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crippingbreath.bsky.social

@crippingbreath.bsky.social

148 followers 123 following 62 posts

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crippingbreath.bsky.social @crippingbreath.bsky.social · 22/09/2025

Do you use ventilation (bipap/trach/NIV)? Do you want to share your story? We're looking for adults in the UK to take part in two online research interviews about their experiences. For more info and to request an information sheet: sheffield.ac.uk/cripping-bre... youtu.be/-AoBsDM0dbw?...

Cripping Breath - Narrative Stream (Everyday Stories of Breathing and Ventilation) Animation 1

YouTube video by Kirsty Liddiard

crippingbreath.bsky.social @crippingbreath.bsky.social · 11/08/2025

Important new blog post: SMA Awareness Month: Personal reflections on mouthpiece ventilation Check it out! 👍 @drsuzanneglover.bsky.social @pathfindersnma.bsky.social @kirstyliddiard1.bsky.social sheffield.ac.uk/cripping-bre...

sheffield.ac.uk

Blog post #14 SMA Awareness Month: Personal reflections on mouthpiece ventilation

By Dr Suzanne Glover, Lead Community Researcher and Research Associate

crippingbreath.bsky.social @crippingbreath.bsky.social · 06/08/2025

Do you use #ventilation (bipap/trach/NIV)? Are you interested in theatre? Are you within reach of London? Would you like to work on, or star in, a new adaption of Romeo & Juliet while adding to research on what it means to be ventilated? Find out more at www.cripticarts.org/R&J

A poster for the project, either black on a white background, or white on a black background. The text says: “www.cripticarts.org/R&J
Casting: Romeo & Juliet - Title roles & design creative - London - 2025-2027
Seeking ventilation users who want to be paid to train, perform, or work on an adaptation of Romeo and Juliet while adding to research into what it means to be living ventilated. No theatre experience required.
Deadline 26th August 2025
Open to anyone who uses bipap/NIV/tracheostomy”
At the bottom are logos for CRIPtic Arts, the Wellcome Trust, University of Sheffield and Arts Council England
The poster contains a photo of Jamie rehearsing or performing. They are wearing a hospital gown and ventilator mask.

crippingbreath.bsky.social @crippingbreath.bsky.social · 05/08/2025

A new blog post from our Community Researcher, Amanda, on living with rare disease: "Having your disease announced as a question, or as a joke, as you lie in a hospital bed, unable to move, is upsetting. It is a trigger to the times you struggled to be believed." sheffield.ac.uk/cripping-bre...

sheffield.ac.uk

Blog post #13 Living with Rare Disease with Respiratory Involvement

By Amanda Jones, Community Researcher

crippingbreath.bsky.social @crippingbreath.bsky.social · 22/07/2025

Come and join our next public event 🙌🏽 My life with ventilation: a Cripping Breath and Pathfinders event #Online #BSL www.eventbrite.co.uk/e/my-life-wi... @pathfindersnma.bsky.social @kirstyliddiard1.bsky.social @respfutures.bsky.social @asthmaandlung.org.uk

eventbrite.co.uk

My Life with Ventilation: a Cripping Breath and Pathfinders Event

An information evening exploring ventilation and respiration among people with muscle-weakening conditions.

crippingbreath.bsky.social @crippingbreath.bsky.social · 07/07/2025

*New Blog Post!* Cripping Breath abroad: Conference attendance and considering access www.sheffield.ac.uk/cripping-bre...

sheffield.ac.uk

Blog post #12 Cripping Breath abroad: Conference attendance and considering access

By Grace Joseph

Reposted by @crippingbreath.bsky.social

Julie Ellis @juliecarmel1.bsky.social · 30/06/2025

🙌🏻

Reposted by @crippingbreath.bsky.social

Julie Ellis @juliecarmel1.bsky.social · 26/06/2025

Absolutely loved chatting about all things breath with my Cripping Breath colleagues ❤️ Read about how we are reimagining what ‘reading’ together looks like

Reposted by @crippingbreath.bsky.social

Kirsty Liddiard @kirstyliddiard1.bsky.social · 30/06/2025

Thrilled for this article to be out - open access, so take a look! @crippingbreath.bsky.social Cripping inquiry: breathing life into co-produced disability methodologies www.frontiersin.org/journals/soc...

frontiersin.org

Frontiers | Cripping inquiry: breathing life into co-produced disability methodologies

IntroductionOur contributions within this article emerge from our experiences of co-leading a new Wellcome Discovery Award funded project, Cripping Breath: T...

