iiinova — where your digital self keeps evolving

Dr Jasleen Jolly @jkjolly.bsky.social · 15/01/2026

It is such an honour to be featured in the RSBs A to Z

Dr Jasleen Jolly @jkjolly.bsky.social · 14/01/2026

doi.org/10.3389/fneu... describes the brain power changes in the visual cortex related to #CBS hallucinations. Lets gettng talking about CBS more widely to ensure people get diagnosed and get support now we have a potential biomarker.

doi.org

Frontiers | EEG changes associated with hallucinations caused by Charles Bonnet Syndrome

Charles Bonnet syndrome (CBS) is characterised by the presence of visual hallucinations following visual loss in many patients. The neuropathophysiology of C...

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Reposted by Dr Jasleen Jolly

The vOICe vision BCI 🧠🇪🇺 @seeingwithsound.bsky.social · 11/09/2025

Dynamic neuropathophysiological changes in Charles Bonnet Syndrome: change in alpha power at the onset of a reported hallucination vision2025florence.com/abstracts/ by @jkjolly.bsky.social (in abstract book); EEG changes associated with hallucinations caused by #CBS; #neuroscience #vision2025

vision2025florence.com

Courses and Abstracts - Low Vision 2025 Congress

click here!

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Dr Jasleen Jolly @jkjolly.bsky.social · 04/05/2025

Great start to @arvoinfo.bsky.social 2025 meeting with the #ISCEV meeting followed by a catch up with my #unimelb colleagues. Come to my presentation on Thursday for #ClinicalTrial results.

A group of people sitting around a table with delicious food

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Dr Jasleen Jolly @jkjolly.bsky.social · 17/03/2025

Very excited to announce the launch of @nadsn.bsky.social white paper. Towards a fully inclusive environment for disabled people in STEMM. Please join us 31st March www.eventbrite.co.uk/e/nadsn-whit... #NADSNWhitePaper #DisabledInSTEMM Without inclusion the workforce is weak and science suffers

eventbrite.co.uk

NADSN White Paper - Inclusive STEMM

Official launch of the new NADSN white paper: Towards a fully inclusive environment for disabled people in STEMM

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Reposted by Dr Jasleen Jolly

Macular Society @macularsociety.org · 02/01/2025

Did you know that lifestyle and genetics can influence our chances of developing age-related macular degeneration (AMD)? Start the new year by answering five simple questions and we'll estimate your risk of AMD. Take our risk checker: buff.ly/3P9EKqz

an older lady sat on a blue sofa with her daughter giving her a hug

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Reposted by Dr Jasleen Jolly

Dr Amy Kavanagh @blondehistorian.bsky.social · 03/01/2025

In the UK disabled women are nearly twice as likely to experience sexual violence than non disabled women. This is why I’m asking men to be aware of how they approach a situation where a disabled woman may need assistance. Be the aware safe nice helpful dude in your approach, actions & words.

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Reposted by Dr Jasleen Jolly

Dr Amy Kavanagh @blondehistorian.bsky.social · 03/01/2025

If you are a man & need to offer assistance to a blind woman just think about how you can make the situation as safe as possible. Introduce yourself & give an immediately explanation. “Hi I’m Mike, there is a car blocking the way how can I best assist you?” Never touch without asking.

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Dr Jasleen Jolly @jkjolly.bsky.social · 20/12/2024

Discover how brainlife.io is revolutionising neuroimaging research by enhancing FAIR data practices. With tools for standardisation, visualisation, and reproducibility, this platform empowers scientists to tackle complex data pipelines with ease. Read more: www.nature.com/articles/s41...

nature.com

brainlife.io: a decentralized and open-source cloud platform to support neuroscience research - Nature Methods

brainlife.io is a one-stop cloud platform for data management, visualization and analysis in human neuroscience. It is web-based and provides access to a variety of tools in a reproducible and reliabl...

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Dr Jasleen Jolly @jkjolly.bsky.social · 19/12/2024

I am really excited to share with you our new paper! In this review we compare Charles Bonnet Syndrome to phantom limb and tinnitus syndrome, we noticed that the commonality between these conditions is a lack of sensory input. t.co/qGkMxSZXGh

t.co

https://journals.sagepub.com/doi/10.1177/25158414241302065

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Dr Jasleen Jolly @jkjolly.bsky.social · 19/12/2024

I am thrilled to share our recent publication! We examined the test–retest variability of microperimetry in patients with retinitis pigmentosa. Our study finds volume sensitivity provides spatial insights and potential as a robust endpoint. onlinelibrary.wiley.com/doi/10.1111/...

onlinelibrary.wiley.com

Test–retest variability of mesopic microperimetry‐associated parameters in patients with retinitis pigmentosa: REPEAT Study Report No. 2

Purpose Understanding test–retest variability (TRV) of mesopic microperimetry is critical for defining meaningful treatment effects in retinitis pigmentosa (RP) trials. This study uniquely evaluates.....

