iiinova — where your digital self keeps evolving

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Prof Katherine Sleeman @katherinesleeman.bsky.social · 11/09/2025

The Association for Palliative Medicine has produced a Myth Buster on assisted dying and the Terminally Ill Adults bill. The debate must be based on evidence, not soundbites and spin. It’s an essential tool for Peers, journalists and other commentators. apmonline.org/wp-content/u...

apmonline.org

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Irene Tuffrey-Wijne @tuffrey-wijne.com · 27/08/2025

Our new paper, about how we evaluated the end of life care planning toolkit with people with learning disabilities

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Tai Chi For Therapists @taichi4therapists.bsky.social · 22/07/2025

Tai Chi for Insomnia: A Win-Win 🌙 New research shows tai chi outperformed standard care for sleep - with benefits lasting up to 2 years. For older people: Better sleep + improved balance + chronic condition management + social connection. #AHP #OT #Therapy #PT #CPD bmjgroup.com/yoga-tai-chi...

bmjgroup.com

Yoga, Tai Chi, walking and jogging may be best forms of exercise for insomnia - BMJ Group

Findings back use of exercise as primary treatment strategy for poor sleep, say researchers Yoga, Tai Chi, walking and jogging may be the best forms of exercise to improve sleep quality and ease insom...

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Learning Disability England @learningdiseng.bsky.social · 25/06/2025

“Before about 1963, there are no voices of people with learning disabilities in their own words. Nothing.” Channel 4 News has recently shared United Response's new project 'Our Life Stories' - ensuring people's stories will be heard and remembered for generations to come: tinyurl.com/bd3vjnef

tinyurl.com

Groundbreaking project gives a voice to people with learning disabilities

Across the UK, people with learning disabilities are taking part in a groundbreaking oral history project called Our Life Stories. For the first time, their personal lives are being recorded by peers ...

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André J. @andre3j.bsky.social · 09/06/2025

Ahead of the Spending Review, the Local Government Association (LGA) is calling for urgent action to boost the number of Occupational Therapists (OTs) employed by councils to increase community wellbeing, promote independence, and achieve government health goals. #occupationaltherapy #UK

local.gov.uk

SR: Up number of Occupational Therapists to achieve government health goals, says LGA

Ahead of the Spending Review, the LGA is calling for urgent action to boost the number of Occupational Therapists employed by councils to increase community wellbeing, promote independence, and achiev...

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Dr Jessica Otte, 🇨🇦 MD, CCFP, FCFP 🩺🌍🌱 @drotte.medsky.social · 05/06/2025

Superb #ALPM2025 by @drjrubenstein.bsky.social about "PR" in #palliativecare TAKE AWAY: Palliative care doesn't need to change what we're called or what we do; we should help our non-pall peers understand our awesomeness Watch his Fire Department & other vids: www.jaredrubensteinmd.com/videos

palliative care is the fire department, not the fire:

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Justine Robinson @justinepilgrims.bsky.social · 02/06/2025

Great to have our TACP, Charlotte Davies presenting Pilgrims Hospices' work on our Comprehensive Palliative Care Assessment at the EAPC 2025 conference in Helsinki. #eapc2025 #PalliativeCare #EndOfLifeCare

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crippingbreath.bsky.social @crippingbreath.bsky.social · 29/05/2025

** Opportunity** We want to recruit 3 disabled, chronically ill, & ventilated contemporary artists who require ventilatory support, such as non-invasive ventilation like CPAP or BIPAP, or other forms like a tracheostomy www.sheffield.ac.uk/cripping-bre... Please share widely! 🙌🏽

sheffield.ac.uk

Artist Collaborator Recruitment

Cripping Breath is recruiting three disabled, chronically ill, and ventilated contemporary artists.

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Luke McGee @lukemcgee.bsky.social · 27/05/2025

Yes, that would be awful, wouldn't it. Bloody artists, wanting money for their work.