crippingbreath.bsky.social @crippingbreath.bsky.social · 30/06/2025

Our first project article co-authored as a full team! *Cripping inquiry: breathing life into co-produced disability methodologies* Check it out here, open access #DisabilityResearch www.frontiersin.org/journals/soc...

frontiersin.org

Frontiers | Cripping inquiry: breathing life into co-produced disability methodologies

IntroductionOur contributions within this article emerge from our experiences of co-leading a new Wellcome Discovery Award funded project, Cripping Breath: T...

crippingbreath.bsky.social @crippingbreath.bsky.social · 30/06/2025

One of our recent articles published in Frontiers in Sociology just reached a new impact milestone. Here is the link if you would like to read our study: www.frontiersin.org/article/1600...

frontiersin.org

Frontiers | Cripping inquiry: breathing life into co-produced disability methodologies

IntroductionOur contributions within this article emerge from our experiences of co-leading a new Wellcome Discovery Award funded project, Cripping Breath: T...

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crippingbreath.bsky.social @crippingbreath.bsky.social · 26/06/2025

Take a look at how our new project reading group went! Our Community Researchers, Artists-in-Residence, academic researchers and clinicians coming together to explore breathing in literature 🙌🏽 www.sheffield.ac.uk/cripping-bre...

sheffield.ac.uk

Blog post #11 Our first Cripping Breath reading group!

By the Cripping Breath team

crippingbreath.bsky.social @crippingbreath.bsky.social · 23/06/2025

A great blog post about Revisiting access and inclusion in research methods by our project friends in the Wellcome Anti-Ableist Research Culture (WAARC) project at the University of Sheffield. www.ncrm.ac.uk/news/show.ph...

NCRM News | Revisiting access and inclusion in research methods

As a part of the Wellcome Anti-Ableist Research Cultures (WAARC) project at the University of Sheffield, we have been exploring ways of making research more inclusive and accessible, and considering

crippingbreath.bsky.social @crippingbreath.bsky.social · 18/06/2025

Don't forget - we are recruiting Artist Collaborators! Learn more about this fabulous opportunity here! These artists will participate in a collaborative residency alongside Artist-in-Residence Dr Louise Atkinson. www.sheffield.ac.uk/cripping-bre...

sheffield.ac.uk

Artist Collaborator Recruitment

Cripping Breath is recruiting three disabled, chronically ill, and ventilated contemporary artists.

crippingbreath.bsky.social @crippingbreath.bsky.social · 17/06/2025

...these are conversations we cannot & do not want to avoid [...] we need to find a way to sensitively consider proximity to death and the fragility of life as a reality in our work' - Julie Ellis www.sheffield.ac.uk/cripping-bre... @pathfindersnma.bsky.social @cripticarts.bsky.social

sheffield.ac.uk

Blog post #10 ‘Sitting’ with sadness: death and loss in research

crippingbreath.bsky.social @crippingbreath.bsky.social · 17/06/2025

**New Blog post** #10 ‘Sitting’ with sadness: death and loss in research by our brilliant Dr Julie Ellis www.sheffield.ac.uk/cripping-bre...

sheffield.ac.uk

Blog post #10 ‘Sitting’ with sadness: death and loss in research

crippingbreath.bsky.social @crippingbreath.bsky.social · 16/06/2025

Our research associate Grace Joseph was in Germany last week at the International Federation for Theatre Research annual conference talking about Cripping Breath 🥳 Blog post coming soon! iftr.org

Home | IFTR.org

The International Federation for Theatre Research exists to facilitate communication and exchange between scholars of theatre and performance research throug...

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crippingbreath.bsky.social @crippingbreath.bsky.social · 16/06/2025

The Evolution of Lungs - In Our Time www.bbc.co.uk/programmes/m...

BBC Radio 4 - In Our Time, The Evolution of Lungs

From the mechanics of the first breaths on Earth to the reason we hiccup.

