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Noone can ever say I'm not persistent....🤣

Ok so several hours later I'm out if the hospital with no IV as they have to order it in. But...back on Tue with appointment after 5 hours of waiting. So getting somewhere with it. Also hospital lights with #HC and #Autism suck even in sunnies.

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Caroline Keep @ka83k.bsky.social · 18h

Thanks @5arah.com going to hopefully be boring appointment and exciting phd last forms...Lets hope that's the right way round 😳

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Caroline Keep @ka83k.bsky.social · 18h

That definitely weight off my brain...so can just concentrate on getting well. 👍👍

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Caroline Keep @ka83k.bsky.social · 18h

Sat in waiting but good news my amendments finally got confirmed off to board now ♥️♥️ thankfully 🙌

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Caroline Keep @ka83k.bsky.social · 19h

Round 3 of lets try to get an IV. Going for it again...new hospital this time.

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Caroline Keep @ka83k.bsky.social · 19h

Ask any audhd the years they spent on harmful drugs, anti psychotic drugs, serious stuff before diagnosis. So need some time read this. Press really not helpful.

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Caroline Keep @ka83k.bsky.social · 19h

Its complex this review needs time figure out what they are saying. The distress is absolutely real. But got alot of mental health and adhd and autism all mixed up in this. They aren't really the same thing and as for harm if diagnosis there is harm in misdiagnosed of anxiety/depression too.

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Caroline Keep @ka83k.bsky.social · 19h

Many girls mask and the impact isnt really obvious until in seriously dire situation.

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Caroline Keep @ka83k.bsky.social · 19h

So quick glance at ADHD and Autism review. Lots to agree with, tad concerned at the need being moved to distressed based as that will impact girls/women. Equal concern over private care as anyone who had a diagnosis knows how complex it can be. Coverage in press awful.This is too complex clickbait.

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Caroline Keep @ka83k.bsky.social · 20h

Well figured first step. Let's see if I can get it today 🫤

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Caroline Keep @ka83k.bsky.social · 20h

Ok so finally released it....

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Caroline Keep @ka83k.bsky.social · 21h

Feel for you my anty going through same thing now, so hope your wife better, it's a full time job. Pals can help there, I've found them good buffer send email yesterday saying don't know whats going on been trying to sort it.

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Caroline Keep @ka83k.bsky.social · 21h

No idea, as noone can see it, but not adding up at all. His words are obviously different to the coverage.

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Caroline Keep @ka83k.bsky.social · 21h

I'm more nervous of this IV than needles in my brain the week after and this is suppose to be routine. Driving me mental. 😵‍💫

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Caroline Keep @ka83k.bsky.social · 21h

Btw this is all time dependant for in time for my op over at specialist neurologist hospital. We have had weeks do this. Nothing i hate more than admin hell/poor instruction. Driving me crazy, so pray today we might do this quite risky IV and it run smoothly as I have little confidence.

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Caroline Keep @ka83k.bsky.social · 21h

This is madness. 😳 How you supposed to navigate this took a week figure out where I'm suppose to be !

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Caroline Keep @ka83k.bsky.social · 21h

Not this hospital, the other hospital in the next town. I swear how anything gets done i don't know. Btw Neurologist also made very clear instructions for me, but letter not arrived at GP so referred quickly as urgent. So now I'm trying ring them so I don't attend and they don't have the stuff in

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Caroline Keep @ka83k.bsky.social · 21h

Have to get IV urgent referred by neurologist and GP both sends form, noone tells me where to go, no appointment letter nothing. Gp Rings me didn't attend. Noone told me where to attend. Says referred again to Same Day Emergency Care Unit, just turn up to hospital. Turn up to hospital....

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Caroline Keep @ka83k.bsky.social · 21h

Shall we clip the Prof who did the review. I mean this is confusing stuff....

Prof Peter Fonagy. Wes Streeting completely wrong about over diagnosis.

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Caroline Keep @ka83k.bsky.social · 23h

Adhd and autism review. Just pointing out. The review isn't out for anyone to read atm. In fact we have the press version not the actual review. So bit hard to comment as seems the head of the review saying totally different than some press atm. 🫤 So where is it? www.gov.uk/government/c...

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Caroline Keep @ka83k.bsky.social · 08/10/2026

Esp given Cat last year. Like head to head this year...

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Caroline Keep @ka83k.bsky.social · 08/10/2026

#Traitors I'm finding most interesting that James Acaster and Bella Ramsey are both openly autistic. This is becoming interesting.....

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Caroline Keep @ka83k.bsky.social · 08/10/2026

I totally relate hard there. Getting good at it tbh.

