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Jennie Jacques

@jenniejacques1.bsky.social
162 followers 43 following 15 posts

Donate to Justice For ME here if you can please 🙏 💙🦋 shorturl.at/x1Vyx

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Reposted by Jennie Jacques
New Scientist @newscientist.com · 15/05/2026
PCOS will now be known as PMOS (polyendocrine metabolic ovarian syndrome), and for Alice Klein, who has the condition, it's been a long time coming
newscientist.com
PCOS has been officially renamed PMOS, and it’s a momentous move
PCOS will now be known as PMOS (polyendocrine metabolic ovarian syndrome), and for Alice Klein, who has the condition, it's been a long time coming
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Jennie Jacques @jenniejacques1.bsky.social · 15/05/2026
There’s a ME before M.E In all of us… She’s still here 🔥 And on Sunday May 17th with #millionsmissing I will be at The Tea Party For ME 2026… you are duly invited! the-slow-lane.com/blue-sunday-...
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Reposted by Jennie Jacques
Adam @abrokenbattery.bsky.social · 12/05/2026
Today is #MEAwarenessDay ME/CFS is often described as neglected and under-researched. That ignores the true history. George Monbiot and Carol Monaghan have described it as one of the greatest medical scandals of the 21st century.
George Monbiot and Carol Monaghan quotes
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Reposted by Jennie Jacques
Long Covid SOS @longcovidsos.bsky.social · 12/05/2026
Today is #MECFS Awareness Day. As a #LongCovid charity, we recognise that a significant proportion of #pwLC - around half, but not all - meet/would meet the diagnostic criteria for ME/CFS. We exist to advocate for everyone with Long Covid, including those who also have an ME/CFS diagnosis. 🧵
Alt text: Blue-toned awareness graphic for ME/CFS Awareness Day on 12 May 2026 by Long Covid SOS. The centre of the image features a large awareness ribbon formed from overlapping handprints in shades of blue, representing people affected by ME/CFS. Along the bottom are rows of raised hands in different blue tones above the words “Millions Missing.” The background contains faint repeated lifering logos, with the Long Covid SOS logo positioned beneath the ribbon.
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Jennie Jacques @jenniejacques1.bsky.social · 12/05/2026
Usually I focus on science 🧬 & the NEW! Today it’s Nightingale 🎈🎁 👩‍⚕️ #meawarenessday “The Charge of the Light Brigade” “Someone had blunder’d.” PACE Trial led ME patients into medicine’s version of the valley of death. Except blunder implies no one saw the bodies falling.
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Jennie Jacques @jenniejacques1.bsky.social · 07/05/2026
ME Awareness @davetuller1.bsky.social has spent years fighting for scientific integrity & exposing misinformation surrounding ME. Independent voices matter. So does truth in medicine. @georgemonbiot.bsky.social DONATE here 🔻 crowdfund.berkeley.edu/project/4972...
crowdfund.berkeley.edu
Trial By Error: Reporting on ME and ME/CFS, Long COVID, etc
Help UC Berkeley raise $75,000 for the project: Trial By Error: Reporting on ME and ME/CFS, Long COVID, etc. Your gift will make a difference!
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Reposted by Jennie Jacques
Adam @abrokenbattery.bsky.social · 04/05/2026
The whole video is well worth a watch. Big thanks to @jenniejacques1.bsky.social for such a great interview with David Tuller and George Monbiot about the #MECFS scandal (49 mins) youtu.be/SpLMB9I4kGI?...
youtu.be
George Monbiot David Tuller Jennie Jacques talking ME/CFS LONG COVID CANCER HIV/AIDS
YouTube video by The Monster In ME
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Jennie Jacques @jenniejacques1.bsky.social · 21/01/2026
Should have included this link - brain fog 😶‍🌫️ more to come in time 🕰️ Just wanted to share re the validation as much as anything else! Mitochondrial testing with Academy of Nutritional Medicine 💙🦋 #meawareness shop.aonm.org/mitochondria....
shop.aonm.org
Mitochondrial Tests – AONM Shop
Mitochondria are key orchestrators of cellular health, responsible for our energy production, biosynthesis of cellular components, and cellular signalling. Meas
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Jennie Jacques @jenniejacques1.bsky.social · 21/01/2026
What’s ME again? Blood 🩸 test results with AONM; Oxygen starved at a cellular level. Clinical. Unarguable. More here - www.instagram.com/reel/DTxPsQl...