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crippingbreath.bsky.social @crippingbreath.bsky.social · 09/06/2025

We launched our Artist Collaborator search last week! Take a look here to learn more if you are an artist who lives on or with ventilation & would like to participate in a paid residency 🙌🏽 Take a look via the link below!

crippingbreath.bsky.social @crippingbreath.bsky.social · 09/06/2025

We have a new member of our Clinical Advisory Group - Joe Purdey - learn more about Joe and our other clinical advisors here 🙌🏽 www.sheffield.ac.uk/cripping-bre...

sheffield.ac.uk

Clinical Advisory Group

A page that details of our Clinical Advisory Group - a group of clinicians who are supporting our project

crippingbreath.bsky.social @crippingbreath.bsky.social · 02/06/2025

We launched our Artist Collaborator search last week! Take a look here to learn more if you are an artist who lives on or with ventilation & would like to participate in a paid residency 🙌🏽 www.sheffield.ac.uk/cripping-bre... @kirstyliddiard1.bsky.social

A ventilated person sat at a desk against a pink background; Image by Josh Slack, Inertia Creative; modified by Louise Atkinson

crippingbreath.bsky.social @crippingbreath.bsky.social · 29/05/2025

'Every single human being has the basic human right and need to breathe, and it costs nothing, after all the air we breathe is free. Or is it?' www.cost-ofliving.net/the-cost-of-...

cost-ofliving.net

The cost of breathing - Cost Of Living

The cost of breathing

crippingbreath.bsky.social @crippingbreath.bsky.social · 29/05/2025

** Opportunity** We want to recruit 3 disabled, chronically ill, & ventilated contemporary artists who require ventilatory support, such as non-invasive ventilation like CPAP or BIPAP, or other forms like a tracheostomy www.sheffield.ac.uk/cripping-bre... Please share widely! 🙌🏽

sheffield.ac.uk

Artist Collaborator Recruitment

Cripping Breath is recruiting three disabled, chronically ill, and ventilated contemporary artists.

crippingbreath.bsky.social @crippingbreath.bsky.social · 29/05/2025

Our brilliant Community Researcher Libby has had her team blogpost republished on external blog, The Cost of Living 🙌🏽 Congratulations, Libby! www.cost-ofliving.net/the-cost-of-...

cost-ofliving.net

The cost of breathing - Cost Of Living

The cost of breathing

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Reposted by @crippingbreath.bsky.social

Kirsty Liddiard @kirstyliddiard1.bsky.social · 28/05/2025

@crippingbreath.bsky.social is launching its Artist Collaborator Recruitment today! 🙌 Please take a look at the link and share widely! www.sheffield.ac.uk/cripping-bre...

sheffield.ac.uk

Artist Collaborator Recruitment

Cripping Breath is recruiting three disabled, chronically ill, and ventilated contemporary artists.

crippingbreath.bsky.social @crippingbreath.bsky.social · 27/05/2025

Our brilliant Research Associate & Community Research Lead @drsuzanneglover.bsky.social is speaking at this great event 🙌🏽 Learn more here www.britsoc.co.uk/events/key-b... @kirstyliddiard1.bsky.social

Please see this link for all information that relates to this image: https://www.britsoc.co.uk/events/key-bsa-events/intersections-of-sociology-with-crip-theory-critical-disability-studies-and-mad-studies/

crippingbreath.bsky.social @crippingbreath.bsky.social · 22/05/2025

Couldn't make it to our Pint of Science event? No worries - catch it here! Blog post #9 Let’s talk breath and politics sheffield.ac.uk/cripping-bre...

sheffield.ac.uk

Blog post #9 Let’s talk breath and politics

By Julie Ellis and Jen Kettle

crippingbreath.bsky.social @crippingbreath.bsky.social · 20/05/2025

Great to see this coming out of Sheffield - Readable research: We produce clear, simple summaries of scientific research hot off the press. www.readableresearch.com

readableresearch.com

Readable Research - MND, Parkinson's, Dementia & Stroke

Clear, simple summaries of Neuroscience research – read and reviewed by those who live beyond our labs at the University of Sheffield.

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crippingbreath.bsky.social @crippingbreath.bsky.social · 20/05/2025

'The cost of breathing is something that most never need to think about, but for those who rely on ventilators, many face an uncertain financial future without radical change to recognise that assisted breathing is an essential cost...' www.sheffield.ac.uk/cripping-bre...

sheffield.ac.uk

Blog post #8 The Cost of Breathing

By Liberty Bligh, Community Researcher

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crippingbreath.bsky.social @crippingbreath.bsky.social · 20/05/2025

Our blog today unpacks care, state care & responsibility, and breathing: 'This is compounded by the fact that there is no section within the PIP assessment process that specifically assesses breathing as a daily living activity.' sheffield.ac.uk/cripping-bre...