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Gemma Allen (she/her) @gemmaallen.bsky.social · 28/05/2025

If we are brave enough to ask people about themselves and what and who is important to them, what they find difficult, what they are fearful of and what they need, we may have a chance to really improve the experiences of the people we care for.” www.tandfonline.com/doi/full/10....

tandfonline.com

Reflections on working in health inequity in palliative care: Learning from the No Barriers Here project five years on

Published in Progress in Palliative Care: Science and the Art of Caring (Ahead of Print, 2025)

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Justine Robinson @justinepilgrims.bsky.social · 23/05/2025

𝗔𝗿𝗲 𝘆𝗼𝘂 𝗶𝗻𝘁𝗲𝗿𝗲𝘀𝘁𝗲𝗱 𝗶𝗻 𝗵𝗲𝗹𝗽𝗶𝗻𝗴 𝘀𝗵𝗮𝗽𝗲 𝗿𝗲𝘀𝗲𝗮𝗿𝗰𝗵 𝘁𝗼 𝘀𝘂𝗽𝗽𝗼𝗿𝘁 𝗽𝗲𝗼𝗽𝗹𝗲 𝘄𝗵𝗼 𝗵𝗮𝘃𝗲 𝗵𝗮𝗱 𝗮 𝗸𝗶𝗱𝗻𝗲𝘆 𝘁𝗿𝗮𝗻𝘀𝗽𝗹𝗮𝗻𝘁 𝗺𝗮𝗸𝗶𝗻𝗴 𝗱𝗲𝗰𝗶𝘀𝗶𝗼𝗻𝘀 𝗼𝗻 𝗼𝘁𝗵𝗲𝗿 𝗵𝗲𝗮𝗹𝘁𝗵 𝗰𝗼𝗻𝗱𝗶𝘁𝗶𝗼𝗻𝘀, 𝘀𝘂𝗰𝗵 𝗮𝘀 𝗰𝗮𝗻𝗰𝗲𝗿 𝗼𝗿 𝗮 𝗵𝗲𝗮𝗿𝘁 𝗰𝗼𝗻𝗱𝗶𝘁𝗶𝗼𝗻? Researchers at the University of Kent want to better understand how people make decisions about their health.

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Steve Thorlby-Coy @stevetc.bsky.social · 21/05/2025

🧡 Please take 5 secs to vote for @hospiceuk.bsky.social Garden of Compassion, RHS Chelsea Flower Show, BBC/RHS People’s Choice Award. 🧡 Winning means more people hear the amazing work hospices do for patients and their families. Vote here: www.bbc.co.uk/programmes/a... Vote closes 8pm Thurs 22 May

bbc.co.uk

BBC Two - RHS Chelsea Flower Show - The BBC RHS People's Choice Award at Chelsea Flower Show 2025

View the Show Gardens from the Chelsea Flower Show 2025

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Arts Council England @artscouncilengland.bsky.social · 19/05/2025

It’s #CreativityAndWellbeingWeek 🎉 Led by @lahartshealth.bsky.social and Culture Health & Wellbeing Alliance, the national festival celebrates how creativity supports health and wellbeing. Events are happening all week in hospitals, museums, and communities across the country 🩵

A workshop participant is cutting a piece of paper with scissors.

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Prof Katherine Sleeman @katherinesleeman.bsky.social · 19/05/2025

Globally, only 14% of people who need palliative care actually receive it. A decade after the WHA Resolution, what progress had been made? New paper in BMJ Global Health: Confronting global inequities in palliative care gh.bmj.com/content/10/5...

gh.bmj.com

Confronting global inequities in palliative care

The number of people dying with preventable, serious health-related suffering is rapidly increasing, and international calls for the expansion of palliative care services have been made, such as the W...

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Justine Robinson @justinepilgrims.bsky.social · 19/05/2025

Our gardens are a vital part of the care we offer people likely to be in their last year of life. Engaging with nature as something cyclical and bigger than us can be incredibly comforting and therapeutic for people in our services.

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Prof Katherine Sleeman @katherinesleeman.bsky.social · 13/05/2025

Strong statement from the Royal College of Psychiatrists. “We cannot support the Terminally Ill Adults Bill as it stands” www.rcpsych.ac.uk/docs/default...

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Justine Robinson @justinepilgrims.bsky.social · 12/05/2025

Thank you to everyone who joined us in Canterbury on #ACPDay2025 last week to watch the live-stream of the National Advance Care Planning Conference. 💡 💙 We hope you all enjoyed an enriching learning and networking experience. #PilgrimsHospice #DyingMattersAwarenessWeek

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Dr Rachel Clarke @drrachelclarke.com · 09/05/2025

Of all the NHS cuts being forced by the govt's draconian spending targets, those to palliative care are especially horrifying. At exactly the time MPs debate assisted dying, we face removing care from dying people. How can you do this, @rthonwesstreeting.bsky.social? www.bbc.co.uk/news/article...

bbc.co.uk

NHS plans 'unthinkable' cuts to balance books

Diabetes care, rehab centres, end-of-life services and talking therapies at risk in England.