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Dr Jasleen Jolly @jkjolly.bsky.social · 18/12/2024

Understanding long-term progression in inherited retinal diseases is vital for successful clinical trials. Our 10-year study of rod-cone dystrophies investigated changes in retinal structure and function. Read more about our key findings here: www.sciencedirect.com/science/arti...

sciencedirect.com

Longitudinal assessment of structural and functional changes in rod-cone dystrophy: a 10-year follow-up study

Emerging clinical trials for inherited retinal disease (IRD) require an understanding of long-term progression. This longitudinal study investigated t…

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Dr Jasleen Jolly @jkjolly.bsky.social · 18/12/2024

Our study of 432 participants provides a robust normative dataset for MAIA microperimetry and we were able to compare hill-of-vision models. Full discussion and results are available here: iovs.arvojournals.org/article.aspx...

iovs.arvojournals.org

Multicenter Normative Data for Mesopic Microperimetry | IOVS | ARVO Journals

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Dr Jasleen Jolly @jkjolly.bsky.social · 16/12/2024

We have developed a novel nanopore sequencing approach to measure X-inactivation skew, linking it to disease severity in X-linked retinal disorders. Read all about it in our paper here: genome.cshlp.org/content/34/1...

genome.cshlp.org

Measuring X-Chromosome inactivation skew for X-linked diseases with adaptive nanopore sequencing

An international, peer-reviewed genome sciences journal featuring outstanding original research that offers novel insights into the biology of all organisms

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Dr Jasleen Jolly @jkjolly.bsky.social · 12/12/2024

Our longitudinal study revealed progressive retinal degeneration in female choroideremia carriers, emphasising the need for detailed multimodal imaging & functional testing in addition to retinal severity classification when assessing disease progression. bjo.bmj.com/content/earl...

bjo.bmj.com

Longitudinal assessment of female carriers of choroideremia using multimodal retinal imaging

Background/aims Female choroideremia carriers present with a spectrum of disease severity. Unlike in men, the rate of disease progression has not been well characterised in carriers. This longitudinal...

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Dr Jasleen Jolly @jkjolly.bsky.social · 11/12/2024

Scotopic microperimetry reveals reduced rod & cone sensitivity in early choroideremia. Could this tool be key in tracking progression in clinical trials? Read our full article here: tvst.arvojournals.org/article.aspx...

tvst.arvojournals.org

Exploring Scotopic Microperimetry as an Outcome Measure in Choroideremia | TVST | ARVO Journals

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Dr Jasleen Jolly @jkjolly.bsky.social · 10/12/2024

Female carriers of X-linked inherited retinal diseases can show highly variable disease progression. We are the first to investigate vascular reactivity as a potential disease biomarker. Functional OCT-A is a useful tool to assess dynamic retinal microvascular changes.

frontiersin.org

Frontiers | Retinal vascular reactivity in carriers of X-linked inherited retinal disease – a study using optical coherence tomography angiography

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Dr Jasleen Jolly @jkjolly.bsky.social · 09/12/2024

Female carriers of choroideremia with severe phenotypes face reduced visual function and retinal thinning. Learn how multimodal imaging and microperimetry can be used to aid detection. www.sciencedirect.com/science/arti...

sciencedirect.com

Retinal Characteristics of Female Choroideremia Carriers: Multimodal Imaging, Microperimetry, and Genetics

To describe visual function and retinal features of female carriers of choroideremia (CHM), using multimodal imaging and microperimetry.Cross-sectiona…

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Dr Jasleen Jolly @jkjolly.bsky.social · 03/12/2024

A new study highlights the cognitive toll of managing identity after vision loss. Balancing past identities, disability visibility, & self-presentation choices creates a hidden cognitive burden. Read more here: www.sciencedirect.com/science/arti...

sciencedirect.com

Renegotiating identity: The cognitive load of evaluating identity and self-presentation after vision loss

When a person is diagnosed with a condition leading to vision loss, life cannot go on as before. As well as developing new ways to manage their daily …

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Dr Jasleen Jolly @jkjolly.bsky.social · 03/12/2024

It was an honour to be part of the team that was asked to create the new ISCEV and IPS guidelines for Full-Field Stimulus Testing (FST). These will promote consistency of testing and reporting, and harmonising the protocols used. See the full details here: link.springer.com/article/10.1...

link.springer.com

ISCEV and IPS guideline for the full-field stimulus test (FST) - Documenta Ophthalmologica

The full-field stimulus test (FST) is a psychophysical technique designed for the measurement of visual function in low vision. The method involves the use of a ganzfeld stimulator, as used in routine...

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Dr Jasleen Jolly @jkjolly.bsky.social · 03/12/2024

Recently, I have left a toxic academic work environment and I am looking to rebuild a supportive community and my own sense of self-worth. I will be sharing some of the papers I have published in 2024.

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Dr Jasleen Jolly @jkjolly.bsky.social · 24/11/2024

It was amazing to go to the rest coast of England and see baby seal pups learning to fend for themselves. They only get mothered for 3 weeks!

Small white baby seal lying next to large brown mother seal on the beach. Noses are pointing to each other. Baby is 1 week old.

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