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Jennie Jacques @jenniejacques1.bsky.social · 15/10/2025
Help BOOST to achieve the goal 💥💙🩵 please 🙏 DONATE if you can &/or help spread the word! 👇⬇️ shorturl.at/x1Vyx JUSTICE FOR M.E. 🔥 💪 #vikings let’s raid IGNORANCE & protect families from permanent disability or death from neglect of ME! Great CHANGE is on the horizon!
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Jennie Jacques @jenniejacques1.bsky.social · 09/10/2025
Thank you 🙏 @georgemonbiot.bsky.social Here’s an interview with George and @davetuller1.bsky.social to learn more…! m.youtube.com/watch?v=SpLM...
m.youtube.com
George Monbiot David Tuller Jennie Jacques talking ME/CFS LONG COVID CANCER HIV/AIDS
YouTube video by The Monster In ME
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Reposted by Jennie Jacques
George Monbiot @georgemonbiot.bsky.social · 09/10/2025
This new book by @cartoonkate.bsky.social is a breath-takingly beautiful thing: I'd go so far as to say a work of genius. It's my privilege to be interviewing her about it at the East Gate Bookshop, Totnes on 23rd October. Please join us if you can: www.totnespulse.co.uk/product/tick...
totnespulse.co.uk
Ticket: Patchwork: A Graphic Biography of Jane Austen
Kate Evans is a writer, cartoonist, illustrator and studied English literature at the University of Sussex in Brighton. From 1995 to 1998 Evans dedicated herself to environmental activism, providing c...
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Carole Bruce @cabruce.bsky.social · 08/10/2025
Thank you so much for continuing to support us ME people with such clear, strong and compassionate reporting. I have been bedridden for 32 years, my daughter for 39 years. We have had no treatment offered, simply left to rot in our beds. We spent a lot of money on ‘alternative’ approaches, no help
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Reposted by Jennie Jacques
Adam @abrokenbattery.bsky.social · 09/10/2025
Thanks, George 🙏 For anyone interested, I wrote a thread about how Wessely was wrong about Gulf War Illness, Camelford Poisonings & ill health following 9/11 being psychogenic. He also used harassment as a distraction from criticism during a talk on GWI. threadreaderapp.com/thread/15273...
threadreaderapp.com
Thread by @ABrokenBattery on Thread Reader App
@ABrokenBattery: 🧵Gulf War Syndrome & Simon Wessely "For 30 years they have been disowned, ignored and lied to by consecutive governments, with no positive answers to their questions about exposure to...
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Reposted by Jennie Jacques
George Monbiot @georgemonbiot.bsky.social · 08/10/2025
They desperately want to be able to work, to socialise, to experience all the other joys of life. But because the condition is so poorly understood, they have been repeatedly treated as if they were “malingerers” or “hysterics”. Which suits the government just fine.
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George Monbiot @georgemonbiot.bsky.social · 08/10/2025
In the firing line, as ever, are the UK’s hundreds of thousands of ME/CFS patients. As a practitioner once remarked, “the bastards don’t want to get better”. If there is one characteristic all the ME/CFS patients I’ve come across have in common, it is a desperation to get better.
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George Monbiot @georgemonbiot.bsky.social · 08/10/2025
Like the Tories, the Labour government is trying to drive down the number of people who qualify for disability benefits by insisting there has been an epidemic of “overdiagnosis”: a favourite theme of the BBC and the junktanks of Tufton Street. Never mind the science: what outcome do we want?
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George Monbiot @georgemonbiot.bsky.social · 08/10/2025
ME/CFS is a devastating condition that has long been denied, dismissed, psychologised and underdiagnosed. Research is at last starting to catch up with it, with glimmers of hope for those who have been left untreated for so long. There's a huge BUT coming ...🧵 www.theguardian.com/society/2025...
theguardian.com
Scientists develop first ‘accurate blood test’ to detect chronic fatigue syndrome
Research could offer hope for ME patients – but some experts urge caution and say more studies needed
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George Monbiot @georgemonbiot.bsky.social · 08/10/2025
Just as we are beginning to understand the biochemical basis of this horrendous condition, the government appoints the man perhaps most responsible for the mischaracterisation of ME/CFS – Simon Wesseley - to its *overdiagnosis* commission. www.benefitsandwork.co.uk/news/controv...
benefitsandwork.co.uk
Controversial professor to investigate overdiagnosis of mental health and neurodivergence for Labour
Get the benefits you're entitled to: help with personal independence payment (PIP), universal credit (UC), employment and support allowance (ESA),disability living allowance (DLA). Claims, assessments...