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Caroline Keep @ka83k.bsky.social · 08/10/2026

DH just come back from field trip and asked about student slang as he's not keeping up with it. I've just informed him Drip is indeed a compliment. 🤣🤣

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Caroline Keep @ka83k.bsky.social · 07/10/2026

I'm ok btw as my sister said...not dead so 👍 gotta love our grim sense of humour tbh.

static.klipy.com

But Did You Die?! - Ken Jeong

Alt: But Did You Die?! - Ken Jeong

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Caroline Keep @ka83k.bsky.social · 07/10/2026

I look a wobbly mess but working at it. 🤣

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Caroline Keep @ka83k.bsky.social · 07/10/2026

Lesson ....I need a video door bell to my phone....

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Caroline Keep @ka83k.bsky.social · 07/10/2026

When the pain in your head is so severe, you fall down the stairs, but you've got EDS so none of your bones break fortunately... small wins. Now I'm in splints for longer than normal and still look like the Big Lebowski meets Stevie Wonder. 😎

static.klipy.com

Captain Janeway: Brace for Impact (Star Trek Voyager)

Alt: Captain Janeway: Brace for Impact (Star Trek Voyager)

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Caroline Keep @ka83k.bsky.social · 03/10/2026

👏👏👏👏👏❤️❤️❤️❤️ Love this for you and also absolutely related hard atm. I went outside today and did a few hours. Was a massive achievement atm.

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Caroline Keep @ka83k.bsky.social · 03/10/2026

Absolutely Taylor Swift, total anthem for anyone whos escaped that shitshow #TOTD youtu.be/mw3kSNIxjqo?...

youtu.be

Taylor Swift - Patient Zero (Official Music Video)

YouTube video by Taylor Swift

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Reposted by Caroline Keep

Jonny H @poppop.studio · 03/10/2026

Good morning #EduSky England! The DfE has published the tender docs for the SEND CPD!! Sadly I'm not allowed to share it with y'all. I've now got 2 weeks to find some more strong partners to join our lead, tech, and some delivery. I've got good contacts with a MAT, Parent carer forum...

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Caroline Keep @ka83k.bsky.social · 03/10/2026

Autistic author's are critical for our survival so buy autistic books by autistics already....

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Caroline Keep @ka83k.bsky.social · 03/10/2026

All the more reason to go buy peoples books! Also it's the best information you can get on autism, from autistics. They have taught me everything. 👍

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Caroline Keep @ka83k.bsky.social · 03/10/2026

Sending my love Helen hope you feel better soon. 🙏❤️❤️

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Caroline Keep @ka83k.bsky.social · 02/10/2026

These are also 5 min, so said the big ones I'm worried about. There is positives too, but the event is called Stupidity Of ...so here's a very very limited run of a few stupid ones.

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Caroline Keep @ka83k.bsky.social · 02/10/2026

Yep catch a clip of me here at Ignite Liverpool event by @defnetmedia.bsky.social talking about the stupidity of EdTech and my concerns about Children's Data....

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Caroline Keep @ka83k.bsky.social · 01/10/2026

Good day. Thankfully might be having a turn in the wild head pain treatment....Although thank god for my physio total queen. 🙏

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Caroline Keep @ka83k.bsky.social · 30/09/2026

Now I know we said we wanted a orthopedic dog bed for Oddsock...but i fear we have gone to far 🤣🤣😂😭

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Caroline Keep @ka83k.bsky.social · 30/09/2026

Glad to hear #labour bringing back sure start. If there was anything to bring back...sure start is it.👍 Diabolical we ever closed it.

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Caroline Keep @ka83k.bsky.social · 30/09/2026

Wild isn't it. Why the obsessed with it imagind....trying to conceptualise a "host of golden daffodils" while looking at a cheap, ink-smudged print in a textbook, trying to understand why this specific British weed was supposedly the ultimate symbol of spiritual joy..🤣🤣😭

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Caroline Keep @ka83k.bsky.social · 30/09/2026

Yeah that's a particularly weird one explain. Like yeah we celebrate him, by burning him, and chanting about him as he was a terrorist that didn't blow up parliament. Daughter was like... so it's pro terrorist? Like haven't you got good people celebrate. I gave up then.

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Caroline Keep @ka83k.bsky.social · 30/09/2026

I'm actually pretty grateful she's had minimal indoctrination tbh. So nice see her form her own views. 👍 Fascinating stuff.

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Caroline Keep @ka83k.bsky.social · 30/09/2026

One that really gets her is our class system.... oh she loathes that with a pure viking on a bad day vibe.

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Caroline Keep @ka83k.bsky.social · 30/09/2026

Yep i get cod war alot ....as you can imagine 🤣🤣

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Caroline Keep @ka83k.bsky.social · 30/09/2026

Like 90% of my time when in these dicussion is like yep that is messed up kid.

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Caroline Keep @ka83k.bsky.social · 30/09/2026

Imagine trying to explain british values and Hillsborough in same conversation 😳😵‍💫

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