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International Patient and Public Involvement Network

@ippin.bsky.social
844 followers 1.5K following 25 posts

The International PPI Network connects individuals working in, involved with and interested in patient and public involvement across the globe. Join us at intppinetwork.wixsite.com/ippin

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International Patient and Public Involvement Network @ippin.bsky.social · 08/09/2026
Join us for our next free webinar! Register using the QR code below or with this link: zoom.us/webinar/regi...
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International Patient and Public Involvement Network @ippin.bsky.social · 23/07/2026
Just under 2 weeks to go until our first international round table event: 'Advancing PPI in Asia - Research with the people, for the people.' Join us at 9am (UK) 4pm (SG) on Wednesday 5th August. Register here: zoom.us/webinar/regi...
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International Patient and Public Involvement Network @ippin.bsky.social · 07/07/2026
In our latest blog post, Maria Loades, Professor in Clinical Psychology, University of Bath outlines the lessons learned from co-designing the Unlock Wellbeing website. intppinetwork.wixsite.com/ippin/post/b...
intppinetwork.wixsite.com
Building the Unlock Wellbeing website: What We Learned Co-Designing with Young People
Maria Loades outlines the lessons learned from co-designing the Unlock Wellbeing website
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International Patient and Public Involvement Network @ippin.bsky.social · 01/07/2026
Ai Ling Sim-Devadas of OPEN, NTU Singapore explains why now is the right time to bring together those committed to advancing PPI in Asia. Read the article and Register for our Round Table Event 'Advancing PPI in Research in Asia' here: intppinetwork.wixsite.com/ippin/post/w...
intppinetwork.wixsite.com
Where are We with Patient and Public Involvement (PPI) in Research in Asia?
While PPI in Asia is still evolving, the growing interest, early initiatives, and shared commitment across countries point to a bright future.
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International Patient and Public Involvement Network @ippin.bsky.social · 16/06/2026
Join us at our 'Advancing PPI in Asia' Round Table Event. August 5th. 9am (UK time). For more details and to register, click here: zoom.us/webinar/regi...
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International Patient and Public Involvement Network @ippin.bsky.social · 20/05/2026
Register here for our webinar - PPI in Research in Brazil: zoom.us/webinar/regi...
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International Patient and Public Involvement Network @ippin.bsky.social · 12/05/2026
“Creating platforms upon which young people can exercise their power” Learn about young people's involvement in the CELEBRATE project in our latest blog post from Niyah Campbell, University of Birmingham. Read it here: intppinetwork.wixsite.com/ippin/post/r...
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International Patient and Public Involvement Network @ippin.bsky.social · 05/05/2026
Join us for our next free webinar - Patient and Public Involvement in Research in Brazil. 2:30pm UK on Thursday 4th June. Register here: zoom.us/webinar/regi...
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International Patient and Public Involvement Network @ippin.bsky.social · 28/04/2026
'The Rise of the "Expert by Experience"' - as we celebrate reaching 500 members, our latest blog post reflects on a 'decade of global PPI evolution.' Read it here: intppinetwork.wixsite.com/ippin/post/t...
intppinetwork.wixsite.com
The Rise of the "Expert by Experience": A Decade of Global PPI Evolution
As we celebrate reaching 500 members, we reflect on a decade of global PPI evolution.
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International Patient and Public Involvement Network @ippin.bsky.social · 21/04/2026
Collaboration is key, relationships matter At the forefront of the growth of PPI in Ireland. Claire Riordan and Edel Murphy share the three ideas they've learned to live by when it comes to PPI planning! Read it here: intppinetwork.wixsite.com/ippin/post/c...
intppinetwork.wixsite.com
Collaboration is key, relationships matter
Claire Riordan and Edel Murphy share the three ideas they've learned to live by when it comes to PPI planning
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International Patient and Public Involvement Network @ippin.bsky.social · 16/03/2026
To stay up to date with our latest webinars and international events, as well as gain access to exclusive member benefits, join the International PPI Network today. Membership is completely free! intppinetwork.wixsite.com/ippin/member...
intppinetwork.wixsite.com
Membership | International PPI Network
Find out more about how to become a member of the International PPI Network.
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International Patient and Public Involvement Network @ippin.bsky.social · 10/03/2026
Inclusive communication recognises that human beings use many ways of understanding and expressing themselves. Izy Utley tells us more about #inclusivecommunication in our latest IPPIN blog post: intppinetwork.wixsite.com/ippin/post/i...
intppinetwork.wixsite.com
Inclusive Communication in PPI
Written by Izy Utley - Speech and Language Therapist, Research Fellow and Doctoral Research Student.Up to 14 million people in the UK (20% of the population) will experience communication difficulty a...
