International Patient and Public Involvement Network @ippin.bsky.social · 08/09/2026Join us for our next free webinar! Register using the QR code below or with this link: zoom.us/webinar/regi... 000
International Patient and Public Involvement Network @ippin.bsky.social · 23/07/2026Just under 2 weeks to go until our first international round table event: 'Advancing PPI in Asia - Research with the people, for the people.' Join us at 9am (UK) 4pm (SG) on Wednesday 5th August. Register here: zoom.us/webinar/regi... 011
International Patient and Public Involvement Network @ippin.bsky.social · 07/07/2026In our latest blog post, Maria Loades, Professor in Clinical Psychology, University of Bath outlines the lessons learned from co-designing the Unlock Wellbeing website. intppinetwork.wixsite.com/ippin/post/b...intppinetwork.wixsite.comBuilding the Unlock Wellbeing website: What We Learned Co-Designing with Young PeopleMaria Loades outlines the lessons learned from co-designing the Unlock Wellbeing website 010
International Patient and Public Involvement Network @ippin.bsky.social · 01/07/2026Ai Ling Sim-Devadas of OPEN, NTU Singapore explains why now is the right time to bring together those committed to advancing PPI in Asia. Read the article and Register for our Round Table Event 'Advancing PPI in Research in Asia' here: intppinetwork.wixsite.com/ippin/post/w...intppinetwork.wixsite.comWhere are We with Patient and Public Involvement (PPI) in Research in Asia?While PPI in Asia is still evolving, the growing interest, early initiatives, and shared commitment across countries point to a bright future. 001
International Patient and Public Involvement Network @ippin.bsky.social · 16/06/2026Join us at our 'Advancing PPI in Asia' Round Table Event. August 5th. 9am (UK time). For more details and to register, click here: zoom.us/webinar/regi... 032
International Patient and Public Involvement Network @ippin.bsky.social · 20/05/2026Register here for our webinar - PPI in Research in Brazil: zoom.us/webinar/regi... 010
International Patient and Public Involvement Network @ippin.bsky.social · 12/05/2026“Creating platforms upon which young people can exercise their power” Learn about young people's involvement in the CELEBRATE project in our latest blog post from Niyah Campbell, University of Birmingham. Read it here: intppinetwork.wixsite.com/ippin/post/r... 010
International Patient and Public Involvement Network @ippin.bsky.social · 05/05/2026Join us for our next free webinar - Patient and Public Involvement in Research in Brazil. 2:30pm UK on Thursday 4th June. Register here: zoom.us/webinar/regi... 021
International Patient and Public Involvement Network @ippin.bsky.social · 28/04/2026'The Rise of the "Expert by Experience"' - as we celebrate reaching 500 members, our latest blog post reflects on a 'decade of global PPI evolution.' Read it here: intppinetwork.wixsite.com/ippin/post/t...intppinetwork.wixsite.comThe Rise of the "Expert by Experience": A Decade of Global PPI EvolutionAs we celebrate reaching 500 members, we reflect on a decade of global PPI evolution. 010
International Patient and Public Involvement Network @ippin.bsky.social · 21/04/2026Collaboration is key, relationships matter At the forefront of the growth of PPI in Ireland. Claire Riordan and Edel Murphy share the three ideas they've learned to live by when it comes to PPI planning! Read it here: intppinetwork.wixsite.com/ippin/post/c...intppinetwork.wixsite.comCollaboration is key, relationships matterClaire Riordan and Edel Murphy share the three ideas they've learned to live by when it comes to PPI planning 000
International Patient and Public Involvement Network @ippin.bsky.social · 16/03/2026To stay up to date with our latest webinars and international events, as well as gain access to exclusive member benefits, join the International PPI Network today. Membership is completely free! intppinetwork.wixsite.com/ippin/member...intppinetwork.wixsite.comMembership | International PPI NetworkFind out more about how to become a member of the International PPI Network. 001
International Patient and Public Involvement Network @ippin.bsky.social · 10/03/2026Inclusive communication recognises that human beings use many ways of understanding and expressing themselves. Izy Utley tells us more about #inclusivecommunication in our latest IPPIN blog post: intppinetwork.wixsite.com/ippin/post/i...intppinetwork.wixsite.comInclusive Communication in PPIWritten by Izy Utley - Speech and Language Therapist, Research Fellow and Doctoral Research Student.Up to 14 million people in the UK (20% of the population) will experience communication difficulty a... 021
International Patient and Public Involvement Network @ippin.bsky.social · 09/02/2026Did you know membership of the International PPI Network is completely free? To find out more and join today click here: intppinetwork.wixsite.com/ippin/member... 000
