looking forward to be inspired by our fellow nursing professions and meeting up with @parkinsons.org.uk staff at their stand in the Expo area. #RCN2025 #neurology

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American Brain Foundation @abfbrain.bsky.social · 21/04/2025

A breakthrough in #MultipleSystemAtrophy (MSA) research: Dr. Victor Dieriks and his team in NZ have identified that the cause of this neurodegenerative disorder is toxic α-synuclein protein aggregates that invade neuron nuclei. buff.ly/YKLxq6O

Research Discovery: Neurodegeneration in multiple system atrophy (MSA) is caused by toxic protein clumps that penetrate the nuclei of neurons and cause the death of those cells.

Diseases affected: Multiple System Atrophy (MSA)

Key findings: Oligodendrocytes are not the primary cause of MSA, as previously thought.

What's next? By identifying neurons as the primary victims of α-synuclein toxicity, researchers can now develop treatments that protect neurons from invasive protein aggregates or enhance the cells’ ability to clear them out.

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Rory Cellan-Jones @rorycj.bsky.social · 12/04/2025

open.substack.com/pub/rorycell... We thought our @moversand.bsky.social colleague Gillian was bonkers when she suggested we organise a mass singalong of We Will Survive in Westminster – how wrong we were! #parkinsons

open.substack.com

Movers and Shakers - the Big Sing

A great day out in Westminster and Huddersfield

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Emma Edwards @kernowpdnurse.bsky.social · 17/04/2025

Last week I was very pleased to attend 2 Parkinson’s events that had the theme of bringing people together. One was the launch of a new @parkinsons.org.uk support group at Tavistock. The other was The Movers and Shakers podcasters awareness event in London, with over 500 attending. #parkinsons

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RCN Neuroscience Forum @rcnneuronurses.bsky.social · 17/04/2025

@kernowpdnurse.bsky.social from our Neuroscience Nursing Forum, and in her capacity as PDNS, was very pleased to be part of this @parkinsons.org.uk project about engaging people with Parkinson’s in research. www.parkinsons.org.uk/professional...

parkinsons.org.uk

Navigating Parkinson’s research with your patients

A free, online course to support healthcare professionals to engage their patients with Parkinson’s research.

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NIHR PRU in Dementia and Neurodegeneration Exeter @denpruexeter.bsky.social · 06/03/2025

Postgraduate Research Scholarship in Dementia and Aged Care at the University of Sydney with Professor Yun-Hee Jeon. For international students, both tuition and stipend will be covered. #FindAPhD @dementiaresearcher.bsky.social www.sydney.edu.au/scholarships...

sydney.edu.au

Postgraduate Research Scholarship in Dementia and Aged Care

This scholarship supports students undertaking research in the implementation of a dementia model of care.

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Dementia Researcher @dementiaresearcher.bsky.social · 07/04/2025

Important new report from @denpruexeter.bsky.social highlights hidden inequalities facing those living alone with dementia. Time to rethink dementia care. #Dementia #HealthEquity www.dementiaresearcher.nihr.ac.uk/living-alone...

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Emma Edwards @kernowpdnurse.bsky.social · 04/04/2025

GPs are an integral and essential part of any person’s journey with Parkinson’s. SpotlightYOPD have created a poster to help GP’s support their younger patients pre and post diagnosis. Please do share with GP colleagues/ surgeries. #parkinsons #parkinsonsawarenessmonth

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Caroline Rassell @carolinerassell.bsky.social · 29/01/2025

What a wonderful day meeting @SpotlightYOPD new friends and old ones. Lovely to see Carl, Nikki and Dawn. The wonderful Ellie and Gaynor and of course Gary and Simon from @ParkinsonsUK - looking forward to the future

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Emma Edwards @kernowpdnurse.bsky.social · 02/03/2025

Had fab visit from @carolinerassell.bsky.social from @parkinsons.org.uk in Plymouth this week. Sometimes it’s helpful to precise a situation out loud to a visitor to see where the strengths and challenges are. We rarely get the time to reflect. Lots of planning conversations afterwards! #parkinsons

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Emma Edwards @kernowpdnurse.bsky.social · 27/02/2025

I’m always a bit nervous just before a podcast…. Always worried that the dog will bark (she did), or I’ll say something ridiculous (probably did). Anyway, it was fabulous to talk about our charity SpotlightYOPD, and how collaborative working is key. #collobarativeequation. #parkinsons

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Jonathan Beebee @jbeebee.bsky.social · 19/02/2025

I am delighted to be speaking RCNi's upcoming event in April. Join us for expert guidance on safe, ethical restraint & practical strategies. Book your place now. invt.io/1txbj2ysdke

invt.io

I'm speaking at Restraint: Improving nursing practice with a human rights approach, join me

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Emma Edwards @kernowpdnurse.bsky.social · 18/02/2025

Please do give this #RCN #Neuroscience #nurse account a follow! Lots of info on Nursing competencies / Neuro conditions / education will be shared over the yr to inspire (lure) the next generation of nurses over to Neurology! We’ll also be at the RCN Congress. Join us!!! @rcn.org.uk

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The Foundation of Nursing Studies (FoNS) @fonscharity.bsky.social · 28/01/2025

Don't miss out on this! Small group online but 100% participatory, experiential learning. Highly valued by all with ongoing support through the facilitators network www.fons.org/programmes-d... @rn-abi.bsky.social @shnp.bsky.social @greenfieldd.bsky.social @janettekeenan.bsky.social

