iiinova — where your digital self keeps evolving

Education @ Edinburgh CRF @eduedinburghcrf.bsky.social · 03/10/2025

Reposted by Andrew Horne

Registration for this year’s 11th #Edinburgh #Clinical Research Methodology Course #ECRMC26 is now open! Join us in Edinburgh on the 11 & 12 May 2026 and sign up at edin.ac/4mH4Y29 @edinburghaccord.bsky.social @horne-research.bsky.social @susanshenkin.bsky.social

034

Reposted by Andrew Horne

ENDO1000 @endo1000.bsky.social · 30/09/2025

When did you last have to plan months ahead for work? ☝️ More of our ambassadors, Ffion, Lynsey and Rebecca, have shared their workspace stories. Starting a conversation can make a difference. It's time to #TALKEndo.

A photo of Ffion in rugby uniform

TEXT: "Considering its my job to excessively exercise everyday, I become so anxious as I have to mentally prepare myself in case I flare.

Also, majority of our staff
are men, who do not have
an understanding of female
health, let alone
endometriosis, so it is
difficult to manage it
during training and
manage people's
perceptions. "

A photo of Lyndsey

TEXT: "I’ve missed days of school and university due to pain for as long as I can remember. It got to the point I was probably unemployable and possibly wouldn’t be able to hold down a job.

I was unreliable,
I was throwing up
at work, and I
couldn’t
concentrate.
I don’t know
how I’ve made
it through
the day
sometimes."

A photo of Rebecca

TEXT: "It has directly caused me to change careers, as I am unable to work long hours on my feet as a chef anymore.

Symptoms and flare-ups are so unpredictable. You have to think 3 steps ahead, like not taking a role that will involve
extensive travel,
even if you feel
well when you
apply, because
in 6 months
you might
not be able
to walk or
travel."

032

Andrew Horne @horne-research.bsky.social · 27/09/2025

Delighted to launch our CRH 5-year strategy at such an inspiring Away Day. The energy & ideas from our colleagues highlight just how much we can achieve together. Congratulations to Emily Walshe for an excellent PhD flash talk, & thank you to all who contributed to making the day such a success.

040

Reposted by Andrew Horne

ENDO1000 @endo1000.bsky.social · 16/09/2025

#Endometriosis doesn't just affect personal life. Here are some of our ambassadors, Candice, Phoebe and Neroli, talking about their journeys through work and education. It isn't just work, it's a challenge, which is why we need to #TALKEndo - it can end careers.

A photo of ambassador Candice.
TEXT: "Endometriosis has clipped my professional wings, it's impaired my career growth, interfered with professional relationships in the
workplace."

A photo of ambassador Phoebe.
TEXT: "Suffering from Endometriosis as a working woman can force you to leave/miss work.

Due to a lack of
research and visibility
around Endometriosis,
in the past I have had to
constantly defend that
my disability is more
than just your
average period
pain."

A photo of Neroli.
TEXT: "Endometriosis has impacted me severely with my symptoms causing me to miss a significant amount of school each month,and any aspirations I had for a dance career had to be reconsidered as I wasn’t able to keep up with the rigorous schedule and demands of my dance academy."

ENDO1000 @endo1000.bsky.social · 08/09/2025

Reposted by Andrew Horne

What does an ideal #endometriosis diagnosis look like, and what can we do now? ✍️ At the end of August we joined Lucy Whittaker, Nicola Boydell and Marie Larsson for the 'Diagnostic Futures in Endometriosis' workshop. A huge thank you to everyone who gave their time to this event! ❤️

Reproduction and Fertility @repro-fertility.bsky.social · 27/08/2025

Reposted by Andrew Horne

📢Introducing the official Bluesky account for Reproduction and Fertility. We publish research and reviews on basic, translational and clinical #reproduction and #fertility, across all animals, including humans. Follow us for research highlights, journal news, and opportunities to get involved!