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sarah boothby @swastrosarah.bsky.social · 06/09/2025
The third NHS ME/cfs e-Learning module was published last week, shortly after #Justice4ME launched. Written by Dr David Strain, only those with a government, NHS or academic work email address have access. Why? Who did Strain consult with? learninghub.nhs.uk/Resource/712...
learninghub.nhs.uk
Resource
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Reposted by Jennie Jacques
sarah boothby @swastrosarah.bsky.social · 07/09/2025
@ashleydaltonmp.bsky.social Please note
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Jennie Jacques @jenniejacques1.bsky.social · 31/08/2025
Let’s reached the 1st target 🎯 in the 1st weekend it’s been live?! 💪 💥 JUSTICE FOR ME 🤞 🌟 💫 shorturl.at/x1Vyx I fully endorse this! #meawareness
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Jennie Jacques @jenniejacques1.bsky.social · 29/08/2025
Please donate to Justice For ME if you can and/or help spread the word; shorturl.at/x1Vyx #meawareness #Justice4ME @swastrosarah.bsky.social 💙💪
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sarah boothby @swastrosarah.bsky.social · 29/08/2025
I am proud to endorse this initiative, with thanks to the very many people made unwell by medical neglect of #ME who never give up, no matter how difficult it is to continue. This fundraiser goes live 7pm BST 29 August 2025. #Justice4ME www.crowdjustice.com/case/justice... 1/2
crowdjustice.com
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sarah boothby @swastrosarah.bsky.social · 23/08/2025
The inquest into how Maeve died from medical neglect of #ME/cfs in 2021 found in 2024 there are no Consultant doctors for ME anywhere in the UK. She became unable to wash her own hair; later unable to chew. #MaeveInquest #PlanForME @ashleydaltonmp.bsky.social @rthonwesstreeting.bsky.social 2/2
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sarah boothby @swastrosarah.bsky.social · 23/08/2025
www.youtube.com/watch?v=heJM... As Dr Whitely says in this interview, if there is no job in the NHS, there is no medical training. Without medical training, misdiagnosis and risky mistreatments are how the NHS is transformed into a sick service. Outstanding work from @jenniejacques1.bsky.social 1/2
youtube.com
Vikings Actress Jennie Jacques; Pelvic Venous Congestion Syndrome, Thoracic Outlet Syndrome and ME
YouTube video by The Monster In ME
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Jennie Jacques @jenniejacques1.bsky.social · 22/08/2025
New Video on jenniejacques1 YouTube The Monster In ME. Watch here ⬇️ m.youtube.com/watch?v=heJM... Sharing in case it helps anyone else struggling to ask the right questions about their own health 💙🦋 #pelvicvenouscongestionsyndrome #thoracicoutletsyndrome
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Reposted by Jennie Jacques
DecodeME @decodemestudy.bsky.social · 08/08/2025
Today is #SevereMEDay - a day to recognise and honour the people living with the most devastating forms of Myalgic Encephalomyelitis (ME). We are deeply grateful to those with Severe ME who took part in the DecodeME study. Your contribution is vital.
Thank you to the thousands of people with Severe ME who have taken the time and energy to participate in DecodeME #SevereMEDay
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Jennie Jacques @jenniejacques1.bsky.social · 06/08/2025
Results 💥 @decodemestudy.bsky.social www.decodeme.org.uk/initial-dna-...
decodeme.org.uk
Initial DecodeME DNA Results - DecodeME
06 August 2025 The DecodeME team is delighted to announce that the initial analysis of 15,579 DNA samples is complete, and we have important news to share. Main findings from our analysis  Your genes ...