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International Patient and Public Involvement Network @ippin.bsky.social · 09/02/2026
Did you know membership of the International PPI Network is completely free? To find out more and join today click here: intppinetwork.wixsite.com/ippin/member...
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International Patient and Public Involvement Network @ippin.bsky.social · 05/02/2026
There is still time to book your place for this afternoon's webinar - Patient and Public Involvement in Research in Ireland. Register here - zoom.us/webinar/regi...
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International Patient and Public Involvement Network @ippin.bsky.social · 02/02/2026
There are still spaces available for our next webinar. You can register to attend here: zoom.us/webinar/regi...
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International Patient and Public Involvement Network @ippin.bsky.social · 13/01/2026
Join us for our next webinar - 'Patient and Public Involvement in Research in Ireland' with Claire Riordan and Edel Murphy. Register here: zoom.us/webinar/regi...
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International Patient and Public Involvement Network @ippin.bsky.social · 27/10/2025
How do you see AI fitting into the future of PPI storytelling? And what safeguards or opportunities do you think matter most? Read the latest IPPIN blog post from Patrick Toland - 'Patient Voices in the Age of AI: Opportunity or Visibility Theft?' intppinetwork.wixsite.com/ippin/post/p...
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International Patient and Public Involvement Network @ippin.bsky.social · 23/10/2025
Join us for our next webinar! On the 8th December Silke Lipinksi and Isabel Dziobel explain how they created the PPI structure for the German Centre for Mental Health (DZPG). Register here: t.co/QhlqLjHYY7
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International Patient and Public Involvement Network @ippin.bsky.social · 20/10/2025
The presentation and Q&A from our webinar on Citizen Science with Sarah Ahannach are now available to watch again on our website: t.co/YG6zYkVSJJ
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International Patient and Public Involvement Network @ippin.bsky.social · 22/09/2025
Registration is still open for our next webinar! Sarah Ahannach shares her experiences from the Isala project - one of the world's largest citizen science projects addressing women's health. Register here: zoom.us/webinar/regi...
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International Patient and Public Involvement Network @ippin.bsky.social · 09/09/2025
The presentation and Q&A for last weeks webinar on Measuring the Impact of PPI in Research are now available to watch again on our website. intppinetwork.wixsite.com/ippin/webina...
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International Patient and Public Involvement Network @ippin.bsky.social · 04/09/2025
Join us for our next webinar! Sarah Ahannach shares her experiences from the Isala project - one of the world's largest citizen science projects addressing women's health. Register here: zoom.us/webinar/regi...
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International Patient and Public Involvement Network @ippin.bsky.social · 07/08/2025
How do we assess the impact of #patientandpublicinvolvement in research? Jennifer Mohammadi & Sophie Scott-Thorburn explain how the use of reflective sessions to assess impact can improve PPI practices. Register at: zoom.us/webinar/regi...
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International Patient and Public Involvement Network @ippin.bsky.social · 02/07/2025
ntu.wd3.myworkdayjobs.com/Careers/job/...
ntu.wd3.myworkdayjobs.com
Research Fellow, Patient and Public Involvement and Engagement (PPIE) [LKCMedicine]
The Lee Kong Chian School of Medicine (LKCMedicine) trains doctors who put patients at the centre of their exemplary care. The School, which offers both undergraduate and graduate programmes, is named...
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The People's Review @thepeoplesreview.ie · 22/04/2025
🚀 THE PEOPLE'S REVIEW IS OPEN NOW 🚀 We are excited to launch Stage 1 of #ThePeoplesReview ✅Open to people worldwide ✅Everything takes place online ✅Make a difference in health research ✅Learn about systematic reviews Join now ➡️ buff.ly/WAnKUYa
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Patients Association @patients-association.org.uk · 10/03/2025
🎉 Celebrating 3 years of the @hralatest.bsky.social Shared Commitment to Public Involvement! We hear from 1000s of patients every year and their voices shape real change in healthcare. Our 6 principles can help other orgs do the same. Learn more: buff.ly/5Pf97bX #SharedCommitment #PublicInvolvement
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Health Research Authority @hralatest.bsky.social · 10/03/2025
To mark the third anniversary of our #SharedCommitment to #PublicInvolvement, Matt Westmore, HRA Chief Executive, has written about our public involvement highlights from the past year ➡️https://www.hra.nhs.uk/about-us/news-updates/blog-celebrating-the-third-anniversary-of-our-shared-commitment/
It says, 'Celebrating the third anniversary of the Shared Commitment to Public Involvement.' An image of a cupcake with a number 3 shaped candle is left.
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MediPaCe @medipace.bsky.social · 24/02/2025
We take our membership of the Shared Commitment to Patient Involvement very seriously. Jenny Royle, our lovely Strategic Lead shares our pledges www.youtube.com/watch?si=juW... #SharedCommitment #patientinvolvement #socialresearch