sheffield.ac.uk

Blog post #8 The Cost of Breathing

By Liberty Bligh, Community Researcher

crippingbreath.bsky.social @crippingbreath.bsky.social · 20/05/2025

'For people who live with ventilation, breathing is not something that comes naturally and not something that comes for free.' sheffield.ac.uk/cripping-bre... #WorldHMVDay #CareIsKey

sheffield.ac.uk

Blog post #8 The Cost of Breathing

By Liberty Bligh, Community Researcher

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crippingbreath.bsky.social @crippingbreath.bsky.social · 19/05/2025

An article by our wonderful Research Associate Dr Julie Ellis Matter of Fact: Using Creative Film to Disseminate Sensitive Research in Medical Sociology journals.sagepub.com/doi/10.1177/...

journals.sagepub.com

Sage Journals: Discover world-class research

Subscription and open access journals from Sage, the world's leading independent academic publisher.

crippingbreath.bsky.social @crippingbreath.bsky.social · 19/05/2025

Tomorrow is a big day in the Cripping Breath calendar! World HMV (Home Mechanical Ventilation) Day 2025 www.awarenessdays.com/awareness-da...

awarenessdays.com

World HMV (Home Mechanical Ventilation) Day 2025 | Awareness Days Events Calendar 2025

World Home Mechanical Ventilation (HMV) Day is an annual awareness event dedicated to raising understanding of home mechanical ventilation and celebrating the

crippingbreath.bsky.social @crippingbreath.bsky.social · 19/05/2025

Come and join us this evening! 🙌🏽

crippingbreath.bsky.social @crippingbreath.bsky.social · 19/05/2025

Tomorrow is World HMV Day, which supports ventilated people, patients & their families. This year's theme is #HMVCareIsKey We have a very special blog post out tomorrow troubling the current context of care in relation to HMV written by one of our community researchers👍 @pathfindersnma.bsky.social

crippingbreath.bsky.social @crippingbreath.bsky.social · 13/05/2025

Come and see us at the Pint of Science next Monday evening in Sheffield! Our researchers Jen Kettle and Julie Ellis will be leading an accessible talk, How is breath a political issue? Learn more here! pintofscience.co.uk/event/power-...

pintofscience.co.uk

Power Plays & Policy Puzzles

Join us for a fascinating evening exploring the ideas of power, policy and politics. Three intriguing talks will discuss the role of YouTube in shaping per…

crippingbreath.bsky.social @crippingbreath.bsky.social · 13/05/2025

*New Post* Blog post #7 Experts by experience: Our Community Researcher Cooperative www.sheffield.ac.uk/cripping-bre...

sheffield.ac.uk

Blog post #7 Experts by experience: Our Community Researcher Cooperative

By Haffizah Ali, Ruth Bridgens and Amanda Jones, with Suzanne Glover, Jen Kettle and Julie Ellis

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crippingbreath.bsky.social @crippingbreath.bsky.social · 13/05/2025

www.swansea.ac.uk/press-office...

New study seeks to transform workplace policies for women academics with mental health conditions

Swansea University has been awarded almost £60,000 by UK Research and Innovation (UKRI) to lead a pioneering project aimed at improving workplace conditions for women academics with mental health cond...

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crippingbreath.bsky.social @crippingbreath.bsky.social · 01/05/2025

New blog post by our fantastic community researchers! Blog post #7 Experts by experience: Our Community Researcher Cooperative www.sheffield.ac.uk/cripping-bre... @kirstyliddiard1.bsky.social @disabilitymatters.bsky.social

sheffield.ac.uk

Blog post #7 Experts by experience: Our Community Researcher Cooperative

By Haffizah Ali, Ruth Bridgens and Amanda Jones, with Suzanne Glover, Jen Kettle and Julie Ellis

crippingbreath.bsky.social @crippingbreath.bsky.social · 07/04/2025

Check out our new blogpost by Grace Joseph & Louise Atkinson: This blog post focuses on a visit to MIMA in Middlesbrough to see Towards New Worlds, an exhibition showcasing disabled, Deaf, & neurodivergent artists. www.sheffield.ac.uk/cripping-bre...

sheffield.ac.uk

Blog post #6 Towards New Worlds MIMA, Middlesbrough

By Louise Atkinson and Grace Joseph

crippingbreath.bsky.social @crippingbreath.bsky.social · 27/03/2025

Equality, diversity and inclusion in research. More than a tick box in a research ethics application. www.sheffield.ac.uk/ihuman/news/... @kirstyliddiard1.bsky.social

sheffield.ac.uk

Equality, diversity and inclusion in research. More than a tick box in a research ethics application.