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Reposted by Jennie Jacques
Adam @abrokenbattery.bsky.social · 06/08/2025
Clip: Reporting Scotland previews tonight’s The Seven, where Prof Chris Ponting from Edinburgh University will discuss new findings from the DecodeME study into MECFS.
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Reposted by Jennie Jacques
DecodeME @decodemestudy.bsky.social · 04/08/2025
The initial DNA results from DecodeME are coming this week! We will release them on our website on Wednesday 6th August at 7pm (approx). We're letting you know the timing in advance so you can pace beforehand. Thank you to our participants & supporters.
Dark blue background with image of DNA helix. At the top of the DecodeME ‘the results’ logo. Two spotlights shine on a speech bubble that says ‘Initial DNA results’. To the right of this is an image of a research paper. At the bottom of the graphic it says ‘Wednesday 7pm BST’.
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Jennie Jacques @jenniejacques1.bsky.social · 22/01/2025
NEW video/interview with Dr Peter Rowe on Orthostatic Intolerance #meawareness #longcovid #pots #eds WATCH here; m.youtube.com/watch?v=qsJA... Subscribe to YouTube Channel The Monster in ME - jenniejacques1 - more to come!
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Smile For ME @smileformeuk.bsky.social · 30/11/2024
November’s newsletter is now live on our website smileforme.org.uk/november2024 Includes this month’s share a story by @jenniejacques1.bsky.social. Thank you Jennie for sharing about your experience of ME and @bake4me.bsky.social as you launch The Wicked Christmas Bake Off in support of us 🩵
smileforme.org.uk
November 2024
Hello and welcome to November’s newsletter. Hope you have had the best month possible. Smiles 10 Smiles were sent to both ME sufferers and carers of all ages this month. All chosen and personalised…
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Smile For ME @smileformeuk.bsky.social · 14/01/2025
A big thank you to everyone who joined in and supported @bake4me.bsky.social’s The Wicked Christmas Bake Off by @jenniejacques1.bsky.social Congratulations to the star bakers ⭐️🩵
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PolyBio Research Foundation @polybiorf.bsky.social · 19/11/2024
1/ Introducing PolyBio’s new interactive website module, where you can learn about our #LongCovid Research Consortium projects, technologies, and findings across international institutions: polybio.org/consortium-p...
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Smile For ME @smileformeuk.bsky.social · 14/11/2024
Smile For ME is a UK charity, founded in 2012. We send personalised presents, which we call Smiles, to nominated people affected by ME to brighten their day and make them smile 😊 Nominate: smileforme.org.uk/nominate Support: smileforme.org.uk/supportus
Half pale blue half white background. Smile For ME logo top left hand corner, Registered Charity Number 1185760 and smileforme.org.uk written to the right. Underneath Smile For ME logo outline filled with a photo of wrapped presents and to the right Smile For ME logo outline filled with photos of Smile recipients. Merryn’s Smile Day, Carers Week and Bear Hugs logos underneath. Then bottom left the names, photos inside different coloured logo outlines and roles of the Trustees, Alice Co-founder, Clive Chair, Wendy Treasurer and Jacqueline Secretary.
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Jennie Jacques @jenniejacques1.bsky.social · 23/11/2024
Officially launching very soon with @bake4me.bsky.social & @smileformecharity.bsky.social * The Wicked Christmas 🎄 Bake Off! 💙 www.bake4me.co.uk
bake4me.co.uk
RAISING FUNDS FOR
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bake4ME @bake4me.bsky.social · 23/11/2024
STAY TUNED for our next bake off with @jenniejacques1.bsky.social & lead actress Laura Pick from Wicked the musical UK on the Celeb Judging panel! Raising funds and awareness for @smileformecharity.bsky.social with an exclusive interview coming soon! #meawarenss www.bake4me.co.uk
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Adam @abrokenbattery.bsky.social · 21/11/2024
New Video: @georgemonbiot.bsky.social describes the treatment of #MECFS as "The Greatest Medical Scandal of the 21st century". The video explores the impact of ineffective & harmful treatments & how they were defended by the scientific & media establishment. youtu.be/RiwX9Y0NbiQ?...
youtu.be
ME/CFS Scandal Explainer (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome)
YouTube video by Broken Battery
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Chris Ponting @cgatist.bsky.social · 23/11/2024
Welcome to BlueSky, @jenniejacques1.bsky.social
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