youtube.com
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NIHR Applied Research Collaboration North East & North Cumbria @arcnenc.bsky.social · 10/03/2025
Our public partners Cheryl and Irene are marking the 3rd anniversary of the HRA #SharedCommitment to #PublicInvolvement by sharing their research participation stories & discussing why #PublicInvolvement is so important to them. Read the blog ⬇️ tinyurl.com/SC25Blog
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Academy of Medical Sciences @acmedsci.bsky.social · 10/03/2025
Our #SharedCommitment to #PublicInvolvement in health and social care research is three today! 🥳 Hear from our Director of Comms & Engagement, Nick Hillier, speak with Research Unravelled on how we engage patient & carer voices in research. 👉 ow.ly/e5u050VbF7R @hralatest.bsky.social
ow.ly
Nick Hillier | The Academy of Medical Sciences - Research Unravelled
Peter Barker chats with Nick Hillier - Director of Comms and Engagement at the Academy of Medical Sciences - about patient and public involvement.
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NIHR School for Primary Care Research (SPCR) @nihrspcr.bsky.social · 10/03/2025
Today marks 3 years of the #SharedCommitment to Public Involvement! As recent signatories, we’ve written a blog reflecting on our achievements, progress, & future goals for #PPIE within the SPCR and health & care research! Read it here: bit.ly/4kAIEqS @hralatest.bsky.social @nihr.bsky.social
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International Patient and Public Involvement Network @ippin.bsky.social · 10/03/2025
Today marks the 3rd anniversary of the #SharedCommitment to Public Involvement in Health and Social Care Research. We, and the many other organisations that have signed up, continue in our commitment to bring about changes that will improve the practice of PPI in health and social care research.
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The McPin Foundation @mcpinfoundation.bsky.social · 10/03/2025
We’re a partner with other leading orgs on the #SharedCommitment to Public Involvement initiative, which turns 3 today!🎈 @vanessapinfold.bsky.social shares why it's important work, helping drive up standards in health & social care research 👉 bit.ly/4hnVTs6 @nihr.bsky.social @hralatest.bsky.social
celebrating the third anniversary of the shared commitment to public involvement
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Louca-Mai Brady @louca-mai.bsky.social · 06/03/2025
Great to see @ippin.bsky.social on here. Added to the #PPI starter pack (see below). It's almost at capacity so if you work in #PublicInvolvement and/or #CoProduction in health & care research and would like to be added let me know soon. When it's full someone else will need to start a new one!
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Gary Hickey @arsenalgary.bsky.social · 10/03/2025
www.linkedin.com/posts/nihr-r...
linkedin.com
NIHR (National Institute for Health and Care Research) on LinkedIn: We've just released episode 1 of our new podcast series - Spotlight on…
We've just released episode 1 of our new podcast series - Spotlight on community engagement and involvement (CEI): Leaving no one behind. Each episode, guests…
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Health Innovation West Midlands @healthinnovwm.bsky.social · 04/11/2024
Patient and Public Involvement and Engagement in Med Tech Tue 12 Nov 2024, 9am - 12:30pm Join this event to understand the importance of #PPIE throughout the #medtech development cycle. Book your tickets here: lnkd.in/ePXGWTa3 Sponsored by the WMHTIA in collaboration with Medilink Midlands.
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Torie Robinson @torierobinson.bsky.social · 23/01/2025
Podcast!! 🎙️📹 Having patients involved in #epilepsy research is fantastic - if done well! How can Public Patient Involvement impact qualitative research? And, how is this is benefit to quantitative research?! Hear all about it from research fellow Georgia Cook 🤩! Watch/listen, via links 👇🏻!
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Coeliac UK @coeliacuk.bsky.social · 17/12/2024
(2/2)The research team is looking for people diagnosed with coeliac disease or parents or carers of children with coeliac disease to join a Patient and Public Involvement and Engagement (PPIE) panel. Find out more: ​ www.coeliac.org.uk/research/our... #CoeliacDisease #CoeliacUK #Coeliac
coeliac.org.uk
Recruiting for research
Get involved with research into coeliac disease and the affects of gluten by helping with research projects.
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Dr. K Gow @kgjura.bsky.social · 06/01/2025
Researchers at Aberdeen Uni are looking for ppl in rural & island Scotland to help shape research into healthcare provision for specific medical conditions. Check out the link for more info on the project & how to get involved. www.abdn.ac.uk/iahs/academi... #RuralHealth #IslandHealth
Do you want to help shape research into how and why health and healthcare for people living in different types of rural communities differs from those living in urban areas?

Researchers are looking for people who live in rural and island communities in Scotland and who 

a) live with or have experienced cancer or a long-term rheumatic or musculoskeletal condition, 
or 
b) are over the age of 65 and have been hospitalized at least twice in the past two years, 

to be part of the Patient and Public Involvement and Engagement group for the BRUCES research project.
Group members will be compensated for their time.

https://bit.ly/BRUCESPPI
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