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National Centre for Creative Health @ncch.bsky.social · 30/04/2025

Working in health & social care? Interested in creative health? Our new newsletter is for you! Monthly insights for colleagues working across Primary Care, Trusts, ICBs, Public Health, Social Care, wider NHS mailchi.mp/5260ee494d27/health-care-creative-health-newsletter Subscribe eepurl.com/jb8ZfU

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Justine Robinson @justinepilgrims.bsky.social · 25/04/2025

Pilgrims Hospice will be live streaming the conference and offering a free lunch! Come for all or part of the day. • May 7th • 9:15 – 15:45 ( 8:45am for coffee) • Ann Robertson Centre 55 London Rd, Canterbury, CT2 8HQ Contact us to reserve your place: Education@pilgrimshospices.org 01227 812616

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Compassion in Dying @compassionindying.bsky.social · 23/04/2025

Health attorneys call us because they need urgent help. Often they struggle to be heard when trying to refuse treatment on behalf of the person they love. In our blog we discuss the lack of support for attorneys and what we're doing to fill this gap 👇 compassionindying.org.uk/blog-post/re...

compassionindying.org.uk

Resolving disputes: Health and welfare attorneys tell us they need more support

There are significant gaps in the support available to enable health attorneys to make decisions for the people they love.

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Justine Robinson @justinepilgrims.bsky.social · 23/04/2025

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Arts Council England @artscouncilengland.bsky.social · 10/04/2025

Call for submissions: The Role of Creative Health in Public Health for @rsph.bsky.social journal 📣📖 Alongside @ncch.bsky.social, we're looking for practice and research which demonstrates the value of collaboration between creative health and public health. Find out more 👇

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Dementia Community @dementiacommunity.bsky.social · 15/04/2025

The Royal College of Occupational Therapists (RCOT) has announced the development of their new guideline: ‘Maintaining occupations and maximising independence while living with #dementia’. Read More: buff.ly/CoNlISR

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CarolineJMolloy @carolinejmolloy.bsky.social · 14/04/2025

If we’re renationalising steel, could we also renationalise our national health infrastructure? (And can left-wing MPs saying “can we also renationalise water, electricity and Royal Mail”, not keep forgetting how much of our health and care infrastructure has been privatised?)

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Prof Katherine Sleeman @katherinesleeman.bsky.social · 09/04/2025

Open access paper just out on The social determinants of where people die: A study of moderators and mediators using linked UK Census and mortality data. Brilliantly led by @joannamdavies.bsky.social www.sciencedirect.com/science/arti...

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Centre for Open Thanatology @openthanatology.bsky.social · 08/04/2025

Work in palliative and end-of-life care? Want to join a free workshop in May on how to improve services and experiences of care? You can express your interest in joining via this form (enter your details by noon April 30th) and more info here forms.office.com/e/BaEfpWY5Wi

forms.office.com

Microsoft Forms

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Justine Robinson @justinepilgrims.bsky.social · 02/04/2025

Reposting so I can listen later. In my experience many people start hospice care thinking their life is over, and may choose assisted dying if it were to be available, but therapeutic and wellbeing intervention can transform their experience and help them see there is still life to be lived.

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London Arts and Health @lahartshealth.bsky.social · 04/03/2025

We have some fantastic events coming up for you! 1. On how to participate in Creativity and Wellbeing Week '25: www.eventbrite.com/e/getting-re... 2. On mapping your assets for the creative health city map: bit.ly/43iuwwe 3. On reclaiming our narrative of illness: bit.ly/43nsfAc

bit.ly

"Very Nice Lady"

Reclaiming our narrative of illness with artist Lucy Chapman.

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Commission on Palliative and End-of-Life Care @endoflifecarecommn.bsky.social · 25/02/2025

In the commission's first evidence session, we heard from experts about inequalities in care. Currently, people who live in less affluent areas are less likely to receive palliative care. The commission aims to recommend policies that make palliative care more accessible.

