iiinova — where your digital self keeps evolving

Jane Bernal @jane-bernal.bsky.social · 02/10/2026

Anybody know any research on lay understanding of to Do Not Attempt Resuscitation orders, Treatment Escalation Plans, RESPECT forms & similar ?

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Jane Bernal @jane-bernal.bsky.social · 01/10/2026

What does "not for resuscitation" even mean? Is it the same as "Do not attempt resuscitation"? What about a RESPECT form? A Treatment Escalation Plan? What a do ordinary, non medical people understand by this jargon? Do you know a good article about this.

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Jane Bernal @jane-bernal.bsky.social · 01/10/2026

Help please from health/social scientists. Wanted, good article on lsy ie non-medical attitudes to Do not attempt resus; Treatment escalation plans; Allow Natural Death; RESPECT & similar. Do you know one? What search terms should I use?

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Jane Bernal @jane-bernal.bsky.social · 23/08/2026

Pauli Math the polymath's son - & grandson.

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Jane Bernal @jane-bernal.bsky.social · 27/07/2026

When plans are made and agreed each part of the service must read and impkement them. No use brow beating care staff to produce Hospital Passports if hospital staff do not read or act on them. No use repeatedly admitting a person for the same problem because community support is ineffwctive.

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Jane Bernal @jane-bernal.bsky.social · 27/07/2026

Throughout their lives people with learning disabilities get unequal & inequitable access to health services. Health professionals need to listen better to people withlearning disabilities & the people who know them well - familes & long-term support/care staff. Continuity if care really matters.

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Jane Bernal @jane-bernal.bsky.social · 27/07/2026

This is important. There must be action. Making sure there is equitable access to healthy lives, healthy food, enjoyable exercise, employment, relationships - bacause these things as much or more than health services are what keep us healthy. There's a lot for the NHS tp do too.

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Jane Bernal @jane-bernal.bsky.social · 23/07/2026

Lived in London much of my life. Feels safer now with far better public transport. Faintly worried about what has hsppened to the former inhabitants of places like Kings Cross, Csmden & Kentidh Towns though the dlow gentrification has been goung on for 60 years at least.

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Jane Bernal @jane-bernal.bsky.social · 26/06/2026

Being constantly pinged when NHS employee whose name I probably won't recognise viewss my record wouldn't make me feel safer, or protect confidentiality. How am I, the patient, supposed to know who has a need to know & who doesn't & is nosy orpaid by the Sun. NHS must take responsibility.

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Michael Rosen @michaelrosenyes.bsky.social · 25/06/2026

Just been in a brilliant webinar for teachers (mostly) with four other authors and Anna Lise Gordon (host) from St Mary's Twickenham talking about children's books about grief and bereavement.

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Parody Nigel Farage @parodypm.bsky.social · 24/06/2026

I'm confident nobody will share this.

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Prof Nisreen Alwan @nisreenalwan.bsky.social · 12/06/2026

We can’t keep preaching about diet quality as if it’s a free choice once the information is provided. This is out of touch. In the most deprived fifth of the population families need to to spend 70% of their disposable income to afford healthy foods guidelines. foodfoundation.org.uk/press-releas...

foodfoundation.org.uk

Dietary inequalities worsened in last two years as healthier foods grew more expensive

The Broken Plate 2025 report is the Food Foundation's flagship annual report about the state of the food system

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Jane Bernal @jane-bernal.bsky.social · 02/06/2026

I've been at both ends of the stethoscope. Over-reliance on record leads to unhelpful assumptions. Not reading them leads to missing important stuff. Expecting patient to remember date & name of operation + pathology findings is unrealistic. I'm sure you do read notes. Surprised how many don't.

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Jane Bernal @jane-bernal.bsky.social · 02/06/2026

We need human beings working in services with time & inclination to read as well as write in records. Even in a single Trust, patients too often asked details about operations, or examination findings that they couldn't know. I doubt the solution is energy & water consuming, military grade tech.

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Jane Bernal @jane-bernal.bsky.social · 02/06/2026

I'm looking for good recent article, by a human, in reputable journal about how docs (hospital or GP) approach patients in last year of life dying from causes other than cancer or dementia. Ideas? Names to look out for? I know how to use medline, but most of what I find is on cancer.

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Jane Bernal @jane-bernal.bsky.social · 01/06/2026

Does every clinician I see in hospital really have access to my GP record? My experience as a patient is that they don'tt know, & sometimes doubt, my past medical history. It seems it's my responsibility to remember . It may be that the info is there but unread, if so, tech won't solve the problem.

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Jane Bernal @jane-bernal.bsky.social · 12/05/2026

Turns out there are other ways to do it. I actually managed the four-letter app but it refused to detect that my partner has a face. Because he has a beard.

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Jane Bernal @jane-bernal.bsky.social · 12/05/2026

Think about this. It is important. And a bit boring.

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Larry the Cat @number10cat.bsky.social · 23/04/2026

Lots of "commentators" are rewarded for spreading lies and convincing you that everything is getting worse and you should be afraid. The good news is it's not: homicides at their lowest level in 50 years and killings involving a knife are at their lowest recorded level www.bbc.co.uk/news/article...

bbc.co.uk

Knife killings down by 21%, figures show

The annual ONS crime data also shows overall recorded homicides have fallen.

