Why do a #NaturalHistoryStudy? 1.) Build more knowledge about ULD 2.) Build the foundation for successful clinical trials. 3.) Learn what meds, interventions, and support are most helpful. #unverrichtlundborgdisease #genetherapy #raredisease #epm1
Hope for ULD is uniting patients, families, doctors, and researchers to fund research, treatment, and education for Unverricht-Lundborg Disease ( #ULD ), also known as #EPM1. Learn more here: www.hopeforuld.org #RareEpilepsy #genetherapy