ENDO1000 @endo1000.bsky.social · 14/08/2025

Reposted by Andrew Horne

Need something to read in the sunshine this weekend? How about taking a look at these 3 books about women's health? ☀️🩸 Which of these are you picking up? 👇

Institute for Regeneration and Repair @edinuni-irr.bsky.social · 07/08/2025

Reposted by Andrew Horne

📣Job Opportunity: The opportunity has arisen for an innovative obstetric doctor with a passion for increasing global access to high quality intrapartum care to join the I3P team, working within the Centre for Reproductive Health. More info: edin.ac/3J67PU2

Job
Clinical Research Fellow
Obstetrics CRH closing 20th August 2025

012

Reposted by Andrew Horne

ENDO1000 @endo1000.bsky.social · 01/08/2025

What is the ideal future of endometriosis diagnosis? You can take part in this creative and interactive workshop, ran by the EXPPECT research team. Link in our bio to sign up ✍️

Diagnostic futures in endometriosis workshop
28 Aug 10-3pm Edinburgh futures institute 1 Lauriston Pl, Edinburgh

About the event:
The session will bring together a diverse group of stakeholders to explore how the diagnostic process is currently experienced and imagined, and to collectively envision more desireable diagnostic futures for endometriosis.

This workshop will contribute to ongoing work to centre lived experience in innovation and improvement within reproductive health and diagnostic care.

ENDO1000 @endo1000.bsky.social · 23/07/2025

Reposted by Andrew Horne

Did you catch our ambassador Rajini Vaidyanathan on BBC Radio 2 talking about her experience with endometriosis? We were delighted for the shout out and hope that the open conversation educates and raises awareness for endometriosis💛 You can catch up on the conversation now on BBC sounds!

ENDO1000 @endo1000.bsky.social · 20/07/2025

Reposted by Andrew Horne

ENDO1000 supporters come in all shapes and sizes 🐾 Want to make our day paw-fect? You can pop us a little donation at the link in our bio. Every penny will help us recruit more participants for our research into #endometriosis 🩸

A small spaniel licks the inside of an ENDO1000 branded reusable coffee cup

A small spaniel bite the side of an ENDO1000 branded reusable coffee cup

ENDO1000 @endo1000.bsky.social · 16/07/2025

Reposted by Andrew Horne

Have you got your tickets yet? 🎟️

Institute for Regeneration and Repair @edinuni-irr.bsky.social · 08/07/2025

Reposted by Andrew Horne

Looking for shows this festival season? Comedian Jessica Knappett is collaborating with IRR's @endo1000.bsky.social and performing a live recording of her podcast Perfect Day on Tues 19 Aug! All ticket sales support our endometriosis research. Get yours today: www.eventbrite.co.uk/e/perfect-da...

eventbrite.co.uk

Perfect Day LIVE with Jessica Knappett and ENDO1000 featuring special guest

Join star of Taskmaster and Drifters, Jessica Knappett, for a LIVE episode of Perfect Day podcast featuring a special guest.

ENDO1000 @endo1000.bsky.social · 09/07/2025

Reposted by Andrew Horne

Welcome to our new series 'What's that?' Wednesday! Every Wednesday we're going to #TALKendo by answering and de-mystifying questions you might have about endometriosis. First up, what are the three different types of #endometriosis?

Text: What are the different types of endometriosis? Wait... there's more than one?

Text: Peritoneal endometriosis is mainly found in the pelvis, and surrounds the pelvic organs like
the uterus and bladder

Text: Ovarian endometriosis is when you find endometriosis cysts on the ovaries, this is most commonly where you find 'chocolate cysts' (aka endometrioma)

Text: Deep infiltrating endometriosis just like peritoneal endometriosis, but is embedded deeper

It is usually found in organs around the pelvis

This can sometimes cause a lot of scar tissue and adhesions

Andrew Horne @horne-research.bsky.social · 08/07/2025

Congratulations to CRH PhD student Heather Flanagan, who graduated from University of Edinburgh!Her thesis — “Why do ectopic pregnancies happen?” — tackles a key question in reproductive biology. Proud to have supervised her with Norah Spears @edinuni-irr.bsky.social @edinburghmedschool.bsky.social

070

Reposted by Andrew Horne

ENDO1000 @endo1000.bsky.social · 07/07/2025

Our Co-Director Andrew Horne recently visited Professor René Wenzl at the University of Vienna, delivering a lecture on innovative approaches to managing endometriosis as part of his Adjunct Professor appointment. 🤝

ENDO1000 @endo1000.bsky.social · 30/06/2025

Reposted by Andrew Horne

We’re so excited to announce that we are collaborating with Jessica Knappett for her live recording of the Perfect Day podcast, and you can get tickets RIGHT NOW from the link in our bio 🎟️ Join Jessica and her special guest at this live recording, with all ticket sales supporting ENDO1000.🩸

The cover image of the Perfect Day podcast. It is a bright blue background with a photo of Jessica in the middle and 'Perfect Day' in pink.