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Jonathan Beebee @jbeebee.bsky.social · 03/02/2025

The @rcnldnursing.bsky.social BlueSky account has gone live today. Steering committee are orientating themselves to it so please give the account a follow

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Emma Edwards @kernowpdnurse.bsky.social · 29/01/2025

Absolutely excellent day at The 2nd National Neurology Transformation Day at Birmingham today hosted brilliantly by @neurologyacademy.bsky.social . Learnt loads and great networking. Got a poster up too on the Parkinson’s SuperClinic we are planning. #parkinsons #neurology

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The Foundation of Nursing Studies (FoNS) @fonscharity.bsky.social · 23/01/2025

'Open to all' programme of Resilience-based Clinical Supervision starts Feb 2025 👇 Very highly evaluated: a great fit for PNAs, AHPs & anyone with an interest in restorative supervision buff.ly/40xn0Mi @kernowpdnurse.bsky.social @marycjenkins.bsky.social @joroche.bsky.social Please share

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Emma Edwards @kernowpdnurse.bsky.social · 12/01/2025

Hi ! Have any of my #Neurology \ #parkinsons connections ever ran/ or attended a ‘superclinic’? I’ve heard of some fine Diabetic ones that see many patients in a day with the aim of cutting waiting lists…and just wondered if it can (should) be replicated in Neurology (Parkinson’s in this case). X

media.tenor.com

a poster that says super super super with stars in the background

ALT: a poster that says super super super with stars in the background

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Shaun Lintern @shaunlintern.bsky.social · 12/01/2025

The @rcn.org.uk , backed by @rcem.bsky.social and others has written to @rthonwesstreeting.bsky.social on corridor care urging him to force the NHS to be more transparent over the numbers being treated on corridors:

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Emma Edwards @kernowpdnurse.bsky.social · 20/12/2024

First Zoom meeting of Parkinson’s nurses from all over the world: USA, Australia, Poland, Germany, Singapore, and the UK. T’was a brilliant way to share ideas and learn from each other. I think the start of something brilliant!!! #Parkinsons #neuroscience #nursesrock @rcn.org.uk

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Emma Edwards @kernowpdnurse.bsky.social · 14/12/2024

An early Christmas gift from my artist Sister!!! Who doesnt want a pasty print on a slate!! www.instagram.com/cornishartis... #cornishpasty #cominghometrees

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University of Oxford @ox.ac.uk · 09/12/2024

NEW: A study has demonstrated how clinicians could use data to predict the risk of falls in people with Parkinson’s Disease (PD). Falls are a common for people living with Parkinson’s. Around 60% of all people living with PD experienced at least one fall. More info ⬇️ www.ox.ac.uk/news/2024-12...

ox.ac.uk

Wearable devices can help predict five year risk of falls for people

A new study from the University of Oxford demonstrates how clinicians could use data to predict the risk of falls in people with Parkinson’s Disease (PD) to help improve effective longer term care

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Emma Edwards @kernowpdnurse.bsky.social · 12/12/2024

Chuffed to bits to be representing Parkinson’s nurses at the Royal College of Nursing (London HQ) Neuroscience Nurse Strategy Day! Lots planned for the advancement of Parkinson’s education and inspiring the next generation of Neuroscience nurses. @parkinsons.org.uk @rcnlibraries.bsky.social

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Royal College of Nursing Library and Museum @rcnlibraries.bsky.social · 05/12/2024

#OTD in 1952, the Great Smog, a thick cloud of air pollution, covered London. Since the industrial revolution, air pollution has had a devasting effect on the health of urban people. The Great Smog caused 12,000 deaths and brought London almost to a standstill; it prompted the Clean Air Act of 1956.

Three London city workers are seen wearing cloth masks on their daily commute during the Great Smog in 1952.

Five inhalers of different styles showing the evolution of the device. Clockwise from top: a ceramic inhaler which is large and jug like with large Boots branding; a an inhaler with a rubber pump chamber; a s imple metal conical shaped inhaler; a plastic inhaler with an inserted metal cannister; a plastic inhaler with a ridged bottom.

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lukelukeluke @lukelukeluke.bsky.social · 04/12/2024

Here are some nice mushrooms

Hundreds of delicate gray Mycena semivestipes mushrooms grow up the side of a mossy log under gray winter skies

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Royal College of Nursing Library and Museum @rcnlibraries.bsky.social · 04/12/2024

We're excited to join @theRCN on Bluesky!🥳🦋 We have great content lined up for you. Everything from the latest evidence to nursing history, and from exhibitions to study tips. We've got it all covered. Follow the RCN Library and Museum for updates, events, and collection highlights.

Composite image. Clockwise from top left: archival photo of nurses protesting for better pay; children's book cover for "The Story of Britain's Black Nurses" by K N Chimbiri; wooden toy district nurse carrying a nurse's bag; exterior photo of RCN Library and Museum in London; and various book covers from SAGE
Understanding nursing associate practice textbook series.

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World Parkinson Congress @worldpdcongress.bsky.social · 04/12/2024

#WPC4YOPD Virtual Webinar Series kicks off today! This series is for People living with or interested in learning about Young Onset Parkinson's Disease. Learn more and view the program: www.worldpdcoalition.org/page/YOPDvir... Register: portal.qwikcast.tv/Parkinson/YOPD #Parkinsons #yopd

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