International Patient and Public Involvement Network @ippin.bsky.social · 05/02/2026There is still time to book your place for this afternoon's webinar - Patient and Public Involvement in Research in Ireland. Register here - zoom.us/webinar/regi... 000
International Patient and Public Involvement Network @ippin.bsky.social · 02/02/2026There are still spaces available for our next webinar. You can register to attend here: zoom.us/webinar/regi... 022
International Patient and Public Involvement Network @ippin.bsky.social · 13/01/2026Join us for our next webinar - 'Patient and Public Involvement in Research in Ireland' with Claire Riordan and Edel Murphy. Register here: zoom.us/webinar/regi... 000
International Patient and Public Involvement Network @ippin.bsky.social · 27/10/2025How do you see AI fitting into the future of PPI storytelling? And what safeguards or opportunities do you think matter most? Read the latest IPPIN blog post from Patrick Toland - 'Patient Voices in the Age of AI: Opportunity or Visibility Theft?' intppinetwork.wixsite.com/ippin/post/p... 014
International Patient and Public Involvement Network @ippin.bsky.social · 23/10/2025Join us for our next webinar! On the 8th December Silke Lipinksi and Isabel Dziobel explain how they created the PPI structure for the German Centre for Mental Health (DZPG). Register here: t.co/QhlqLjHYY7 010
International Patient and Public Involvement Network @ippin.bsky.social · 20/10/2025The presentation and Q&A from our webinar on Citizen Science with Sarah Ahannach are now available to watch again on our website: t.co/YG6zYkVSJJ 010
International Patient and Public Involvement Network @ippin.bsky.social · 22/09/2025Registration is still open for our next webinar! Sarah Ahannach shares her experiences from the Isala project - one of the world's largest citizen science projects addressing women's health. Register here: zoom.us/webinar/regi... 000
International Patient and Public Involvement Network @ippin.bsky.social · 09/09/2025The presentation and Q&A for last weeks webinar on Measuring the Impact of PPI in Research are now available to watch again on our website. intppinetwork.wixsite.com/ippin/webina... 001
International Patient and Public Involvement Network @ippin.bsky.social · 04/09/2025Join us for our next webinar! Sarah Ahannach shares her experiences from the Isala project - one of the world's largest citizen science projects addressing women's health. Register here: zoom.us/webinar/regi... 000
International Patient and Public Involvement Network @ippin.bsky.social · 07/08/2025How do we assess the impact of #patientandpublicinvolvement in research? Jennifer Mohammadi & Sophie Scott-Thorburn explain how the use of reflective sessions to assess impact can improve PPI practices. Register at: zoom.us/webinar/regi... 020
International Patient and Public Involvement Network @ippin.bsky.social · 02/07/2025ntu.wd3.myworkdayjobs.com/Careers/job/...ntu.wd3.myworkdayjobs.comResearch Fellow, Patient and Public Involvement and Engagement (PPIE) [LKCMedicine]The Lee Kong Chian School of Medicine (LKCMedicine) trains doctors who put patients at the centre of their exemplary care. The School, which offers both undergraduate and graduate programmes, is named... 000
Reposted by International Patient and Public Involvement NetworkThe People's Review @thepeoplesreview.ie · 22/04/2025🚀 THE PEOPLE'S REVIEW IS OPEN NOW 🚀 We are excited to launch Stage 1 of #ThePeoplesReview ✅Open to people worldwide ✅Everything takes place online ✅Make a difference in health research ✅Learn about systematic reviews Join now ➡️ buff.ly/WAnKUYa 177
Reposted by International Patient and Public Involvement NetworkPatients Association @patients-association.org.uk · 10/03/2025🎉 Celebrating 3 years of the @hralatest.bsky.social Shared Commitment to Public Involvement! We hear from 1000s of patients every year and their voices shape real change in healthcare. Our 6 principles can help other orgs do the same. Learn more: buff.ly/5Pf97bX #SharedCommitment #PublicInvolvement 0105
Reposted by International Patient and Public Involvement NetworkHealth Research Authority @hralatest.bsky.social · 10/03/2025To mark the third anniversary of our #SharedCommitment to #PublicInvolvement, Matt Westmore, HRA Chief Executive, has written about our public involvement highlights from the past year ➡️https://www.hra.nhs.uk/about-us/news-updates/blog-celebrating-the-third-anniversary-of-our-shared-commitment/ 042
Reposted by International Patient and Public Involvement NetworkMediPaCe @medipace.bsky.social · 24/02/2025We take our membership of the Shared Commitment to Patient Involvement very seriously. Jenny Royle, our lovely Strategic Lead shares our pledges www.youtube.com/watch?si=juW... #SharedCommitment #patientinvolvement #socialresearchyoutube.com 022