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EveryDoctor @everydoctor.org.uk · 22/04/2026

Tired of the spin on Palantir and the NHS? The Shadow Contract - a new investigative podcast from @goodlawproject.org - cuts through the noise. Our CEO Dr Julia Patterson features in Episode 1. All four episodes are out now. Listen: goodlaw.social/a87e02

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Jane Bernal @jane-bernal.bsky.social · 16/04/2026

Are there still significant regional and local variations? Cornwall, a place you know well, has experienced longer ambulance waits than most. Also seems to be one of the worst for corridor, care which is not just Emergency Department waits but 'temporary' extra beds on almost every ward.

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Josiah Mortimer @josiahmortimer.bsky.social · 16/04/2026

But: "[The figures] cannot mask how far away services are from meeting the standards patients should be able to expect."

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Jane Bernal @jane-bernal.bsky.social · 11/04/2026

Am I right in thinking Not the NHS again will be a series of podcasts? This 8s the first about the very real threats Palantir poses to our NHS.

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Dr Steve Taylor @drstevetaylor.bsky.social · 10/04/2026

‘NOT THE NHS AGAIN!’ We debunk Palantir in the #NHS Email your MP to ask them to come to the April 16 debate on Palantir & the FDP 👇🏻 www.foxglove.org.uk/campaigns/pa... Full episode here youtu.be/Uosu3R4Q5gY?...

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Jane Bernal @jane-bernal.bsky.social · 08/04/2026

There is an argument that it always has been. Deterence only works as a strategy if the very few people with real power are bothered if civilisations are destroyed

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Co-production Network for Wales @copronetwales.bsky.social · 08/04/2026

Looking for more helpful resources? Not sure where to start? Don't worry! We’ve created an interactive choose-your-own-adventure game that connects you with the most relevant co-production resources for you! Try it here: buff.ly/Cpd2YS4 #resources #coproduction #takethequiz

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Jane Bernal @jane-bernal.bsky.social · 15/03/2026

Seems to me we all bear the conseqences of the war, even those who opposed it. We may not feel responsible - but our energy costs rise as does pollution. Refugees require our support. Net zero becomes less possible. We're at greater risk in any future war because rules no longer apply. All of us.

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Learning Disability England @learningdiseng.bsky.social · 10/03/2026

Across the UK, millions provide unpaid care for family and friends—often alongside work, family life, and their own health needs. New analysis from the Health Foundation talks about the growing pressures on carers and why better recognition and support are so important: tinyurl.com/79nvhnb4

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Jane Bernal @jane-bernal.bsky.social · 05/03/2026

You are right it is not quite the same, but the history is worth remembering when we ralj about now. Because the UK Government's admiration & suppirt fir the USA's policies, whether they are right or wrong is longstanding.

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Jane Bernal @jane-bernal.bsky.social · 02/03/2026

Same thing US Governments have had over UK ones for my entire life time? What did LBJ have over Harild Wilson? US air bases in Diego Garcia & East Anglia, amongst other UK territories predatr may well ououtlast this US administration.

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Jane Bernal @jane-bernal.bsky.social · 27/02/2026

I can. Pleased thst the electorate have more sense thsn we feared?

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Jane Bernal @jane-bernal.bsky.social · 25/02/2026

Also, what difference would it make to getting important, progressive legislation through Parliament? Labour has, will continue to have a large majority. Which minority party would we prefer to gain one more seat ? Even if it were the thin end of a wedge, which it could be for Green or Reform.

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Jane Bernal @jane-bernal.bsky.social · 24/02/2026

He appears to see it as a commodity. Doesn't the phrase phrase "sexual economy" suggest something that is monetised, contracted for, hired, bought, sold. By whom? From whom? I do not believe he is talking about prostitution but a return to a 1950s Stepford wife fantasy.

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Jane Bernal @jane-bernal.bsky.social · 24/02/2026

I see differenr predictions. Just have to hope the electorate there get a clearer view than we can.

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Jane Bernal @jane-bernal.bsky.social · 24/02/2026

No, all we know is who mustn't be let through the gap.

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Jane Bernal @jane-bernal.bsky.social · 18/02/2026

New book, featuring Felicia Browne anong others "Comrades in Art" by Andy Friend, published by Thames & Hudson. Also an exhibition at the Towner, Eastbourne, May to September 2026. I went to the launch at MMM fascinating presentation.

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Jane Bernal @jane-bernal.bsky.social · 18/02/2026

A-B, A-B trial coming? Holding constant all other variables including performance of HM Govt, Wolves, Presidehts of various more or less powerful states. I'd just enjoy the chocolate.

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Paul Bernal @paulbernal.bsky.social · 18/02/2026

Well, it worked. Enough for seven and a half hours sleep, anyway! 🙂

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Athene Donald @athenedonald.bsky.social · 24/07/2025

Paperback publication day! Have a good read. Things changing far too slowly for #womeninSTEM

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Jane Bernal @jane-bernal.bsky.social · 31/01/2026

Before I start in on anecdotes of my life as a radical child teenager worker pensioner can I ask 2 questions. 1 is hhere a working definition of radical or radicalised? 2 Assuming there is, what data are there on the ages of those who are radicalised?

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Learning Disability Wales @ldwales.bsky.social · 27/01/2026

People with a learning disability were among the first groups of people to be targeted during the Holocaust – sterilised and murdered under the Nazi’s Aktion T4 programme that killed an estimated 300,000 disabled people. 2/3

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Jane Bernal @jane-bernal.bsky.social · 20/01/2026

Thank you. I look forward tk reading the blog.

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