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Arts Council England @artscouncilengland.bsky.social · 20/02/2025

⭐️ Hugely welcome funding news for museums, libraries and arts organisations in communities everywhere. ⬇️ Get the details below, ahead of Culture Secretary Lisa Nandy's speech this afternoon, marking 60 years since #JennieLee’s transformative White Paper on the arts. buff.ly/41mrndn

gov.uk

Major investment to boost growth and cement Britain’s place as cultural powerhouse

Over £270 million Arts Everywhere Fund for arts venues, museums, libraries and the heritage sector in major boost for growth

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Prof Katherine Sleeman @katherinesleeman.bsky.social · 18/02/2025

Four good letters the Guardian but imo the most important is by Prof Allan House whose expertise (alongside other psychiatrists) seems to have been ignored because it was inconvenient. What does this say about the commitment of the bill’s proponents to safety? t.co/q7DRJjSDpe

t.co

https://www.theguardian.com/society/2025/feb/17/why-changes-to-assisted-dying-bill-are-cause-for-concern

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Justine Robinson @justinepilgrims.bsky.social · 17/02/2025

Great resource here! I joined on Friday where there were some great conversations around the effects of poverty at the end of life. Looking forward to catching up on some of the other presentations.

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Justine Robinson @justinepilgrims.bsky.social · 17/02/2025

Really pleased to see a physiotherapist in this campaign. Hospice care is so much more than nurses and beds! Well done @hospiceuk.bsky.social

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Palliative Medicine Journal @palliativemedj.bsky.social · 29/01/2025

Ensuring patient and caregiver-centred care supported by a multidisciplinary team is essential to delivering home-based palliative and supportive care for people with heart failure. #hpm #hapc #heartfailure buff.ly/4gdH62V

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Dr Sophie Knight @drsophiejknight.bsky.social · 04/12/2024

Occupational therapists are you interested in sharing your ideas for an OT exhibition?! Me, Jemma Channing (OT & Snr Manager Creative Health & Change, Arts Council England) & the Elizabeth Casson Trust are working to curate just such an exhibition! Share your thoughts: forms.office.com/e/5aGUi83Twu

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CarolineJMolloy @carolinejmolloy.bsky.social · 14/01/2025

As Bevan inimitably put it: “Society becomes more wholesome, more serene, & spiritually healthier, if it knows that its citizens have at the back of their consciousness the knowledge that not only themselves, but all their fellows, have access, when ill, to the best that medical skill can provide.”

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Anarchist OT @theanarchicot.bsky.social · 15/01/2025

A hint at the value of #AHP and the need for more, acknowledgement of the value of #socialcare and a a systems view to improve population health. Liking the positivity in this. More #occupationaltherapists needed! Not that I'm biased!

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The BMJ @bmj.com · 24/12/2024

Support for end-of-life care and bereavement remains inadequate. We urgently need a community centred, public health approach to the social processes of dying and grieving, backed by properly funded palliative care, writes @lucyselman.bsky.social #ChristmasBMJ

A man lies in bed on a palliative care ward, a relative holds his hand as a nurse attends to him.

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Siobhan @nhsactivistrn.bsky.social · 03/01/2025

131,000 social care vacancies in England alone Let's think why: 🔴 Very poor wages 🔴Lack of career opportunities 🔴 Split shifts with home care companies meaning many work 7am till 10pm 🔴 No travel time or petrol paid by many firms Why would people choose those employment conditions?!

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Gemma Allen (she/her) @gemmaallen.bsky.social · 31/12/2024

Currently recruiting to our latest study! If you are an #LGBTQ+ person of colour or from a diverse ethnic background, please do get in touch or share with your networks ⬇️ ⬇️ ⬇️

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Prof Fliss Murtagh @flissmurtagh.bsky.social · 03/09/2024

New research funded by MarieCurie, highlighting patchy and inconsistent end of life care. The report aims to drive change to improve care for people with advanced illness and their families. See www.hull.ac.uk/work-with-us...

hull.ac.uk

Research shows painful truth of end of life care

New research by Hull York Medical School underpins a new Marie Curie report highlighting patchy and inconsistent end of life care.

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Justine Robinson @justinepilgrims.bsky.social · 18/12/2024

I spent my first Christmas after I was widowed in a cottage in the middle of Dartmoor. Space and 'aloneness' can be just what we need while grieving but other people's response can be one of alarm. Fabulous article: www.theguardian.com/lifeandstyle...

theguardian.com

A moment that changed me: A year after losing my parents, I spent Christmas Day cycling around London alone

I was in a state of intense grief and needed a break from family occasions. On my own in the city, I found companionship and adventure

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libbysallnow.bsky.social @libbysallnow.bsky.social · 17/12/2024

@thelancet.bsky.social Comment out today: www.thelancet.com/journals/lan... Social and structural determinants of dying well and the complex systems they exist in #palliativecare #socialdeterminantsofhealth

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