The Participatory Research Network (PRN@TUoS) and the University Research Ethics Committee (UREC) engaged in a project to discuss the most appropriate way of advising on and addressing issues of ED&I ...

crippingbreath.bsky.social @crippingbreath.bsky.social · 25/03/2025

Cripping Breath has connected with @asthmaandlung.org.uk & Home Mechanical Ventilation in Partnership (HMViP) who are running a new Home Ventilation group for people living on or with ventilation 🙌🏽 You can sign up for the sessions here zoom.us/meeting/regi...

Welcome! You are invited to join a meeting: A+LUK - Home Ventilation group 2025. After registering, you will receive a confirmation email about joining the meeting.

Welcome! You are invited to join a meeting: A+LUK - Home Ventilation group 2025. After registering, you will receive a confirmation email about joining the meeting.

Reposted by @crippingbreath.bsky.social

The Polyphony @the-polyphony.bsky.social · 21/03/2025

In the second of a two-part series, researchers work with Squeeze Box, a disability-activist collaborative process, to provide a ‘toolkit’ of creative evaluation methods that go beyond the quantitative demands of arts funders. thepolyphony.org/2025/03/21/a...

thepolyphony.org

Developing an Accessible, Multi-Sensory Feedback System for Performance Evaluation

Ellen Richardson and Michael J. Flexer describe an evaluation approach to performance, drawing on audience response, that combines words, sounds, and movement.

Reposted by @crippingbreath.bsky.social

Nikolaos Papadogiannis @npapadogian.bsky.social · 24/03/2025

It was great to run with @sagebrice.bsky.social a workshop on Graphic Research Methods and Queer Medical Humanities! I have learnt so much from the discussion! Many thanks to @durhamimh.bsky.social for making this event a safe space to address sensitive issues.

Reposted by @crippingbreath.bsky.social

EDI Caucus @edicaucus.bsky.social · 24/03/2025

New Report: The Covid-19 pandemic: What has been the impact on equality, diversity and inclusion in the UK research and innovation ecosystem? 🧵 go.hw.ac.uk/EDICa/CovidR... #Research #AcademicSky #CovidImpact #Covid19Research #EDI #DEI #Inclusion #Diversity

crippingbreath.bsky.social @crippingbreath.bsky.social · 24/03/2025

Our researchers @drsuzanneglover.bsky.social and @jen-kettle.bsky.social met with the Co-production Collective today. It's a fantastic connection - learn more here coproductioncollective.co.uk @disabilitymatters.bsky.social @bgibsonsociologist.bsky.social @kirstyliddiard1.bsky.social

coproductioncollective.co.uk

Welcome to the Co-Production Collective

crippingbreath.bsky.social @crippingbreath.bsky.social · 24/03/2025

'Like Johnson’s self-archiving, one of our aims in Cripping Breath is to foreground the often invisible conditions underpinning artistic work, from the time-dependent nature of creative energy to the material & spatial adjustments necessary to sustain a practice.' www.sheffield.ac.uk/cripping-bre...

sheffield.ac.uk

Blog post #5 Nerys Johnson: Disability and Practice

By Louise Atkinson, Artist-in-Residence

Reposted by @crippingbreath.bsky.social

Barry Gibson @bgibsonsociologist.bsky.social · 21/03/2025

This is the first of two great readings this week! It covers the journey into and through ventilation. @crippingbreath.bsky.social what are your thoughts on the human-centered design framework in the context of critical disability studies? pmc.ncbi.nlm.nih.gov/articles/PMC... #ventilation

crippingbreath.bsky.social @crippingbreath.bsky.social · 24/03/2025

*New blog post* by team member by Louise Atkinson! Nerys Johnson: Disability and Practice www.sheffield.ac.uk/cripping-bre...

sheffield.ac.uk

Blog post #5 Nerys Johnson: Disability and Practice

By Louise Atkinson, Artist-in-Residence

crippingbreath.bsky.social @crippingbreath.bsky.social · 18/03/2025

Next week, our Artist-in-Residence Louise Atkinson & our Research Associate Grace Joseph are attending the Blindness and Expanded Sculpture Conference at Leeds Art Gallery 🙌🏽 henry-moore.org/whats-on/bli...

henry-moore.org

Blindness and Expanded Sculpture | Henry Moore Institute

Wednesday 19 March 2025: this conference at Leeds Art Gallery asks, what can blindness bring to sculpture?