Reposted by International Patient and Public Involvement NetworkNIHR Applied Research Collaboration North East & North Cumbria @arcnenc.bsky.social · 10/03/2025Our public partners Cheryl and Irene are marking the 3rd anniversary of the HRA #SharedCommitment to #PublicInvolvement by sharing their research participation stories & discussing why #PublicInvolvement is so important to them. Read the blog ⬇️ tinyurl.com/SC25Blog 063
Reposted by International Patient and Public Involvement NetworkAcademy of Medical Sciences @acmedsci.bsky.social · 10/03/2025Our #SharedCommitment to #PublicInvolvement in health and social care research is three today! 🥳 Hear from our Director of Comms & Engagement, Nick Hillier, speak with Research Unravelled on how we engage patient & carer voices in research. 👉 ow.ly/e5u050VbF7R @hralatest.bsky.socialow.lyNick Hillier | The Academy of Medical Sciences - Research UnravelledPeter Barker chats with Nick Hillier - Director of Comms and Engagement at the Academy of Medical Sciences - about patient and public involvement. 1115
Reposted by International Patient and Public Involvement NetworkNIHR School for Primary Care Research (SPCR) @nihrspcr.bsky.social · 10/03/2025Today marks 3 years of the #SharedCommitment to Public Involvement! As recent signatories, we’ve written a blog reflecting on our achievements, progress, & future goals for #PPIE within the SPCR and health & care research! Read it here: bit.ly/4kAIEqS @hralatest.bsky.social @nihr.bsky.social 0117
International Patient and Public Involvement Network @ippin.bsky.social · 10/03/2025Today marks the 3rd anniversary of the #SharedCommitment to Public Involvement in Health and Social Care Research. We, and the many other organisations that have signed up, continue in our commitment to bring about changes that will improve the practice of PPI in health and social care research. 0205
Reposted by International Patient and Public Involvement NetworkThe McPin Foundation @mcpinfoundation.bsky.social · 10/03/2025We’re a partner with other leading orgs on the #SharedCommitment to Public Involvement initiative, which turns 3 today!🎈 @vanessapinfold.bsky.social shares why it's important work, helping drive up standards in health & social care research 👉 bit.ly/4hnVTs6 @nihr.bsky.social @hralatest.bsky.social 094
Reposted by International Patient and Public Involvement NetworkLouca-Mai Brady @louca-mai.bsky.social · 06/03/2025Great to see @ippin.bsky.social on here. Added to the #PPI starter pack (see below). It's almost at capacity so if you work in #PublicInvolvement and/or #CoProduction in health & care research and would like to be added let me know soon. When it's full someone else will need to start a new one! 0103
Reposted by International Patient and Public Involvement NetworkGary Hickey @arsenalgary.bsky.social · 10/03/2025www.linkedin.com/posts/nihr-r...linkedin.comNIHR (National Institute for Health and Care Research) on LinkedIn: We've just released episode 1 of our new podcast series - Spotlight on…We've just released episode 1 of our new podcast series - Spotlight on community engagement and involvement (CEI): Leaving no one behind. Each episode, guests… 021
Reposted by International Patient and Public Involvement NetworkHealth Innovation West Midlands @healthinnovwm.bsky.social · 04/11/2024Patient and Public Involvement and Engagement in Med Tech Tue 12 Nov 2024, 9am - 12:30pm Join this event to understand the importance of #PPIE throughout the #medtech development cycle. Book your tickets here: lnkd.in/ePXGWTa3 Sponsored by the WMHTIA in collaboration with Medilink Midlands. 032
Reposted by International Patient and Public Involvement NetworkTorie Robinson @torierobinson.bsky.social · 23/01/2025Podcast!! 🎙️📹 Having patients involved in #epilepsy research is fantastic - if done well! How can Public Patient Involvement impact qualitative research? And, how is this is benefit to quantitative research?! Hear all about it from research fellow Georgia Cook 🤩! Watch/listen, via links 👇🏻! 261
Reposted by International Patient and Public Involvement NetworkCoeliac UK @coeliacuk.bsky.social · 17/12/2024(2/2)The research team is looking for people diagnosed with coeliac disease or parents or carers of children with coeliac disease to join a Patient and Public Involvement and Engagement (PPIE) panel. Find out more: www.coeliac.org.uk/research/our... #CoeliacDisease #CoeliacUK #Coeliaccoeliac.org.ukRecruiting for researchGet involved with research into coeliac disease and the affects of gluten by helping with research projects. 052
Reposted by International Patient and Public Involvement NetworkDr. K Gow @kgjura.bsky.social · 06/01/2025Researchers at Aberdeen Uni are looking for ppl in rural & island Scotland to help shape research into healthcare provision for specific medical conditions. Check out the link for more info on the project & how to get involved. www.abdn.ac.uk/iahs/academi... #RuralHealth #IslandHealth 134