iiinova — where your digital self keeps evolving

I do not have the capacity to deal with daylight savings can we just not?

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Young folk have decided they want to come down and will be arriving tomorrow evening. One nice thing about having adult kids is this feels like spreading the load more than it does having more people to support.

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Just had someone in checking end-of-life preferences like if there are religious/cultural needs, and whether we want to be called immediately if she passes overnight. Confronting, but a good conversation to have and done in a very caring but matter-of-fact manner.

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Mum’s maybe a bit less aware than yesterday, but not much different. Had a chat with the nurse who emphasised that there’s no predicting how long things will take. That said lunchtime sandwiches seem to have been organised for us for at least the next couple of days.

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Have had a long hot shower. The rest of the evening’s plans involve pjs, takeaways, wine, Star Trek, and as many little treats as I can lay my hands on.

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We’ve left Mum now (I have to pick up a prescription while the pharmacy is still open). When I kissed her goodbye I stroked her hair and she lifted up her hand and stroked mine too

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This feels like a great premise for a picture book (of the weird conceptual variety).

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One of the nurses came in to get my consent as EPoA for Mum to have subcutaneous comfort meds, which I think is a very good idea (she seems comfortable at the moment and all I want is for things to stay that way)

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Hungrymama @hungrymama.bsky.social · 24/09/2026

Back at Mum’s after going home in the early evening yesterday. She’s awake and quite smiley this morning. Her lovely carer is finding us some sandwiches so we don’t have to hunt and gather our own lunch.

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We’re at Mum’s for the afternoon (at least) after getting a message that she’s deteriorating. She’s tucked up in bed and is asleep now, but was awake when we arrived. We played her the Niko Ne Zna slot on Radio Active from a few weeks back, which she seemed to like.

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Reposted by Hungrymama

Make it Easy | Kia Māmā Mai @makeiteasy.bsky.social · 24/09/2026

We love seeing these Electoral Commission Easy Read guides in the wild! The deadline to enrol is Sunday 25 October so if you have not enrolled yet, do so today. You can find information about enrolling and voting in Easy Read and other accessible formats at: tinyurl.com/mr2nwjym

People First Life Member David Corner is standing up and smiling at the camera. He is holding up two Easy Read guides about the upcoming 2026 General Election. One guide is called, "Get ready to enrol and vote in the 2026 General Election: The Easy Read guide to enrolling and voting" and the other guide is called, "Information about the Māori Electoral Option – Te Kōwhiringa Pōti Māori: Quick Guide".

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Hungrymama @hungrymama.bsky.social · 23/09/2026

In case you were in any doubt about where I stand, today NZ Post has delivered me a copy of Dirty Work and a pair of Green Party undergruts.

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Hungrymama @hungrymama.bsky.social · 23/09/2026

Arrived to see Mim at 6pm and she was already being got ready for bed. We sat with her for a bit but she really just seemed to want to be left to sleep. We should be able to go in earlier tomorrow and I’ll take something quiet to do in case i feel the need to settle in.

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Hungrymama @hungrymama.bsky.social · 22/09/2026

I have officially taken a break from work. I’ve only been managing an hour or two a day and even that has been exhausting. I’ll miss having something positive to focus on, but Mum and my health need to come first.

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Hungrymama @hungrymama.bsky.social · 21/09/2026

Mum barely opened her eyes this afternoon. I spent an hour doing a story time of favourite picture books of long ago: The Giant Jam Sandwich, Meal One, The Man Whose Mother was a Pirate, assorted Frog and Toad, Avocado Baby…

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Hungrymama @hungrymama.bsky.social · 20/09/2026

Someone spent the night using me as a launchpad for his zoomies.

A black cat lying on a bed and looking utterly unrepentant

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Hungrymama @hungrymama.bsky.social · 20/09/2026

Going through a box of books, trying to recreate a library story hour for Mum tomorrow and I find this picture drawn by me aged, according to the note on the back, 5 1/2. Mum and I are in the bath and Dad is bringing us drinks (we had a tiny hot water tank so shared baths were the norm)

A child’s drawing in green ballpoint pen on lined paper. It shows three simple figures and beneath the words “Mummy Mother have a bath as often as you can”

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Hungrymama @hungrymama.bsky.social · 19/09/2026

Mum was a bit tireder and less present today, but still seemed pleased to see us. We watched a couple of episodes of The Muppets with her. The Twiggy episode has a Beatles song and an AA Milne poem - which is a lot of cultural touch points in under 30 mins.

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Hungrymama @hungrymama.bsky.social · 18/09/2026

Thinking way ahead, but this Christmas is likely to be: 1)Sucky 2)Without many commitment. Seriously considering running away and/or outsourcing everything. Would love to hear any ideas/experiences for low effort non-traditional ways 2-4 adults could spend the season.

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Hungrymama @hungrymama.bsky.social · 17/09/2026

Is most definitely friend-shaped

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Hungrymama @hungrymama.bsky.social · 17/09/2026

Today I took The Second Margaret Mahy Story Book round to Mum’s and managed to read both her and J to sleep

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Hungrymama @hungrymama.bsky.social · 16/09/2026

An excellent yarn - both funny and moving

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Hungrymama @hungrymama.bsky.social · 16/09/2026

My GP just switched from Manage My Health to a different portal. They closed down MMH a week before the new portal opened, and now when I try to sign into the new portal it says it doesn’t yet work on IOS. It all seems a bit chaotic.

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Hungrymama @hungrymama.bsky.social · 16/09/2026

When I pick Pekapeka up, he leans his head into my shoulder and rubs it around. Then, because he is aptly named, he tries to turn in my arms so his head is down and his tail is up. It is both very sweet and quite ridiculous.

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Hungrymama @hungrymama.bsky.social · 15/09/2026

I’m super tired today and considering not going to see Mum today. I’m really aware that both the extra activity and emotional upheaval leave me at risk for a flare. I’m figuring a crash into my plans, but would like to hold it off until I’ve done all the things I need to do. Thus pacing myself.

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Hungrymama @hungrymama.bsky.social · 15/09/2026

Kids on a plane. Am glad they both have flatmates to pick them up from the airport, and live in the sort of flats where people give a shit about each other. Am about to be on the sofa drowning my sorrows in a VERY large cup of tea.

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Hungrymama @hungrymama.bsky.social · 15/09/2026

Young folks’ last day for this visit. We spent a good chunk of the afternoon with Mum. I read her a lot of T.S Eliot and got a bit choked up in The Journey of the Magi. For a bit Mum seemed to be pointing and trying to say something, but then she drifted off again.

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It’s J’s birthday on Sunday and I am desperately hoping that’s not the day Mum chooses. J doesn’t get particularly hung up on anniversaries, but I do and I really don’t want to be miserable for all his future birthdays.

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The thing blocking the robovac’s bin today was a Christmas gift label. I’m pretty sure it wasn’t even from last Christmas. I freely acknowledge we are not tidy people, but seriously?

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Only a quick visit with Mum today as J worked a full 9-5 first. She was sleepy, but opened her eyes and smiled at us a few times. It’s such a strange and sad time, but there’s beauty too.

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