On a bright blue background in pink wording the text reads: Live podcast with special guest. Tue 19 Aug, 3.30pm, St Cecilia's Hall in support of ENDO1000'

ENDO1000 @endo1000.bsky.social · 06/06/2025

Reposted by Andrew Horne

Ever had people ask 'what is endometriosis anyway?' because we definitely have! 🩸 We're hear to #TALKendo and breakdown a bit more about endometriosis and why we're researching it. If you want to read more about endometriosis, or our project, head over to our website (link in bio)

ENDO1000 @endo1000.bsky.social · 10/06/2025

Reposted by Andrew Horne

We thought we should probably re-introduce ourselves 👋 We're ENDO1000, and here is a run down of who we are and what we want to do. You can always find more information about what stage the project is in on our website, or follow us if you haven't already to keep up to date!

Text: The objective of the ENDO1000 project is to accelerate discovery and advance data driven research into endometriosis diagnosis and treatment.

Text: Ok, so what is ENDO1000?

The background is navy with red silhouettes of women.

Text: A UK-wide research project that will recruit and collect data from 1000 participants with known or suspected endometriosis and, with their permission, use tools to track their disease and health metrics over a two year period.

Text: The collated data will allow research into the development of personalised care for women with endometriosis - transforming the lives of millions

There is a red silhouette of a woman walking

012

Reposted by Andrew Horne

ENDO1000 @endo1000.bsky.social · 16/06/2025

Meet the ENDO1000 team! Doug Gibson, Lead in Discover Science, explains what is happening in some of our research behind the scenes 🔬 Interested in staying up to date with research like this? Sign up to our mailing list and keep an eye on our website (links in our bio!)

032

Reposted by Andrew Horne

ENDO1000 @endo1000.bsky.social · 20/06/2025

Did you know we have a newsletter? 📨 If you want all your updates in one place (and exclusive first-looks at things we have coming up) make sure to head to our website and sign up (link in our bio)! Our first edition is coming soon.

ENDO1000 @endo1000.bsky.social · 26/06/2025

Reposted by Andrew Horne

Did you know we take donations big and small? The price of your morning takeaway drink could make all the difference! Those regular, small donations are helping us to reach our target. Find out more about how to donate at the link in our bio ❤️

Andrew Horne @horne-research.bsky.social · 26/05/2025

What a day! Incredible energy & inspiring conversations at the #wce2025 joint WES/WERF #Endometriosis Interdisciplinary Research Directions Workshop. So much momentum - and so much important work ahead

1103

Andrew Horne @horne-research.bsky.social · 24/05/2025

Excellent talk from @meaghangriff.bsky.social from Centre for Reproductive Health at University of Edinburgh at #wce2025 presenting her work exploring the biological mechanisms behind endometriosis-associated infertility @edinuni-irr.bsky.social

0154

Andrew Horne @horne-research.bsky.social · 23/05/2025

Fantastic talk from Dr Lucy Whitaker from Centre for Reproductive Health at University of Edinburgh at #wce2025 presenting work from our PhD student Katherine Edgley on the use of wearable technology in #endometriosis @edinuni-irr.bsky.social @endo1000.bsky.social

252

Andrew Horne @horne-research.bsky.social · 22/05/2025

Wonderful talk at #wce2025 from Dr Doug Gibson presenting his exciting work showing that women with endometriosis have a unique hormone signature that could be used as a potential novel non-invasive diagnostic test for endometriosis! @edinuni-irr.bsky.social

2192

Andrew Horne @horne-research.bsky.social · 22/05/2025

Amazing talk from Frankie Hearn-Yeates from Centre for Reproductive Health at University of Edinburgh showing that fatigue in #endometriosis is associated with changes in the gut microbiome and metabolome! @edinuni-irr.bsky.social

1105

Reposted by Andrew Horne

ENDO1000 @endo1000.bsky.social · 20/05/2025

When co-head, Andrew Horne, took to the stage he shared the importance behind our project, and the disparity of research in to women's health. We have already made an amazing amount of progress, but we still need your support. Find out more at www.endo1000.com/...

A photo of Andrew stood at the podium with a microphone, his name is on the board behind him.
Text: It takes on average 8 to 10 years in the UK for someone to receive a diagnosis. During that time, many are told their pain is ‘just part of being a woman’, or that it’s in their head.

121

Andrew Horne @horne-research.bsky.social · 16/05/2025

We show #endometriosis treatments are failing to address fatigue, a key quality-of-life issue 🔹 2,907 responses 🔹 54% say GnRH agonists worsened fatigue 🔹 Most treatments showed little benefit 📄 Read the research: raf.bioscientifica.com/view/journal... @endo1000.bsky.social @edinuni-irr.bsky.social

082

Andrew Horne @horne-research.bsky.social · 09/05/2025

🌟 SHROxEd - Congratulations to all presenters at 1st joint Edinburgh/Oxford Reproductive Health Postgraduate Symposium! 🌟 A day of fascinating research & standout presentations. Excited to see how this work shapes the future of reproductive health. #ReproductiveHealth @edinuni-irr.bsky.social

062

Reposted by Andrew Horne

ENDO1000 @endo1000.bsky.social · 08/05/2025

What a night! With £22,000 raised at our charity dinner, we can now recruit another 22 participants to our life-changing research. A HUGE thank you to everyone who bought tables, donated prizes, and bid at the auction, particularly @lloydsbankinggroup Donate at eendo1000.com/...

Andrew Horne @horne-research.bsky.social · 06/05/2025

NEW RESEARCH We used smartwatches to track daily symptoms in people with #Endometriosis 📉 More fatigue = less movement 💤 Severe symptoms = worse sleep + rhythm 🔁 Surgery effects showed up in both symptoms & wearable data @exppect @ENDO1000project pmc.ncbi.nlm.nih.gov/articles/PMC...

031

Andrew Horne @horne-research.bsky.social · 06/05/2025

A thoughtful gift from PhD student Kexin Dong — pandas and bamboo symbolising progress in our endometriosis research at EXPPECT Edinburgh. Grateful for this kind gesture and inspired by the path ahead. 🐼🎋 #EndometriosisResearch #EXPPECT #TeamScience #ENDO1000

000

Reposted by Andrew Horne

JAMA @jama.com · 05/05/2025

#Endometriosis is a common cause of pelvic pain affecting approximately 10% of reproductive-age women. This narrative review summarizes the epidemiology, pathophysiology, diagnosis, and treatment of endometriosis. #MedSky ja.ma/3RRLzOW

Figure 2. Pathophysiology and Pain Mechanisms in Endometriosis-Associated Pelvic Pain

24015

Reposted by Andrew Horne

Institute for Regeneration and Repair @edinuni-irr.bsky.social · 17/04/2025

Hilary Critchley, from our Centre for Reproductive Health, was keynote speaker at an international symposium on menstrual health at MIT this week. Read The Tech's article for more about the event and where experts think the focuses in the field should be: thetech.com/2025/04/17/m...

thetech.com

Menstruation science moonshot: MIT’s bold quest to revolutionize women’s health | The Tech

Linda Griffith: “We want to create an international movement that helps us bring a lot of great science and engineering into the study of menstruation.”

ENDO1000 @endo1000.bsky.social · 16/04/2025

Reposted by Andrew Horne

Meet the team! Say hello to Thanasis, lead for digital health 👋 Thanasis is working on the data collection for ENDO1000, including our custom app and smartwatches. Head to our website for more info about the team and sign up to our mailing list! #womenshealth #talkendo#endometriosis

ENDO1000 @endo1000.bsky.social · 09/04/2025

Reposted by Andrew Horne

Do you have endometriosis or suspected endometriosis? Take part in our research that explores the prevalence of brain fog in people with endometriosis 🧠 Complete the 15-20 minute survey at the following link: crh-redcap.igmm.ed.ac.uk/surveys/?s=E...

ENDO1000 @endo1000.bsky.social · 07/04/2025

Reposted by Andrew Horne

Research from the EXPPECT team at @edinuni-irr.bsky.social: A survey of over 2500 individuals has indicated multiple dietary modifications, including reducing alcohol and caffeine, may have a positive effect on pain. As featured in @theguardian.com on Saturday www.theguardian.com/society/2025...

theguardian.com

Major endometriosis study reveals impact of gluten, coffee, dairy and alcohol

Edinburgh University report authors say dietary changes could benefit women living with the disease

p-saunder.bsky.social @p-saunder.bsky.social · 05/04/2025

Reposted by Andrew Horne

Major endometriosis study reveals impact of gluten, coffee, dairy and alcohol. @endo1000.bsky.social @horne-research.bsky.social @uoe-sps.bsky.social

p-saunder.bsky.social @p-saunder.bsky.social · 01/04/2025

Reposted by Andrew Horne

This survey study examines which dietary modifications or supplements were perceived as beneficial for pain management by individuals with endometriosis. #rndometriosis. Delighted to share our latest findings. @endo1000.bsky.social @horne-research.bsky.social